## Trustees’ annual report Section C:  Notes to the accounts for the period 


Period end date 06.04.23 

> Charity name Madelung’s Deformity Charity Charity No (if any ) 1171052 Period start date 07.04.2022 

## Objectives and Activities 

|Objectves and Actvites|Objectves and Actvites|Objectves and Actvites||
|---|---|---|---|
||SORP<br>reference|||
|Summary of the purposes of the<br>charity as set out in its governing<br>document|Para 1.17|To help support suferers and to inform the wider<br>community regarding Madelungs Deformity||
|Summary of the main actvites in<br>relaton to those purposes for<br>the public beneft, in partcular,<br>the actvites, projects or services<br>identfed in the accounts.|Para 1.17 and<br>1.19|To raise awareness of Madelungs deformity and<br>to provided non-medical support and advice for<br>suferers, their families and the wider<br>community, including medical professionals and<br>heath professionals.||
|Statement confrming whether the<br>trustees have had regard to the<br>guidance issued by the Charity<br>Commission onpublic beneft|Para 1.18|Yes, we have had regard to the guidance issued<br>by the charity commission on public beneft||



## Additional information (optional) 

You may choose to include further statements where relevant about: 

||SORP<br>reference||
|---|---|---|
|Policy on grant making|Para 1.38||
|Policy on social investment<br>including program related<br>investment|Para 1.38||
|Contributon made by volunteers|Para 1.38||
|Other|||



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|2 of 8|||
|---|---|---|
||SORP||
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||reference||
|Summary of the main achievements<br>of the charity, identfying the<br>diference the charity’s work has<br>made to the circumstances of its<br>benefciaries and any wider benefts<br>to society as a whole.|Para 1.20|To raise awareness of Madelung’s deformity and<br>to provided non-medical support and advice for<br>suferers, their families and the wider community,<br>including medical professionals and heath<br>professionals and to make others  aware of this<br>very rare conditon, what it is, how it afects<br>others and what can be suggested to use for non-<br>medical pain management and how to help with<br>every day tasks they may struggle with as suggest<br>by others who have the same conditon.|



## Additional information (optional) 

You may choose to include further statements where relevant about: 

||SORP<br>reference||
|---|---|---|
|Achievements against objectves set|Para 1.41||
|Performance of fundraising actvites<br>against objectves set|Para 1.41||
|Investment performance against<br>objectves|Para 1.41||
|Other|||
|Financial Review|||
||SORP<br>reference||
|Review of the charity’s fnancial<br>positon at the end of theperiod|Para 1.21|Total incoming £20|
|Statement explaining the policy for<br>holding reserves statng why they<br>are held|Para 1.22|N/A|



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|3 of 8|||
|---|---|---|
|Amount of reserves held|Para 1.22|None|
||||
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|Reasons for holding zero reserves|Para 1.22|N/A|
|Details of fund materially in defcit|Para 1.24|N/A|
|Explanaton of any uncertaintes<br>about the charity contnuing as a<br>goingconcern|Para 1.23|N/A|



## Additional information (optional) 

You may choose to include further statements where relevant about: 

||SORP<br>reference||
|---|---|---|
|The charity’s principal sources of<br>funds (including any fundraising)|Para 1.47|Fundraising and individual donatons|
|Investment policy and objectves<br>including any social investment<br>policy adopted|Para 1.46||
|A descripton of the principal risks<br>facing the charity|Para 1.46||
|Other|||
|Structure,Governance and Management|||
|Descripton of charity’s trusts:|SORP<br>reference||
|Type of governing document<br>(trust deed,royal charter)|Para 1.25|Not sure what this means?|
|How is the charity consttuted?<br>(e.g. unincorporated associaton,<br>CIO)|Para 1.25|CIO|
|Trustee selecton methods including<br>details of any consttutonal<br>provisions e.g. electon to post<br>or name of any person or body<br>enttled to appoint one or more<br>trustees|Para 1.25||



## Additional information (optional) 

You may choose to include further statements where relevant about: 

SORP 

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|4 of 8|||
|---|---|---|
||reference||
||||
|Policies and procedures adopted for<br>the inducton and training of<br>trustees|Para 1.51||
|The charity’s organisatonal<br>structure and any wider network<br>with which the charityworks|Para 1.51||
|Relatonship with any related partes|Para 1.51||
|Other|||



|Charity name|Madelung’s Deformity Charity|
|---|---|
|Other name the charity uses|Madelung’s Awareness|
|Registered charity number|117052|
|Charity’s principal address|46 Pondfeld Lane<br>Brentwood<br>Essex<br>CM13 2BX|



Names of the charity trustees who manage the charity 

|Trustee name|Ofce (if any)|Dates acted if not for whole<br>year|Name of person (or body)<br>enttled to appoint trustee<br>(if any)|
|---|---|---|---|
|Charlote Kendall||||
|Weston Kendall||||
|Jamie Kendall||||
|Natalie Tivey||||
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## Reference and Administrative details 

(cont) 

Corporate trustees – names of the directors at the date the report was approved 

Director name N/A 

## Name of trustees holding title to property belonging to the charity 

|Trustee name|Dates acted if not for whole<br>year|Dates acted if not for whole<br>year|||
|---|---|---|---|---|
|N/A|||||
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|Funds held as custodian trustees on behalf of others|||||
|Descripton of the assets held in this<br>capacity||N/A|||



Description of the assets held in this N/A capacity 

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Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects 

Details of arrangements for safe custody and segregation of such assets from the charity’s own assets 

## Additional information (optional) 

Names and addresses of advisers (Optional information) 

Type of adviser Name Address 

Name of chief executive or names of senior staff members (Optional information) 

## Exemptions from disclosure 

Reason for non-disclosure of key personnel details 

## Other optional information 

## Declarations 

The trustees declare that they have approved the trustees’ report above. 

Signed on behalf of the charity’s trustees 

C.kendall 

Signature(s) 

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## Charlotte Kendall 

Full name(s) 

Position (eg Secretary, Chair, etc) 

Date 07/04/24 

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||**Madelungs Deformity Charity**|**Madelungs Deformity Charity**|**Madelungs Deformity Charity**|**No (if any)**|**No (if any)**|**CC16a**|
|---|---|---|---|---|---|---|
||**For the period**<br>**from**|07.04.2022|**To**||06.04.2023||
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|**Section A Receipts and payments**|||||||
|**to the nearest      £**<br>**A1 Receipts**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**_Sub total_                               -**<br>**_Total receipts_                            -**<br>**A3 Payments**<br>**-**<br>nothingraised duringthatperiod<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**_Sub total_                                -**<br>**-**<br>**-**<br>**_Sub total_                                -**<br>**_Total payments_                            -**<br>**_Net of receipts/(payments)_                            -**<br>**A5 Transfers between funds**<br>**-**<br>**A6 Cash funds last year end**<br>**-**<br>**_Cash funds this year end_                            -**<br>**Unrestricted**<br>**funds**<br>**_Sub total_**_(Gross income for AR)_<br>**A2 Asset and investment sales,**<br>**(see table).**<br>**A4 Asset and investment**<br>**purchases, (see table)**||**to the nearest £**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Restricted**<br>**funds**|**to the nearest £**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Endowment**<br>**funds**||**Total funds**<br>**to the nearest £**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**|**Last year**<br>**to the nearest £**|
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|**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**||
|---|---|---|---|
|**Categories**<br>**B1 Cash funds**<br>**B2 Other monetary assets**<br>**B3 Investment assets**<br>**B5 Liabilities**<br>**B4 Assets retained for the**<br>**charity’s own use**<br>Signed by one or two trustees on<br>behalf of all the trustees|**Details**<br>**Details**<br>nothing raised during that period<br>**Details**<br>nothingraised<br>**Details**<br>**Details**<br>Signature<br>charlotte kendall<br>**_Total cash funds_**<br>(agree balances with receipts and payments<br>account(s))|**to nearest £**<br>**to nearest £**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>OK<br>OK<br>**to nearest £**<br>**to nearest £**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Cost (optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Cost (optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>Print Name<br>charlotte kendall<br>**Unrestricted**<br>**funds**<br>**Restricted**<br>**funds**<br>**Unrestricted**<br>**funds**<br>**Restricted**<br>**funds**<br>**Fund to which**<br>**asset belongs**<br>**Fund to which**<br>**asset belongs**<br>**Fund to which**<br>**liability relates**<br>**Amount due**<br>**(optional)**|**to nearest £**<br>**Endowment**<br>**funds**|
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||||Date of<br>approval|
||charlotte kendall|charlotte kendall|07.004.2024|
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