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2023-04-06-accounts

Trustees’ annual report Section C: Notes to the accounts for the period

Period end date 06.04.23

Charity name Madelung’s Deformity Charity Charity No (if any ) 1171052 Period start date 07.04.2022

Objectives and Activities

Objectves and Actvites Objectves and Actvites Objectves and Actvites
SORP
reference
Summary of the purposes of the
charity as set out in its governing
document
Para 1.17 To help support suferers and to inform the wider
community regarding Madelungs Deformity
Summary of the main actvites in
relaton to those purposes for
the public beneft, in partcular,
the actvites, projects or services
identfed in the accounts.
Para 1.17 and
1.19
To raise awareness of Madelungs deformity and
to provided non-medical support and advice for
suferers, their families and the wider
community, including medical professionals and
heath professionals.
Statement confrming whether the
trustees have had regard to the
guidance issued by the Charity
Commission onpublic beneft
Para 1.18 Yes, we have had regard to the guidance issued
by the charity commission on public beneft

Additional information (optional)

You may choose to include further statements where relevant about:

SORP
reference
Policy on grant making Para 1.38
Policy on social investment
including program related
investment
Para 1.38
Contributon made by volunteers Para 1.38
Other

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SORP
reference
Summary of the main achievements
of the charity, identfying the
diference the charity’s work has
made to the circumstances of its
benefciaries and any wider benefts
to society as a whole.
Para 1.20 To raise awareness of Madelung’s deformity and
to provided non-medical support and advice for
suferers, their families and the wider community,
including medical professionals and heath
professionals and to make others aware of this
very rare conditon, what it is, how it afects
others and what can be suggested to use for non-
medical pain management and how to help with
every day tasks they may struggle with as suggest
by others who have the same conditon.

Additional information (optional)

You may choose to include further statements where relevant about:

SORP
reference
Achievements against objectves set Para 1.41
Performance of fundraising actvites
against objectves set
Para 1.41
Investment performance against
objectves
Para 1.41
Other
Financial Review
SORP
reference
Review of the charity’s fnancial
positon at the end of theperiod
Para 1.21 Total incoming £20
Statement explaining the policy for
holding reserves statng why they
are held
Para 1.22 N/A

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Amount of reserves held Para 1.22 None
Reasons for holding zero reserves Para 1.22 N/A
Details of fund materially in defcit Para 1.24 N/A
Explanaton of any uncertaintes
about the charity contnuing as a
goingconcern
Para 1.23 N/A

Additional information (optional)

You may choose to include further statements where relevant about:

SORP
reference
The charity’s principal sources of
funds (including any fundraising)
Para 1.47 Fundraising and individual donatons
Investment policy and objectves
including any social investment
policy adopted
Para 1.46
A descripton of the principal risks
facing the charity
Para 1.46
Other
Structure,Governance and Management
Descripton of charity’s trusts: SORP
reference
Type of governing document
(trust deed,royal charter)
Para 1.25 Not sure what this means?
How is the charity consttuted?
(e.g. unincorporated associaton,
CIO)
Para 1.25 CIO
Trustee selecton methods including
details of any consttutonal
provisions e.g. electon to post
or name of any person or body
enttled to appoint one or more
trustees
Para 1.25

Additional information (optional)

You may choose to include further statements where relevant about:

SORP

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October 2016

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reference
Policies and procedures adopted for
the inducton and training of
trustees
Para 1.51
The charity’s organisatonal
structure and any wider network
with which the charityworks
Para 1.51
Relatonship with any related partes Para 1.51
Other
Charity name Madelung’s Deformity Charity
Other name the charity uses Madelung’s Awareness
Registered charity number 117052
Charity’s principal address 46 Pondfeld Lane
Brentwood
Essex
CM13 2BX

Names of the charity trustees who manage the charity

Trustee name Ofce (if any) Dates acted if not for whole
year
Name of person (or body)
enttled to appoint trustee
(if any)
Charlote Kendall
Weston Kendall
Jamie Kendall
Natalie Tivey

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4

5

6

7

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9

10 11 12 13 14 15 16 17 18 19

20

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Reference and Administrative details

(cont)

Corporate trustees – names of the directors at the date the report was approved

Director name N/A

Name of trustees holding title to property belonging to the charity

Trustee name Dates acted if not for whole
year
Dates acted if not for whole
year
N/A
Funds held as custodian trustees on behalf of others
Descripton of the assets held in this
capacity
N/A

Description of the assets held in this N/A capacity

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October 2016

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Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects

Details of arrangements for safe custody and segregation of such assets from the charity’s own assets

Additional information (optional)

Names and addresses of advisers (Optional information)

Type of adviser Name Address

Name of chief executive or names of senior staff members (Optional information)

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

C.kendall

Signature(s)

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October 2016

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Charlotte Kendall

Full name(s)

Position (eg Secretary, Chair, etc)

Date 07/04/24

Charity Accounts templates – Trustees’ annual report for the period

October 2016

Madelungs Deformity Charity Madelungs Deformity Charity Madelungs Deformity Charity No (if any) No (if any) CC16a
For the period
from
07.04.2022 To 06.04.2023
Section A Receipts and payments
to the nearest £
A1 Receipts
-
-
-
-
-
-
-
-
-
-
-
Sub total -
Total receipts -
A3 Payments
-
nothingraised duringthatperiod
-
-
-
-
-
-
-
-
Sub total -
-
-
Sub total -
Total payments -
Net of receipts/(payments) -
A5 Transfers between funds
-
A6 Cash funds last year end
-
Cash funds this year end -
Unrestricted
funds
Sub total(Gross income for AR)
A2 Asset and investment sales,
(see table).
A4 Asset and investment
purchases, (see table)
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
Restricted
funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
Endowment
funds
Total funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
Last year
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
- - - -
- - - -
- - - -
- - - -
Section B Statement of assets and liabilities at the end of the period Section B Statement of assets and liabilities at the end of the period Section B Statement of assets and liabilities at the end of the period
Categories
B1 Cash funds
B2 Other monetary assets
B3 Investment assets
B5 Liabilities
B4 Assets retained for the
charity’s own use
Signed by one or two trustees on
behalf of all the trustees
Details
Details
nothing raised during that period
Details
nothingraised
Details
Details
Signature
charlotte kendall
Total cash funds
(agree balances with receipts and payments
account(s))
to nearest £
to nearest £
-
-
-
-
-
-
-
-
OK
OK
to nearest £
to nearest £
-
-
-
-
-
-
-
-
-
-
-
-
Cost (optional)
-
-
-
-
-
Cost (optional)
-
-
-
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-
-
-
-
-
-
-
-
-
-
Print Name
charlotte kendall
Unrestricted
funds
Restricted
funds
Unrestricted
funds
Restricted
funds
Fund to which
asset belongs
Fund to which
asset belongs
Fund to which
liability relates
Amount due
(optional)
to nearest £
Endowment
funds
-
-
-
-
OK
to nearest £
Endowment
funds
-
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
-
-
-
-
When due
(optional)
Date of
approval
charlotte kendall charlotte kendall 07.004.2024