Trustees’ Annual Report for the period
From 02/04/2024 To 01/04/2025
Charity name: PACS1 Research UK
Charity registration number: 1173691
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | To raise awareness of PACS1 as a rare genetic condition and continue research of the rare genetic mutation. Raising money to provide supported living for people with this condition and other genetic mutations. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
Organise events to raise funds such as car events, golf days, quiz nights, mountain climbing events, use social media. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | We are aware of guidance issued by the Charity Commission on public benefit. |
Additional information (optional)
You may choose to include further statements where relevant about:
| SORP reference | |
|---|---|
| Para 1.38 | |
| Policy on grant making | |
| Para 1.38 | |
| Policy on social investment | |
| including program related | |
| investment | |
| Para 1.38 | |
| Contribution made by | |
| volunteers |
Other
Achievements and Performance
| SORP reference | ||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | We organised some events which brought donations such as a charitable drive through Europe, F1 lounge experience. |
Additional information (optional) You may choose to include further statements where relevant about:
| Achievements against objectives set |
Para 1.41 | |
| Performance of fundraising activities against objectives set |
Para 1.41 | |
| Investment performance against objectives |
Para 1.41 | |
| Other | ||
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | We had some donations which covered our expenditures. |
Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | Have no reserves |
Amount of reserves held |
Para 1.22 | |
| Reasons for holding zero reserves |
Para 1.22 | |
| Details of fund materially in deficit |
Para 1.24 | |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 |
Additional information (optional)
You may choose to include further statements where relevant about:
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | |
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | |
| A description of the principal risks facing the charity |
Para 1.46 | |
| Other | ||
Structure, Governance and Management
| Description of charity’s trusts: |
||
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | Trust deed |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | Charitable incorporated organisations |
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | By appointment |
| Additional information (optional) You may choose to include further statements where relevant about: |
Additional information (optional) You may choose to include further statements where relevant about: |
Additional information (optional) You may choose to include further statements where relevant about: |
|---|---|---|
Policies and procedures adopted for the induction and training of trustees |
Para 1.51 |
|
| The charity’s organisational structure and any wider network with which the charity works |
Para 1.51 | |
| Relationship with any related parties |
Para 1.51 | |
| Other |
Reference and Administrative details
| Charity name | PACS1 Research UK |
|---|---|
Other name the charity uses |
|
| Registered charity number | 1173691 |
Charity’s principal address |
1 The Red Lion High Street Much Hadham SG10 6DD |
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Trustee name | Office (if any) | Dates acted if not for whole year Nam e of pers on (or bod y) entit led to app oint trust ee (if any) |
|---|---|---|---|
| RoyParrish | |||
| Sean Fitzgerald | |||
| John Paddock | |||
– Corporate trustees names of the directors at the date the report was approved
Director name
Name of trustees holding title to property belonging to the charity
Trustee name Dates acted if not for whole year
Funds held as custodian trustees on behalf of others
Description of the assets held in this capacity
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
| Names and addresses of advisers (Optional information) | Names and addresses of advisers (Optional information) | Names and addresses of advisers (Optional information) | Names and addresses of advisers (Optional information) |
|---|---|---|---|
| Type of adviser Name Address |
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| Name of chief executive or names of senior staff members (Optional information) | |||
Exemptions from disclosure
Reason for non-disclosure of key personnel details
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Roy Parrish Full name(s) R A Parrish Position (eg Secretary, Trustee Chair, etc) Date 23.01.26
PACS1 Research UK
No (if any) 1173691
Receipts and payments accounts For the period Period end date To from 2/4/2024 1/4/2025 ee ee ee ee Section A Receipts and payments Unrestricted Endowment Restricted funds Total funds funds funds to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts Donations 54,423- - - - - - 54,423-- - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - - Sub total (Gross income for AR) [-] 54,423- - - - - - 54,423A2 Asset and investment sales, (see table). - -- - -- - -- - - - - -- - -- - -- - - - Sub total [-] -- - -- - -- - - - S Total receipts ~~S~~ [-] 54,423- ~~SS~~ --54,423A3 Payments Donations processing fees 216- - - - - - 216- Event organising costs 46,892- - - - - - 46,892- Marketing fees 2,864- - - - - - 2,864- bank charges 119- - - - - - 119- Subscriptions 43- - - - - - 43-- - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - - Sub total 50,133- - - - - - 50,133A4 Asset and investment purchases, (see table) - -- - -- - -- - - - - -- - -- - -- - - - Sub total ---- - ~~===~~ Total payments [-] 50,133--50,133- Net of receipts/(payments) [-] 4,289- - - - - - 4,289A5 Transfers between funds - -- - - - - - - - - - A6 Cash funds last year end - 5,474- - - - - - 5,474- Cash funds this year end ~~===~~ [-] 9,763- - ~~==~~ - - - 9,763- CCXX R1 accounts (SS) 1
30/01/2026
Section B Statement of assets and liabilities at the end of the period
| Categories B1 Cash funds |
Details | Details | Unrestricted funds to nearest £ |
Unrestricted funds to nearest £ |
Restricted funds to nearest £ |
Restricted funds to nearest £ |
|---|---|---|---|---|---|---|
| - 9,763- |
- -- |
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| - -- |
- -- |
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| - -- |
- -- |
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| B2 Other monetary assets B3 Investment assets B4 Assets retained for the charity’s own use B5 Liabilities Signed by one or two trustees on behalf of all the trustees |
Total cash funds (agree balances with receipts and payments account (s)) Details Details Details Details Signature Roy Parrish |
- 9,763- |
- -- |
|||
| Unrestricted funds Restricted funds to nearest £ to nearest £ - -- - -- - -- - -- - -- - -- - -- - -- - -- - -- - -- - -- Fund to which asset belongs Cost (optional) - -- - -- - -- - -- - -- Fund to which asset belongs Cost (optional) - -- - -- - -- - -- - -- - -- - -- - -- - -- Fund to which liability relates Amount due (optional) - -- - -- - -- - -- - -- Print Name Roy Parrish |
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| Roy Parrish | ||||||
CCXX R2 accounts (SS)
30/01/2026
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CCXX R3 accounts (SS)
30/01/2026
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CCXX R4 accounts (SS)
30/01/2026
4
Independent examiner's report on the accounts
Section A Independent Examiner’s Report Report to the Charity Name PACS1 Research UK trustees/directors/ members of On accounts for the year 01 April 2025 ended Charity no.: 1173691 Company no.: CE011228 Set out on pages (remember to include the page numbers of additional sheets) I report to the charity trustees on my examination of the accounts of the Company for the year ended 01/04/2025 . Responsibilities and As the charity’s trustees of the Company (who are also the directors of the basis of report company for the purposes of company law), you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 (“the 2006 Act”). Having satisfied myself that the accounts of the Company are not required to be audited for this year under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity’s accounts as carried out under section 145 of the Charities Act 2011 (“the 2011 Act”). In carrying out my examination, I have followed the Directions given by the Charity Commission (under section 145(5)(b) of the 2011 Act. Independent I have completed my examination. I confirm that no material matters have examiner's statement come to my attention which gives me cause to believe that: • accounting records were not kept in accordance with section 386 of the Companies Act 2006; or • the accounts do not accord with such records; or • the accounts do not comply with relevant accounting requirements under section 396 of the Companies Act 2006 other than any requirement that the accounts give a ‘true and fair’ view which is not a matter considered as part of an independent examination; or •the accounts have not been prepared in accordance with the Charities SORP (FRS102). I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Signed:
Date: 30 January 2026 ~~fd~~
1
October 2018
IER
Name: Lorraine Curtis
Relevant professional qualification(s) or body (if any):
ACA BFP FCCA
Address: The Retreat, 406 Roding Lane South Woodford Green, Essex IG8 8EY
Section B Disclosure
Only complete if the examiner needs to highlight material matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).
Give here brief details of any items that the examiner wishes to disclose .
2
October 2018
IER