REGISTERED CHARITY NUMBER: 1166522 Re ort of the Trustees and Unaudited Financial Statements for the Year Ended 31 March 2025 for Burnin hls CRPS
Burnin hts CRPS Contents of the Financial Ststemenls for the Year Ended 31 March 2025 Page Report of the Trustees 1 10 21 Independent Examinerfs Report 22 statement of Financial Activities 23 Balance Sheet 24 Notes lo the Financial Statements 25 10 30 Detailed Ststemenl of Financial Activities 31 10 32
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 The Iruslees present their report with the financial statements of the charity for the year ended 31 March 2025. The trustees have adopted the provisions of Accounting and Reports'ng by Charities.. Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Stsndard applicable in the UK and Republic of Ireland IFRS 1021 leffecbve 1 January 20191. OBJECTIVES AND ACTIVITIES Summary of the objects ofthe charity The purposes and objectives of Burning Nights CRPS Support, as in our governing document, remain central to everything we do. They are. To promote and protect the health of people living with Complex Regional Pain Syndrome ICRPS), along with their families and Cars, through the provision of information, advice and emotional and practical support. This includes raising awareness of all aspects of CRPS among the public and, importantly, among those involved in the diagnosis, treatment and care of people living with CRPS. To assist and support research into CRPS-its causes, Irealments, msna-gemenl and potential cure-and lo ensure that the useful results of such research are shared and published for the public benefit. In line with these aims and objectives, we provide a wide range of support ServIS for anyone impacted by CRPS, including those living with CRPS, their families, loved ones and carers, including mental health support through our online Counselling & Psychotherapy Service for adults, children and young people aged 5 and over. We also offer emotional support through our Befriending Service plus a telephone helpline, live web chal, online support groups, an active community forum, educational information and a range of wellbeing and community-based activities. We SUPFX)rt both adults and children, recognising that CRPS can impact individuals of any age. We also provide dedicated support for families, young carers, and close friends, as a diagnosis of CRPS can have a profound ripple effect on everyone surrounding the person living with the condition. These charitable purposes guide all our work, ensuring that the services we deliver, the awareness we raise, and the research we support directly contribute lo improving the lives and wellbeing of the CRPS community. Page 1
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 OBJECTIVES AND ACTIVITIES Objectives, strategies and activities We want lo begin by expressing our sinre gratitude to everyone who has been part of Burning Nights CRPS Support this year-our incredible volunteers, Trustees, supporters, fundraisers, members, partners and the wider community. It is only because of your dedication, compassion and belief in our aims and objectives that we are able to continue providing vital support and champion much-needed change for people living with Complex Regional Pain Syndrome ICRPSI and their families. Whether you've helped run our support services, shared your lived experience to raise awareness, taken part In our events, joined our webinars, contributed to our magazine, or simply Cheered on our fundraisers from the sidelines-every single act of support makes a profound differen. You help ensure that no one affected by CRPS feels alone. We also want lo extend a special thank you to our extraordinary fundraisers, who once again have gone above and beyond this year. Your energy, creativity and delerminalion continue lo power our charity forward and allow us to keep offering the setvices our community relies on so deeply. Complex Regional Pain Syndrome ICRPSI continues to have a profound impact on the lives of people across the UK. It is a severe, often Invisible condition that can lead lo significant physical, emotional and social challenges. Many people describe feeling isolated, misunderstood, and unsure where lo turn for reliable information or compassionate supporL Burning Nights CRPS Support exists to change that experience. As a national, patient-led charity, our work is grounded in lived experienTr and guided by the voices of people directly affected by CRPS, alongside their families and carers. Throughout the year 2024-2025, we have remained committed lo improving understanding of the condition, reducing isolation, and providing accessible support services for all those who need them. Our activities span three key areas: Support: delivering direct services such as counselling and psychotherapy, support groups, the helpline, befriending and peer-led inilialives. Information: providing clear, trusOrthY resources to help people navigate life with CRPS and make informed decisions about their care. Awareness: and Advocacy.. amplifying the patient and carer voice to influence policy, improve care pathways and raise awareness across health, social care and the wider public. Through these key areas, we work lo ensure that anyone affected by CRPS can access the understanding, connection and hope they deserve. Although CRPS is a rare and complex condition, we remain committed lo ensuring that no one has lo face it alone. In planning and delivering our activities, the trustees had full regard to the Charity Commission's guidance on public benefit. Our work remains focused on supporting people impacted by CRPS, reducing isolation, providing accurate information and ensuring our services are accessible to all. During the year, our main activities and projects included". Providing direct support for people with CRPS, their families, close friends and carers through our- telephone helpline live web chal service email support online community forum social media support and peer-led online support groups Page 2
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 OBJECTIVES AND ACTIVITIES Delivering ongoing mental health and emotional support, including our: CRPS Counselling & Psychotherapy Service for adults, children, and young people aged 5+ Virtual Befriending Service offering one-to-one weekly support calls for up to 12 sessions. Running regular wellbeing activities such as Zentangle sessions, which followed on from our previous Wellbeing Wednesday project and conl inued to offer accessible wellbeing support for our community. Producing educational infomiation, updating and publishing new resources, providing CRPS awareness materials and distributing printed literature to hospitals, clinics and community groups across the UK. Hosting educational gvonts. including our annual CRPS Patients & Carers Infomiation Day. with expert speakers and opportunities for attendees to learn about condition management, research developments and support options. Launching and starting to deliver a new series of 10 monthly CRPS Education webinars in partnership with Healthsec Rehab, offering highsuality, patienl-centred information on pain, mobility, rehabilitation, mental wellbeing, self-managemenl and practical strategies for daY-ldaY life with CRPS. These webinars have been well received by our members and wider community, with all sessions recorded and made available for ongoing ac cess. Continuing to build our membership scheme, including the biannual publication of The Warriors Lifeline magazine, which features research updates, personal stories, wellbeing conlenl and educational articles lo support the community. Maintaining and expanding our online presence. continuing to grow our social media following, share CRPS information and research and respond lo i ndividual support queries across multiple platforms. Supporting researeh, ineluding ongoing involvement in Public and Patient Involvement and Engagement IPPIEI across numerous CRPS and chronic pain studies in the UK and internationally. This included contributing to the Pain-al-work Toolkit trial, HOPE-AO for pain in older people, the Optimelh Trial for CRPS, and promob'ng research participab'on opportunities to our community. Ralslng awareness. dellverlng talks, attendlng exhlbltlons, taklng part In campalgnlng and advocacy work, and engaging with healthcare professionals, policymakers and students lo improve understanding of CRPS and the challenges individuals face. Providing infomiation and community resources, including our website wth regularly updated content, educational sections for healthcare professionals and students, a dedicated resource library, and ongoing improvements lo conlenl clarity and accessibil ity. Engaging our supporters through fundraising activities, challenge events, community initiatives, corporate partnerships and trust and foundation applications lo sustain our services. All of these activities were carried out lo advance the charitable purposes of Burning Nights CRPS Support for the public benefit. During a time when many In the CRPS community continue to face long NHS wailing limes, gaps in treatment pathways and limited acTrss to mental health support, our services-most of which are free to access-remain a vital source of help, information and connection. Public benefit The Trustees have had regard to the Charity Commission's guidance on public benefit. Page 3
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 OBJECTIVES AND ACTIVITIES Volunteers Our volunteers continue lo be at the heart of Burning Nights CRPS Support. Their contribution is ntral lo our ability to provide national support lo people living with Complex Regional Pain Syndrome ICRPSI and those who care for them. This year, volunteers generousty gave their lime, skills and lived experience across every area of the charity, from counselling and befriending to helpline support, awareness-raising, events, research involvement and governance. During the year, we held 17 volunteer inductions and welcomed 51 new volunteers into the organisation. By the end of the year, we had 62 a¢live volunteers, each playing a meaningful role in delivering our services and supporting our community. With the launch of our new e-learning platform, volunteers were able lo access consistent. high-quality training that strengthened their confidence and capability in their roles. All volunteers completed core modules in Equality, Diversity & Inclusion IEDII, confidentiality, neurodiversity, GDPR, and CRPS awareness. Volunteers in public-facing or client-support positions undertook further specialist training in mental health awareness, suicide awareness, suicide prevention, self-harm guidance and safeguarding, ensuring they could offer safe, sensitive and appropriate support. In addition to mandatory training, volunteers also had access lo a library of more than 300 further courses, supporting their ongoing learning, wellbeing and professional development. The dedication and compassion of our volunteers made a significant difference to the lives of people affected by CRPS. Their commitment enabled us to expand our reach, strengthen the quality of our services and ensure that no one has lo face CRPS alone. We extend our deepest gratitude lo our extraordinary volunteers. Your unwavering commitment to our mission is tru inspiring and your generous donation of lime and skills is profoundly appreciated. Without your support, we wouldn't be where we are today. Thank you for everything you dol Page 4
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 ACHIEVEMENTS AND PERFORMANCE Charitable activities During 2024-2025, Burning Nights CRPS Support continued to provide vital support, information and community connection lo people impacted by Complex Regional Pain Syndrome ICRPSI. This year saw a continued rise in demand for our serviees, reflecting both the scarcity of CRPS-informed support within statutory services and the growing recognition of our charity as a trusted and a¢SSIble Sour of help. Across all our services that are mainly volunleer-led we directly supported 4,394 people, and when including our newsletters, reached 8,049 individuals. Each statistic represents a person often distressed, isolated, or newly diagnosed reaching out for understanding, reassurance and guidance. The difference our work has made is evident through the feedback, impa¢l quotes and emotional leslimonies we received throughout the year. Below is an overview of our main achievements and the measurable difference they have made to patients living wth CRPS, their families, carers and close friends. Direct Support Services: Being There When It Matters Most People living with CRPS commonly report feeling dismissed, misunderstood or left without guidance. Our direct support services continue to fill this gap, providing accessible and empathetic support for anyone who needs it. Our support services remain the centre of Buming Nights CRPS Support, and we are incredibly grateful lo all our volunteers who work tirelessly lo provide these support services for those who need them. Our hlghlights thls year: - Answered 242 live web chats Responded to 1,268 emails Answered 449 helpline calls which tolalled almost 47 hours of support These services are often the first point of contact for people newly diagnosed, facing a flare-up, or dealing with ovetwhelming pain, fear, or uncertainly. We frequently support people who have nowhere else lo turn. Impact we made: Provided real-time emotional de*scalalion Helped people to prepare for medical appointments Supported people to better communicate with healthcare professionals Guided families and carers struggling lo understand CRPS RedUd isolation and anxiety at critical moments Beneficiary voices: "Thank you so much... This was the most helpful eonversation I've had lo date." 20241 T.A., Live Chat (Aug "You've been very helpful - I'm not freaking out so much anymore." K.M., Live Chat {Sept 20241 "Your replies... gol me back on track." Jen120241 Counselling & Psychotherapy Service: Lrfe4hanging Mental Health Support Mental health is one of the most significant unmet needs for people impacted by CRPS, whether that's someone living with the condition, a family member or carer. Many face trauma. fear, isolation and depression - often compounded by long NHS wailing lists and clinicians unfamiliar with CRPS. Page 5
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 During this year we were delighted to re1ve National Lollery funding lo fund a Clinical Lead for 10 hours per week. The Clinical Lead started in her post in February 2025 and she has really started lo improve the service even more than it was. Our therapy service offers up to 20, one-hour sessions per client for those aged 12 and over, for those under 12s we offer 10, 45-minute sessions, ensuring depth, continuity and sustained emotional support. Our highlights this year: 189 active clients received therapy 520 specialist pain management related therapy sessions were delivered by 10 volunteer qualified and trained counsellors and therapists, with 4 clinical supervisors Impact we made: RedUd anxiety, panic and distress Improved coping strategies for pain and flare-up cycles Strengthened emotional resilience RedLJced suicidal ideation Positive impacts on family relationships and daily functioning Beneficiary voices: "The service has genuinely changed my life for the better... My counsellor set me up for life." 12024-251 "I've had counselling before, but never experienced a positive effect like I have this lime." MC12024-25} "l am so grateful.. This has been life-changing for me." _ WP12024-251 "My life.. took a positive turn when I discovered Burning Nights CRPS Support. JMB120241 This service continues to prevent mental health in the CRPS eommunity, reduce loneliness and provide tools for long-temi psychological wellbeing. Befriending Service: Reducing Loneliness and Isolation For many with CRPS, pain forces a retreat from everyday life. Families and carers can become frustrated and lonely. The Befriending Service offers 12 weekly calls or Zoom video calls and they allow for supportive conversations with trained lived experience volunteers who understand the condition and ils emotional impact. Our highlights this year: 10 new clients began befriending 106 befriending sessions delivered 5 volunteer befrienders with lived experience of CRPS Impact we made: RedUd social isolation Reduced level of loneliness Increased confidence and emotional stability Provided a safe space to talk openly about difficult emotions Beneficiary voices- "Feeling so scared.. but she made me feel not so alone and very understood." EH12024-251 Page 6
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 'It is a great serviTr, especially when you can build up a good relationship with the befriender. IBefrienderl was flexible when I was too ill to lake the call and made sure she informed me of when the next call would be. She always remembered previous conversations and would often refer back lo them in the following calls. I do wsh to say thank you to Ibefrienderl and to Burning Nights CRPS." . WE12024-20251 Support Groups- Creating Connection and Community Our online peer-led support groups continue to be one of the most important ways we bring the CRPS community together. These groups offer a safe, understanding and non-judgemental space where people living with CRPS-and those who care for them-can talk openly about their experiences, ask questions, and gain emotional strength from others who truly understand what they are going through. Our highlights this year: 204 attendees joined our support groups 12 support groups were held - Almost 34.5 hours of shared peer support were delivered These sessions were run by trained volunteers with lived experience, supported by safeguarding oversight and clear group guidelines lo ensure that every participant felt emotionally safe and respected. Our online support groups setve a wide range of people across the UK and internationally. Many attendees join after receiving a new diagnosis, feeling frightened, confused or unsupported. Others attend during 8 flare-up or at points where the emotional impact of CRPS becomes overwhelming. For carers and family members, the groups provide Spa to understand the condition beller and learn how to support their loved one while also looking after their own wellbeing. Each session includes a mixture of facilitated discussion, shared lived experience, signposting to reliable resources and mutual encouragement. Common themes discussed: Managing pain and symptoms Dealing wth the reactions of family, friends, schools and employers The emotional burden of chronic illness Maximising the effectiveness of doctor appointments Finding CRPS specialists and other healthcare professionals and seeking recommendation Many participants describe our support groups as a lifelin&often the only place where they feel believed, Validated and surrounded by people who genuinely understand their challenges. The positive outcomes reported by attendees demonstrate the importance of these sessions. People told us they fell. signifi'cantly less alone more confident in managing their condition better informed about CRPS and treatment options empowered to advocate for themselves in healthcare sellings connected lo a community that genuinely understands them Our support groups also help to prevent erisis escalation by giving participants a spaee to express distress earty, seek guidance, and develop stronger coping strategies. This not only benefits individuals and their families, but also reduces pressure on wider health and social care services. As demand for emotional and peer support continues lo rise-particularly among people struggling with delayed diagnosis, long NHS wailing lists, and difficulties accessing specialist care-we remain commilled lo expanding and strengthening our support group provision. These sessions continue lo offer connection, comfort, and hope to people who may otherwise feel invisible or unheard. Page 7
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 These groups provide a sense of belonging and validation that beneficiaries often struggle lo find elsewhere. Impact feodback: "Thank you from the bottom of my heart.. The help I get from this group and all the lovely people within il helps me Immensely. SA (Sept 20251 Wellbeing and Online Events: Supporting WhOlPerson Health This year, our wellbeing programme continued to play a vital role in supporting the emotional, mental and creative wellbeing of people living wth CRPS. For many within our community. chroni¢ pain affects far more than the body-it disrupts identity, confidence, sleep, relationships and the ability to engage in everyday life. Our wellbeing activities are designed lo offer moments of calm, connection and creativity in the midst of ovetwhelming symptoms and uncertainty. We continued lo offer holistic wellbeing activities and accessible online leaming events. Our focus this year were Zentangle groups led by a certified Zenlangle Instructor. Zentangle is a mindful, accessible drawing method that encourages relaxation, focus, and self•expression. These sessions were intentionally Created lo support people who struggle with high pain levels, anxiety, fatigue, or reduced mobility by offering a gentle, adaptable activity that can be done sealed, lying down, or with one hand-making it especially suitsble for many people with CRPS. Our highlights this year: 146 wellbeing attendees 21 wellbeing events Many participants joined these sessions at times when they felt overwhelmed, stuck in flare-ups, or emotionally drained. The calm, structured nature of Zentsngle helped people to regulate their nervous system, find moments of presence and experien small but meaningful achievements-often in conlrasl lo the loss of control many feel due to CRPS. During the classes, participants were encouraged to slow their breathing, follow simple patterns and allow their mind to sellle. The format also allowed lime for gentle conversation and connection with others, which participants repeatedly told us helped them feel grounded and less alone. Beneficiary voice: "Thank you so, so much. This was a 'pure joy. activity that brought me back lo the present moment. Zentangle Class (April 20241 CRPS Education: Webinars including launch of the 10-Month Webinar Series with Healthsec Rehab Aside from 2 (open lo all) webinars that we ran during the year, a major new achievement this year was launching our exclusive members. only 10-monlh CRPS Education Webinar series in conjunction with Healthsec Rehab. Heallhsec Rehab is a rehabilitstion company that supports veterans and the public with conditions including CRPS. Following on from a members focus group where we discussed what topics the members wanted from the education series, we devised a series of webinars that covered all the main topics and the subjects within each topic. We began those webinars in February 2025. This programme has significantly strengthened our educational offer, covering rehabilitation, pacing, flare-up management, mobility, mental health and familylcarer communication. Our highlights this year for the Members. CRPS Education Series - 4 members, only events Page 8
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 53 members, webinar allendees Our highlights for our open accoss onlino education wgbinars: - 2 webinars 109 open a$$ attendees Impact we've made: Increased understsnding of CRPS and ils Management Improved confidence in communicating with healthcare teams Better emotional coping for both patients and families RedUd fear related to flare-ups and disease progression Beneficiary voices: "Thank you It was incredibly informative and exactly what I needed lo understand more about the treatment." MW Iscrambler Therapy Webinar, April 20241 "The recent presentation events for members only have been realty useful and il is a great way perhaps 11 hopell of attracting new members. The focus on one topic at a time is great. Jan, Annual Feedback Survey 2024-2025 Annual CRPS Conference I Patient & Carer Information Day 2024 One of the highlights of our year was our Annual CRPS Patient & Carer Information Day, which took pla at the HIOn Northampton on 16 November 2024. This event continues to be one of the most valued parts of our calendar, bringing together people living with CRPS, their families, carers, and supporters for a full day of learning, connection, and shared experience. The event welcomed 62 attendees from across the UK, many of whom had never previously mel anyone else living with CRPS. For newly diagnosed individuals and long-term patients alike, the day provided a rare opportunity to feel understood, supported, and part of a wider community that truly "gets it. Carers and family members told us how invaluable il was lo learn alongside their loved ones, helping them beller understand the condition and how to support those they care for. The programme included expert-led talks covering a range of essential topics, such as pain management, psychological support, rehabililalion strategies, current research and lived-experience insights. Attendees had the chance to engage directly with specialists and exhibitors, to ask questions and receive practical guidan that they could lake away and use in their day-lo-day lives. Alongside the educational sessions in the first part of the day, the remainder of the event provided time for informal discussions, peer connection and emotional support. Many attendees told us that simply being in a room with others facing similar challenges made them feel less alone and more hopeful about the future. Feedback from the day highlighted several key benefits.. Improved understanding of CRPS and how to manage symptoms Increased confidence when speaking with healthcare providers Reduced feelings of isolation - A stronger sense of empowerment and control Greater support for carers and families Opportunities lo meet and connect with others facing similar challenges For many, the event was described as "reassuring,, and comforting,, offering both practical knowledge and emotional renewal. As one allendee shared afterwards, "Il's the first lime I've feli truly seen and heard since my diagnosis." The success of the Northampton event reflects the vital need for in-person, CRPS-Infomied education and connection. 11 remains a key part of how we deliver public benefit, empower patients and carers, and ensure that no one affected by CRPS has to navigate this condition alone. Page 9
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 Main highlights: 62 allendees, including patients, earers, families and professionals 1000/0 would recommend the information day During the day we were delighted lo announce that the Victoria Ellen Williams Award for Outstanding Contribution was awarded lo a special volunteer who had supported the charity with responding lo comments on social media. These in person events play a crucial role in reducing isolation, improving knowledge and providing direct access lo expert perspectives. Beneficiary voices: "Great lo hear all the information available, the speakers and to also meet up with new people who totally gel what you're going through. No need to explain whays wrongl" Anon, CRPS patient "It was a very informative day that we gol a lot of benefit from. My son was very down in the weeks before bul now he has spoken lo people and sees that he is not alone, he is much happier and has realised that he really needs lo push for the support he needs., Parent of a CRPS Patient Page 10
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 ACHIEVEMENTS AND PERFORMANCE Awareness and Professional Education: Improving Understanding in Society Improving understanding of CRPS among healthcare professionals remained a key priority this year. We delivered six CRPS awareness sessions around the U.K. and online, lotalling almost 10 hours of training lo physiotherapists, rehabilitation teams, healthcare students and military recovery services. These sessions helped clinicians recognise CRPS earfier, understand the lived experien and provide more compassionate, person-centred care. Feedback was highly positive, with professionals reporting greater confidence and clearer insight into how to support patients and families. This work strengthens care pathways, redu5 delays In diagnosis, and contributes lo long-temi improvements in how CRPS is understood and managed across the health and rehabilitation sectors. Our highlights this year: 6 groups, Delivered almost 10 hours of training Our awareness training covers key topics such as.. - early signs and symptoms of CRPS diagnostic considerations and common misconceptions the lived experience of CRPS, including psychological and social impact flare-LJP patterns and triggers communication approaches that reduce distress and build trust pacing, mobility and rehabililalion considerations the importance of supporting carers and family members safeguarding and mental health concerns specific to CRPS Each session combines medical insight with lived experien, ensuring professionals hear directly from someone who understands both the science and the daily realities of the condition. This combination-often missing from clinical training-helps professionals rethink their assumptions, adjust their communication, and deepen their empathy. Feedback from the sessions was overwhelmingly positive, with professionals reporting increased confidence in recognising CRPS earlier and a stronger understanding of how to support patients holistically. Many attendees told us the training was the first time they had received structured education on CRPS, despite years of clinical experienTr. Beneficiary voices from professionals: "Your presentation style was well received... We look forward to seeing you again." 20241 Physio Team (May "Thank you so much... That is a real help lo better understand the condition." 20251 Physio Participant (March These sessions have a long-lerm social impact by improving care pathways and reducing diagnostic delays. Online Reach, Community Engagement and Infomiation Our online presence continues to be one of the most important ways people find us, access information and receive emotional support. For many individuals living with CRPS-especially those who are housebound, shielding, experiencing mobility limilalions, or unable lo attend in-person appointmenls4igilal support is their primary connection lo the outside world. Page11
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 ACHIEVEMENTS AND PERFORMANCE This year. 1,662 people received one-tQaone support through our social media channels, where we responded to messages, signposted to services, provided reassurance during flare-ups and helped people navigate difficult conversations with healthcare professionals. Many benefi'ciaries reach out during moments of crisis or late al night when other services are unavailable. making our d igital responsiveness vital. Our website remains a trusted and widely referenced resource for CRPS information internationally. We continued lo update our educational content, add new articles, expand guidance for healthcare professionals, and ensure our information is accessible, clear and grounded in lived experience. Website visitors frequenuy tell us that they discovered the name of their Condition through our pages or finally felt "seen" after reading about symptoms that had been dismissed or misunderstood for years. Through our monthly newsletters, reaching 3,655 subscribers, we provided clinical updates, wellbeing resources, research opportunities, lived-experience stories, guidance for managing CRPS and community announcements. These newsletters help keep people connected lo a supportive and informed community, particularty those who may not be active on social media or able to join live sessions. We also continued to grow our online community presence across multiple platforms, using social media to". - raise awareness of CRPS challenge misconceptions share stories and experiences promote our services highlight research and clinical trials provide comfort and encouragement during flare-ups Our highlights this year: 67.027 followers across all our social media channels (Facebook, X, Inslagram, Pinterest, YouTube, Linkedln and TikTokl 1,662 people received one404>ne support through social media - 3,655 newsletters 5ubs¢ribers Our website remained a major source of accessible CRPS information website and 94.675 engaged sessions 157.230 sessions on our 351,375 page views on our website Our digital work continues lo reduce isolation, ensure people can access reliable CRPS information, and provide vital emotional support to those who may olhetwise feel forgotten, misunderstood, or invisible. Impact voices: "Your posts helped me believe in myself and not be ashamed about my pain." Lara K. {20241 "When I found your account I started crying.. finally someone speaking about my disease. (June 20241 @sandra bzk "You are a beacon of light in the darkness." Julia120241 Campaigning and Political Engagement Alongside our support services, oising the profile of CRPS and championing the needs of those affected remains a central part of our work. Throughout 2024-2025, we continued our commitment lo campaigning and advocacy lo ensure that people living with CRPS have their voices heard within policy, healthcare, and public health decision-making. Page 12
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 ACHIEVEMENTS AND PERFORMANCE We engaged directly with local politicians across the UK, highlighting the challenges faced by people with CRPS-including delayed diagnosis, lack of specialist services, limited mental health support, and the profound impact the condition has on families and carers. By sharing lived-experience insights, eviden from our helpline and counselling services and the stories of those we support, we helped bring CRPS to the attention of those who influence local and national health priorities. In Scotland, we Continued lo play an active role in national chronic pain policy development We contributed lo the Scottish Cross-Party Parliamentary Group for Chronic Pain. offering lived*xperience perspectives and raising awareness of the specific needs of people with CRPS within broader pain pathways. Our involvement ensures that CRPS remains visible within ongoing discussions about improving access lo treatment, mental health provision and equitable pain care across Scotland. Vve also participated In short-life working groups linked to the development of new chronic pain guidelines in Scotland. Our contribution helped shape guidance on patient experience, accessibility and communication for those living with chronic pain conditions. Additionally, we remained engaged with the Third Sector Chronic Pain Network, working eollaboratively with other health charities to amplify patient voices and champion improvements across the pain landscape. Research, PPIE and Advocacy Burning Nights CRPS Support continued to play an influential and respected role in CRPS and chronic pain research throughout 2024-2025. As a charity rooted in lived experience. we priorilise research that is meaningful, a¢ssible and genuinely shaped by the voices of people living with CRPS, as well as their carers and families. This year, we contributed to multiple UK and international studies, offering insight, co4esign support and Patient and Public Involvement and Engagement IPPIEI leadership across a range of projects. Our involvement helps ensure that research moves beyond academic settings and reflects the real-world experiences, challenges, and needs of those affected by CRPS. Our work has included.. supporting NIHR-funded trials related to chronic pain contributing to the Pain-al-work Toolkit evaluation involvement in the Optimelh Trial for CRPS promoting a¢SSIble research opportunities lo our community advising on study design, participant materials, ethics and dissemination plans ensuring that CRPS research reflects patient priorities and lived-experience realities We also worked closely with researchers to ensure they adopt assIble communication methods, use palienl-friendly language and incorporate feedback from people with CRPS throughout every stage of their projects. By championing meaningful PPIE, we help influence.. more person-cenlred study designs improved recruitment and retention of participants stronger, more relevant outcomes clearer dissemination of findings to the public increased visibility of CRPS and chronic pain within academic and clinical research communities Our involvement in research also brings wider societal benefits by shaping future treatment pathways, raising awareness among employers and clinicians and ensuring new evidence reaches Communities that need il most. Page 13
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 ACHIEVEMENTS AND PERFORMANCE This year, we saw increasing recognition of the crucial role lived experience plays in advancing CRPS understanding. Our continued commitment lo accessible, inclusive, and ethically grounded PPIE ensures that people with CRPS-and their carers-are not just participants in research, bul partners and co-creators in shaping the future of care. Our Supporters We continued lo benefit greatly from the dedication of our supporter fundraisers and we thank each and every one of them for showing their support to the charity no matter how they ch(iose to fundraise for us. This year, individuals and community groups look on challenge events, organised sponsored activities, hosted awareness events and raised funds in creative and meaningful ways. Their commitment not only generated essential income for our services bul also played a crucial role in raising the profile of CRPS within their communities. Many supporters shared their personal stories publicly for the first lime or used their fundraising platforms lo educate others about the condilion-helping lo break stigma, build understanding, and reach people who may be struggling in silence. We fundraise in a wde variety of ways while also raising as much awareness of Complex Regional Pain Syndrome ICRPSI as possible. Our fundraising activities continue lo grow each year, thanks to the dedication and passion of our incredible supporters, volunteers, and partners. Our main fundraising activities include.. Sponsored challenge events, including places in large national runs and personal endurance challenges taken on by supporters including places in the Great North Run Supporting individuals and groups to run their own fundraising initiatives, from bake sales and coffee mornings lo sponsored activities, workplace events, and in-memory collections Applications to charitable Irusls. foundations, and grant%iving organisations, enabling us to fund core services such as counselling, befriending and helpline support Email fundraising appeals sent to supporters who have opted in lo receive updates Social media fundraising campaigns and awareness drives across multiple platforms Corporate support, including payroll giving, employee fundraising, matched giving and partnerships with carefully selected organisalions We are incredibly grateful lo our community of supporters whose generosity makes our work possible. This year, supporters across the UK look part in a wide range of challenge events, personal fundraisers, and community aelivilies, raising both essential income and crucial awareness of CRPS-a condition sb'll widely misunderstood. Our supporter-led fundraising continued to grow, with individuals organising sponsored walks, marathons, half-marathons, abseils, group hikes, bake sales, workplace events, and creative awareness activities. From large team challenges lo inlimale local events, supporters once again found meaningful ways to sland with people affected by CRPS. We were deeply moved by the dedication of fundraisers who shared their personal stories publicly to raise awareness and donations. For many, fundraising is not only a way to support the charity, but a way lo honour a loved one, commemorate a personal journey, or give back to a service that has supported them through the most difficult periods of their lives. We also continued lo receive incodible support from workplaces and corporate teams. Businesses took part in sponsored challenges, dress-down days, bake sales, and awareness events-helping us raise the profile of CRPS within their organisations while generating vital funds for our setvices. As a supporter-led charity, we recognise that every pound raised direcuy contributes to sustaining our helpline, email support, counselling and psychotherapy service, befriending programme, online support groups, wellbeing sessions, and our ongoing campaign lo ensure that no one with CRPS feels alone. We maIn committed to fundraising in an honest, transparent, and respectful way. are, safeguard privacy, and will never sell or share data with third parties. Page 14
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 ACHIEVEMENTS AND PERFORMANCE Burning Nights CRPS Support does not use external professional fundraisers. Where appropriate, and in line wth legal requirements, we establish Commercial Participator Agreements with sole traders or businesses fundraising for us, ensuring transparency and Compliance. We also monitor fundraising activity by reviewing messaging, products and promotional materials lo ensure they meet charity standards and uphold our values. We are immensety grateful to every individual, group, company and funder who supported us this year. Your generosity helps us continue offering life-changing support lo those living with CRPS, their families, and their carers-when they need us most. Supporting Ourvolunteers Throughout the year, we continued to invest in our incredible team of volunteers, whose dedication and compassion underpin everything we do for the CRPS community. Our volunteers play a vital role in providing peer support, delivering setwices, raising awareness, and helping people feel less alone in what can be an overwhelming and isolating condition. This year we launched our new online training and e-learning platfomi, ensuring every volunteer receives consislenl, accessible and high-quality training. All volunteers completed our core modules, which covered the essential foundations of Equality, Diversity & Inclusion IEDII, confidentiality, neurodiversity awareness, and GDPR. To strengthen understanding of the condition itself, every volunteer also took part in our CRPS awareness training, delivered through an engaging video followed by a short knowledge check. Volunteers in forward-facing or clienl-support roles received additional specialist training through the plattorm, including mental health awareness, suicide awareness, suicide prevention, self-harm guidance and safeguarding. These sessions were designed to help volunteers feel confident, prepared and supported when engaging with individuals and families during moments of vulnerability. In addition lo our mandatory modules, volunteers were given access to a library of over 300 further courses, enabling them to build new skills, grow in their roles and develop professionally al their own pace. Vve also welcomed, inducted and trained 50 new volunteers throughout the year, providing them with tailored onboarding, training and ongoing support. We held 17 inductions during the year. Al the end of the year we had 62 active volunteers. Their commitment makes a profound difference to the lives of people affected by CRPS, and we remain extremely grateful for the time, passion and care they bring to our charity. All volunteers and staff are required to follow Buming Nights CRPS Support's safeguarding policy, which ensures that at risk and vulnerable adults and children are protected across every aspect of our work. We are incredibly grateful for the unwavering support of our donors and volunteers. Their generosity is what allows us to navigate these challenging limes and make a positive impact on the lives of those affected by CRPS. We encoufftge our entire community to continue their fundraising efforts and support our work. Together, we can overcome these obstacles and build a brighter future for the CRPS Community. Acknowledgements Every Servi delivered, every session held and every conversation offered contributed to redUd isolation, improved wellbeing, eadier support and greater understsnding of CRPS across society. We could not do the work we do without the dedication, compassion and expertise generously given by our volunteers, staff, fundraisers, corporate partners, speakers, health professionals and clinical advisors. Every one of them plays a vital role in helping us reach, support and empower people affected by Complex Regional Pain Syndrome ICRPSI. We extend our heartfelt thanks lo each person who has stood alongside us this year and contributed to our mission. Page 15
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 ACHIEVEMENTS AND PERFORMANCE A special note of gratitude goes lo all of our volunteers who give their time to support the CRPS community through all of our services and our wider operational and awareness-raising activities. Their empathy, professionalism and insight ensure that no one has lo face CRPS alone. We would also like lo thank everyone who look part in challenge events or community fundraising, or who organised their own activities to raise vital funds for the charity. Your determination, creativity and generosity help sustain our services and enable us lo reach more people than ever before. A very heartfelt thank you goes lo those who bravely shared their personal stories in the media and across our plattorms. We know how emotionally demanding and vulnerable this can feel, yet your courage helps raise awareness, reduce stigma and ensure others feel seen, heard and understood. Vve recognise the significant barriers and inequalities many people with CRPS faTr when trying lo access care, diagnosis, mental health support, or rehabilitation. We are committed to addressing these inequalities and championing the voices of those most marginalised or underserved within chronic pain pathways. We are deeply grateful to the organisations, advocates, and allies who stand with us in this work. As always, our achievements are truly a team effort. Our volunteers, members, trustees, clinical supervisors, counsellors, corporate partners, researchers, healthcare professionals, families, carers, and supporters all form the backbone of Burning Nights CRPS Support. Your collective passion and commitment drive meaningful change for a community that urgently needs understanding, compassion, and accessible support. We are immensely goteful for the continued and new support of the funders listed below. We also extend our sincere thanks to every individual, group, and organisation who has made a donation, shared our work with others, or encouraged someone to reach out for help. Your generosity and belief In our mission enable us lo continue being a lifeline for people affected by CRPS. With sincere gratitude and thanks to our funders during 2024-2025 Clothworkers Trust E C Graham (Cumbrial Trust Nationwide Sl. James Place Ilocall The National Lottery Awards for All Get Involved The more people working together the stronger we are and the louder our voice. We have a range of ways you can get involved, for more information please check out our website.. https..l.bUrnIngnIghtscrp$.orgIget-lnvolvedl If you would like lo hear what we are up lo throughout the year, sign up for our regular e-newsletter. Page 16
Burning Nights CRPS
Report of the Trustees for the Year Ended 31 March 2025
ACHIEVEMENTS AND PERFORMANCE
The charity's principal sources of funds (including any fundraising)
Burning Nights CRPS Support is funded through a diverse range of income streams which together enable us to deliver our essential services, expand our reach, and respond to the increasing needs of the CRPS community. As with many charities especially within the health sector, we continue to operate in a challenging financial climate, shaped by rising operational costs and reduced public giving. Despite this, our supporters, funders and partners have enabled us to sustain and develop our work throughout the year.
Our income is generated through a combination of:
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Grants from charitable trusts and foundations, which remain a vital source of funding for our core services, including counselling and psychotherapy, befriending, helpline support, volunteer training, wellbeing activities and digital resources.
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Fundraising and community-led events, with supporters organising and participating in sponsored walks, runs, abseils, challenge events and local fundraising activities.
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Corporate support, including payroll giving, workplace fundraising, matched funding, pro bono partnerships, and donations from organisations with an interest in pain management, rehabilitation, and disability support. - Individual donations, including regular giving, one-off gifts, in-memory donations, birthday fundraisers, and response to seasonal appeals.
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Membership income from our growing paid membership scheme, which offers supporters exclusive benefits such as access to our magazine The Warriors Lifeline, priority webinars, wellbeing sessions, and member-only updates. (Membership does not confer voting rights.)
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Sales from our online shop, offering branded merchandise and CRPS awareness items, with all proceeds reinvested into our support services.
Like many small charities, we felt the impact of the cost-of-living crisis, which affected both individual giving and event fundraising. In response, we continued to strengthen and diversify our income portfolio by:
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increasing applications to trusts and foundations
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expanding legacy giving and payroll giving promotion
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strengthening relationships with corporate partners
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developing new community fundraising opportunities
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engaging more deeply with members and supporters through targeted appeals
We are particularly grateful for the ongoing support of our corporate partners, including law firms who participate in our small legal panel and commit to annual donations. We also continue to receive support from companies and organisations in the health, rehabilitation, and mobility sectors, whose contributions help sustain our specialist services.
Despite the financial challenges faced across the charity sector, Burning Nights CRPS Support remains committed to delivering high-quality, accessible support to those affected by Complex Regional Pain Syndrome. Our diverse income base is essential to ensuring the stability of our services, and we are deeply appreciative of every grant, donation, membership, and fundraising effort that makes our work possible.
FINANCIAL REVIEW
Investment policy and objectives
It is the policy of the charity to maintain Reserves for both restricted and unrestricted funds in cash. The charity has not yet accumulated sufficient funds to consider establishing a formal Investment Policy.
Reserves policy
It is the policy of the charity to maintain unrestricted funds, which are free reserves of the charity, at a level of 6 months of the resources expended. At this level the Trustees feel that in the event of a significant drop in funding, they would be able to continue the current activities of the charity for a limited period and discharge all financial and contractual liabilities. It would obviously be necessary to consider how funding would be replaced and/or activities changed.
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Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 STRUCTURE, GOVERNANCE AND MANAGEMENT Governing document The charity Is controlled by its Constitution adopted 20th October 2015, and constitutes a Charitable Incorporated Organisalion. Recruitment and appointment of new trustees The charity appoints trustees in line with the processes sel out in ils Constitution, ensuring transparency, good governance and alignment with the charity's values and charitable purposes. Under the Constitution, Iruslees may be appointed by the existing Board and Must be formally approved by a minimum of three 131 current trustees. Except for the founding trustees, all Iruslees serve a three-year term and are eligible for reappoinlmenl for a further Ihree-year term, subject lo approval at a quorate trustee meeting or at the Annual General Meeting IAGMI. Trustees musl retire or be reappointed every three years lo ensure both continuity and the regular introduction of new skills and perspectives. There are no external bodies or individuals with the right lo appoint Iruslees. All appointments are made internally by the Board of Trustees. When recruiting for new trustees, the charity follows a slruclured and robust process. Prospective trustees are invited to apply through an open recruilmenl process, where they must submit a CV, cover letter, and o referees, In line with our Trustee Recruitment Pack. Applicants are assessed on their skills, experience, commitment lo the charity's aims, understanding of governance responsibilities, and their ability lo contribute constructively to strategic decision-making. As part of our safeguarding standards, all trustees must complete DBS checks and the required Trustee Eligibility and Fit & Proper Person declarations. New trustees are selected carefully lo ensure they reflect the values of Burning Nights CRPS Support, bring relevant expertise (for example in legal, financial, clinical, academic, or lived-experience areas) and enhance the Board's collective skills. As of March 2025, 80 /0 of our Board have a chronic illness. whether that is CRPS, chronic pain or another chronic illness. This continues to be invaluable in shaping the charity's direction. This slruclured approach ensures that the Board remains diverse, skilled and committed to strong governan, while upholding the requirements of the Conslilulion and the long-lerm needs of the charity. Page 18
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 STRUCTURE, GOVERNANCE AND MANAGEMENT Oryanisational structure Burning Nights CRPS Support is a Charitable Incorporated Organisation ICIOI governed by a Board of Trustees. The Board holds oveffill spOnSibl11tY for strategic direction, governance, financial oversight and ensuring the charity meets its legal and regulatory obligations. Trustees bring a mix of professional expertise and lived experience of CRPS and meet every months, wlh additional decisions taken belMeen meetings as needed. The Chair of Trustees leads the day-to-day operations of the charity under delegated authority from the Board. This includes oversight of safeguarding, service delivery, finance, volunteer management, policy implementation and partnership development. Operational activity is delivered through a predominandy volunteer-led model supported by specialist professionals. During the reporting year, the charity was supported by a large team of volunteers, including 4 10 5 Volunteer Coordinator volunteers who assisted with volunteer recruitment, induction, safeguarding requirements, rola management and ongoing volLJnleer support. In February 2025, the Clinical Lead started her role thanks to the National Lottery. She has the oversight of the counselling and therapy team including therapists and supervisors. All volunteers receive appropriate induction, safeguarding training (repeated annually), GDPR guidance and role-specific development. Professional external support is commissioned where required, such as accountancy. The wider membership community engages wth the charity through Servi$, events and feedback. However, the members have no legal voting rights within our charity. Externally the charity is a member of Pain UK, which is an umbrella organisalion for pain charities like ours. We are also a member of the Third Sector Network in Scotland as well as a member of the Cross-Party Group for Chronic Pain in Scotland. We regularly allend meetings of both groups. These relationships, while essential, are not classified as related parties under the Statement of Recommended Practi ISORPI. Page 19
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 STRUCTURE, GOVERNANCE AND MANAGEMENT Induction and training of new trustees Burning Nights CRPS Support is committed lo ensuring that every trustee feels confident, informed, and well-equipped to carry out their responsibilities. We recognise that strong governance begins with a supportive and thorough induction, followed by access to ongoing training and development. Trustees. Induction All new Iruslees receive a comprehensive induction programme that introduces them to the charity's mission, values, and strategic objectives. This includes.. An overview of our Constilulion, charitable purposes, and governance structure. A briefing on the duties and legal responsibilities of trustees, drawing on Charity Commission guidance. A review of key organisational policies such as safeguarding, financial controls, confidentiality, GDPR, Equality. Diversity & Inclusion IEDII, and conflicts of interest. An introduction to the charity's services, projects, volunteer structure, and operational procedures. A CRPS awareness induction, ensuring all trustees understand the lived experience of the community we support. Trustees are also provided wth copies of the Trustee Recruitment Pack, the lalesl Annual Report and Accounts, recent Board minutes, and the strategic priorities for the year. Mandatory documentation and checks In line with our Constitution and safeguarding eommitmenls, all new trustees musl Complete.. Trustee Eligibility Declaration and Fil & Proper Person Declaration A full conflict of interest disclosure A DBS check prior to formal appointment Trustees, Training and ongoing development Trustees are encouraged lo engage in regular training to strengthen their governan skills and keep up lo dale with best practice. Our procedures include.. Annual safeguarding training ladulls and children), mandatory for all Iruslees Annual GDPR and confidentiality refreshers Access to Charity Commission webinars, guidance and sector updates OpportLJnilies for trustees to join relevant external training Icharity finance, risk management, HR, governan, fundraising regulation, elc.I Other training sessions on organisalional priorities and developments, particularly in areas such as CRPS awareness, research involvement, mental health and service delivery Support and collective responsibility We offer an open and supportive environment where Iruslees can ask questions, seek guidance and learn from each another. The Chair provides additional support to new Iruslees during their early months and all Iruslees receive regular updates on operational matters, safeguarding, financial reporting and strategic developments. Trustees Meetings are held every 2 Itwol months lo ensure everyone Is up lo dale on what is going on within the organisalion. Policies such as safeguarding, financial management and confidentiality are reviewed on a twtryear cycle, with Iruslees involved in the review process lo ensure policies remain current and aligned with legal and regulatory requirements. By offering a structured induction, clear expectations and ongoing training opportunities, we ensure that every trustee is empowered to contribute effectively, uphold good governance and support the charity's mission to improve life for all those impacted by Complex Regional Pain Syndrome ICRPSI. Page 20
Burnin hts CRPS Re ort of the Trustees for the Year Ended 31 March 2025 REFERENCE AND ADMINISTRATIVE DETAILS Registered Charity number 1166522 Principal address 1 Alder Brook Chinley High Peak Derbyshire SK23 6DN Trustees Mrs V Abbott- Fleming MBE Mr R A Ingham Miss L Davis Mr A Patel Mr T Craig Lowe Trustee Iresigned 1517120241 Ms R O'Brein Trustee (appointed 2419120241 Independent Examiner S&W Partners ILeedsl Limited Accountants 3rd Floor 56 Wellinglon Street Leeds West Yorkshire LS1 2EE Approved by order of the board of trustees on 15 January 2026 and signed on its behalf by.. Trustee Page 21
Inde endenl Examinerts Re Burnin hts CRPS ort to the Trustees of I report lo the trustees on my examination of the accounts of Buming Nights CRPS for the year ended 31 March 2025, which comprise the Statement of Financial Aclivilies, the Balance Sheet, the Statement of Cash Flows, and the notes lo the accounts, including significant accounting policies. Respectivo rosponsibilitlos of trustges and gxaminer and basis of roport As the charity's Iruslees you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 20111'Act'i. I report in respect of my examination of the charity's accounts carried out under section 145 of the Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 14515llbl of the Act. Independent examiner's statement I have completed my examinats'on, I confirm that no material matters have come to my attention in connection with the examination giving me cause lo believe that in any material respect". 1. accounting records were not kept in respect of the charity as required by section 130 of the Act., or 2. the accounts do not accord with those records", or 3. the accounts do not comply with the applicable reqU1MentS concerning the form and content of accounts set out in the charib.es (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a maller considered as part of an independent examination. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts lo be reached. Matthew Barton (Jbn 16. ?076 1?..?5..44 GMTI Matthew Barton BA IHonsl FCA CTA S&W Partners ILeedsl Limited Accountants 3rd Floor 56 Wellinglon Street Leeds West Yorkshire LS1 2EE Dale.. 16JO!12026 Page 22
Burnin hts CRPS ststemenl of Financial Activities for the Year Ended 31 March 2025 2025 Total funds 2024 Total funds Unrestricted Restricted fund funds Notes INCOME AND ENDOWMENTS FROM Donations and legacies 50,830 26,447 77,277 56,741 Other trading activities Other income 3,995 512 3,995 512 5,174 758 Total 55,337 26,447 81,784 62,673 EXPENDITURE ON Raising funds 10,829 2,882 13,711 16,366 Charitable activities Charitable activities 63,569 16,703 80,272 75,167 Total 74,398 19,585 93,983 91,533 NET INCOMEIIEXPENDITUREI 119,0611 6,862 {12,1991 {28,8601 RECONCILIATION OF FUNDS Totsl funds brought forward 50,496 10,627 61,123 89,983 TOTAL FUNDS CARRIED FORWARD 31,435 17,489 48,924 61,123 CONTINUING OPERATIONS All income and expenditure has arisen from continuing activities. The notes form part of these financial slalements Page 23
Burnin hts CRPS Balance Sheet 31 March 2025 2025 Total funds 2024 Total funds Unrestricted Restricted fund funds Notes FIXED ASSETS Intangible assets 10 3,214 3,214 8,022 CURRENT ASSETS Stocks Cash at bank 12 2,727 29,554 2,727 47,044 2,411 54,440 17,490 32,281 17,490 49,771 56,851 CREDrroRS Amounts falling due within one year 13 14,0611 14,0611 13,7501 NET CURRENT ASSETS 28,220 17,490 45,710 53,101 TOTAL ASSETS LESS CURRENT LIABILITIES 31,434 17,490 48,924 61,123 NET ASSETS 31,434 17,490 48,924 61.123 FUNDS Unrestricted funds Restricted funds 14 31,434 17,490 50,496 10,627 TOTAL FUNDS 48,924 61,123 The financial statements were approved by the Board of Trustees and authorised for issue on 15 January 2026 and were signed on its behalf by.. Trustee The notes form part of these financial slalements Page 24
Burnin hts CRPS Notes lo the Financial Statements for the Year Ended 31 March 2025 ACCOUNTING POLICIES Basis of preparing the financial statements The financial statements of the Charity, which is a public benefit company under FRS 102, have been prepared in accordance with the Charities SORP IFRS 1021, Accounting and Reporting by Charities". Statement of Recommended Practice applicable lo charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic or Ireland IFRS 1021 {effeclive 1 January 20191., Financial Reporting Standard 102. The Financial Reporting Standard applicable in the UK and Republic or Ireland and the Charities Act 2011. The financial statements have been prepared under the historical cost convention. The Charity has taken advantage of the following disclosure exemption in preparing these financial statements as permitted by FRS 102 @The Financial Reporting Standard applicable in the UK and Republic or Ireland the requirement of Section 7 Statement of Cash Flows. The charity has taken advantage of the following disclosure exemption in preparing these financial statements, as permitted by FRS 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland.: the requirements of Section 7 Statement of Cash Flows. Income All income is recognised in the Statement of Financial Activities once the charity has entillemenl to the funds, it is probable that the income wll be received and the amount can be measured reliably. Expenditure Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly allributed to particular headings they have been allocated lo activities on a basis consistent with the use of resources. Intangible fixed assets Amortisation is charged at the following annual rates in order lo write off each asset over its estimated useful life. Website- 250/0 Straight line Tangible fixed assets Depreciation is provided al the following annual rates in order lo write off each asset over its estimated useful life. Furniture and equipment- 250/0 Straight line Stocks Stocks are valued al the lower of cost and net realisable value, after making due allowance for obsolete and slow moving items. Taxation The charity is exempt from tax on ils charitable aclivilies. Pension costs and other post-retirement benefits The charity operates a defined contribution pension scheme. Contributions payable to the charity's pension scheme are charged to the Stslement of Financial Activities in the period lo which they relate. Page 25
Burnin hts CRPS Notes lo the Financial Statements - continued for the Year Ended 31 March 2025 DONATIONS AND LEGACIES 2025 2024 Donations Gift aid Grants Income from membership 45,807 2,737 26,448 2,485 42,417 993 11,894 1,437 77,277 56,741 Grants received, included in the above, are as follows.. 2025 2024 other grants 26,448 11,894 OTHER TRADING ACTIVITIES 2025 2024 Sales of goods and services 3,995 5,174 OTHER INCOME 2025 2024 Other income 512 758 EXPENDITURE ON CHARITABLE ACTIVITIES Direct Costs (see note 61 Support costs Totals Charitable activities 16,152 64,120 80,272 DIRECT COSTS OF CHARITABLE ACTIVITIES 2025 2024 Trustees. expenses Travel expenses Conference expenses Stsff training 2,106 740 7,829 5,477 4,024 835 8,714 4,081 16,152 17,654 Page 26
Burnin hts CRPS Notes lo the Financial Statements - continued for the Year Ended 31 March 2025 TRUSTEES. REMUNERATION AND BENEFITS There were no trustees, remuneration or other benefits for the year ended 31 March 2025 nor for the year ended 31 March 2024. Trustees, expenses 2025 2024 Trustees, expenses 2,106 4,024 The Iruslee expenses were paid lo 3 trustees for training and travel costs during the year. STAFF COSTS 2025 2024 Wages and salaries other pension costs 22,000 473 26,625 580 22,473 27,205 The average monthly number of employees during the year was as follows.. 2025 2024 Stsff No employees received emoluments in excess of £60,000. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES Unrestricted Restricted fund funds Total funds INCOME AND ENDOWMENTS FROM Donations and1acleS 44,847 11,894 56,741 Other trading activities Other income 5,174 758 5,174 758 Total 50,779 11,894 62,673 EXPENDrfuRE ON Raising funds 16,366 16,366 Charitable activities Charitable activities 73,900 1,267 75,167 Totsl 90,266 1,267 91,533 NET INCOMEI(EXPENDITURE} {39,4871 10,627 128,8601 RECONCILIATION OF FUNDS Total funds brought fOard 89,983 89,983 Page 27
Burnin hts CRPS Notes lo the Financial Statements - continued for the Year Ended 31 March 2025 COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES. continued Unrestricted Restricted fund funds Total funds TOTAL FUNDS CARRIED FORWARD 50,496 10,627 61,123 10. INTANGIBLE FIXED ASSETS Website COST At 1 April 2024 and 31 March 2025 19,229 AMORTISATION At 1 April 2024 Charge for year 11,207 4,808 At 31 March 2025 16,015 NET BOOK VALUE At 31 March 2025 3,214 At 31 March 2024 8,022 11. TANGIBLE FIXED ASSETS Furniture and equipment COST At 1 April 2024 and 31 March 2025 744 DEPRECIATION At 1 April 2024 and 31 March 2025 744 NET BOOK VALUE At 31 March 2025 At 31 March 2024 12. STOCKS 2025 2024 stocks 2,727 2,411 Page 28
Burnin hts CRPS Notes lo the Financial Statements - continued for the Year Ended 31 March 2025 13. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR 2025 2024 Trade creditors Taxation and social security Other creditors 1,062 659 2,340 336 704 2,710 4,061 3,750 14. MOVEMENT IN FUNDS Nel movement in funds At 3113125 Al 114124 Unrestrlcted funds General fund 50,496 119,0621 31,434 Rostricted funds Nationwide colleagues E C Graham's Charitable Settlement The National Lollery E C Graham Charitable Trust SJP 9,894 18,0851 2,400 13,008 17351 275 1,809 2,400 13,008 121 275 733 10,627 6,863 17,490 TOTAL FUNDS 61,123 112,1991 48,924 Net movement in funds, included in the above are as follows.. Incoming resources Resources expended Movement in funds Unrestrlcted funds General fund 55,337 174,3991 119,0621 Restricted funds Nationwide colleagues E C Graham's Charitable Settlement The National Lollery E C Graham Charitable Trust Clockworker's Trust sjp 18,0851 16001 14,0391 17351 14,9001 11,2251 18,0851 2,400 13,008 17351 3,000 17,047 4,900 1,500 275 26,447 119,5841 6,863 TOTAL FUNDS 81,784 193,9831 112,1991 Page 29
Burnin hts CRPS Notes lo the Financial Statements - continued for the Year Ended 31 March 2025 14. MOVEMENT IN FUNDS- contlnued Comparatives for movement in funds Nel movement in funds At 3113124 Al 114123 Unrestricted funds General fund 89,983 139,4871 50,496 Restricted funds Nationwide colleagues E C Graham's Charitable Settlement 9,894 733 9,894 733 10,627 10,827 TOTAL FUNDS 89,983 128,8601 61,123 Comparative net movement in funds, included in the above are as follows.. Incoming resources Resources expended Movement in funds Unrestricted funds General fund 50,779 190,2661 139,4871 Restricted funds Nationwide colleagues E C Graham's Charitable Settlement 9,894 2,000 9,894 733 11,2671 11,894 11,2671 10,627 TOTAL FUNDS 62,673 191,5331 128,8601 15. RELATED PARTY DISCLOSURES There were no related party transactions for the year ended 31 March 2025. Page 30