# DC ACTION

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1167150
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** May 17, 2016
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1167150


## Contact

- **Address:** 83 Digby Crescent, London
- **Postcode:** N4 2HS
- **Phone:** 020 8800 0027
- **Email:** info@dcaction.org
- **Website:** http://dcaction.org



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE:1. TO PRESERVE AND PROTECT THE HEALTH OF PATIENTS WITH DYSKERATOSIS CONGENITA AND OTHER TELOMERE DISORDERS, BY PROVIDING AND ASSISTING IN THE PROVISION OF FACILITIES, SUPPORT SERVICES AND EDUCATIONAL MATERIALS NOT NORMALLY PROVIDED BY THE STATUTORY AUTHORITIES. TO ADVANCE THE EDUCATION OF THE PUBLIC BY THE PUBLICATION OF A WEBSITE, NEWSLETTERS, INFORMATION SHEETS AND OTHER MATERIALS.2. TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF THOSE AFFECTED BY DYSKERATOSIS CONGENITA THROUGH THE PROVISION OF ADVOCACY, SUPPORT, EDUCATION AND PRACTICAL ADVICE.3. TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC, MEDICAL AND SCIENTIFIC PROFESSIONALS IN ALL AREAS RELATING TO DYSKERATOSIS CONGENITA AND OTHER TELOMERE DISORDERS.

**Activities:** To preserve and protect the health of patients with Dyskeratosis Congenita and otherTelomere Disorders, by providing and assisting in the provision of facilities, support servicesand educational materials. To advance the education of the general public, medical and scientific professionals in allareas relating to Dyskeratosis Congenita and other telomere disorders.




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, Elderly/old People, Other Defined Groups



## Geography

- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| Alice Mary Buckley |  | Jan. 20, 2017 |
| Dr Hilary Jane Longhurst |  | Dec. 3, 2016 |
| Dr JANE PAXTON |  | Dec. 3, 2016 |
| Jill Yvonne Whitehouse |  | May 18, 2024 |
| Willem Buckley |  | Sept. 3, 2021 |




