## **Trustees’ Annual Report for the period**
## **From 02/04/2021 Period start date To 01/04/2022 Period end date**
## **Charity name: Vitiligo Support UK**
## **Charity registration number: 1170557**
## **Objectives and Activities**
||SORP reference||
|---|---|---|
|Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|To promote and protect the physical and
mental health of sufferers of vitiligo in
England and Wales by the provision of
support, education and practical advice and
to advance the education of the public in all
areas relating to vitiligo|
|Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|Providing advice, advocacy, support, and
information to those with vitiligo, their
families and friends via our closed support
group on Facebook
Using social media to signpost services
and information.
Providing advocacy for patients with vitiligo
via membership of committees and working
groups within the British Association of
Dermatologists (BAD)
Leading as patient representative on the
Patient Engagement Workstream at the
BAD and providing a survey of patients’
views on the increase in teledermatology in
this period.
Leading a patient representative on the
development of an app to provide
psychosocial support for patients with skin
disease in conjunction with Professor
Andrew Thompson of the University of
Cardiff and Dr Anthony Bewley, consultant
dermatologist and chair
Psychodermatology UK.|
|Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|We have had regard to the guidance issued
by the Charity Commission in respect of
public benefit.|
**Additional information (optional)** You may choose to include further statements where relevant about:
SORP reference
Para 1.38 Policy on grant making Para 1.38 Policy on social investment including program related investment Para 1.38 Contribution made by volunteers Other
## **Achievements and Performance**
||SORP reference||
|---|---|---|
|Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|As a charity, we have continued to work to
ensure that vitiligo is represented nationally
as a condition at the British Association of
Dermatologists (BAD) and in the NHS
Working Group relating to the management
of teledermatology.
We contributed as lay representative to
production of the national NB-UVB
guidelines, written by the working group at
the BAD>
We lead the Patient Engagement
Workstream at the BAD in this period and
produced a survey of patients eliciting
views on the increased use of
teledermatology and its impact on the
psychosocial aspects of skin disease and
medication compliance, the results of which
were published as a letter in the British
Journal of Dermatology.
We provided extensive support and advice
to patients in our closed Facebook group
and used the Guidelines for managing
patients with vitiligo to provide standardised
advice for our members to enable them to
access primary care, shape their treatment
and go on to secondary care where
appropriate.
We increased our presence on Twitter,
using our account to disseminate advice on
vitiligo and attendant conditions such as
thyroid disease.|
We provided advice and support to Dr John Ferguson of Guy’s Hospital in the establishment of a specialist Vitiligo clinic and application for funding for a data registry relating to vitiligo.
## **Additional information (optional)**
You may choose to include further statements where relevant about:
||||
|---|---|---|
|Achievements against
objectives set|Para 1.41||
|Performance of fundraising
activities against objectives
set|Para 1.41||
|Investment performance
against objectives|Para 1.41||
|Other|||
## **Financial Review**
|**Financial Review**|||
|---|---|---|
|Review of the charity’s
financial position at the end
of the period|Para 1.21|The charity maintained its stable financial
position in this period.|
|Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|No material reserves are held due to the
charity’s conservative management.|
|Amount of reserves held|Para 1.22|See above.|
|Reasons for holding zero
reserves|Para 1.22|See above.|
|Details of fund materially in
deficit|Para 1.24|See above.|
|Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|None.|
## **Additional information (optional)**
You may choose to include further statements where relevant about:
||||
|---|---|---|
|The charity’s principal
sources of funds (including
any fundraising)|Para 1.47||
|Investment policy and
objectives including any
social investment policy
adopted|Para 1.46||
|A description of the principal
risks facing the charity|Para 1.46||
|Other|||
## **Structure, Governance and Management**
|Description of charity’s
trusts:|||
|---|---|---|
|Type of governing document
(trust deed, royal charter)|Para 1.25|CIO Constitution|
|How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|Charitable Incorporated Organisation|
|Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|Trustees are appointed by the existing
trustees, following the provisions of the
constitution.|
## **Additional information (optional)**
## You may choose to include further statements where relevant about:
Policies and procedures adopted for the induction Para 1.51 and training of trustees The charity’s organisational structure and any wider Para 1.51 network with which the charity works Relationship with any related Para 1.51 parties Other
## **Reference and Administrative details**
|Charity name|Vitiligo Support UK|
|---|---|
|Other name the charity uses||
|Registered charitynumber|1170557|
|Charity’s principal address|36 Avondale Avenue, Esher, Surrey
KT10 0DA|
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## **Names of the charity trustees who manage the charity**
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20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year **|**Name of person (or body) entitled**
**to appoint trustee (ifany)**|
|---|---|---|---|---|
||Emma Rush|Chair of Trustees|||
||Peter Rush||||
||Kate Burnside||||
||Sara Day||||
||Joanna Jackson||||
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## – Corporate trustees names of the directors at the date the report was approved
**Director name**
Name of trustees holding title to property belonging to the charity
**Trustee name Dates acted if not for whole year**
## **Funds held as custodian trustees on behalf of others**
Description of the assets None held in this capacity
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets
## **Additional information (optional)**
## **Names and addresses of advisers (Optional information)**
|**Type of**|**Name**|**Address**|
|---|---|---|
|**adviser**|||
**Name of chief executive or names of senior staff members (Optional information)**
## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
**None**
## **Other optional information**
## **Declarations**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date**
**Vitiligo Support UK 1170557 Receipts and payments accounts For the period** 2-Apr-21 1-Apr-22 **To from**
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CC16a
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## **Section A Receipts and payments**
**Unrestricted Restricted Endowment funds funds funds**
**----- Start of picture text -----**
Total funds Last year
funds funds funds
to the nearest
to the nearest £ to the nearest £ to the nearest £ to the nearest £
£
A1 Receipts -
Donations 84 - - 84 -
Grant - - - - 84
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
84 - - 84 84
Sub total (Gross income for AR)
A2 Asset and investment sales,
(see table).
- - - -
- - - - -
Sub total - - - - -
Total receipts 84 - - 84 84
A3 Payments
Insurance 84 - - 84 -
Research Expenses - - - - 84
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Sub total [ 84 ] - - 84 84
A4 Asset and investment
purchases, (see table)
- - - -
- - - -
Sub total [ - ] - - - -
Total payments 84 - - 84 84
Net of receipts/(payments) [ - ] - - - -
A5 Transfers between funds - - - - -
A6 Cash funds last year end - - - - -
Cash funds this year end [ - ] - - - -
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## **Section B Statement of assets and liabilities at the end of the period**
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Unrestricted Restricted Endowment
Categories Details funds funds funds
to nearest £ to nearest £ to nearest £
B1 Cash funds - - -
- - -
- - -
Total cash funds - - -
(agree balances with receipts and payments
account(s)) OK OK OK
Unrestricted Restricted Endowment
funds funds funds
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|**B2 Other monetary assets**|**Details**|**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**|**to nearest £**
|**-**
**-**
**-**
**-**
**-**
**-**|**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**|
|---|---|---|---|---|---|
|**B3 Investment assets**|**Details**|**Fund to which**
**asset belongs**|**Cost (optional)**
**-**
**-**
**-**
**-**
**-**||**-**
**-**
**-**
**-**
**-**
**Current value**
**(optional)**|
|**B4 Assets retained for the**|**Details**|**Fund to which**
**asset belongs**|**Cost (optional)**
**-**||**-**
**Current value**
**(optional)**|
|**charity’s own use**|||
|**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|
|||**Fund to which**|**Amount due**||**When due**|
|**B5 Liabilities**|**Details**|**liability relates**|
**(optional)**|**-**
**-**
**-**
**-**
**-**|**(optional)**|
|Signed by one or two trustees on
behalf of all the trustees|Signature|Print|Name||Date of
approval|