2021-04-05-accounts

Unaudited profit and loss report

for

UK Infantile Spasms Trust

Year ended 5 April 2021

Prepared 30 April 2021 Finalised 11 May 2021 By Norton Accountancy Ltd

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ACCOUNTS FOR UKIST

FOR THE PERIOD ENDED 5 APRIL 2021

ACCOUNTANTS CERTIFICATE

We have prepared the attached accounts, without audit from the records and information supplied to us, and we confirm that they are in accordance therewith.

Jane Norton FMAAT 23 / 08 / 2021 Date Norton Accountancy Licence no. 0521

CLIENT'S SIGNATURE

I have read the accounts prepared by Norton Accountancy and approve the figures

J Rawlings 24 / 08 / 2021 Signed Date M Scoffield 23 / 08 / 2021 Signed Date

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UKIST Profit & loss statement Year ended 5 April 2021

£

Income Donations received Grants Expenditure Accountancy Grants Family support Insurance training and research Subs Promotional items Printing, postage & stationary Social media & Website Profit for the year	32,998 7,083 40,081 300 2,816 5,121 431 6,349 158 361 237 176 15,949 17,049	32,998 7,083
		17,049

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Trustees’ Annual Report for the period

From 6 April 2020 to 5 April 2021

Charity name: UK Infantile Spasms Trust

Charity registration number: 1172167

Objectives and Activities

	SORP reference
Summary of the purposes of the charity as set out in its governing document	Para 1.17	The purpose of the charity is to provide a relief of the needs of those suffering from Infantile Spasms or West Syndrome
Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts.	Para 1.17 and 1.19	As follows but not exclusively: a) The provision of information, advice and other assistance and support to children, parents, families and carers of those affected by Infantile Spasms b) The promotion of research into the causes and treatment of Infantile Spasms and the publication of useful results of this research c) Raising the awareness of the public and of the medical professions on any matter relating to the charity objectives
Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit	Para 1.18	n/a

Additional information (optional) You may choose to include further statements where relevant about:

SORP reference n/a Para 1.38 Policy on grant making n/a Para 1.38 Policy on social investment including program related investment

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Other

Achievements and Performance

	SORP reference
Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole.	Para 1.20	The charity provides support to around 1300 families with children affected by Infantile Spasms. This includes sharing information, education, support and grants. It also improves the awareness of the symptoms of Infantile Spasms across the general public as well as within medical professions. The charity also supports the advancement of clinical research into the condition to help children suffering now and in the future.

Additional information (optional) Youmay choose toincludefurtherstatements	Additional information (optional) Youmay choose toincludefurtherstatements	whererelevant about:
Achievements against objectives set	Para 1.41	Achieving
Performance of fundraising activities against objectives set	Para 1.41	Achieving
Investment performance against objectives	Para 1.41	Profit is made annually therefore achieved
Other

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Financial Review

Financial Review
Review of the charity’s financial position at the end of the period	Para 1.21	The charity has performed well in the face of COVID and donations were still received leaving a profit of £17,049 in 2020/21.
Statement explaining the policy for holding reserves stating why they are held	Para 1.22	The reserves are held in the charity to cover future costs should there be a period where donations and fundraising **efforts do not cover this. **
Amount of reserves held	Para 1.22	£66,269
Reasons for holding zero reserves	Para 1.22	n/a
Details of fund materially in deficit	Para 1.24	n/a
Explanation of any uncertainties about the charity continuing as a going concern	Para 1.23	None
Additional information (optional) You may choose to include further statements		where relevant about:
The charity’s principal sources of funds (including any fundraising)	Para 1.47	The charity’s principal source of funds is from donations and fundraising events.
Investment policy and objectives including any social investment policy adopted	Para 1.46	None
A description of the principal risks facing the charity	Para 1.46	That not enough donations are made to keep the charity afloat. COVID has taken place during this year but the charity has still made a profit and we don’t expect the current year to be affected.
Other

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Structure, Governance and Management

Description of charity’s trusts:
Type of governing document	Para 1.25	Charitable Incorporated Organisation (CIO)
How is the charity constituted?	Para 1.25	Trust/CIO
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees	Para 1.25	Appointed by trustees normally at AGM

Additional information (optional)

You may choose to include further statements where relevant about:

n/a Policies and procedures adopted for the induction Para 1.51 and training of trustees n/a The charity’s organisational structure and any wider Para 1.51 network with which the charity works n/a Relationship with any related Para 1.51 parties n/a Other

Reference and Administrative details

Charityname	UK Infantile SpasmsTrust
Other name the charity uses	n/a
Registered charity number	1172167
Charity’s principal address	28 Overnhill Road Downend Bristol BS16 5DN

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Names of the charity trustees who manage the charity

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20	Trustee name	Office (if any)	Dates acted if not for whole year	Name of person (or body) entitled to appoint trustee(if any)
	Michelle Schofield
	JennyRawling
	Belen Robbins
	Louisa Coyle		From 2 May2020	Appointed at AGM
	Alice Goldhill		From 2 May2020	Appointed at AGM
	Samia Sanders

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Funds held as custodian trustees on behalf of others

Description of the assets held in this capacity

Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects

Details of arrangements for safe custody and segregation of such assets from the charity’s own assets

Additional information (optional)

Names and addresses of advisers (Optional information)

Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)
Type of adviser Name Address
Accountants	Norton Accountancy Ltd	7 Soundwell Road, Staple Hill, Bristol BS16 4QG

Name of chief executive or names of senior staff members (Optional information)

Not applicable

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Not applicable

Other optional information

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Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date
	Michelle Schofield	Jenny Rawling
	Treasurer	Trustee
	5 August 2021
	5 August 2021

Doc ID: 2dfc8222072fda0abea57bdb381e8680bbf71c43

Audit trail

TITLE Accounts and trustees report 2021 FILE NAME Acs 2021.pdf, TAR-DOC 2021.pdf DOCUMENT ID 2dfc8222072fda0abea57bdb381e8680bbf71c43 AUDIT TRAIL DATE FORMAT DD / MM / YYYY STATUS Completed

23 / 08 / 2021 Sent for signature to Sarah Jenkins 08:19:32 UTC ([e-mail]), Michelle Scoffield ([e-mail]) and Jenny Rawling ([e-mail]) from [e-mail] IP: 109.73.121.1 23 / 08 / 2021 Viewed by Sarah Jenkins ([e-mail]) 08:21:31 UTC IP: 109.73.121.1 23 / 08 / 2021 Signed by Sarah Jenkins ([e-mail]) 08:22:17 UTC IP: 109.73.121.1 23 / 08 / 2021 Viewed by Michelle Scoffield ([e-mail]) 10:40:26 UTC IP: 176.250.51.9 23 / 08 / 2021 Signed by Michelle Scoffield ([e-mail]) 10:40:47 UTC IP: 176.250.51.9

Audit trail

TITLE Accounts and trustees report 2021 FILE NAME Acs 2021.pdf, TAR-DOC 2021.pdf DOCUMENT ID 2dfc8222072fda0abea57bdb381e8680bbf71c43 AUDIT TRAIL DATE FORMAT DD / MM / YYYY STATUS Completed

24 / 08 / 2021 Viewed by Jenny Rawling ([e-mail]) 07:07:46 UTC IP: 86.181.84.92 24 / 08 / 2021 Signed by Jenny Rawling ([e-mail]) 07:08:59 UTC IP: 86.181.84.92 24 / 08 / 2021 The document has been completed. 07:08:59 UTC