Trustees’ Annual Report for the period
From 02/04/2021 Period start date To 01/04/2022 Period end date
Charity name: Vitiligo Support UK
Charity registration number: 1170557
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | To promote and protect the physical and mental health of sufferers of vitiligo in England and Wales by the provision of support, education and practical advice and to advance the education of the public in all areas relating to vitiligo |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
Providing advice, advocacy, support, and information to those with vitiligo, their families and friends via our closed support group on Facebook Using social media to signpost services and information. Providing advocacy for patients with vitiligo via membership of committees and working groups within the British Association of Dermatologists (BAD) Leading as patient representative on the Patient Engagement Workstream at the BAD and providing a survey of patients’ views on the increase in teledermatology in this period. Leading a patient representative on the development of an app to provide psychosocial support for patients with skin disease in conjunction with Professor Andrew Thompson of the University of Cardiff and Dr Anthony Bewley, consultant dermatologist and chair Psychodermatology UK. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | We have had regard to the guidance issued by the Charity Commission in respect of public benefit. |
Additional information (optional) You may choose to include further statements where relevant about:
SORP reference
Para 1.38 Policy on grant making Para 1.38 Policy on social investment including program related investment Para 1.38 Contribution made by volunteers Other
Achievements and Performance
| SORP reference | ||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | As a charity, we have continued to work to ensure that vitiligo is represented nationally as a condition at the British Association of Dermatologists (BAD) and in the NHS Working Group relating to the management of teledermatology. We contributed as lay representative to production of the national NB-UVB guidelines, written by the working group at the BAD> We lead the Patient Engagement Workstream at the BAD in this period and produced a survey of patients eliciting views on the increased use of teledermatology and its impact on the psychosocial aspects of skin disease and medication compliance, the results of which were published as a letter in the British Journal of Dermatology. We provided extensive support and advice to patients in our closed Facebook group and used the Guidelines for managing patients with vitiligo to provide standardised advice for our members to enable them to access primary care, shape their treatment and go on to secondary care where appropriate. We increased our presence on Twitter, using our account to disseminate advice on vitiligo and attendant conditions such as thyroid disease. |
We provided advice and support to Dr John Ferguson of Guy’s Hospital in the establishment of a specialist Vitiligo clinic and application for funding for a data registry relating to vitiligo.
Additional information (optional)
You may choose to include further statements where relevant about:
| Achievements against objectives set |
Para 1.41 | |
| Performance of fundraising activities against objectives set |
Para 1.41 | |
| Investment performance against objectives |
Para 1.41 | |
| Other |
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | The charity maintained its stable financial position in this period. |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | No material reserves are held due to the charity’s conservative management. |
| Amount of reserves held | Para 1.22 | See above. |
| Reasons for holding zero reserves |
Para 1.22 | See above. |
| Details of fund materially in deficit |
Para 1.24 | See above. |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | None. |
Additional information (optional)
You may choose to include further statements where relevant about:
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | |
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | |
| A description of the principal risks facing the charity |
Para 1.46 | |
| Other |
Structure, Governance and Management
| Description of charity’s trusts: |
||
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | CIO Constitution |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | Charitable Incorporated Organisation |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Trustees are appointed by the existing trustees, following the provisions of the constitution. |
Additional information (optional)
You may choose to include further statements where relevant about:
Policies and procedures adopted for the induction Para 1.51 and training of trustees The charity’s organisational structure and any wider Para 1.51 network with which the charity works Relationship with any related Para 1.51 parties Other
Reference and Administrative details
| Charity name | Vitiligo Support UK |
|---|---|
| Other name the charity uses | |
| Registered charitynumber | 1170557 |
| Charity’s principal address | 36 Avondale Avenue, Esher, Surrey KT10 0DA |
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Trustee name | Office (if any) | Dates acted if not for whole **year ** |
Name of person (or body) entitled to appoint trustee (ifany) |
|---|---|---|---|---|
| Emma Rush | Chair of Trustees | |||
| Peter Rush | ||||
| Kate Burnside | ||||
| Sara Day | ||||
| Joanna Jackson | ||||
– Corporate trustees names of the directors at the date the report was approved
Director name
Name of trustees holding title to property belonging to the charity
Trustee name Dates acted if not for whole year
Funds held as custodian trustees on behalf of others
Description of the assets None held in this capacity
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
| Type of | Name | Address |
|---|---|---|
| adviser |
Name of chief executive or names of senior staff members (Optional information)
Exemptions from disclosure
Reason for non-disclosure of key personnel details
None
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date
Vitiligo Support UK 1170557 Receipts and payments accounts For the period 2-Apr-21 1-Apr-22 To from
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CC16a
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Section A Receipts and payments
Unrestricted Restricted Endowment funds funds funds
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Total funds Last year
funds funds funds
to the nearest
to the nearest £ to the nearest £ to the nearest £ to the nearest £
£
A1 Receipts -
Donations 84 - - 84 -
Grant - - - - 84
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
84 - - 84 84
Sub total (Gross income for AR)
A2 Asset and investment sales,
(see table).
- - - -
- - - - -
Sub total - - - - -
Total receipts 84 - - 84 84
A3 Payments
Insurance 84 - - 84 -
Research Expenses - - - - 84
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Sub total [ 84 ] - - 84 84
A4 Asset and investment
purchases, (see table)
- - - -
- - - -
Sub total [ - ] - - - -
Total payments 84 - - 84 84
Net of receipts/(payments) [ - ] - - - -
A5 Transfers between funds - - - - -
A6 Cash funds last year end - - - - -
Cash funds this year end [ - ] - - - -
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Section B Statement of assets and liabilities at the end of the period
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Unrestricted Restricted Endowment
Categories Details funds funds funds
to nearest £ to nearest £ to nearest £
B1 Cash funds - - -
- - -
- - -
Total cash funds - - -
(agree balances with receipts and payments
account(s)) OK OK OK
Unrestricted Restricted Endowment
funds funds funds
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| B2 Other monetary assets | Details | to nearest £ - - - - - - |
to nearest £ |
- - - - - - |
to nearest £ - - - - - - |
|---|---|---|---|---|---|
| B3 Investment assets | Details | Fund to which asset belongs |
Cost (optional) - - - - - |
- - - - - Current value (optional) |
|
| B4 Assets retained for the | Details | Fund to which asset belongs |
Cost (optional) - |
- Current value (optional) |
|
| charity’s own use | - - - - - - - - |
- - - - - - - - |
|||
| Fund to which | Amount due | When due | |||
| B5 Liabilities | Details | liability relates | (optional) |
- - - - - |
(optional) |
| Signed by one or two trustees on behalf of all the trustees |
Signature | Name | Date of approval |