
## Trustees' Annual Report for the period 

Period start date Period end date 02 april 2019 01 april 2020 From To 

## Section A                        Reference and administration details 

Charity name British Dupuytren's Society Other names charity is known by Registered charity number (if any) 1176333 Charity's principal address 22 Wainfleet Close Winstanley Wigan Postcode WN3 6TG 

Names of the charity trustees who manage the charity 

|1<br>2<br>3<br>4<br>5<br>6<br>7<br>8<br>9<br>10<br>11<br>12<br>13<br>14<br>15<br>16<br>17<br>18<br>19<br>20|Trustee name|Office (if any)|Dates acted if not for whole<br>year|Name of person (or body) entitled<br>to appoint trustee (if any)|
|---|---|---|---|---|
||Anna Schurer|Chair person and<br>Dupuytren's<br>Department|||
||Annemarie McNish|treasurer|||
||Gary Manley|Ledderhose<br>Department|||
||Birgir Gislason|Peyronie's<br>Department|||
||Prof David Ralph||||
||Dr John Glees||||
||Dr Richard Shaffer||||
||Prof Dominic<br>Furniss||||
||Mr Henk Giele||||
||Mr George<br>Flanagan||||
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Names of the trustees for the charity, if any, (for example, any custodian trustees) 

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Name 

Dates acted if not for whole year 

## Names and addresses of advisers (Optional information) 

|Type of adviser|Name<br>Address|Name<br>Address|Name<br>Address|
|---|---|---|---|
|massage and<br>physiotherapy<br>advisor|Stephen Jeffreys||Ealing massage Therapy; Rockingham Road, Oxbridge,<br>London UB8 2TZ|
|Dupuytren's  advisor|Mr Mike Hayton|||
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|Name of chief executive or names of senior staff members (Optional information)||||
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|Section B              Structure, governance and management||||
|Description of the charity’s trusts<br>Type of governing document<br>(eg. trust deed, constitution)<br>Constitution<br>How the charity is constituted<br>(eg. trust, association, company)<br>fCIO<br>Trustee selection methods<br>(eg. appointed by, elected by)<br>Apppointed at AGM's or special meetings, invited by other trustees or<br>volunteered after a public appeal<br>Additional governance issues (Optional information)<br>Youmay chooseto include<br>additional information, where<br>relevant, about:<br><br>policies and procedures<br>adopted for the induction and<br>training of trustees;<br><br>the charity’s organisational<br>structure and any wider<br>network with which the charity<br>works;<br><br>relationship with any related<br>parties;<br><br>trustees’ consideration of<br>major risks and the system<br>and procedures to manage<br>them.<br>All our trustees are either patients with one or more of the conditions we<br>cover or healthcare professionals treating one or more of the conditions.<br>We work closely with the International Dupuytren Society (we are a<br>daughter organisation of this Society) and other Dupuytren charities<br>around the world.<br>We also have close relationships with researchers that are searching for<br>the cause of the disease and better treatment or possibly a cure.||||
|||All our trustees are either patients with one or more of the conditions we<br>cover or healthcare professionals treating one or more of the conditions.<br>We work closely with the International Dupuytren Society (we are a<br>daughter organisation of this Society) and other Dupuytren charities<br>around the world.<br>We also have close relationships with researchers that are searching for<br>the cause of the disease and better treatment or possibly a cure.||



Section C                    Objectives and activities 

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**----- Start of picture text -----**<br>
To support patients, help them cope with their diagnosis and find the<br>treatment appropriate for them.<br>To support researchers and doctors running trials via PPI (Patient and<br>Summary of the objects of the<br>Public Involvement) meetings and by advising patients of ongoing trials<br>charity set out in its<br>so they can join if they want.<br>governing document<br>To disseminate research and trial finding to the wider community of<br>patients and doctors<br>Maintaining and updating our websites and blogs<br>Running Facebook groups and pages<br>Summary of the main  Responding to email queries from patients doctors and researchers<br>activities undertaken for the  Spreading information on trials and tests being done for which patients<br>public benefit in relation to  with certain combinations of disease were needed in a certain area of the<br>these objects (include within  world ("diathesis patients")<br>this section the statutory  Recording and publishing webinars and videos with information on the<br>declaration that trustees have  diseases and their treatments, and on ongoing research. Some of these<br>had regard to the guidance  have over 1,000 views.<br>issued by the Charity  We keep in touch with related charities worldwide and assist each other.<br>Commission on public<br>benefit) We confirm the trustees have had regard to the Charity Commission's<br>guidance on public benefit.<br>Additional details of objectives and activities (Optional information)<br>We do not award grants and neither do we have investments.<br>You may choose to include<br>further statements, where<br>We have volunteers doing fundraising for us, and now and then attending<br>relevant, about:<br>meeting around the country if our trustees are unable to attend, mainly<br> policy on grantmaking; NICE scoping or appraisal meetings, PPI meetings with research teams,<br>training days for doctors. Those volunteers get travel expenses<br> policy programme related<br>reimbursed if they so wish.<br>investment;<br> contribution made by<br>volunteers.<br>Section D                      Achievements and performance<br>Summary of the main<br>We continued our involvement with two PPI teams and agreed to a third<br>achievements of the charity<br>as well.<br>during the year<br>The website was updated, repaired and moved to a professional host.<br>This was well worth spending money on.<br> We continued arranging webinars with doctors explaining the conditions<br>and possible treatments for patients (and other doctors)<br>A start was made with the planning of the 2020 Dupuytren Conference in<br>Oxford, to be hosted by our trustee Prof D Furniss.<br>As always patient queries were dealt with via email, Facebook and<br>Twitter<br>Section E                    Financial review<br>**----- End of picture text -----**<br>


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||British Dupuytren's Society<br>1|British Dupuytren's Society<br>1|British Dupuytren's Society<br>1|British Dupuytren's Society<br>1|British Dupuytren's Society<br>1|CC16a|
|---|---|---|---|---|---|---|
||For the period<br>from||Period start date<br>02/04/1|To<br>9|||
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|Section A Receipts and|payments||||||
|A1 Receipts|Unrestricted<br>funds<br>to the nearest      £||to the nearest £<br>Restricted<br>funds|to the nearest £<br>Endowment<br>funds|Total funds<br>to the nearest £|Last year<br>to the nearest £|
|donations|295||-<br>-|-<br>-|295<br>528|-<br>-|
|fundraising|528||||||
|Sub total(Gross income for AR)|823||-|-|823|-|
||||||||
|A2 Asset and investment sales,<br>(see table).|||||||
||-||-<br>-|-<br>-|-<br>-|-|
||-||||||
|Sub total|-||-|-|-|-|
||||||||
||||-|-|823|-|
||||||||
|secretary|30||-<br>-<br>-<br>-<br>-|-<br>-<br>-<br>-<br>-|30<br>70<br>200<br>161<br>34|-<br>-<br>-<br>-<br>-|
|website|70||||||
|conference regiistration|200||||||
|IDS contribution|161||||||
|travel expenses|34||||||
|Sub total|494||-|-|494|-|
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||||-<br>-|-<br>-|-<br>-||
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||||-|-|494|-|
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||329||-|-|329|-|
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||329||-|-|329|-|



CCXX R1 accounts (SS) 

20/12/2020 

1 



-lion 6 Statemefjt of assets and liabilities at the end of the period
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