2021-04-01-accounts

Trustees' Annual Report for the period

Period start date Period end date 02 april 2019 01 april 2020 From To

Section A Reference and administration details

Charity name British Dupuytren's Society Other names charity is known by Registered charity number (if any) 1176333 Charity's principal address 22 Wainfleet Close Winstanley Wigan Postcode WN3 6TG

Names of the charity trustees who manage the charity

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20	Trustee name	Office (if any)	Dates acted if not for whole year	Name of person (or body) entitled to appoint trustee (if any)
	Anna Schurer	Chair person and Dupuytren's Department
	Annemarie McNish	treasurer
	Gary Manley	Ledderhose Department
	Birgir Gislason	Peyronie's Department
	Prof David Ralph
	Dr John Glees
	Dr Richard Shaffer
	Prof Dominic Furniss
	Mr Henk Giele
	Mr George Flanagan

Names of the trustees for the charity, if any, (for example, any custodian trustees)

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Name

Dates acted if not for whole year

Names and addresses of advisers (Optional information)

Type of adviser	Name Address	Name Address	Name Address
massage and physiotherapy advisor	Stephen Jeffreys		Ealing massage Therapy; Rockingham Road, Oxbridge, London UB8 2TZ
Dupuytren's advisor	Mr Mike Hayton
Name of chief executive or names of senior staff members (Optional information)
Section B Structure, governance and management
Description of the charity’s trusts Type of governing document (eg. trust deed, constitution) Constitution How the charity is constituted (eg. trust, association, company) fCIO Trustee selection methods (eg. appointed by, elected by) Apppointed at AGM's or special meetings, invited by other trustees or volunteered after a public appeal Additional governance issues (Optional information) Youmay chooseto include additional information, where relevant, about:  policies and procedures adopted for the induction and training of trustees;  the charity’s organisational structure and any wider network with which the charity works;  relationship with any related parties;  trustees’ consideration of major risks and the system and procedures to manage them. All our trustees are either patients with one or more of the conditions we cover or healthcare professionals treating one or more of the conditions. We work closely with the International Dupuytren Society (we are a daughter organisation of this Society) and other Dupuytren charities around the world. We also have close relationships with researchers that are searching for the cause of the disease and better treatment or possibly a cure.
		All our trustees are either patients with one or more of the conditions we cover or healthcare professionals treating one or more of the conditions. We work closely with the International Dupuytren Society (we are a daughter organisation of this Society) and other Dupuytren charities around the world. We also have close relationships with researchers that are searching for the cause of the disease and better treatment or possibly a cure.

Section C Objectives and activities

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----- Start of picture text -----
To support patients, help them cope with their diagnosis and find the
treatment appropriate for them.
To support researchers and doctors running trials via PPI (Patient and
Summary of the objects of the
Public Involvement) meetings and by advising patients of ongoing trials
charity set out in its
so they can join if they want.
governing document
To disseminate research and trial finding to the wider community of
patients and doctors
Maintaining and updating our websites and blogs
Running Facebook groups and pages
Summary of the main Responding to email queries from patients doctors and researchers
activities undertaken for the Spreading information on trials and tests being done for which patients
public benefit in relation to with certain combinations of disease were needed in a certain area of the
these objects (include within world ("diathesis patients")
this section the statutory Recording and publishing webinars and videos with information on the
declaration that trustees have diseases and their treatments, and on ongoing research. Some of these
had regard to the guidance have over 1,000 views.
issued by the Charity We keep in touch with related charities worldwide and assist each other.
Commission on public
benefit) We confirm the trustees have had regard to the Charity Commission's
guidance on public benefit.
Additional details of objectives and activities (Optional information)
We do not award grants and neither do we have investments.
You may choose to include
further statements, where
We have volunteers doing fundraising for us, and now and then attending
relevant, about:
meeting around the country if our trustees are unable to attend, mainly
 policy on grantmaking; NICE scoping or appraisal meetings, PPI meetings with research teams,
training days for doctors. Those volunteers get travel expenses
 policy programme related
reimbursed if they so wish.
investment;
 contribution made by
volunteers.
Section D Achievements and performance
Summary of the main
We continued our involvement with two PPI teams and agreed to a third
achievements of the charity
as well.
during the year
The website was updated, repaired and moved to a professional host.
This was well worth spending money on.
We continued arranging webinars with doctors explaining the conditions
and possible treatments for patients (and other doctors)
A start was made with the planning of the 2020 Dupuytren Conference in
Oxford, to be hosted by our trustee Prof D Furniss.
As always patient queries were dealt with via email, Facebook and
Twitter
Section E Financial review
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	British Dupuytren's Society 1	British Dupuytren's Society 1	British Dupuytren's Society 1	British Dupuytren's Society 1	British Dupuytren's Society 1	CC16a
	For the period from		Period start date 02/04/1	To 9
Section A Receipts and	payments
A1 Receipts	Unrestricted funds to the nearest £		to the nearest £ Restricted funds	to the nearest £ Endowment funds	Total funds to the nearest £	Last year to the nearest £
donations	295		- -	- -	295 528	- -
fundraising	528
Sub total(Gross income for AR)	823		-	-	823	-
A2 Asset and investment sales, (see table).
	-		- -	- -	- -	-
	-
Sub total	-		-	-	-	-
			-	-	823	-
secretary	30		- - - - -	- - - - -	30 70 200 161 34	- - - - -
website	70
conference regiistration	200
IDS contribution	161
travel expenses	34
Sub total	494		-	-	494	-
			- -	- -	- -
			-	-	-	-
			-	-	494	-
	329		-	-	329	-
	-		- -	- -	- -	- -
	-
	329		-	-	329	-

CCXX R1 accounts (SS)

20/12/2020

1

-lion 6 Statemefjt of assets and liabilities at the end of the period .Sci*L4e vl-,