Trustees’ Annual Report for the period
From April 1[st] 2024 Period start date To March 31[st] 2025 Period end date
Charity name: Hughes APS Trust
Charity registration number: 1172388
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | The purpose of the charity is to improve the understanding, management and diagnosis of Antiphospholipid Syndrome |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
The charities activities are focussed on the need to improve understanding and management of the Antiphospholipid (Hughes’) Syndrome. These objectives are supported by fundraising, educational activities including website articles and invited articles from its medical expert committee and supporting education and research into the condition through bursaries and grants. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | We can confirm the Trustees have regard to this guidance |
Additional information (optional) You may choose to include further statements where relevant about:
| SORP reference | ||
|---|---|---|
| Policy on grant making | Para 1.38 | |
| Policy on social investment including program related investment |
Para 1.38 | |
| Contribution made by volunteers |
Para 1.38 | We have volunteers, patients and medical experts in several countries who help promote the charity and aid fundraising. |
Other
Achievements and Performance
| SORP reference | ||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | The charity remains committed to achieving its goals. We continue to have dedicated and committed Trustee’s. As with all small charities, there have been challenges to fundraising. However, we remain committed to opening sources of fundraising by improving our website and communications and have rebranded. We have employed a PT secretary who we feel sure will help promote the charity and better carry out its day-to-day business. Our social media profile has expanded with >1000 followerss on Facebook. Antiphospholipid Syndrome is a life-threatening condition which is not easy to identify, and we strongly consider the charity is of significant benefit to patients and the wider public. |
| Additional information (optional) You may choose to include further statements |
Additional information (optional) You may choose to include further statements |
where relevant about: |
|---|---|---|
| Achievements against objectives set |
Para 1.41 | The Trustees consider the charity is making progress by promoting its sustainability with a more robust management structure while donations continue despite the challenges. |
| Performance of fundraising activities against objectives set |
Para 1.41 | Hughes APS Trust has managed to promote fundraising through donations. We will continue to expand our fundraising options as the pandemic eases but have also provided Patients Day to provide information to the wider public, allowing fundraising through several channels. |
| Investment performance against objectives |
Para 1.41 | |
| Other |
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | The charity remains solvent and viable, and we hope improvements in its financial position in the coming year as fundraising options improve will occur |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | The charity holds one account. No specific reserves are held separately |
| Amount of reserves held | Para 1.22 | N/A |
| Reasons for holding zero reserves |
Para 1.22 | N/A |
| Details of fund materially in deficit |
Para 1.24 | N/A |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | N/A |
| Additional information (optional) You may choose to include further statements |
Additional information (optional) You may choose to include further statements |
where relevant about: |
|---|---|---|
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | Donations from volunteers, patients and shop items including books and cards |
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | |
| A description of the principal risks facing the charity |
Para 1.46 | As with any charity, it is vital that fundraising to meet the objectives of the charity is sustained. The landscape for charities remains difficult especially with the cost of living escalating for everyone. The Trustees remain committed to ensuring the progression of the charity through fundraising. |
| Other |
Structure, Governance and Management
| Description of charity’s trusts: |
N/A | |
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | N/A |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Trustees are recruited on the basis of skills that they can bring to the charity underpinned by knowledge of the condition. Trustees often bring medical knowledge, skills with social media such as Twitter Facebook and particular fundraising experience and skills. |
Additional information (optional) You may choose to include further statements where relevant about:
| Policies and procedures adopted for the induction and training of trustees |
Para 1.51 | |
|---|---|---|
| The charity’s organisational structure and any wider network with which the charity works |
Para 1.51 | The charity structure comprises Trustees who meet every 3 months, a Chair and a Charity Administrator who meet weekly. |
| Relationship with any related parties |
Para 1.51 | N/A |
| Other |
Reference and Administrative details
| Charity name | Hughes APS Trust |
|---|---|
| Other name the charity uses | |
| Registered charity number | |
| Charity’s principal address | Hughes APS Trust The Shard TOG 24/25 32 London Bridge Street London. SE1 9SG. |
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Trustee name | Office (if any) | Dates acted if not for whole **year ** |
Name of person (or body) entitled to appoint trustee (ifany) |
|---|---|---|---|---|
| Prof. Graham Hughes | Founder | All Trustees by majority vote | ||
| Dr Arvind Kaul | Chair of Trustees | |||
| Ms Sandy Hampson | Finance | |||
| Dr. Maria Laura Bertolaccini |
Finance | |||
| Professor Ali Jawad | ||||
| Ms Madeleine Malik | ||||
| Mrs Mags Thompson- McCormick |
||||
– Corporate trustees names of the directors at the date the report was approved
Director name
Name of trustees holding title to property belonging to the charity
Trustee name Dates acted if not for whole year
Funds held as custodian trustees on behalf of others
Description of the assets N/A held in this capacity
Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
| Names and addresses of advisers (Optional information) | Names and addresses of advisers (Optional information) | Names and addresses of advisers (Optional information) |
|---|---|---|
| Type of adviser Name Address |
||
| Accountant | John Cordner | Hammond & Co Chartered Certified Accountants, 74 Blandford Road, Corfe Mullen, Wimborne Dorset, BH21 3HQ. |
Name of chief executive or names of senior staff members (Optional information)
Exemptions from disclosure
Reason for non-disclosure of key personnel details
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Arvind Kaul Full name(s) Arvind Kaul Position (eg Secretary, Chair of Trustees Chair, etc) Date January 22nd 2026
Hughes APS Trust Accounts 31 March 2025
Hughes APS Trust Contents
| Page | |
|---|---|
| Business information | 1 |
| Approval statement | 2 |
| Income and expenditure account | 4 |
| Balance sheet | 5 |
| Notes to the accounts | 6 |
Hughes APS Trust Business Information
Proprietor
Accountants
Hammond & Co 74 Blandford Road Corfe Mullen Wimborne Dorset BH21 3HQ
Bankers Metro Bank
1
Hughes APS Trust
Approval statement
I approve the accounts which comprise of the Income and Expenditure Account, the Balance Sheet and the related notes. I acknowledge my responsibility for the accounts, including the appropriateness of the applicable financial reporting framework as set out in note 1, and for providing Hammond & Co with all information and explanations necessary for their compilation.
Dr Arvind Kaul
22 January 2026
2
Hughes APS Trust Income & Expenditure Account for the year ended 31 March 2025
| Donations and legacies Expenditure Fundraising expenses Website costs Accountants fees Bank charges Consultancy fees Other legal and professional Rent Other expenses Deficit for the year |
2025 £ 1,996 504 417 360 360 3,553 60 720 35 6,009 (4,013) |
2024 £ 3,768 480 360 600 360 2,740 - 722 35 |
|---|---|---|
| 5,297 | ||
| (1,529) |
3
Hughes APS Trust Balance Sheet as at 31 March 2025
| Notes Current assets Stock and work in progress Bank/building society balances Current liabilities Trade creditors Other liabilities and accruals Net current assets Net assets Funds Unrestricted funds brought forward Net deficit for year Unrestricted funds carried forward |
1,643 41,931 |
2025 £ 41,239 41,239 45,252 (4,013) 41,239 |
1,643 45,584 |
2024 £ 45,252 |
|---|---|---|---|---|
| 43,574 1,375 960 |
47,227 1,375 600 |
|||
| 2,335 | 1,975 | |||
| 45,252 | ||||
| 46,781 (1,529) |
||||
| 45,252 |
4
Hughes APS Trust Notes to the Accounts for the year ended 31 March 2025
1 Accounting basis
The accounts have been compiled on a basis that enables income and expenditure to be calculated in accordance with UK Generally Accepted Accounting Practice.
| 2 Income and expenditure Income Donations and legacies Rent, rates, power and insurance costs Rent Advertising and business entertainment costs Fundraising expenses Website costs Bank, credit card and other finance charges Bank charges Accountancy, legal and other professional fees Accountants fees Other legal and professional Consultancy fees Other business expenses Other expenses |
2025 £ 1,996 720 504 417 921 360 360 60 3,553 3,973 35 |
2024 £ 3,768 722 |
|---|---|---|
| 480 360 |
||
| 840 | ||
| 360 | ||
| 600 - 2,740 |
||
| 3,340 | ||
| 35 |
5
Hughes APS Trust Notes to the Accounts
for the year ended 31 March 2025
3 Plant, machinery and motor vehicles
| Plant, machinery and motor vehicles | |
|---|---|
| Cost At 1 April 2024 At 31 March 2025 Depreciation At 1 April 2024 At 31 March 2025 Net book value At 31 March 2025 |
Spare £ 9,202 |
| 9,202 | |
| 9,202 | |
| 9,202 | |
| - |
6