OpenCharities

Fibrous Dysplasia Support Society

Fdssuk

Country
England & Wales
Charity number
1175622
Status
Registered
Reporting
Up to date Last filed Jan. 8, 2026. Filing history
Registered
Nov. 8, 2017
Legal form
Charitable company
Company number
10336269

Address

Address
82 Nottingham Road
Somercotes
Alfreton
Derbyshire
DE55 4LY

Activities

The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.

Objects: To Relieve Sickness And To Promote And Protect Good Health For The Public Benefit Of Those Diagnosed And Suffering From Fibrous Dysplasia And Mccune-Albright Syndrome (Including Associated Conditions) And Their Carers In Particular But Not Limited To The Following:-A)encouraging, Promoting And Assisting In A Better Understanding Of The Conditions And Possible Treatment Of Them;b)promote Increased Awareness Amongst Medical Professionals And Generally;andd)encourage Persons Meet Other Sufferers And To Share Their Experiences.

Classification

How
Provides Advocacy/advice/information
What
The Advancement Of Health Or Saving Of Lives
Who
People With Disabilities

Geography

Country
Scotland
Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
March 31, 2025 Jan. 8, 2026On time £14,123 £1,357
March 31, 2024 Jan. 3, 2025On time £2,092 £2,816
March 31, 2023 Dec. 29, 2023On time £1,451 £730
March 31, 2022 Dec. 23, 2022On time £8,618 £1,465
March 31, 2021 Dec. 29, 2021On time £6,078 £3,171

Trustees

Name Appointed
Dr Muhammad Kassim Javaid May 25, 2018
Heather Delaney Aug. 18, 2016
Jamie Watson Aug. 18, 2016
Joyce Mendoza Jan. 1, 2020
Nicola Deeley Sept. 29, 2024
Sarah Amy Russell April 24, 2018
Sophie Collier Dec. 1, 2024
Stacy Richardson Jan. 1, 2020
Stephen Richard John McMurray Jan. 1, 2000