## **Trustees’ Annual Report for the period** 

**From April 1[st] 2024 Period start date To March 31[st] 2025                           Period end date** 

**Charity name: Hughes APS Trust** 

## **Charity registration number: 1172388** 

## **Objectives and Activities** 

||SORP reference||
|---|---|---|
|Summary of the purposes of<br>the charity as set out in its<br>governing document|Para 1.17|The purpose of the charity is to improve the<br>understanding, management and diagnosis<br>of Antiphospholipid Syndrome|
|Summary of the main<br>activities in relation to those<br>purposes for the public<br>benefit, in particular, the<br>activities, projects or services<br>identified in the accounts.|Para 1.17 and<br>1.19|The charities activities are focussed on the<br>need to improve understanding and<br>management of the Antiphospholipid<br>(Hughes’) Syndrome. These objectives are<br>supported by fundraising, educational<br>activities including website articles and<br>invited articles from its medical expert<br>committee and supporting education and<br>research into the condition through bursaries<br>and grants.|
|Statement confirming<br>whether the trustees have<br>had regard to the guidance<br>issued by the Charity<br>Commission on public<br>benefit|Para 1.18|We can confirm the Trustees have regard to<br>this guidance|



## **Additional information (optional)** You may choose to include further statements where relevant about: 

||SORP reference||
|---|---|---|
|Policy on grant making|Para 1.38||
|Policy on social investment<br>including program related<br>investment|Para 1.38||
|Contribution made by<br>volunteers|Para 1.38|We have volunteers, patients and medical<br>experts in several countries who help<br>promote the charity and aid fundraising.|





Other 

## **Achievements and Performance** 

||SORP reference||
|---|---|---|
|Summary of the main<br>achievements of the charity,<br>identifying the difference the<br>charity’s work has made to<br>the circumstances of its<br>beneficiaries and any wider<br>benefits to society as a<br>whole.|Para 1.20|The charity remains committed to achieving<br>its goals. We continue to have dedicated and<br>committed Trustee’s. As with all small<br>charities, there have been challenges to<br>fundraising. However, we remain committed<br>to opening sources of fundraising by<br>improving our website and communications<br>and have rebranded. We have employed a<br>PT secretary who we feel sure will help<br>promote the charity and better carry out its<br>day-to-day business. Our social media<br>profile has expanded with >1000 followerss<br>on Facebook. Antiphospholipid Syndrome is<br>a life-threatening condition which is not easy<br>to identify, and we strongly consider the<br>charity is of significant benefit to patients and<br>the wider public.|



|**Additional information (optional)**<br>You may choose to include further statements|**Additional information (optional)**<br>You may choose to include further statements|where relevant about:|
|---|---|---|
|Achievements against<br>objectives set|Para 1.41|The Trustees consider the charity is making<br>progress by promoting its sustainability with<br>a more robust management structure while<br>donations continue despite the challenges.|
|Performance of fundraising<br>activities against objectives<br>set|Para 1.41|Hughes APS Trust has managed to promote<br>fundraising through donations. We will<br>continue to expand our fundraising options<br>as the pandemic eases but have also<br>provided Patients Day to provide information<br>to the wider public, allowing fundraising<br>through several channels.|
|Investment performance<br>against objectives|Para 1.41||
|Other|||





## **Financial Review** 

|**Financial Review**|||
|---|---|---|
|Review of the charity’s<br>financial position at the end<br>of the period|Para 1.21|The charity remains solvent and viable, and<br>we hope improvements in its financial<br>position in the coming year as fundraising<br>options improve will occur|
|Statement explaining the<br>policy for holding reserves<br>stating why they are held|Para 1.22|The charity holds one account. No specific<br>reserves are held separately|
|Amount of reserves held|Para 1.22|**N/A**|
|Reasons for holding zero<br>reserves|Para 1.22|**N/A**|
|Details of fund materially in<br>deficit|Para 1.24|**N/A**|
|Explanation of any<br>uncertainties about the<br>charity continuing as a going<br>concern|Para 1.23|**N/A**|



|**Additional information (optional)**<br>You may choose to include further statements|**Additional information (optional)**<br>You may choose to include further statements|where relevant about:|
|---|---|---|
|The charity’s principal<br>sources of funds (including<br>any fundraising)|Para 1.47|Donations from volunteers, patients and<br>shop items including books and cards|
|Investment policy and<br>objectives including any<br>social investment policy<br>adopted|Para 1.46||
|A description of the principal<br>risks facing the charity|Para 1.46|As with any charity, it is vital that fundraising<br>to meet the objectives of the charity is<br>sustained. The landscape for charities<br>remains difficult especially with the cost of<br>living escalating for everyone. The Trustees<br>remain committed to ensuring the<br>progression of the charity through<br>fundraising.|
|Other|||





## **Structure, Governance and Management** 

|Description of charity’s<br>trusts:||**N/A**|
|---|---|---|
|Type of governing document<br>(trust deed, royal charter)|Para 1.25|**N/A**|
|How is the charity<br>constituted?<br>(e.g unincorporated<br>association, CIO)|Para 1.25||
|Trustee selection methods<br>including details of any<br>constitutional provisions e.g.<br>election to post or name of<br>any person or body entitled<br>to appoint one or more<br>trustees|Para 1.25|Trustees are recruited on the basis of skills<br>that they can bring to the charity<br>underpinned by knowledge of the condition.<br>Trustees often bring medical knowledge,<br>skills with social media such as Twitter<br>Facebook and particular fundraising<br>experience and skills.|



## **Additional information (optional)** You may choose to include further statements where relevant about: 

|Policies and procedures<br>adopted for the induction and<br>training of trustees|Para 1.51||
|---|---|---|
|The charity’s organisational<br>structure and any wider<br>network with which the<br>charity works|Para 1.51|The charity structure comprises Trustees<br>who meet every 3 months, a Chair and a<br>Charity Administrator who meet weekly.|
|Relationship with any related<br>parties|Para 1.51|**N/A**|
|Other|||



## **Reference and Administrative details** 

|Charity name|Hughes APS Trust|
|---|---|
|Other name the charity uses||
|Registered charity number||
|Charity’s principal address|Hughes APS Trust<br>The Shard<br>TOG 24/25<br>32 London Bridge Street<br>London. SE1 9SG.|
|||





**Names of the charity trustees who manage the charity** 

|1<br>2<br>3<br>4<br>5<br>6<br>7<br>8<br>9<br>10<br>11<br>12<br>13<br>14<br>15<br>16<br>17<br>18<br>19<br>20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**<br>**year **|**Name of person (or body) entitled**<br>**to appoint trustee (ifany)**|
|---|---|---|---|---|
||Prof. Graham Hughes|Founder||All Trustees by majority vote|
||Dr Arvind Kaul|Chair of Trustees|||
||Ms Sandy Hampson|Finance|||
||Dr. Maria Laura<br>Bertolaccini|Finance|||
||Professor Ali Jawad||||
||Ms Madeleine Malik||||
||Mrs Mags<br>Thompson-<br>McCormick||||
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– Corporate trustees names of the directors at the date the report was approved 

## **Director name** 

Name of trustees holding title to property belonging to the charity 

**Trustee name Dates acted if not for whole year** 



## **Funds held as custodian trustees on behalf of others** 

Description of the assets N/A held in this capacity 

Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets 

## **Additional information (optional)** 

## **Names and addresses of advisers (Optional information)** 

|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|
|---|---|---|
|**Type of**<br>**adviser**<br>**Name**<br>**Address**|||
|Accountant|John Cordner|Hammond & Co Chartered Certified Accountants, 74<br>Blandford Road, Corfe Mullen, Wimborne Dorset, BH21<br>3HQ.|
||||
||||
||||



## **Name of chief executive or names of senior staff members (Optional information)** 

## **Exemptions from disclosure** 

Reason for non-disclosure of key personnel details 

## **Other optional information** 



## **Declarations** 

**The trustees declare that they have approved the trustees’ report above.** 

**Signed on behalf of the charity’s trustees** 

**Signature(s)** Arvind Kaul **Full name(s)** Arvind Kaul **Position (eg Secretary,** Chair of Trustees **Chair, etc) Date** January 22nd 2026 



Hughes APS Trust
Accounts
31 March 2025

## **Hughes APS Trust Contents** 

||**Page**|
|---|---|
|Business information|1|
|Approval statement|2|
|Income and expenditure account|4|
|Balance sheet|5|
|Notes to the accounts|6|





## **Hughes APS Trust Business Information** 

## **Proprietor** 

## **Accountants** 

Hammond & Co 74 Blandford Road Corfe Mullen Wimborne Dorset BH21 3HQ 

**Bankers** Metro Bank 

1 



## **Hughes APS Trust** 

## **Approval statement** 

I approve the accounts which comprise of the Income and Expenditure Account, the Balance Sheet and the related notes. I acknowledge my responsibility for the accounts, including the appropriateness of the applicable financial reporting framework as set out in note 1, and for providing Hammond & Co with all information and explanations necessary for their compilation. 

Dr Arvind Kaul 

22 January 2026 

2 



## **Hughes APS Trust Income & Expenditure Account for the year ended 31 March 2025** 

|Donations and legacies<br>**Expenditure**<br>Fundraising expenses<br>Website costs<br>Accountants fees<br>Bank charges<br>Consultancy fees<br>Other legal and professional<br>Rent<br>Other expenses<br>**Deficit for the year**|**2025**<br>**£**<br>1,996<br>504<br>417<br>360<br>360<br>3,553<br>60<br>720<br>35<br>6,009<br>(4,013)|**2024**<br>**£**<br>3,768<br>480<br>360<br>600<br>360<br>2,740<br>-<br>722<br>35|
|---|---|---|
|||5,297|
|||(1,529)|



3 



## **Hughes APS Trust Balance Sheet as at 31 March 2025** 

|**Notes**<br>**Current assets**<br>Stock and work in progress<br>Bank/building society balances<br>**Current liabilities**<br>Trade creditors<br>Other liabilities and accruals<br>**Net current assets**<br>**Net assets**<br>**Funds**<br>Unrestricted funds brought forward<br>Net deficit for year<br>Unrestricted funds carried forward|1,643<br>41,931|**2025**<br>**£**<br>41,239<br>41,239<br>45,252<br>(4,013)<br>41,239|1,643<br>45,584|**2024**<br>**£**<br>45,252|
|---|---|---|---|---|
||43,574<br>1,375<br>960||47,227<br>1,375<br>600||
||2,335||1,975||
|||||45,252|
|||||46,781<br>(1,529)|
|||||45,252|



4 



**Hughes APS Trust Notes to the Accounts for the year ended 31 March 2025** 

## **1 Accounting basis** 

The accounts have been compiled on a basis that enables income and expenditure to be calculated in accordance with UK Generally Accepted Accounting Practice. 

|**2**<br>**Income and expenditure**<br>**Income**<br>Donations and legacies<br>**Rent, rates, power and insurance costs**<br>Rent<br>**Advertising and business entertainment costs**<br>Fundraising expenses<br>Website costs<br>**Bank, credit card and other finance charges**<br>Bank charges<br>**Accountancy, legal and other professional fees**<br>Accountants fees<br>Other legal and professional<br>Consultancy fees<br>**Other business expenses**<br>Other expenses|**2025**<br>**£**<br>1,996<br>720<br>504<br>417<br>921<br>360<br>360<br>60<br>3,553<br>3,973<br>35|**2024**<br>**£**<br>3,768<br>722|
|---|---|---|
|||480<br>360|
|||840|
|||360|
|||600<br>-<br>2,740|
|||3,340|
|||35|



5 



## **Hughes APS Trust Notes to the Accounts** 

**for the year ended 31 March 2025** 

## **3 Plant, machinery and motor vehicles** 

|**Plant, machinery and motor vehicles**||
|---|---|
|**Cost**<br>At 1 April 2024<br>At 31 March 2025<br>**Depreciation**<br>At 1 April 2024<br>At 31 March 2025<br>**Net book value**<br>At 31 March 2025|**Spare**<br>**£**<br>9,202|
||9,202|
||9,202|
||9,202|
||-|



6 

