Fibrous Dysplasia Support Society
Fdssuk
- Country
- England & Wales
- Charity number
- 1175622
- Status
- Registered
- Registered
- Nov. 8, 2017
- Legal form
- Charitable company
Address
- Address
- 82 Nottingham Road
Somercotes
Alfreton
Derbyshire
DE55 4LY
Contact
- Phone
- 07789958722
- [email protected]
- Website
fdssuk.org.uk
Activities
The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.
Objects: To Relieve Sickness And To Promote And Protect Good Health For The Public Benefit Of Those Diagnosed And Suffering From Fibrous Dysplasia And Mccune-Albright Syndrome (Including Associated Conditions) And Their Carers In Particular But Not Limited To The Following:-A)encouraging, Promoting And Assisting In A Better Understanding Of The Conditions And Possible Treatment Of Them;b)promote Increased Awareness Amongst Medical Professionals And Generally;andd)encourage Persons Meet Other Sufferers And To Share Their Experiences.
Classification
- How
- Provides Advocacy/advice/information
- What
- The Advancement Of Health Or Saving Of Lives
- Who
- People With Disabilities
Areas of operation
- Country
- Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| March 31, 2025 | £14,123 | £1,357 |
| March 31, 2024 | £2,092 | £2,816 |
| March 31, 2023 | £1,451 | £730 |
| March 31, 2022 | £8,618 | £1,465 |
| March 31, 2021 | £6,078 | £3,171 |
Trustees
| Name | Appointed |
|---|---|
| Heather Delaney | Aug. 18, 2016 |
| Jamie Watson | Aug. 18, 2016 |
| Joyce Mendoza | Jan. 1, 2020 |
| Nicola Deeley | Sept. 29, 2024 |
| Sarah Amy Russell | April 24, 2018 |
| Sophie Collier | Dec. 1, 2024 |
| Stacy Richardson | Jan. 1, 2020 |
| Stephen Richard John McMurray | Jan. 1, 2000 |