Trustees’ Annual Report for the period
From 6 April 2021 to 5 April 2022
Charity name: UK Infantile Spasms Trust
Charity registration number: 1172167
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | The purpose of the charity is to provide a relief of the needs of those suffering from Infantile Spasms or West Syndrome |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
As follows but not exclusively: a) The provision of information, advice and other assistance and support to children, parents, families and carers of those affected by Infantile Spasms b) The promotion of research into the causes and treatment of Infantile Spasms and the publication of useful results of this research c) Raising the awareness of the public and of the medical professions on any matter relating to the charity objectives |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | n/a |
Additional information (optional) You may choose to include further statements where relevant about:
SORP reference n/a Para 1.38 Policy on grant making n/a Para 1.38 Policy on social investment including program related investment
Other
Achievements and Performance
| SORP reference | ||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | The charity provides support to around 1300 families with children affected by Infantile Spasms. This includes sharing information, education, support and grants. It also improves the awareness of the symptoms of Infantile Spasms across the general public as well as within medical professions. The charity also supports the advancement of clinical research into the condition to help children suffering now and in the future. |
Additional information (optional) You may choose to include further statements where relevant about:
| Achievements against objectives set |
Para 1.41 | Achieving |
|---|---|---|
| Performance of fundraising activities against objectives set |
Para 1.41 | Achieving |
| Investment performance against objectives |
Para 1.41 | Profit is made annually therefore achieved |
| Other |
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | The charity has performed well since COVID and donations received increased leaving a profit of £28965 in 21/22 |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | The reserves are held in the charity to cover future costs should there be a period where donations and fundraising efforts do not cover this. Talks are to take place about distributing this to protect the funds and using some of the money to build some UKIST own education materials |
| Amount of reservesheld | Para 1.22 | £95,473 |
| Reasons for holding zero reserves |
Para 1.22 | n/a |
| Details of fund materially in deficit |
Para 1.24 | n/a |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | None |
Additional information (optional) You may choose to include further statements where relevant about:
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | The charity’s principal source of funds is from donations and fundraising events. |
|---|---|---|
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | None |
| A description of the principal risks facing the charity |
Para 1.46 | That not enough donations are made to keep the charity afloat..This doesn’t seem to have been an issue in the accounting year and even through COVID previously |
| Other |
Structure, Governance and Management
| Description of charity’s trusts: |
||
|---|---|---|
| Type of governing document | Para 1.25 | Charitable Incorporated Organisation (CIO) |
| How is the charity constituted? |
Para 1.25 | Trust/CIO |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Appointed by trustees normally at AGM |
| Additional information (optional) Youmay choose toincludefurtherstatements |
Additional information (optional) Youmay choose toincludefurtherstatements |
whererelevant about: |
|---|---|---|
| Policies and procedures adopted for the induction and training of trustees |
Para 1.51 | n/a |
| The charity’s organisational structure and any wider network with which the charity works |
Para 1.51 | n/a |
| Relationship with any related parties |
Para 1.51 | n/a |
| Other | n/a |
Reference and Administrative details
| Charity name | UK Infantile Spasms Trust |
|---|---|
| Other name the charity uses | n/a |
| Registered charity number | 1172167 |
| Charity’s principal address | 28 Overnhill Road Downend Bristol BS16 5DN |
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee(if any) |
|---|---|---|---|---|
| Michelle Schofield | ||||
| JennyRawling | ||||
| Belen Robbins | ||||
| Louisa Coyle | ||||
| Alice Goldhill | ||||
| Samia Sanders | ||||
| AmyDowding | 26 March 2022 | Appointed at AGM | ||
Funds held as custodian trustees on behalf of others
Description of the assets held in this capacity
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects
Details of arrangements for safe custody and segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
| Names and addresses of advisers (Optional information) | Names and addresses of advisers (Optional information) | Names and addresses of advisers (Optional information) |
|---|---|---|
| Type of adviser Name Address |
||
| Accountants | Norton Accountancy Ltd |
7 Soundwell Road, Staple Hill, Bristol BS16 4QG |
Name of chief executive or names of senior staff members (Optional information)
Not applicable
Exemptions from disclosure
Reason for non-disclosure of key personnel details
Not applicable
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
| Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date |
||
|---|---|---|
| Sarah Jenkins | ||
Advisor |
||
| 2 November 2022 | ||
| 2 November 2022 |
Unaudited profit and loss report
for
UK Infantile Spasms Trust Year ended 5 April 2022
Prepared: 31st May 2022 Finalised: 8th June 2022 By Norton Accountancy Ltd
ACCOUNTS FOR UKIST
FOR THE PERIOD ENDED 5 APRIL 2022
ACCOUNTANTS CERTIFICATE
We have prepared the attached accounts, without audit from the records and information supplied to us, and we confirm that they are in accordance therewith.
| Jane Norton FMAAT Norton Accountancy Licence no. 0521 CLIENT'S SIGNATURE I have read the accounts prepared by Norton Accountancy and approve the figures J Rawlings |
Date |
|---|---|
| Signed M Scoffield |
Date |
| Signed | Date |
UKIST
Profit & loss statement Year ended 5 April 2022
| Income Donations received Grants Expenditure Accountancy Grants Family support Insurance training and research Subs Promotional items Printing, postage & stationary Admin Sponsorship Sundry Social media & Website Profit for the year |
£ £ 45,795 - 45,795 300 10,673 2,217 439 37 90 584 672 939 762 24 92 16,830 28,965 2022 |
£ £ 32,998 7,083 40,081 300 2,816 5,121 431 6,349 150 361 237 - - - 176 15,949 17,049 2021 |
|---|---|---|
Independent examiner's report on the accounts
Section A Independent Examiner’s Report
Report to the trustees/ members of
Charity Name
UK Infantile Spasms Trust
5[th] April 2022 On accounts for the year ended
Charity 1172167 no (if any)
Set out on pages 1+2
I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended 05/04/2020.
Responsibilities and basis of report
As the charity's trustees, you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).
I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner's statement
I have completed my examination. I confirm that no material
matters have come to my attention in connection with the
-
examination which gives me cause to believe that in, any material respect:
-
the accounting records were not kept in accordance with section 130 of the Charities Act; or
-
the accounts did not accord with the accounting records; or
-
the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair’ view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Signed:
Date: 24/10/2022
Name: SARAH JENKINS
1
Oct 2018
IER
Relevant FMAAT professional qualification(s) or body (if any):
Address: Norton Accountancy Ltd 7 Soundwell Road Bristol BS16 4QG
Section B Disclosure
Only complete if the examiner needs to highlight material matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).
Give here brief details of any items that the examiner wishes to disclose .
None – the charity appears to be well run with no concerns.
2
Oct 2018
IER
IER Oct 2018