**Unaudited profit and loss report** ## **for** **UK Infantile Spasms Trust** **Year ended 5 April 2021** Prepared 30 April 2021 Finalised 11 May 2021 By Norton Accountancy Ltd Doc ID: 2dfc8222072fda0abea57bdb381e8680bbf71c43 ## **ACCOUNTS FOR UKIST** ## **FOR THE PERIOD ENDED 5 APRIL 2021** ## **ACCOUNTANTS CERTIFICATE** We have prepared the attached accounts, without audit from the records and information supplied to us, and we confirm that they are in accordance therewith. Jane Norton FMAAT 23 / 08 / 2021 Date Norton Accountancy Licence no. 0521 ## **CLIENT'S SIGNATURE** I have read the accounts prepared by Norton Accountancy and approve the figures J Rawlings 24 / 08 / 2021 Signed Date M Scoffield 23 / 08 / 2021 Signed Date Doc ID: 2dfc8222072fda0abea57bdb381e8680bbf71c43 **UKIST Profit & loss statement Year ended 5 April 2021** ## **£** |_Income_
Donations received
Grants
_Expenditure_
Accountancy
Grants
Family support
Insurance
training and research
Subs
Promotional items
Printing, postage & stationary
Social media & Website
**Profit for the year**|32,998
7,083
40,081
300
2,816
5,121
431
6,349
158
361
237
176
15,949
**17,049**|32,998
7,083| |---|---|---| |||| |||**17,049**| Doc ID: 2dfc8222072fda0abea57bdb381e8680bbf71c43 ## **Trustees’ Annual Report for the period** ## **From 6 April 2020 to 5 April 2021** ## **Charity name: UK Infantile Spasms Trust** ## **Charity registration number: 1172167** ## **Objectives and Activities** ||SORP reference|| |---|---|---| |Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|**The purpose of the charity is to provide**
**a relief of the needs of those suffering**
**from Infantile Spasms or West**
**Syndrome**| |Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|**As follows but not exclusively:**
**a) The provision of information,**
**advice and other assistance and**
**support to children, parents,**
**families and carers of those**
**affected by Infantile Spasms**
**b) The promotion of research into**
**the causes and treatment of**
**Infantile Spasms and the**
**publication of useful results of**
**this research**
**c) Raising the awareness of the**
**public and of the medical**
**professions on any matter**
**relating to the charity objectives**| |Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|**n/a**| ## **Additional information (optional)** You may choose to include further statements where relevant about: SORP reference **n/a** Para 1.38 Policy on grant making **n/a** Para 1.38 Policy on social investment including program related investment Doc ID: 2dfc8222072fda0abea57bdb381e8680bbf71c43 Other ## **Achievements and Performance** ||SORP reference|| |---|---|---| |Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|**The charity provides support to around**
**1300 families with children affected by**
**Infantile Spasms. This includes sharing**
**information, education, support and**
**grants.**
**It also improves the awareness of the**
**symptoms of Infantile Spasms across**
**the general public as well as within**
**medical professions.**
**The charity also supports the**
**advancement of clinical research into**
**the condition to help children suffering**
**now and in the future.**| |**Additional information (optional)**
Youmay choose toincludefurtherstatements|**Additional information (optional)**
Youmay choose toincludefurtherstatements|whererelevant about:| |---|---|---| |Achievements against
objectives set|Para 1.41|**Achieving**| |Performance of fundraising
activities against objectives
set|Para 1.41|**Achieving**| |Investment performance
against objectives|Para 1.41|**Profit is made annually therefore**
**achieved**| |Other||| Doc ID: 2dfc8222072fda0abea57bdb381e8680bbf71c43 ## **Financial Review** |**Financial Review**||| |---|---|---| |Review of the charity’s
financial position at the end
of the period|Para 1.21|**The charity has performed well in the**
**face of COVID and donations were still**
**received leaving a profit of £17,049 in**
**2020/21.**| |Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|**The reserves are held in the charity to**
**cover future costs should there be a**
**period where donations and fundraising**
**efforts do not cover this. **| |Amount of reserves held|Para 1.22|**£66,269**| |Reasons for holding zero
reserves|Para 1.22|**n/a**| |Details of fund materially in
deficit|Para 1.24|**n/a**| |Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|**None**| |**Additional information (optional)**
You may choose to include further statements||where relevant about:| |The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|**The charity’s principal source of funds**
**is from donations and fundraising**
**events.**| |Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|**None**| |A description of the principal
risks facing the charity|Para 1.46|**That not enough donations are made to**
**keep the charity afloat. COVID has taken**
**place during this year but the charity**
**has still made a profit and we don’t**
**expect the current year to be affected.**| |Other||| Doc ID: 2dfc8222072fda0abea57bdb381e8680bbf71c43 ## **Structure, Governance and Management** |Description of charity’s
trusts:||| |---|---|---| |Type of governing document|Para 1.25|**Charitable Incorporated Organisation**
**(CIO)**| |How is the charity
constituted?|Para 1.25|**Trust/CIO**| |Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|**Appointed by trustees normally at AGM**| ## **Additional information (optional)** You may choose to include further statements where relevant about: **n/a** Policies and procedures adopted for the induction Para 1.51 and training of trustees **n/a** The charity’s organisational structure and any wider Para 1.51 network with which the charity works **n/a** Relationship with any related Para 1.51 parties **n/a** Other ## **Reference and Administrative details** |Charityname|UK Infantile SpasmsTrust| |---|---| |Other name the charity uses|n/a| |Registered charity number|1172167| |Charity’s principal address|28 Overnhill Road
Downend
Bristol
BS16 5DN| Doc ID: 2dfc8222072fda0abea57bdb381e8680bbf71c43 ## **Names of the charity trustees who manage the charity** |1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year**|**Name of person (or body) entitled**
**to appoint trustee(if any)**| |---|---|---|---|---| ||Michelle Schofield|||| ||JennyRawling|||| ||Belen Robbins|||| ||Louisa Coyle||From 2 May2020|Appointed at AGM| ||Alice Goldhill||From 2 May2020|Appointed at AGM| ||Samia Sanders|||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| Doc ID: 2dfc8222072fda0abea57bdb381e8680bbf71c43 ## **Funds held as custodian trustees on behalf of others** Description of the assets held in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** |**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**| |---|---|---| |**Type of adviser**
**Name**
**Address**||| |**Accountants**|Norton
Accountancy
Ltd|7 Soundwell Road, Staple Hill, Bristol BS16 4QG| |||| |||| |||| ## **Name of chief executive or names of senior staff members (Optional information)** Not applicable ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details **Not applicable** ## **Other optional information** Doc ID: 2dfc8222072fda0abea57bdb381e8680bbf71c43 ## **Declarations** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** |**Signature(s)**
**Full name(s)**
**Position (eg Secretary,**
**Chair, etc)**
**Date**||| |---|---|---| ||Michelle Schofield|Jenny Rawling| ||
Treasurer|Trustee| ||5 August 2021|| ||5 August 2021|| Doc ID: 2dfc8222072fda0abea57bdb381e8680bbf71c43 Audit trail TITLE Accounts and trustees report 2021 FILE NAME Acs 2021.pdf, TAR-DOC 2021.pdf DOCUMENT ID 2dfc8222072fda0abea57bdb381e8680bbf71c43 AUDIT TRAIL DATE FORMAT DD / MM / YYYY STATUS Completed **23 / 08 / 2021** Sent for signature to Sarah Jenkins 08:19:32 UTC (sarah@nortonaccountancy.co.uk), Michelle Scoffield (michellescoffield@hotmail.com) and Jenny Rawling (jenny.rawling@googlemail.com) from docs@nortonaccountancy.co.uk IP: 109.73.121.1 **23 / 08 / 2021** Viewed by Sarah Jenkins (sarah@nortonaccountancy.co.uk) 08:21:31 UTC IP: 109.73.121.1 **23 / 08 / 2021** Signed by Sarah Jenkins (sarah@nortonaccountancy.co.uk) 08:22:17 UTC IP: 109.73.121.1 **23 / 08 / 2021** Viewed by Michelle Scoffield (michellescoffield@hotmail.com) 10:40:26 UTC IP: 176.250.51.9 **23 / 08 / 2021** Signed by Michelle Scoffield (michellescoffield@hotmail.com) 10:40:47 UTC IP: 176.250.51.9 Audit trail TITLE Accounts and trustees report 2021 FILE NAME Acs 2021.pdf, TAR-DOC 2021.pdf DOCUMENT ID 2dfc8222072fda0abea57bdb381e8680bbf71c43 AUDIT TRAIL DATE FORMAT DD / MM / YYYY STATUS Completed **24 / 08 / 2021** Viewed by Jenny Rawling (jenny.rawling@googlemail.com) 07:07:46 UTC IP: 86.181.84.92 **24 / 08 / 2021** Signed by Jenny Rawling (jenny.rawling@googlemail.com) 07:08:59 UTC IP: 86.181.84.92 **24 / 08 / 2021** The document has been completed. 07:08:59 UTC