# FIBROUS DYSPLASIA SUPPORT SOCIETY

## Details

- **Country:** England & Wales
- **Charity number:** 1175622
- **Other names:** FDSSUK
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Nov. 8, 2017
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1175622


## Contact

- **Address:** 82 Nottingham Road, Somercotes, Alfreton, Derbyshire
- **Postcode:** DE55 4LY
- **Phone:** 07789958722
- **Email:** enquire@fdssuk.org.uk
- **Website:** www.fdssuk.org.uk



## Activities

**Objects:** TO RELIEVE SICKNESS AND TO PROMOTE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT OF THOSE DIAGNOSED AND SUFFERING FROM FIBROUS DYSPLASIA AND MCCUNE-ALBRIGHT SYNDROME (INCLUDING ASSOCIATED CONDITIONS) AND THEIR CARERS IN PARTICULAR BUT NOT LIMITED TO THE FOLLOWING:-A)ENCOURAGING, PROMOTING AND ASSISTING IN A BETTER UNDERSTANDING OF THE CONDITIONS AND POSSIBLE TREATMENT OF THEM;B)PROMOTE INCREASED AWARENESS AMONGST MEDICAL PROFESSIONALS AND GENERALLY;ANDD)ENCOURAGE PERSONS MEET OTHER SUFFERERS AND TO SHARE THEIR EXPERIENCES.

**Activities:** The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** People With Disabilities



## Areas of operation

- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £14123 | £1357 | — | — |
| March 31, 2024 | £2092 | £2816 | — | — |
| March 31, 2023 | £1451 | £730 | — | — |
| March 31, 2022 | £8618 | £1465 | — | — |
| March 31, 2021 | £6078 | £3171 | — | — |



## Trustees

- HEATHER DELANEY — appointed Aug. 18, 2016
- JAMIE WATSON — appointed Aug. 18, 2016
- Joyce Mendoza — appointed Jan. 1, 2020
- Nicola Deeley — appointed Sept. 29, 2024
- Sarah Amy Russell — appointed April 24, 2018
- Sophie Collier — appointed Dec. 1, 2024
- Stacy Richardson — appointed Jan. 1, 2020
- Stephen Richard John McMurray — appointed Jan. 1, 2000