OpenCharities

Dc Action

Country
England & Wales
Charity number
1167150
Status
Registered
Registered
May 17, 2016
Legal form
CIO

Address

Address
83 Digby Crescent
London
N4 2HS

Contact

Activities

To preserve and protect the health of patients with Dyskeratosis Congenita and otherTelomere Disorders, by providing and assisting in the provision of facilities, support servicesand educational materials. To advance the education of the general public, medical and scientific professionals in allareas relating to Dyskeratosis Congenita and other telomere disorders.

Objects: The Objects Of The CIO Are:1. To Preserve And Protect The Health Of Patients With Dyskeratosis Congenita And Other Telomere Disorders, By Providing And Assisting In The Provision Of Facilities, Support Services And Educational Materials Not Normally Provided By The Statutory Authorities. To Advance The Education Of The Public By The Publication Of A Website, Newsletters, Information Sheets And Other Materials.2. To Promote And Protect The Physical And Mental Health Of Those Affected By Dyskeratosis Congenita Through The Provision Of Advocacy, Support, Education And Practical Advice.3. To Advance The Education Of The General Public, Medical And Scientific Professionals In All Areas Relating To Dyskeratosis Congenita And Other Telomere Disorders.

Classification

How
Provides Advocacy/advice/information
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
Who
Children/young People, Elderly/old People, Other Defined Groups

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £12,109 £11,629
March 31, 2024 £4,307 £1,780
March 31, 2023 £2,092 £1,716
March 31, 2022 £1,219 £273
March 31, 2021 £1,647 £276

Trustees

Name Appointed
Alice Mary Buckley Jan. 20, 2017
Dr Hilary Jane Longhurst Dec. 3, 2016
Dr JANE PAXTON Dec. 3, 2016
Jill Yvonne Whitehouse May 18, 2024
Willem Buckley Sept. 3, 2021