## **Trustees’ Annual Report for the period**
**From 02/04/2024 To 01/04/2025**
**Charity name: PACS1 Research UK**
## **Charity registration number: 1173691**
## **Objectives and Activities**
||SORP reference||
|---|---|---|
|Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|**To raise awareness of PACS1 as a rare**
**genetic condition and continue research**
**of the rare genetic mutation. Raising**
**money to provide supported living for**
**people with this condition and other**
**genetic mutations.**|
|Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|**Organise events to raise funds such as**
**car events, golf days, quiz nights,**
**mountain climbing events, use social**
**media.**|
|Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|**We are aware of guidance issued by the**
**Charity Commission on public benefit.**|
## **Additional information (optional)**
## You may choose to include further statements where relevant about:
||SORP reference|
|---|---|
||Para 1.38|
|Policy on grant making||
||Para 1.38|
|Policy on social investment||
|including program related||
|investment||
||Para 1.38|
|Contribution made by||
|volunteers||
Other
## **Achievements and Performance**
||SORP reference||
|---|---|---|
|Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|**We organised some events which**
**brought donations such as a charitable**
**drive through Europe, F1 lounge**
**experience.**|
## **Additional information (optional)** You may choose to include further statements where relevant about:
||||
|---|---|---|
|Achievements against
objectives set|Para 1.41||
|Performance of fundraising
activities against objectives
set|Para 1.41||
|Investment performance
against objectives|Para 1.41||
|Other|||
||||
## **Financial Review**
|**Financial Review**|||
|---|---|---|
|Review of the charity’s
financial position at the end
of the period|Para 1.21|**We had some donations which covered**
**our expenditures.**|
|
Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|**Have no reserves**|
|
Amount of reserves held|Para 1.22||
|Reasons for holding zero
reserves|Para 1.22||
|Details of fund materially in
deficit|Para 1.24||
|Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23||
## **Additional information (optional)**
You may choose to include further statements where relevant about:
||||
|---|---|---|
|The charity’s principal
sources of funds (including
any fundraising)|Para 1.47||
|Investment policy and
objectives including any
social investment policy
adopted|Para 1.46||
|A description of the principal
risks facing the charity|Para 1.46||
|Other|||
||||
## **Structure, Governance and Management**
|Description of charity’s
trusts:|||
|---|---|---|
|Type of governing document
(trust deed, royal charter)|Para 1.25|**Trust deed**|
|How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|**Charitable incorporated organisations**|
|
Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|**By appointment**|
|**Additional information (optional)**
You may choose to include further statements where relevant about:|**Additional information (optional)**
You may choose to include further statements where relevant about:|**Additional information (optional)**
You may choose to include further statements where relevant about:|
|---|---|---|
|
Policies and procedures
adopted for the induction
and training of trustees|
Para 1.51||
|The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51||
|Relationship with any related
parties|Para 1.51||
|Other|||
## **Reference and Administrative details**
|Charity name|PACS1 Research UK|
|---|---|
|
Other name the charity uses||
|Registered charity number|1173691|
|
Charity’s principal address|1 The Red Lion
High Street
Much Hadham
SG10 6DD|
|||
## **Names of the charity trustees who manage the charity**
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20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year**
**Nam**
**e of**
**pers**
**on**
**(or**
**bod**
**y)**
**entit**
**led**
**to**
**app**
**oint**
**trust**
**ee**
**(if**
**any)**|
|---|---|---|---|
||RoyParrish|||
||Sean Fitzgerald|||
||John Paddock|||
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– Corporate trustees names of the directors at the date the report was approved
**Director name**
Name of trustees holding title to property belonging to the charity
**Trustee name Dates acted if not for whole year**
## **Funds held as custodian trustees on behalf of others**
Description of the assets held in this capacity
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets
## **Additional information (optional)**
## **Names and addresses of advisers (Optional information)**
|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|
|---|---|---|---|
|**Type of**
**adviser**
**Name**
**Address**||||
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|**Name of chief executive or names of senior staff members (Optional information)**||||
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## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
## **Other optional information**
## **Declarations**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s)** Roy Parrish **Full name(s)** R A Parrish **Position (eg Secretary,** Trustee **Chair, etc) Date** 23.01.26
## **PACS1 Research UK**
**No (if any) 1173691**
**Receipts and payments accounts For the period** Period end date **To from** 2/4/2024 1/4/2025 ee ee ee ee **Section A Receipts and payments Unrestricted Endowment Restricted funds Total funds funds funds to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts** Donations **54,423- - - - - - 54,423-- - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - -** _**Sub total** (Gross income for AR)_ **[-] 54,423- - - - - - 54,423A2 Asset and investment sales, (see table). - -- - -- - -- - - - - -- - -- - -- - - -** _**Sub total**_ **[-] -- - -- - -- - - -** S _**Total receipts**_ ~~S~~ **[-] 54,423-** ~~SS~~ **--54,423A3 Payments** Donations processing fees **216- - - - - - 216-** Event organising costs **46,892- - - - - - 46,892-** Marketing fees **2,864- - - - - - 2,864-** bank charges **119- - - - - - 119-** Subscriptions **43- - - - - - 43-- - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - - - -- - - - - - - - - -** _**Sub total**_ **50,133- - - - - - 50,133A4 Asset and investment purchases, (see table) - -- - -- - -- - - - - -- - -- - -- - - -** _**Sub total**_ **---- -** ~~===~~ _**Total payments**_ **[-] 50,133--50,133-** _**Net of receipts/(payments)**_ **[-] 4,289- - - - - - 4,289A5 Transfers between funds - -- - - - - - - - - - A6 Cash funds last year end - 5,474- - - - - - 5,474-** _**Cash funds this year end**_ ~~===~~ **[-] 9,763- -** ~~==~~ **- - - 9,763-** CCXX R1 accounts (SS) 1
30/01/2026
## **Section B Statement of assets and liabilities at the end of the period**
|**Categories**
**B1 Cash funds**|**Details**|**Details**|**Unrestricted**
**funds**
**to nearest £**|**Unrestricted**
**funds**
**to nearest £**|**Restricted funds**
**to nearest £**|**Restricted funds**
**to nearest £**|
|---|---|---|---|---|---|---|
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|**B2 Other monetary assets**
**B3 Investment assets**
**B4 Assets retained for the**
**charity’s own use**
**B5 Liabilities**
Signed by one or two trustees on behalf of
all the trustees|**_Total cash funds_**
(agree balances with receipts and payments account
(s))
**Details**
**Details**
**Details**
**Details**
Signature
Roy Parrish||**-**
**9,763-**||**-**
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**to nearest £**
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Print Name
Roy Parrish||||
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CCXX R2 accounts (SS)
30/01/2026
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CC16a
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CCXX R3 accounts (SS)
30/01/2026
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CCXX R4 accounts (SS)
30/01/2026
4
# **Independent examiner's report on the accounts**
**Section A Independent Examiner’s Report Report to the** Charity Name PACS1 Research UK **trustees/directors/ members of On accounts for the year** 01 April 2025 **ended Charity no.:** 1173691 Company no.: CE011228 **Set out on pages** (remember to include the page numbers of additional sheets) I report to the charity trustees on my examination of the accounts of the Company for the year ended **01/04/2025** . **Responsibilities and** As the charity’s trustees of the Company (who are also the directors of the **basis of report** company for the purposes of company law), you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 (“the 2006 Act”). Having satisfied myself that the accounts of the Company are not required to be audited for this year under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity’s accounts as carried out under section 145 of the Charities Act 2011 (“the 2011 Act”). In carrying out my examination, I have followed the Directions given by the Charity Commission (under section 145(5)(b) of the 2011 Act. **Independent** I have completed my examination. I confirm that no material matters have **examiner's statement** come to my attention which gives me cause to believe that: • accounting records were not kept in accordance with section 386 of the Companies Act 2006; or • the accounts do not accord with such records; or • the accounts do not comply with relevant accounting requirements under section 396 of the Companies Act 2006 other than any requirement that the accounts give a ‘true and fair’ view which is not a matter considered as part of an independent examination; or •the accounts have not been prepared in accordance with the Charities SORP (FRS102). I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
**Signed:**
**Date:** 30 January 2026 ~~fd~~
1
**October 2018**
**IER**
**Name:** Lorraine Curtis
**Relevant professional qualification(s) or body (if any):**
ACA BFP FCCA
**Address:** The Retreat, 406 Roding Lane South Woodford Green, Essex IG8 8EY
## **Section B Disclosure**
Only complete if the examiner needs to highlight material matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).
**Give here brief details of any items that the examiner wishes to disclose** .
2
**October 2018**
**IER**