## **Trustees’ Annual Report for the period**
## **From 6 April 2021 to 5 April 2022**
## **Charity name: UK Infantile Spasms Trust**
## **Charity registration number: 1172167**
## **Objectives and Activities**
||SORP reference||
|---|---|---|
|Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|**The purpose of the charity is to provide**
**a relief of the needs of those suffering**
**from Infantile Spasms or West**
**Syndrome**|
|Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|**As follows but not exclusively:**
**a) The provision of information,**
**advice and other assistance and**
**support to children, parents,**
**families and carers of those**
**affected by Infantile Spasms**
**b) The promotion of research into**
**the causes and treatment of**
**Infantile Spasms and the**
**publication of useful results of**
**this research**
**c) Raising the awareness of the**
**public and of the medical**
**professions on any matter**
**relating to the charity objectives**|
|Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|**n/a**|
## **Additional information (optional)** You may choose to include further statements where relevant about:
SORP reference **n/a** Para 1.38 Policy on grant making **n/a** Para 1.38 Policy on social investment including program related investment
Other
## **Achievements and Performance**
||SORP reference||
|---|---|---|
|Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|**The charity provides support to around**
**1300 families with children affected by**
**Infantile Spasms. This includes sharing**
**information, education, support and**
**grants.**
**It also improves the awareness of the**
**symptoms of Infantile Spasms across**
**the general public as well as within**
**medical professions.**
**The charity also supports the**
**advancement of clinical research into**
**the condition to help children suffering**
**now and in the future.**|
## **Additional information (optional)** You may choose to include further statements where relevant about:
|Achievements against
objectives set|Para 1.41|**Achieving**|
|---|---|---|
|Performance of fundraising
activities against objectives
set|Para 1.41|**Achieving**|
|Investment performance
against objectives|Para 1.41|**Profit is made annually therefore**
**achieved**|
|Other|||
## **Financial Review**
|**Financial Review**|||
|---|---|---|
|Review of the charity’s
financial position at the end
of the period|Para 1.21|**The charity has performed well since**
**COVID and donations received**
**increased leaving a profit of £28965 in**
**21/22**|
|Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|**The reserves are held in the charity to**
**cover future costs should there be a**
**period where donations and fundraising**
**efforts do not cover this. Talks are to**
**take place about distributing this to**
**protect the funds and using some of the**
**money to build some UKIST own**
**education materials**|
|Amount of reservesheld|Para 1.22|**£95,473**|
|Reasons for holding zero
reserves|Para 1.22|**n/a**|
|Details of fund materially in
deficit|Para 1.24|**n/a**|
|Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|**None**|
## **Additional information (optional)** You may choose to include further statements where relevant about:
|The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|**The charity’s principal source of funds**
**is from donations and fundraising**
**events.**|
|---|---|---|
|Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|**None**|
|A description of the principal
risks facing the charity|Para 1.46|**That not enough donations are made to**
**keep the charity afloat..This doesn’t**
**seem to have been an issue in the**
**accounting year and even through**
**COVID previously**|
|Other|||
## **Structure, Governance and Management**
|Description of charity’s
trusts:|||
|---|---|---|
|Type of governing document|Para 1.25|**Charitable Incorporated Organisation**
**(CIO)**|
|How is the charity
constituted?|Para 1.25|**Trust/CIO**|
|Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|**Appointed by trustees normally at AGM**|
|**Additional information (optional)**
Youmay choose toincludefurtherstatements|**Additional information (optional)**
Youmay choose toincludefurtherstatements|whererelevant about:|
|---|---|---|
|Policies and procedures
adopted for the induction
and training of trustees|Para 1.51|**n/a**|
|The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51|**n/a**|
|Relationship with any related
parties|Para 1.51|**n/a**|
|Other||**n/a**|
## **Reference and Administrative details**
|Charity name|UK Infantile Spasms Trust|
|---|---|
|Other name the charity uses|n/a|
|Registered charity number|1172167|
|Charity’s principal address|28 Overnhill Road
Downend
Bristol
BS16 5DN|
## **Names of the charity trustees who manage the charity**
|1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year**|**Name of person (or body) entitled**
**to appoint trustee(if any)**|
|---|---|---|---|---|
||Michelle Schofield||||
||JennyRawling||||
||Belen Robbins||||
||Louisa Coyle||||
||Alice Goldhill||||
||Samia Sanders||||
||AmyDowding||26 March 2022|Appointed at AGM|
||||||
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## **Funds held as custodian trustees on behalf of others**
Description of the assets held in this capacity
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects
Details of arrangements for safe custody and segregation of such assets from the charity’s own assets
## **Additional information (optional)**
## **Names and addresses of advisers (Optional information)**
|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|
|---|---|---|
|**Type of adviser **
**Name**
**Address**|||
|**Accountants**|Norton
Accountancy
Ltd|7 Soundwell Road, Staple Hill, Bristol BS16 4QG|
||||
||||
||||
## **Name of chief executive or names of senior staff members (Optional information)**
Not applicable
## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
**Not applicable**
## **Other optional information**
## **Declarations**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
|**Signature(s)**
**Full name(s)**
**Position (eg Secretary,**
**Chair, etc)**
**Date**|||
|---|---|---|
||Sarah Jenkins||
||
Advisor||
||2 November 2022||
||2 November 2022||
## **Unaudited profit and loss report**
**for**
**UK Infantile Spasms Trust Year ended 5 April 2022**
Prepared: 31st May 2022 Finalised: 8th June 2022 By Norton Accountancy Ltd
## **ACCOUNTS FOR UKIST**
## **FOR THE PERIOD ENDED 5 APRIL 2022**
## **ACCOUNTANTS CERTIFICATE**
We have prepared the attached accounts, without audit from the records and information supplied to us, and we confirm that they are in accordance therewith.
|Jane Norton FMAAT
Norton Accountancy
Licence no. 0521
**CLIENT'S SIGNATURE**
I have read the accounts prepared by Norton Accountancy and approve the figures
J Rawlings|Date|
|---|---|
|Signed
M Scoffield|Date|
|Signed|Date|
**UKIST**
**Profit & loss statement Year ended 5 April 2022**
|_Income_
Donations received
Grants
_Expenditure_
Accountancy
Grants
Family support
Insurance
training and research
Subs
Promotional items
Printing, postage & stationary
Admin
Sponsorship
Sundry
Social media & Website
**Profit for the year**|**£**
**£**
45,795
-
45,795
300
10,673
2,217
439
37
90
584
672
939
762
24
92
16,830
**28,965**
**2022**|**_£_**
**_£_**
_32,998_
_7,083_
_40,081_
_300_
_2,816_
_5,121_
_431_
_6,349_
_150_
_361_
_237_
_-_
_-_
_-_
_176_
_15,949_
**_17,049_**
**_2021_**|
|---|---|---|
## **Independent examiner's report on the accounts**
## **Section A Independent Examiner’s Report**
**Report to the trustees/ members of**
Charity Name
UK Infantile Spasms Trust
5[th] April 2022 **On accounts for the year ended**
**Charity** 1172167 **no (if any)**
> **Set out on pages** 1+2
I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended 05/04/2020.
**Responsibilities and basis of report**
As the charity's trustees, you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).
I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
## **Independent examiner's statement**
I have completed my examination. I confirm that no material
matters have come to my attention in connection with the
- examination which gives me cause to believe that in, any material respect:
- the accounting records were not kept in accordance with section 130 of the Charities Act; or
- the accounts did not accord with the accounting records; or
- the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair’ view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
**Signed:**
**Date:** 24/10/2022
**Name:** SARAH JENKINS
1
**Oct 2018**
**IER**
## **Relevant** FMAAT **professional qualification(s) or body (if any):**
**Address:** Norton Accountancy Ltd 7 Soundwell Road Bristol BS16 4QG
## **Section B Disclosure**
Only complete if the examiner needs to highlight material matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).
**Give here brief details of any items that the examiner wishes to disclose** .
None – the charity appears to be well run with no concerns.
2
**Oct 2018**
**IER**
IER
Oct 2018