Trustees’ Annual Report for the period
From 02/04/2020 Period start date To 01/04/2021 Period end date
Charity name: Vitiligo Support UK
Charity registration number: 1170557
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | To promote and protect the physical and mental health of sufferers of vitiligo in England and Wales by the provision of support, education and practical advice and to advance the education of the public in all areas relating to vitiligo |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
This period was spent in part in national lockdown due to COVID-19. We provided support to patients through our support group who were experiencing heightened distress at their skin condition during this period. We represented patients with vitiligo in the NHS Dermatology Advisory Group in dealing with the advent of teledermatology for patients and representing concerns that this might disadvantage vitiligo patients. We continued to contribute to the British Association of Dermatologists Guidelines for managing patients with vitiligo representing the practicalities of having the skin disease, and the psychosocial impact of the disease and providing a vital treatment roadmap giving structure and support to patients’ treatment journies. We responded to patient queries through our main engagement with our members, the Facebook group, giving advice as to how to access treatment using the Guidelines mentioned above and supporting people in their advocacy for their skin disease. |
| Statement confirming whether the trustees have had regard to the guidance |
Para 1.18 | We have had regard to the guidance issued by the Charity Commission in respect of public benefit. |
issued by the Charity Commission on public benefit
Additional information (optional)
You may choose to include further statements where relevant about:
SORP reference Para 1.38 Policy on grant making Para 1.38 Policy on social investment including program related investment Para 1.38 Contribution made by volunteers Other
Achievements and Performance
| SORP reference | ||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | As a charity, we have worked hard to ensure that vitiligo is represented as a condition at the British Association of Dermatologists (BAD) and in the NHS Working Group relating to the management of teledermatology. We advocate for patients by representing them on committees such as the Patient Engagement Workstream at the BAD where we ensure that we can canvass the views of our members on issues that arise in relation to current topics, such as the use of images to triage patients into the dermatology service. We contributed to the “Vitiligo” chapter of the book_Skin conditions in young people: _A practical guide on how to be comfortable _in your skin_by Tess McPherson in order to help young people with vitiligo and educate them about treatments for their condition and managing its impact. Our work on the Guidelines for managing patients with vitiligo enabled us in particular to represent the importance of including psychosocial impact as an assessment |
criteria for access to secondary care, as we have first hand experience through our membership in this being one of the key impacts of the skin disease.
Additional information (optional) You may choose to include further statements where relevant about:
| Achievements against objectives set |
Para 1.41 | |
|---|---|---|
| Performance of fundraising activities against objectives set |
Para 1.41 | |
| Investment performance against objectives |
Para 1.41 | |
| Other |
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | The charity maintained its stable financial position in this period. |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | No material reserves are held due to the charity’s conservative management. |
| Amount of reserves held | Para 1.22 | See above. |
| Reasons for holding zero reserves |
Para 1.22 | See above. |
| Details of fund materially in deficit |
Para 1.24 | See above. |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | None. |
Additional information (optional)
You may choose to include further statements where relevant about:
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | |
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | |
| A description of the principal risks facing the charity |
Para 1.46 | |
| Other |
Structure, Governance and Management
| Description of charity’s trusts: |
||
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | CIO Constitution |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | Charitable Incorporated Organisation |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Trustees are appointed by the existing trustees, following the provisions of the constitution. |
Additional information (optional)
You may choose to include further statements where relevant about:
Policies and procedures adopted for the induction Para 1.51 and training of trustees The charity’s organisational structure and any wider Para 1.51 network with which the charity works Relationship with any related Para 1.51 parties Other
Reference and Administrative details
| Charity name | Vitiligo Support UK |
|---|---|
| Other name the charity uses | |
| Registered charitynumber | 1170557 |
| Charity’s principal address | 36 Avondale Avenue, Esher, Surrey KT10 0DA |
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Trustee name | Office (if any) | Dates acted if not for whole **year ** |
Name of person (or body) entitled to appoint trustee (ifany) |
|---|---|---|---|---|
| Emma Rush | Chair of Trustees | |||
| Peter Rush | ||||
| Kate Burnside | ||||
| Sara Day | ||||
| Joanna Jackson | ||||
– Corporate trustees names of the directors at the date the report was approved
Director name
Name of trustees holding title to property belonging to the charity
Trustee name Dates acted if not for whole year
Funds held as custodian trustees on behalf of others
Description of the assets None held in this capacity
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
| Type of | Name | Address |
|---|---|---|
| adviser |
Name of chief executive or names of senior staff members (Optional information)
Exemptions from disclosure
Reason for non-disclosure of key personnel details
None
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date
| Vitiligo Support UK | 1170557 | |||
|---|---|---|---|---|
| Receipts andpayments accounts | CC16a | |||
| For the period from |
01-May-20 | To | 30-Apr-21 |
Section A Receipts and payments
| A1 Receipts | Unrestricted funds to the nearest £ - 84 - - - - - - - 84 - - - 84 84 - - - - - - - - 84 - - - 84 - - - - |
Restricted funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - |
Endowment funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - |
Total funds to the nearest £ 84 - - - - - - - 84 - - - 84 84 - - - - - - - - 84 - - - 84 - |
Total funds to the nearest £ 84 - - - - - - - 84 - - - 84 84 - - - - - - - - 84 - - - 84 - |
Last year to the nearest £ |
|---|---|---|---|---|---|---|
| Donations | 84 | - | ||||
| Grant | - | 23,597 | ||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| Sub total(Gross income for AR) |
84 | 23,597 | ||||
| A2 Asset and investment sales, (see table). |
||||||
| - | ||||||
| - | - | |||||
| Sub total | - | - | ||||
| Total receipts A3 Payments |
||||||
| 23,597 | ||||||
| Insurance | 84 | - | ||||
| Research Expenses | - | 23,597 | ||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| - | - | |||||
| **Sub total ** | 84 | 23,597 | ||||
| A4 Asset and investment purchases, (see table) |
||||||
| - | ||||||
| - | ||||||
| **Sub total ** | - | - | ||||
| Total payments Net of receipts/(payments) A5 Transfers between funds A6 Cash funds last year end Cash funds this year end |
||||||
| 23,597 | ||||||
| - | - | - | - | - | ||
| - | - | - | - | - | ||
| - | - | - | - | - | ||
| - | - | - | - | - |
Section B Statement of assets and liabilities at the end of the period
| Categories B1 Cash funds CCXX R1 accounts (SS) |
Details 1 |
Unrestricted funds to nearest £ - - |
Restricted funds to nearest £ - - |
Endowment funds to nearest £ |
|---|---|---|---|---|
| - | - | - | ||
| 1 | - | - | - 09/04/2023 |
| - | - | - | |||||
|---|---|---|---|---|---|---|---|
| Total cash funds | - | - | - | ||||
| (agree balances with receipts and payments | |||||||
| account(s)) | OK | OK | OK | ||||
| Unrestricted | Restricted | Endowment | |||||
| funds | funds | funds | |||||
| Details | to nearest £ | to nearest £ | to nearest £ | ||||
| B2 Other monetary assets | - | - | - | ||||
| - | - | - | |||||
| - | - | - | |||||
| - | - | - | |||||
| - | - | - | |||||
| - | - | - | |||||
| Details | Fund to which asset belongs |
Cost (optional) | Current value (optional) |
||||
| B3 Investment assets | - | - | |||||
| - | - | ||||||
| - | - | ||||||
| - | - | ||||||
| - | - | ||||||
| Details | Fund to which asset belongs |
Cost (optional) | Current value (optional) |
||||
| B4 Assets retained for the | - | - | |||||
| charity’s own use | - | - | |||||
| - | - | ||||||
| - | - | ||||||
| - | - | ||||||
| - | - | ||||||
| - | - | ||||||
| - | - | ||||||
| - | - | ||||||
| Fund to which | Amount due | When due | |||||
| Details | liability relates | (optional) | (optional) | ||||
| B5 Liabilities | - | ||||||
| - | |||||||
| - | |||||||
| - | |||||||
| - | |||||||
| Signed by one or two trustees on behalf of all the trustees |
Signature | Name | Date of approval |
||||
CCXX R2 accounts (SS)
09/04/2023
2