2024-03-31-accounts

REGISTERED CHARITY NUMBER.. 1166522 Re rt ol the Trustegs an Unaudited Financial Sialements lor the Year Ended 31 March 2024 or

Burni CRPS S Con en the of the Financf81 Sl8lem8nt5 èar E ded 31 March 2024 Paoe Reporl of Ihe Tiuslees 1 lo 21 Statement olTru8lee8' Respon3ibililie5 22 Independent EXam￿le￿8 Report 23 Statement ol Financial Activities 24 Balance She81 25 to 2e Noles lo Ihe Flnancl21 Slal&rnenls 27 to 34 Detalled Slalemenl of Financial Aclivilies 35 to 36

Burnin hts CRPS Su Re ort ol the Trustees rEn Èd 31 M8rch 2024 The trustees presènt their reportmrith the financial statemenls ol the charity forlhe year ended 31 March 2024. The Iruslees have adopted the PTOViSiOllS of Acwunling and Rgporting by Ch81illes'. Statement tsf Recommatidéd Practicé applicablè io eharilies praparino Ih6ir aceounls ii) accordance writh the Financial Reporting Standard applicable In the UK and Republic ol Ireland IFRS 1021 leffecttve 1 January 20191. OBJECTIVES ANO ACTWITIES Summary of the oble¢l$ of tho ¢liarity The purposes and objectives ol the chariiy are as follows.. 11 to promote and protect Ihe health ol sufferers Ipatientsl of Complex Regional Pain Syndrome ICRPSI, Ihabr lamilios and careis by the prowislon ol Information, advlce and support including raising awareness of all aspects ol CRPS amongst the publlc In general but In partlcular Ihose Involved in the diagnosis. t￿atmen1 and care ol those sufferirg from (living wilhl CRPS.. and 2110 essisl and support research into CRPS, ils causes. Ireatnienl and cure and lo ensure the useful resvlls ol such research are published Within our aims and object4ves, we oller a range of support services including m8ntsl heslth 8UPPOrt such as a Befrfendlng SeN(ce. Couns811ing & Psyctryjlherdpy Setvicè for gnyonè affected by CRPS aged 5 and over i.e. for both children tsnder 18 and adulls, lelephone helpline, live web chal, online community lorum, support groups and niore. We Pfovide lo both adults and children since Complex Reqional Pain Syndromè Can afl&cl anyone at any sge ss well 8$ providlng servi¢e$ lo lamllies as having a CRPS di8gnosis can be 8 ripple effect lo Ihose around th8m, Page 1

hts CRPS Su Rè ort of Trustees I r the Ye8r Ended 31 Maich 2024 OBJECTIVES AND ACTIVITIES obl￿tIVes, ¥lY4tèglg8 ¢ttd actlvltlès 8¥rning Mights CRPS Support is a nalion81 ch81ily working 1¢ imprtsve th& lives of those impacled by Complex Regional Pain Syndfome (CRPSI. Our mission is dedKated lo enhancing the qualily ol life lor people wth Complex Regional Pain Syndiome ICRPSI And Ihelr Immediate cirde. We Bim to provide supporl and resources noi only for Ihosts with CRPS btsl also lor their caregivers, families. and friends. Our objective is to expand our seNI￿S and the literature we provide to empower individuals lo uiidersland and manage their condition, le8in to become their own 8dV(￿ateS and offer support where necessary. We understand the challenges CRPS poses lor caregivers, lamAies. and friends, and we are commilled lo prov￿Ing them with informallon 80 they can also understan(5 Ihelf bved one's condluon and support them In thèir rolès 89 caregivers. Our commilmenl lie5 in ¢onsistenlly enhancing the support W8 provlde, wlth th8 goal of impr(wino the overBII health and w811-b8ing ol all involvèd. Our ullirnate thsion for the future is a world fred ol Complèx Region81 Pain Syndrome and pain free lives. Our mission in three worcls is: Awareness. Educatlon. Support. This means that we wanl lo bring togelher the CRPS c￿lm￿nIty lo ensure people whose lives l)ave been touchèd by Ihis condilion Arè not alone. We airn lo raise awareness of Complex Regional Pain Syndrome ICRPSI and provida education so that more peopk acioss heallhcaie and In the publlc understand the Condition and ils debilitating ellecls. From educalioi), Irauiing and campaigning lo advice and suppoil, as the UK'S leading CRPS ch8rity we ale on a mKSSiOn lo Change Ihg way that CRPS15 looked al, managed and treated. Finally, our values are.. Wè're Strongèr Togethèr We're a commuiilty- We all work better logolher so Ihal everyone provides supporl for others ?nd we are able lo help people support themselves and we learn from everyone we work with. Wè'rè Empowèrlng - We empower each other lo luifil our roles and support patients, families. and their caiers, in advocating and driving lor ch8llg& We're R8spectful- We value everyone's unique story and journey. showing respect to supporters. palienls, stakeholders, and each other. We're Compasslonatg We offèr assislanee and guidance for Indlwdu8ls with CRPS and their rami118s, providing support and reassurance Ihal they are not faang this alone. We're Empatl)etlc We, as a patient and caregiver-led organisalion, have volunleet8 with lived ex￿[lenCe who 8mpalhise with your experiences. Operating coiitext Each year, over 15,000 individuals are diagnosed wilh CRPS. allecling nol only Ihtsse wlh the ctsndilion bul also their families. This includos both adults and chlldr8n. Receiving 8 diagnosis ol complex reg￿n81 pain syndrome ICRPSI can have syjnificanl emotional and financial impacts on individuals and famili98 deallng with the condilion. As a patient led organisatioii, we beli8ve In th8 value of Ilvéd experioncé. ThÈr8lorè 600A ol the curr6ntTruslee board live with CRPS or Chron￿ pain. Approximately 65Yo ol ou¥ volunteers also have lived experience ol CRPS, chronlc illness or chronic pain. Page2

Burn1n Ni hls CRPS Su Re ortollheT ees lor the Y ai Ended 31 March 2024 OBJECTIVES AND ACTIVITIES Having lived exp8ri8nc8of paln wllhin th8ehaFlly Is invaluable forseveral reasons. People who have personally navigated th8 eomp16xilies of chronic pain bring with them a deep. empathetic understanding to the oioanysallon, ensuring Ihat the chaiily's initiatives are genuinèly 81igned wllh the needs ol those who we aim Io SUPPDd. Their insigh15 have helped lo tailor some ol our support services and our literature. We also lind Ihal Iheir presen¢e Can inspire hope and solidarity amongsl our servicè users, helplng to ollera compassionate comniunlly where experiénces 8re valldated, and shared challenges are mol wilh collective strength. Summary of Actlvllles In plannino our actlvilles lor the year, we kept in mind the Charities Commission's guidance on publ￿ benefit t our trustees, meeling& The purpose ol the annual report18 to revkw the tharlly's goals, oblectlves. and aCtI￿lIeS lor the y8ar, and lo share with our supporters the impact Ihe*r help has made. While we are èxtremely proud ol our accomplishmeAls, we recounlse that there is still much more lo b& done, we feel eonlident that with your help, we achieve more each year. The trusleag provid& 3 detailed account ol the success ol each koy aclivily and hlghlighl the positive impacl the charily has made on the specific group5 il was established to support. This thorough revi&w not only showcases the tangib16 ￿nefItS delivered lo Ihese groups but also sorv8s as an essential tool lor the trustees lo evaluate the charity's alignment wlh ils mission. By reviewang Ilie oulcomes ol the year's work, Ihe Iruslees ensure Ihal the eharlty's Sims. obje¢iive&, and acllvilies conlinue to remain loeusèd on ils core purpose, enabling them to mak8 inloimed decisions for lulure initiatives anrj slrate9ies. This process ol relloclion and assessmenl ensures th81 the charily remains elleclive, accountable, and commilte(I to fulfilling ils rni8s1on. Oullined below a￿ the charity's key activilies and th8 groups It seèks to assist. All ol these projects and services are carried out lo advance the charltablè purposes ol Burning Nights CRPS Support lor the beneflt of the public, wlth a fo¢us on.. Support lor evèryone ￿0've been impacted by Complex Regional Pain Syndrome whether they a patients, families, close Iiknds. carers Iiicluding young carers and retalives Inlorrn81ion Raislng awareness, prowding education and campaigning Supportiro research Resourcing lh8 0198nls8llon so that we can deliver more Due to Ihe high wsl of living cfi515, th8 CRPS community has laced signil¢canl challenges. Many patlenls ale experiencing bng wait times lor appoinlmenls with Pain Clini¢s and Pain Servlces and have limiied access lo pain management programme5 mental health supwrt, pariicularly due lo the ongoin9 piessuios on the NHS. As a iesull, some individuals have struggled lo obtain 8 diagnosis and access the treatments they urgently need. We have made it a priority lo ensure that CRPS is discussed al all ￿vèlS ol declslon-making and arnong the general publi¢, highlighting the pmfound impact a CRPS diagnosi3 can have on 811 aspects of life, including the lives tsl those around patietils. To address Ihe8e gaps, w8 have worked diligently to continue providing vairous virtual supporl seNces, including regular online support groups, along wllh inloim8tron and guidancè. Our online supporl groups have been a vital restrurc8 lor Inany seeking a commuiiity Ihat lisleiis aiid responds to their n8éds. Wé have also hosted webinars, eXpalld￿ our ¢RPS Counsel11￿ 8nd Psychotherdpy Sèrvice, and continued lo opeiale our web (livel chal service and helpline. Page 3

Buffti hls CRPS Su iustees he Ye8r Ended 31 March 2024 lor OBJECTIVES AND ACTIVITIES We take great prlde It7 the incredlble 5UPPOrt provided by our volunteers, who have worked hard lo enh8nce our Befriènding servi￿ and other virtual offerings. including social media oulieach. With the help ol our team of 51 trained volunteers, Burning Nights CRPS Support remains eommitied to asslstlno those allected by CRPS during thelr most chsllenglng limes. This yèar, the eharlly's maln activities In line ￿th Its mission have included.. 1. Providing information and support through various channels lo individuals affected by CRPS, Including patients, families, and caregivers. 2. Updating and puuishing educational literature. 3. Develtsping a membership scheme lor mutual SUPPDrt. 4. Producing 'The Warriors Li161inè' a magaziné 8V8ilable Ohline and in print for a smai subscription le8. with the membership scheme 5. Organising annual conferenc£ and èducational weblnars 6. Malnlaining a website and social media presence lo promote publrc aw2renesÈ and provid8 Support. 7. 1 losling well-being evenls to foster community among adults and childrèn. . Facililaling regular online support group5. g. Operaling a telephone informalitsn helpline ènd tsnline wobAive chal service for all rnembeTS r)f the CRPS community. including palienls, family members, caregiveis, and Irlends. 10. Supporling Teseaich Inillatlve5 Ihat will ￿nefit individuals alfecled by CRPS. I l. Running an online community forum lor mutval support. inlorrnation sharing, and tdea exchange. 12. Providing edu¢alional talks to enhance understanding and awareness ol CRPS. 13. Attending exhibitions to raise public awareness. 14. Advocating lor the rights and needs of those affected by CPPS, particu18riy palienis. Publlc benoflt The Trusle85 hav8 h8d regmrd lo the Gharity Commission's guidance on public benefit. Volunteers Throughout 2023-2024, thÈ dedicaiB)n and compasslon ol our volunteers have played a Crucial role In providing essential support and comfo¥l lo CRPS patients and their families. Through VAr￿u$ plallormg, including email, phone, and social me(lia, our 5fj volunteers d6voled 8 remarkable 8,769 hours to active5y listenin9, offering guidance, answering questions, and proiqdlng much-needed counselling. The impacl ol our volunteers Is Imme3sur8ble. As a small charily, Iheir contributions have been nothing shoit of invaluable. Their relentless eommilment has empowe￿d th& ch8rity lo thrive afid achieve signilthnt niileslones. Thanks lo their self￿sSness, dedication, Énd expertise. we've been able lo oller meaningful assistance t¢> those who n6ed it most. Sadly, during Auoust 2023, we We￿ exlfemely saddened to hear of Ihe very suddsn and untimely death ol one ol our popular volunteer Befrienders, Victoria (Vickyl Ellen Williams. v￿kY had such a friendly way about her that pul her all bgEriended clien15 al 80 much ease. She really did help so many people in 50 many ways, just by being hérself. 11 was declded th8lw8 would have an annu31 awaTd dedicated lo v￿ky- The Vi¢loria E118n Williams Award lor Oulsianding Contributi(￿. Our Sincore condo18nces are wllh Vlcl(y's family and fiiends. We exlend our deepesl gratitude lo our exlfaDrdingry volunleers. Your unwaveiing commltment to our mIs￿on is truly inspiring, and yourgenerou$ donallon of Ilme and skills is profoundlyappreciated. Wilhoul your svpport, we wouldn't be where we are today. Thank you for everylhing you dol Page 4

Burnin hls CRPS Su e Truslees hg Year Ended 31 M rch 2 24 ACHIEVEMENTS AND PERFORMANCE harltable ac¢lvltle8 Our mlsslon is lo ensure thal individuals living with Compl6x Regional Pain Syndrome ICRPSI, along with their families and c105e relatives, experience the best possible quality ol life rtespile Iheir chronic tondilion. We are ¢ommilled Ic> provkllng supporl and resources not only lo those diagnosed with CRPS bul also lo their careoiveT8, families, and Iiiends. W8 aim lo conlinuou51y expand our services, projects and resouroes lo help Indlvlduals understand their llghls, manage their condition, and pursue Ihebr passions. W6 raeognise Ihe challenges that CRPS presents. not lust for patiènts bul fOr￿regIver$, families, and liiends as well. Our 9081 is lo offer hlgh-quality informalion to help them navigale the complexilios of CRPS and undeisland thèir roles Lind rf9hts. Our missiot) is to unite th& CRPS community, ènsurinu that no one touched by this condition lee18 along. We also strive to raise 2warènèsg of CRPS and provkle education so Ihal healthcare professionals and the public belter undeisl8nd Ihe eondilion and ils debililaling effects. Through edu¢alion, Ir2inlng, 8dvocacy, and SUPPDtI. we <ire Gommilled lo ¢hanging how CRPS is peicelved, manag￿, and treated as the UK'S leading CIIPS charity. Our core v81ues th81 we belleve In. are.. Stionger TogÉlhér We are a communily, w)rking collabofatlvely lo help Individuals support Ihemselves and learn from oné anolhor. EmpoweTmeht We empower oaeh other In our roles and provide patients, ¢aregwer8, and supporierswlh Ihè tools to conlinue advocallng Iof change. Respgct We honour èveryone's unlque journey. We treat our supporters, patients, stakeholdèrs, and colleagues wllh the ulniosl respect. Compasslon We sland by everyone who have been im loved ones. When people come lo us for acled by CRPS, no m8llerwhelher11)ey are palienls or families and elp, w8 listen and care. No one fa￿S Ihis 8bMe. Empathy As a pallenl and caregNer-led organlsatioTr, we deeply under$l8nd the strugglés that those affected by CRPS endure. Maln Areas of Focus for 2023.2024: Support foi all those affected by CRPS Ipallenls, lamili8s. Irittnds. and caregiversl Cetnpaisning. advo¢a¢y, and raisiftg awareness Providing information and educalion Suppoitng r65e8rch and studies Valuing our volunteers Engaging wFlh our $upportÉr$ We are dedbaled to continuously improving our $tsrvices, wlth the ulllmate goal ol enhancing the health 8nd well-being 018veryofie impa¢led by CRPS. Our vision is a Wor￿ free from Complex Rf gltsnal Pain Syndrome, where pail) no long&r Ilmits lives. Our misslon Is.. CRPS.. Awareness. Education. Support. Support for tl)ose Impacted by CRPS We remain dedicated to supporting, assisting, artd informing anyone impa¢led by Complex Regional Pain Syndrome ICRPSI, whether they are patients, loved on85, farnily members, or caregivers. Page 5

Burni 8 CRPS Su ort Re ort DI the Trustees lor the Ye rEn 31 Mar¢h 2 24 ACHIEVEMENTS AND PERFORMANGE We oller direct support through 8 rang8 01 $8tvi¢98, IncI￿lIng.. Onllne Support Groups Telephone Helplina Live Web Chat Social Media support Email Support Online Ccfflmunity Forum 86fr1ènding Service Ivirtuallonlinel Counselling & Psycholhefapy SeNices Wellbeing Sessions Our volunl&er-led support services remain eenlral to hc)w we asslst thè CRPS communlty. The costknol-livlng ¢risis hs$ brdughl iiew challenges to lighl, including delays in diagnosis, limited trealmenl opllons, and gaps In care. whkh we are actively working lo and advo£ate for. ere Is an overvlew of our sèNE￿9 and key achievements.. Onlln¢ CRPS 8UPPOrt group$ Our peer-leo online support groups. facilitaled by volunteers with liveos experi¢n¢e. have ¢onlinued lo thrive. Hostlng these groups vSrtually has made them more accÈssltlÈ, and the leedback from our communlly has been overwhelmingly posilive. While rnany app￿Cial4 thè ¢onv6ni6nc&, wa are assessing interest li ptsssibly relurning lo in-persoi) suppoil groups. Our main adult group has been meeting rnonlhly, diawng regular attendan￿ of approximalely 1Ck20 Particlpants. We are stlll however exploring options to ￿tter support children and young people wilh CRPS and young carers. The group discussons have spanned tOPiGS like pain management, laligue, the inipact ol CRPS on internal oigans, ¢omplamenlary therapies, challenges ￿lated lo menopause, famlly and friend dynamlcs, dental Issves, and navigating loss with eompasslon. Throughout the year, 12 support group seSS￿n$ were lielcl, supporting 195 Individuals. This year we saw an increase from lasl year in the number ol allendees by 86.70A. Th¢i8e who did parli¢lpale found thè gervlcè inwaluable espeeialty with them being held online. 'Thank you everyDne for allowlng me to Ilst8n to your 8XP8rl8he8s. These sesslons aro hugely IMPOrtant."_ Support Group Membèr Telephone Helpllnè Our Telephone Helpline and Email Suppoii $etvieés Ère cornerstones of our mission lo support individuals affe¢ted by CRPS. These vital servi¢es assist not only patienls butalso Ihei¥fami1ies, healthcare professionals, and 50Ci81 prescr￿￿er$. Our Helpline is a cruclal resource for those seek￿g informalion, guidance, and help with n8￿gating various issues such as accesslng NHS Servi￿S, securin9 mgnlal health support, and managlng educalianal needs lor young people and &ullswlth CRPS ortheir families. Ourlraii)ed voliinteers, many ofwhom are CRPS paI￿nIS or with Ilved experien¢e as carers or family members themsefves, provide compassionate and kn0￿edgeab1e support. We are especially grateful lo our vtslunleers and staff whts manage the Increaslng volurne of diffiu5t calls, Including those relaled to su¢cidal Ihoughls and self48rm. During 2023-2024, we iesponded lo 439 c811s, tolalling 53.40 hours of support. This is an in¢r8as8 of 23.340/fj on last yearfs helpline calls. To continue improwing Ihis serv￿e. we are wothing on Tecruiling 8ddiliwal volunteers and Implementing a ¢ompreh8nsiv8 Iralnlng programm8. Our goal Is to ènsuro Èveryone who reaches out receives the highest qualily of support ancl infom)alion. Page 8

s CRPS Su ort Rè ort of th6 Trustees r Ended 31 Maich 2024 ACHIEVEMENTS AND PERFORMANCE Emall Support Burnlng Nights CRPS Svpporl Is con)milted to assisllng Indlvkluals affecled by CRPS through our Emall Suppori system. In 2023-2024, we dealt Mlllh 1,393 queries and ¥equests for semces, addressing a wkle varlety ol enquiries ranging Irorn access lo servi¢e$ 19 cRPs-spe¢if￿ inlorrnalion and referrals lo spèciallsl 13wyer5. Our email service plays a key rolo in combaling IhE isdallon and loneliness that often accompany living with CRPS. By provldlng tlmely advrE, education, and support, we empower patients, familiès. and caregivers with the resources they need lo belt8T manage tho cotyllllon and enhance Iheir qualily of life. Wé fim)ly beliève Ihal everyone allecleos by CRPS deserves WLes5 to IhE SUPPOrt Ihey need, and we remaln dedicaled to delivering that IhFouuh our emall system and othèr channels ol cornmunlcation. Llve w•b chat Our Liv8 W8b Cl)al support Servi￿ has now been an additional support service lor 3 years since inception in July 2020. We inlroduced il as 8 digit8181ternatlve for indiwduals unable lo use our other commvllicalion channels. Th8 goal w85 to croèla an a¢￿ssIble, efficient solution th81 allows our community members lo recewe supp)rl quid(ly aiid conveniently, regardess of th8lr loeation or circumstances. Our Live Web Chal se￿￿e is wilal lor people alleded by CRPS ag il providés immedi8t&, aceessible supporE when they need il most. CRPS can bÈ isolatin9 and overwhelming, and having a real-time platform allows people lo connect with trained lived oxperlen¢e volunleefs who tan offér adviee, emotional support, and pracllcal Infcmiation. For those who may lind il dilflcull lo talk on the phone or allend in-person suppoil, live web chal offers our CRPS community a discreet. convenientway lo seek help and feel understood. 11 ensures that peo￿9 affected by CRPS can access guidance even Wh￿ OUF other servic8s may l)ave closed, helping them manage their pain and rnenlal w811-b8ing wore effeclively. Sinc• ils laui)ch, the Live Web Chal has been available six days 4 week (Monday to Friday, 11am4pm. and Saturdays, 12 nooM-4pml. Thls conslstent avallablllly has provlded a reliable way for peoplè to connecl wit s and iee8ivÈ timely assistance. Our team ol trained volunteers, m8ny of whom have lived exper￿rn￿ wilh CRPS, works diligenlly lo offer prompt, personalised $upport lo each person who reaches out. In 2023-2024, we provided live chal support lo 240 individuals, lolalling 68.17 hours ol support. Although th¢ number ol indivi(fual thats decreased sligl)Ily, on average we have rnainlained a 1hour 37-minule averagE chel lime. Having Ihis sèrvice and consistent chal tinie does show our commilrnenl lo giving each person the time and attention Iliey need, ensuiing they recèlwe thorough and compassionate care. We are proud of the onlinu8d success ol this setvie 8nd are dedicated to maimlaining ils high lewel of accesslbilily and 6ffeolivéness. "Thank you so much, for real. This was tlie mosl helpltjl conversation I￿0 Iiad on thls to date. I'll definitely start dolng the spray on IMoi$turisgr. Thank you all so much lor offering this 88ryice. .'hg8rt'. - T.A. wa Live Web Chal Social Inedia support We have still maintained an active presen¢e a¢ross sevan majorsocial media plallorms.. Facobook. X Ilomi8dy Twillerl, In51agraFn. Pinterest, Linkedln, YouTube. and TikTok. Through Ihege plailorn)s, ￿ regularly share inlormative conlenl, Including articles, events, videaslreels, and research opportunitles related lo CRPS, helpii)g us reach and support palienls, Ihelr famllies. and caregivers. Underslanding Iho Challenges of living wilh CFIPS, we believe that personalised $upporl Is essential. Our trained Iwed expetience volunteers respond lo private messages and comments across these platlorms, providing direct. one.oii.one assistance. In Ihg past year, we responded lo 1.385 individual privale messages- an increase of 8.2/4 Irom the previous year-ensuring that no one in our ¢ommunily (eels isolated or unsupportèd. Page 7

Bumin hls CRPS Su Re ort ol Ihe Trustees lor the Year En 1M h2024 ACHIEVEMENTS AND PERFORMANCE Our growth across social rnedia reflects the positiv8 Impadwe 8rg rnaklno. By th8 end of Marth 2024. we sw an 8.9% Sncreas8 In our onliné comniunity, reaching a total 0164,533 followers and subscribers acros3 all seven platforms. Thls contlnued growth indicaleg that More people are finding our Content V8lu8blÈ and informative, and we remgin commilled to providing uselul résaurees 8nd lost6rlng Connection vAlhin the CRPS ¢ommunily. 4ddilion8lly, weofler a ¢losed Facebook supwrigroup spec51￿allY lor parents and guardianslcarers of children and leens wilh CRPS. Thisgroup provides a sale, supporiive space lo qharg experiences 8nd advi￿ on caring lor a young person with CRPS. Membership I￿ this group has grown lo 1.096 membeis In the pa51 year, relleoliiig the Increasing need lor this specialised supporl. Thls has shown an increas8 of 38% from last year. W8 feel il 18 important lo have Ihls cbsed Facebook group for PaientslCare¥s wilh Young People who have CRPS because It offers the lollowlng.. Emotional Suppori and Shared Experiences Parents ol chlldren with CRPS oftén faee unique emotlonal challénges, such as Slfegs, le8r, and isolation. Thls group provides a safe space where parents and guardians Gdli coniiecl with others who Ituly uN181slatTrd Ihelr struggles. Sharing experiences, tips, and encovragemÉTht hélps fostér a sÉi)se ol community and reduces leelings ol loneliness. Tailored Advice and Resources - This group allows parents and guardian5 10 8xchanue Inlormatlon spgcifically rolaled lo rranaglno theli chlld's CRPS, such as medical trealmenls, educational issues, or coping slraleg*s. Members are often seen lo recommend hospitals, Iherapies, or progiarns thal have worked lor their chlldr8n. providing valuable in8ighls that may not be av8ilable Ihrough general groups or resources. Adv(￿tY and Empoweiment- Parentslguardlans ol children with CRPS very often néèd to advocate lor their child's needs in m8dical. educat￿nal, and 50clal SEtllngs. This group really can and does empower parents by tsflerlng advlce on how lo navioale these systems, share legal rlghts, and provldè lemFlales or guidance lor meelings wilh healihcaro prolessonals or sthoo15. This collective knowledge slienglhens thelr ability lo advocate elleclively lor their ¢hildlleen. "Thank you so much to everyone In Buynlng Night8 CRPS. I feèl so betl6r wlth your dally support. I feel Ihat I'm not alon8 thls flght. I don't remeinber how I found u but l am very happy that you very lI￿portant part of my Ille. Thank you so much"_jank_wottylik vra Inslagram 'Lovely IweeL @BNlghlsCRPS really do make you feel like you're not elone aiid just havirig other pooplo who completely understand your paln and everythlng that Comes ak)ng wlth thls awful dlsea8e Is comfortlmg x" J, via X, responding lo another tweet Oiiline community forum Our Online ComNuNity Forum is a kéy resourcè lor supporting the CRPS community. accessible through our website. 11 ollers a sale, mode12ted space lor people allecled by Complex Regional Pain Syndrome ICRPSI to GonneLI, share experiences, and seek advice. Living wllh chronic p31n can 0rt8n18ad lo fèelings ol isolation and loi)eline58. Unlike social media platforms, the forum provides a ltseused environment whefe users can discuss Ihe specif challenges ol living with CRPS or caiing for someoiie with CRPS wthout distractions. Our Commvnily Forum allows people lo connect wilh others who truly understand Iheir èxpdfiences. Thls shared understanding encourages owolignal sUPPQrt, re￿￿e$ feelings ol isclallon, and allows members lo exchange pr8¢tieal advice, coring straleuies, and personal slories in a comp8ssionate environmgnl. Sh8Ting personal slorles, challenges, and successes helps lo promo18 a sense ol belonging and reduces the emotional burden, Knowng that others are going through simi18r struggles ¢an $ignilKanlty énhan¢e meni81 well-being and resI1￿nCe. CRPS pallents and their faMil￿S orteii struggl6 to access timely medical support or accurate Inlornialion. Our Community Forurn provides 2417 acces8 lo a wealth of knovAadge, with niembers shzilng resouros. treatment options. and advice on managiro pain. This en)powers Indlthduals lo make Informed decisions at¢)ut their health and care. Page 8

Burnln Nr his CRPS Su ort rt ol the Trustees lor the Year Ended 31 March 2024 AGHIEVEMENT5 AND PERFORMANCE The forum is moderated by a team ol dedlcaled Ilvad èxperlènca volunteers, elther patients. carers, or family members. These trained volunteers ensure Ihal all posls adhere to forum guidelines and are appropriate, fostering 8 respectful and helpful community. They al80 coniribuie by sharing their peFsonal Insights and olfering support lo others. Currenly, the forum has over 883 members, cfealino a robust source ol sha￿d knovdedge and emotional suppori. We know that after our websile was relaunched with ihe new Forum in November 2022, il wubred all preV￿u5 menibers lo re-r8gisl8r. and all existing posts were deared. While rebuilding the forum'5 membership has been a challenge, we sre acllvely working lo encourage new sign-ups and engagement. Available 2417. the forum allows usersfrom around the Wofld lo ctsnnectatany time.11 serves as ts vit21 platform lor asking questions, exchanging advice, and accessing information. Additionally, il plays a iniporlaTrl ro18 and se￿Ice in not only comballng lonellness and isolation but11 helps helplng th058 affècted by CRPS to sèlf- manage their c(>ndlllon more ellectively and feel less alone in Iheirjourney. We are proud lo provld8 Ihis inv8lu8b18 resource and r8maln cornrnilled lo malMt8Inlng 8 5af8, SUPPOrtivo, and welcoming environment lor all CRPS communily members, Befrlendlhg servlee lonllnelvlrtu81} We are thrilled by Ihè p08ilive re$pongè io our BefiiÈnding SÈrvi¢è, whieh has continued to expand throughoul 2023-2024. With Ihe hdp of four dediealed volunteer Selfienders, we have been able lo oller weekly phon8 or video calls lasting 40-45 minutes to those living with C.RPS or their fainilies seeking s(fpptsrt. This Sèrvice has quickly become one ol our mosl popular. with each client reeewing a lolal of 12 sessionslcalls. The key to ils success lies In the lived experience ol our Belrienders. who are CRPS patients, Carers, or relaliv6s, msking their ernpalhy and underslandills invaluable. As demand continues to grow. we are commilled lo exp8nding our team. In the nexl finan¢ial y8ar, we plan lo recrult Iwo-four addillonal volunteers lo mEel the increasing needs of Ihe CRPS Gommunily, The benefits of this seM¢e have been profound, Including symptoms, less social isolation, and improved well-being, as eV￿enCed by pre- 8nd p051-suiveys. Over Ihe year, we pravlded 90 sesslons, onboarded 9 new cllents, and dlseharged 8, and we look lopNard lo eonlinulng Ihls vltal serV￿e lo reach even more people in need ol support. We have seen a slight reduction in the number L>1 sessoo8 this year compaTed lo last year, howevei we had some volunteer illnesses atKI we wer8 ieduced lo only 2 2cUve Befriendei volunteers during (he year whioh has had an imp8cI on the number ol sessions we have been able to offer during this year. "Thank you very much to av$ryonè Irom Burnlng Nights CRPS for doing this for us. And Blg Thanks to my Befrlènder Vlcky. She Is very nice, kind, patient and frSendly person who Ilstèn and help glvlng you an advlce If sliè can. I'M very happy I had Vlcky as my Bèfrlettder. Good luck In thls Vlcky" JV. Client, CRPS Patient CRPS counselling & psycholhgrapy sgrvl¢v lomllne only Our CRPS Counselllng & PsycholheTapy Service, whioli has now been going 5in¢e 51 was laun¢hed In March 2021, has proven to bE our biggest serviTr and m051 ￿rtaInlY a lifeline lor those unable lo 3¢¢ess m@nlal health services Ihrough the NHS. Du8 lo the ovethelming d8m8nd, il l)as led us 10 8xpand thé 8èrv￿è more and R7ore each ye8r. now SUPPDrled by 5even171 counsellors and psyehotherapists plus 3 volunleer dinkal supervisors. This year alone, we delivered 283 sessions compared lo 460 the pre￿OUg year, 8nd wé continuè 10 See a growing w811ins h'sl. However, we lost a lewvolunleer therapists who went lo work in private pracllce. Page 9

Burnin hts CRPS Su Re ort ol Ihe Trusteès Iw the Year Ended 31 March 2024 ACHIEVEMENTS AND PERFORMANCE We offor up lo 20 Sas￿On9 ol counselling or psycholherapy lor anyone over the age of 5, wllh r8oular assessmeiits lo monitor anxiety and depression. Each s&ssion is on8 hour in18nglh and is held either over the telephone or more usually online via wdeo confèrèncing software le Zotsm. This Is signlficantly more than what is typically available through public health servI￿s, allowino clienls time io build tr￿s[ and confidence wlh Ihelr therapist. In response lo increasing registrations lor young people uthder 18, we reeruiled 3 dedlcaled youlh Iherapists. We felt Il was crilir21 that we onboarded 3 new young person Iherapisls becauge offÈring Iherapy lor children under 18 with Complex Regional Pain Syndrome ICRPSI is ciu¢ial be¢8vse il helps them manage both the emotional and psychological loll of k'ving with chionic pain at a young age. It provides coping strategies lo reduce anxlety, depression. and isolation, improviiig resilience and emolional well-being during cfilical developmenlal years. 11 also helps lor young people to ba able lo talk lo someone olher than a lamity member 8SPW81Sy surrounding m8naging their condition at School anfS also eoplng with CRPS with family. In 2023-2024, we onboarded 23 new cléen18, and our servlee's Impaot Is evldenl. Thls Included assesslnu 6 young peopte 8nd eventually laklng on 3 Child and young people as dienls. On 8verage for those who completed Ihe lull course o12C> sessions, we saw anxiety levels have dropped from severe to mlld-mecsium lor 85°h clients, with sirnllar reducllons in depiesslon. Nolably, ol clents fell mole conlidenl aflercompletin9 thè 20 sessions, saw a reduction in anger, lear or l¥ustralion and 95°1ts ol clients reported a reduclion in suibidal Ihouqhls. We 8llribu18 the in¢r83Si￿g anxlely SCOTes we'v8 S88n ove¥ Ihe past year lo exlernal laclors lik8 the cosl-of-liwng crisis whieh we found alleeled 52% 01 our community and the linoeiing effects of the pandemic. Thanks to our amazing team of voluftleers-including qualified therapists. trainee therapists OTh placement, and cllnic31 supervisors- this seDJice eonlinues to pr¢vtdè Èssènlial mental health supportto the CRPS communlty. '1 am so gratoful to Burnlng Nlghts fov allowing me to bonèfit fvom thèrapy.Thls lias b88n Ilfe-changing for me. My quality of life l¥ $0 much bgt10r now. A mlllion thanks to Burnlng Nlghls and my amazing theraplst." _ WP, GF£FS Palienl 'I'm up and down still but Lovna ha5 glven mp hope for the flrsl time Trn many year8. The counB8lllnu has helped Ine more Ihai? any nhs OT crps 8pecla118t. Someone In my posltlon to be glven hope Is ma$8lv?."_ AH, CRPS Pat￿￿1 'Just a Inassive Ihaiik you to all Iiivolved who madè 51 pgssible, witliout Burnlng Nlgl?ts I'll stlll bg fighting for holpi iiow I have the too15 and knowledge to tackle Ilfe's journey x" . TM, CRPS P81iernl Wellbeing Wgdnosdoy prolecl Our Wellbeing Wednesday piojecl was launched Sn 2023. This project involved hosting weekly aotivlly session5 every WÈdnesday, ollering accesslble, low-impacl physical exercises lor people Iving wlh chionic pain, including Complex Regtonal Pain Syndromo ICRPSI. These online Zoom segslons 16atured Chalr Yoga, Dance, Qigong. and mèdliatlon, Moklng It easlèr lor those who are housebound or bedbound lo parliclpala. 11 W8s an exeellent oppL¥rtuni(y for indivlduals wth chronic pain to explore n8w activitiés, stay active, or even begin a journey toward phy$i¢a fitness. We bEgan with tasler sessions followed by a series cif 10 we8kly sesslons. Each dass Iksted 4540 minutes. ensuring parllcipsnts W8r8n't Overly fatigued, 8nd each sessk>n was designed lor up lo 35 people. Led by speclalI51 In51iuclors, the sessions larqeled CRPS symptoms, facusitig on buildlng strength, improving coordination, and prornoting overall well-b8ing. Two volunteers asslsted in each class lo answer questions and address concems related to lon￿terM pain management. The exercises were ¢grelully tall0￿d for people wilh CRPS and chronic pain. but also weknmed lriend$, lamity menibers, and indriiduals with mobilily issues. Regv18r physie8I aclivlty has been shown to he￿ manage ohionic pain, reduce symptoms, and improve ou81ty ol life. The project had three rnaiii goal8'. Increase physical activity among peop18 wlh CRPS. chronic pain, and their families. Enhance menlal well-being, reduoing feelings ol isolatior) and stréss, and encouraging open C4)nver8ations about their condition. Page 10

Enwuiage a sense ol community. The8e se83ion5 were designed lo in8pire allendees lo continue the activities on their own, ensuring la81iiig benellls lor both mental and physlcal heÈlth. Page 10

Burnin hls CRPS Su trrto hey Èes r Ended 31 24 ACHIEVEMENTS AND PERFORMANCE In addilion lo the physical activit￿8. we offered Zentsngle 5esslons-a cre8tlve fo￿￿ of self-help art tharapy. These sesslons helped partlClP8nls relieve stress. boost sell-conf￿enCE. and foster a social community, reducino loneliness 2nd Isolatlon. Zenl2ngle con)plemented Ihe physical exeroises. further enhancing the over311 Wellbeing Wednesday expeii&nca. Throughout the prLiect, we provided 25 sessions lor 179 people and 11 houis olwell-bein9 classes, achieving our ¢(>re aim$.We extend ouror8tiludt¢ lo the incredlble Inslfuelorswho made Ihls possltAe.' Jackie from Striclly Chair Yoga, David for th8 Tai Chi & Medilalion sessions, and Dawn lor the Zenlangle classe& However wè fèlt that thé Wèl1￿1n0 Projèct was coming to an and, so it was deeAded in August 2023 Ihat we would slop the Wellbein9 Wednesday project bul we would ¢ontinue in 2024-2025 with Zentangle se5SIOnS 85 our communbly lel they prelerred Ihls type ol sèssion. We wll cor¢linu8 to look lorways 10 being wellbéin9 sessiofts lo supwrt thé CRPS community lor thèir m&nt81, ¢molional 8nd physic&1 ne6(5s. "Thank you SO, SD Inuch. We've had a tough week and th18 was what I call an "pure loy" actlvlty that brought me back to the presènt moinet)t. I had so ittuch fun that Iny 6011 and partner dld a drawlng loo." .V Izentangle class) Page11

Burnin hts CRPS S Ihé Trustèes r Ended 31 March 2024 I rlhey ACHIEVEMENTS AND PERFORMANCE CAMPAIGNING, ADVQCAGY AND AWARENESS Our Founder ané Chair isn't only the driving forc& behind our org8nisation and also holds Ihe positlon ol Chair lor The Palianl Voiee Committee ITPVCI with the Brilish Pain Society. The TPVC advocates lor the needs and righls ol paln patients and their families, lirelessly raising awareness 4b¢ul pre8sin9 issues sucli as long wailing limes for acces5 to pain clinics. inadequate Ireatmenl opllons, and limited atcÈss ID mental health servlees. This dedic2lk)n lo enhandng the lives of pain palients extends beyond our organisation and into the broader communily. Our Found&r is a passionate advocate for the rights lor patients and thelr familks. ulilising her platform to hlghlighl the challenges that many indivmluals 2nd families lace. By dedlcallng her expertise, time, and anèrgy to the TPVC and other inilialives, she is genuinely making a difference in the lives of Ihose living with chronlc pain. At the he8rt 01 our org8nisation lies a profound sense of comp85sion and empathy foi individualg ￿th Complex Reqional Pain Syiidrome ICRPSI and their fami118s. Our volunteers and Irusleès èmbody these values in all th8ir ellorls, serving as lead8rs and advoe8les for our mission. Thi'ough their ongoing work, we aro oplimlsl about continuing to Inake stride5 in combal¥ig Chronic p8in and CRPS, ultérnalety hoplng for a brighter. more hopeful fulure for 211 affected. We engage In various campaigns and iniliatwes lo 8dv¢¢alè lar CRPS awareness and address the Challenges patlènl8 face, including.. CRPS Awar¢néss Sèssions We have conducted a smal5 number of informational sessions, providing 8.5 hours ol Insight5 lo heallhcare aiid18gal stud&nls amd professionals. Addilionally, we haveorganised variou8 lalks, primarily in vi¥lual formals. One ol our regular engagements is at Derby University, where w8 speak lo fiisl-year Occupational Therdpy sludenls about the profound impacl of CRPS on indlviduals, lives whether Ih81's a sociallsDcielal, flnanclal or émoliona1. By shar￿g personal stories. we aim to encourage a deeper understanding ol the conditlon and its effects. We firmly believe that educalion and awarenes5 are vltal for Improvlng outcomes. lacilllatlng quickeT diagnoses. and ensuring better trealmenls for CRPS. Moving forward, we aim lo dev8k>p online CRPS 8wareness sessions to enhance accessibility antj encourage broader p8rti¢ipalion in leacnlng about Ihls condilion. "The CRPS awarene8$ se8slon was well pre8enled good IllBterlals shown. P8rsoHal axperience added approprlate exlra ampha818. Physio, CRPS Awareness Session. MSK Physio learn Exhlblllng tt Exlilbitlons ln the past year, we have partlclpaled in two slgnlflcanl èxhlbttlons almed at professlonals in Prlmary Care, Public Heallh, Èftd Ihè disabled eommunily, including Naidex. These everils have prc>vided valuablé opporlijnilies to raise awareness about our charity and CRPS. By educating Ihe public and healthcare professionals about the ¢olldilion, we airn lo 18cililat8 lmely diagnoses and elleclive Irealmenls for palienls. Wa plaii lo conllnue our involvement in 5Elecl heallh and disabilily exhibitions lo highlight our work and the cliallenges fa￿d by Ihose living with CRPS. Pmrllament and Campalgnlng Our commitment to ralsing awareness aboul CRPS, parliculally r6garding availabla mental heallh support, Temains unwavering. We continue lo collaborate with our local MP and have also worked with MSP Clare AdamsoA to ensu￿ that essential questions are raysed in the Hous& ol C()rnnions. Our obje¢livg 18 lo advocate for answers Ihal not only support those ¢urrenily baiiling CRPS bul als0 provide assistance to their lamilies and loved ones, who often feel ovgrwh81med and helpless, By maintaining our engagemenl with politician5 across the UK, we alm io make a meaningful difference in the lives of thos8 affècted by CRPS. Page 12

Burnin hts CRPS Su ortoll he slees r Ended 31 M h 2024 ACHIEVEMENTS AND PERFORMANCE We have also become rnore involved In the Swlllsh Cross Party Group lor Chronic Pain which supporis paln pali8nt8 in Scolland. End have indeed become a Charily organisalion within the Cross Party Group whid) has led onto some Inleresllng conversalions and groups. In December 2023, wè w&r6 exlremely honoured lo have been included in the speech during the Debate in Ihe Scottish Padiament by Clare Ad£mson MSP IWish8W and Molherwelll who g4ve a gre21 speech and debate on CRPS in December 2023 where she spoke aboul her son and Iheir experiences al the health selv1￿ and his conditpn, as he also lives with CRPS. Informallon and educatlon One ol oui primary objéetives is lo provide comprehensive guidance and eclucalion lo Sndivklua15 living with Complex Regional Pain Syndrome IGRPSI, as we11 as Iheir familie5 and loved tsnes. We also aim lo raise awareness among the general public, htrallhcare profèssionals, and students regarding this condS1Son. To lacllllale the dissemlnallon ol information, we use varlous plallornis, Including our annual nallon81 conference Inewty lerm2d Ihe CRPS PalièF)Is and Carers lftlorm81ion 03yl, educalional webinars. our website, lileialure, and regoure6 malerlals. CRPS patlents and careT8 Ihformatlon day 2023 Foi 2023, we decided lo redesign the annual conference lo an event where more nem￿rkIng and talking could be tha ¢onlr8. W¢ tilled thè conference, the GRPS Patients and Calers Inloirnalion Day. 11 is still de8vJned to offer an in4eplh understanding ol CRPS, treatment optlons. and sell-managèménl strategies bul we chose lo split the day in 2 disllncl parts. The morning session was where we invtled leading experts in the field of CRPS, chronic p8in and disability lo d15cuss the latest research and advancemènts in CRPS management, allowino patients, thelr families, and k)ved ones lo engage with medic81 pmlessionals and connect with olhers who share 5imilai experiences, The second part of th8 day was the nelworking parl where we had ntsi only the speak8rs bul Imviled guests who cwld Ihen visit each table ol attèndees and speak lo them more on a one-ttrone basis. This event creates a svpportive environm&nt foT le8rning. shaiing, and ne￿rking. On 5th November 2023, we had the honour ol h081ing Ihe colllerence at Double Tree Hlllon Nollingham. The evenl still aiwed lo provide vilal v)formation and support to those allecled by CRPS and Iheir lamilh9S. The event allracied 67 allendees. We were fortunate lo h8ve four exp8rt speakers from diverse health profess￿￿$, exch with a strong Interest in CRPS, chronic pain, or disabilily. They shaied invaluable Inslghls on var￿uS topics. including Ilie lale51 research and management slralegies foi CRPS, such 3S euromodulation which spatked signllicant inl8r8sl. The èvenl was definitely a Suc￿ss, and allendees found li both helpful and inlormalive. "Marty thank8 far an éxtèllbnt eonfér•n¢o yestoiday and your outstanding comrnitmant to support everyone wlth CRPS and promote grealer awareness of the ongolng 6veryday challenges ofllvlng wlth thls condltiort. Tliankyoul" Cl, CRPS P81ienl Educatlonal weblllars 8uilding on the success ol ou¥ previou5 years ol webinars, we ¢onllnued 19 oll8r online talks in Ihe 2023-2024. We held three webinats, e8ch focusin9 on a differElIt top￿. One webinar. co-organised with 8r18n Barr, addressed 'Underslanding your Legal l<ights'. Navigating Ihe Person81 Injury Claims Process lor CRPS Patienls,, offering informal¢on lo suppoil people who ale or who are thinking ol n)aklng a legal claim due lo their CRPS. The second weblnai, Discover a New Way.. Everything You Need To KrH)w About Medical Cannabis 8nd Pain Management,, explored the lalesl advancements in medieal car*nabls. including ils yses 8nd how lo access it a5 a pain management optbn. This webinar was held in conjunction wilh the L&va Clinlc. Our lin81 webinar, presented by one ol our p8ycIK)Ihetapisl volunteers, lo¢used on 'Managing Relalionships with Ch¥oMic Pain.. detailing how patients Ilvlng wlth chronic pain and CRPS can manage a heallhier relatlonshlp desplt8 01 thèir condilK)I). Page 13

Burni CRPS S Trustèés lor the Year Ended 31 March 2024 ACHIEVEPJIENTS AND PERFORMANCE We extend aur h&arlfelt gr8titude to Brian Barr sol￿110rs, The Leva Clinic and Daniol Leech for Ihelr unwaveiing supwrt in makin¥ ourwebinars successful. Theirextensiv8 knowlèdge and valuable insights have been crutrial in helping vs creete engaging and inforn)81ivÈ onllnè sessions Ihal our audien￿ has grea15y appreciated. We are proud tts have supported 116 individuals providing 4.5 hours of experlise Ilirough our webinars and we remain commilled lo keep ollering and providirtg quality edueation81 resourees in the future. Our webinars offer a unique opportunily for anyone interested in expanding their knO￿edge or improvino Iheir health by learning Irorn leading experts in their field5. Ouf dedicated speakers aim to provi4Je participants Mrilh the lalesl r8sea￿b and wacts.cal slralegie5 lo help them achieve their goals, whether thal involv8s discovering bre8klhroughs in medical research orexploring new melhods to enhaneè physical and mental well-being. We belleve ev61.yone deserves access to qualily educational resources, and ourwfybinars are designed to be inclusrie and accesslble lo all. We welcome Individuals from dlverse backgrounds ta lttln (fs in promotlng lifelong learning and personsl growll).11 you're looklng lor an opportunity to learn from the best and broaden your knowledge, we invite you lo participate in our upc(Yning webin8rs and be¢ome pail ol our comniunily ol lifelong learnersl Website Th& new website contlnued to be uwlated and expanded to ensure we had fresh contènt added io il èvery month. We feel we've achieved some key objeclives with our newly deglgneé website InclLiding'. Enhandng content cE2rlW and accessibllily Crealing dedicaled sections lor caregiver8, patlents and healthcare prolossionals and sludenls Providin9 up.lfrdate. evKlence-based Inlormallon lor everyone in Ihe CRPS ¢ommunily, inc1￿lINg patients, families. friends, alld car8giv8rs Offering a resource wheie heaSlhc#rè professionals and sludenls can better under8taNd CRPS and improve their pstiènt services Rai%ng awareiiess among CRPS palienls and families 3boul our chaTity and available Servi￿$, reassuiing Ihgtn that Ihey are not alone on Iheir challenging journey Improvino k)ading speed Reducing our bounce rale from 750kn 10 40Yo or ltswer Our website serves as a comprehensive re8our¢e lor indlvidu8ls seeking information about Complex Regional Pain Syndrome ICRPSI. Our nilsslon is to deliver detailed aiid reliable insKJhts into Ihls condilian, which can be complex lo understand and manage. Deslgned a3 a one-slop shop, our 51te covers eveiythlng from symptoms and diagnosis lo Ire8lmenl options. In th6 past year, we recorded nearly 92.000 unique visilots and a lolal 0195,500 v15115 Ilncluding both unique and relurnino users), along with 121,(X)Q sesslons. These have a slight increase on la81 ye8r, however we sie hoping that our improved SEO and fresh and important content wll s98 8 bigger rise next yeai. Understanding Ihe dèbilitèting nature ol CRPS and the difficulty of finding a¢curalo informallon, we are con)mitted to providing thorough, evidence-ba5ed conlent. Our website addr&ssas varlous aspe¢ls of the condilion, including causés, iisk laclors, 2nd available Irealment options. Our team Continually compiles the latest research and medlcal guidellnes lo 8nsur8 access to the niost Current Inlorm811on. Addilion8lly. we showcase personal stories from individuals who havè &xperienced CRPS flrsl-hand. We believe these narratives provi¢Je valuable insights Into the ch81I8nges laeed by those a￿eCted, f(￿teriNg 8 8UPPOrtive and inlormats.ve ¢ommunity. Page 14

Burnin orto è TIus16èS lor the Year Ended 31 March 2024 ACHIEVEMENTS AND PERFORMANCE Why not take s look and discover lh£ wè8llh of information we have available?1 Whether you're a pali?nl, caregiver. or hea51hcare wolessional. our site is a valuablo resource lor anyone s88klng lo18arn moré aboul CRPS, 'I'm delighted lo be writing lo let you know that as a result ol conversations Éhal patlly weie slready in the works and partly as a result ol the Iblogl arti¢le I worked on wilh you, l 8m beginning to work will) the indopèndenl Ilving movèmenlol Iieland lo gel Paialympics Ifeland to considec eligibllily lor alhkles Mqlh CRPS nd other impalrmenls as well as a beginning lo move from Ihe medical modèl lo scclsl model approach,,. Ireland would be the first country lo adopt Ihls. Thank you lor shar(ng my storyl Llterature and awareness products We recounise and ampalhise with Ihe daily strugoles laced by individuals affected by CRPS. To 8SSlSt In nianaoing Iheir condlllon and Iniprovlng Iheirqu8lity of life, we olfer a range of lamglble resour￿$. Our Ilteralure and products aim to provKJe practical advice, guldance, and support to individuals wth CRPS, their lamillÈs, and healthcare providers. Our Illeralure re50urcès includè books, booklets, leaflets, and other materials such as bookmart(s and lold8d cards tailored to the unique Iieeds of those with CRPS and IheiT faM￿leS. Carefully crafted, our literalurf ollers praclical lips and stralegles for mansging pain, ènhancing mobility, and inyroving overall well-being. Whelhgr you're looking for inlormalion on the latest treatment options or lips foT maiiaging symptotns at home, we have Ihe regources lo h&lp you lake control ol your eandilion. We contlnue lo dislribule our CRPS information leaflets lor both adult$ and young people to warious NHS hospitals private cllnics across the UK. In addilKin lo our lilèralure resources, we provide products sp8cific8lly dèsign8d to help manaoe the pain and discomfoil associated with CRPS. Our sell-care packs ollerelleclive strategies lor symptom management and menlal health suppori when it's most needad. Wilh OUT PTodu¢ls. individu8ls can laké a proaetive approach lo m8n8ging th￿[ condition and improving their quality ol h"le. In summary, we are commilled lo ensurlng that people whose lives have been touched by CRPS, healthcare professiona15, and the general public, have thè netes8ary Information and rèsources Ihey néed lo navigate this thallenging condilion. Whether you seek practical advice, guidance, or support, we have the resources to help you lak8 control ol your Condition and enhance your overall well-belng. Research and Sludles uming Nighls CRPS Support have been actively collaborating with P¥ofessor Holly Blake from Noltingham University on the Paln at Work IPAWI Toolkit whieh has now been formally funded as a research trial. The charily has been involved as a parf ol Ihe trkal's Public and Patient Involvement {PPII. This innovative resource is deslgned lo lack18 the unlque challengès faeed by Indlvlduals uAth ehronlc paln In Ihe workplace. The PAW trial is looklng lo see il the Toolkil is a suitable and useful fesour¢& lor empltsyees wllh ehronio pain lo help Ihem Improve their overall support iogetM8r with their mental health and physical health. 118eeks lo provide oxlensive inlormallon, including lips on h(>w lo elleclivelycommunicalo with colleagues and employers aboul one's condition, strategies for managing paln whil8 th8 job, and guidance on accesslng workplace ommodglloi)s ènd support, By ulilising this loolkil, individuals with chror]io pain will hopefully better underslai)d Iheir rights and r8sponsSbllitSes In the workplacè, en8t￿Ing Ih6m to manage their condition more effe¢lively. This ¢0118boralive ÈNort involves Burnlng Nlghls CRPS &Jpport, our Founder & Chair Victoria Abbotl.Fleming MBE, and Professor Holly Blake. Tlie PAWToolkil marks a signifitani advaneèmÈnl in pain managen)enl, and we are proud lo have ¢onliibuled lo ils development. We hope il will enhBnce the Ilves ol individuals wlh chronic pain and loslei a Imore accommodaling and inclusive workplace environment. The Ii'ial is due lo conclude In November 2025. We participate in regular meetings as members of the Management Comn)Iltee, locuslng on Publio ancl Palient Involvement and Engagement. Page 15

As part olour ￿Mm11m¢￿tIO PPIE we were also honoured to be involved in Ihe Optimeth Trial foi CRPS w￿10￿ wivolved a presllgious team ol researchers, cllniclans and Ilved experlenee ol CRPS from across the world. Thi5 was a year long IDal which is due lo completè towards IhÈ end 012024. Page 15

Burnin Ni hls CRPS Su ustees he Year Ended 31 March 2024 ACHIEVEMENTS AND PERFORMANCE Our dedica140n lo findlng a CUT8 for CRPS and chronlc paln has also led u8 10 engage In 21 ￿searCh studies conducted by universities across the UK and Canada. OUT Involvement has bèén crucial in advancing the underslandlng ol the Causes, Ireetmènt8, and potènlisl eures for these debililaling conditions. A5 part ol our support, we have assisled respar¢hèrs in recrLiiling potentl81 participants by promolsng their studies acro58 our various plalloinis. Our robust social media presence, e.newsleiiérs, and website have played a viial role in raising awareness ol Ihese studies. Additionally, wè have occasionally highlighted Ihe$e rese8lGh efforts on our blog lo reach an even broader audience. Our new website lealur83 5 research Ir8Gk8r that allow5 U5 to open, pause, and cbs2 various studies as needed. ive are proud 10 5h3re that our inilialives extend beyond ￿¢rUItmen1. We continue to disseminaie the results ol Ihe studies and dinical tiials we have supported through our vaiious ¢hannels. Our online community lorum has also been instrumental in connectlng paillclpanis wlth researchers, provlding a sp2ce for sharSng infoimalion atO experienee& Through oijr collaborative efforts, we slrw8 to bring hope and relief to Ihose alle¢led by CRPS and chronic pain. VALUING OUR VOLUNTEERS We are kne￿d￿bIY grateful for our 51 ded￿al￿d volunle8rs who have generously contributed their time and energy lo hèl) us deliver 12 essential services and projecls to the CRPS communlty. Thanks lo their selllessness and unwavering commi￿nent. we provided an impressive 8.769 hours ol support lo ovr Chaiily, signilicanlly impaciing th6 lives of those in need. 11 we had It> pay for Ihe hours volunteered, it would have saved (he ch8rily over £91,370. At Burning Niglils CRPS Support, we firmly believe Ihal our volunleers are the heart and soul ol our charity. We are comn)ilted lo ensuring Ihey have a posilive and fulfilling sxperienee while cL>iitribuling to our mbsslon. To support them, we offer ongoing resources, including regular wellbein9 SUPPOrt $8$sions and bi.monthly meellngs where Ihey can share best practices and uplift on8 snolher. FDrour volunteer Befrienderg and c0unsellors￿herap¢$ls. we provide addit￿n81 support through monthly peer and clnlcal supervi&on and peer sessions, ensuring they have a¢cess lo the necessary ¥esour¢es and training lo tsller Ihe best possible service lo our communlty. For new Therap'qlsl(Jounsellors we 8150 providè a monthly wellbelng check-in with two ol the Irustees who are also volunl¢ors. This wellbeing hour is sel up to ensur6 th8rapisls are sellling in okay and arg liappywilh all our processes and procedures. We'realso thgrfj ID support their k[￿wledge of CRPS. Our volunteers are the backbon8 of our tharily, and we cannot express enough gr81ilude for their tI￿leSS efforts and $1è8dfasl dedication. Thank you to each and every one tsl them lor helplng lo shape 0￿{ charity Into whal11 Is today. Volunt0*r Inductlon and tralnlng At ovr charily, w6 take thè Induction and training of our volunteers very seriously. We believe that a comprehensive induclion is essenti81 for equipping our volunteers lo support our ¢omtllunily elleclively, Each new volunlegr undérooès a thorough induction process Ihal covers not only our charity's aims, mission, 8nd value5 bul also vital safeguarding Iraining lor those in dient-lacing roles. We want lo ensure that our volunteers are prepared to recognisd, respond to. and report any safeguarding conc8rns that may arise. Everyone also goes through GDPR, conlidenliallly 8nd Equality, Diversily and Inclusion IEDII Irèlnlng as well as part ol the induction. Page 16

8urnin Ni hts CRPS Su ort ort ol the Trustees lor the Yeai Ende l Mafch 2024 ACHIEVEMENTS ANO PERFORMANCE In addilion lo saleguardirg Iraining, all volunteers are required lo complete CRPS awar8n6ss training. This consists of a vrdéo followéd by a sel of questions lo reinforce their undersl8ndlng. We believe this training is cruclal for he￿)ing our volunleers enipathise wilh and understand the challenges Ihey may encovnler in their mles. or our volunteer Belrienders and Counsellors 8 Psyeholherapists, we provid8 four mandatory e-learnlng ¢ourses lailoréd speclfleally to their responsibilities. These wurses Cover suiclde awBrene8s, suicid¢ prevention, mental health awarenes& and Self-harm awarenèss. Wf* have expanded this mandatory Iralnlng lo include additional roles as wéll. W6 believe that equipping tsur voluiileer3 with Ihls knowledge and skills is essential lor providing ellecllve support to our communlly. We are ¢¢xnmitt&d lo offering regular Iraining courses lor all our volunteers, ensurino that essential cour8es. such as 5afeguardlng, a¥e r&newÈd annualty, whllé m6nl81 heallh and suiclde awareness Irauiing are updated every two years. Investing in oui volunteers, training Is vital Itj guaranlee Ihal our community receives the highest quality ol support from our dedlcaled volunteer8. ENGAGING OUR SUPPORTERS Prlnclple 8ourGe8 of fundlng To support our essential work, we draw from Multi￿e funding streams. including fundraising a¢tivilies, giants. and donations. Addilion211y, we Sell 8 range ol b￿ded merchandise Ihfouoh our online shop, wlth all pro￿edS going directly lo our organisation. We inlioduced 8 new Income sI￿arn in November 2022, through a paid membership scheme fof UK and Intornalional. which we will continue lo expand over th8 comlng years. We curr6nlly have 98 members from UK, Australia, Gemiany and USA. As parl ol our membership scheme, we provide a Iwice-yeaily magazlne which has èxrjusive content fealuring18lesl roS@8rch. fundraising slories, ben8fici8rylimpact sloriès ol people accessing our services plus inlormalive and interestsng content lo support people Impacted by CRPS. Our fvndrai¥ing elloris include evenls such as sponsored walks, runs, bske rides. and charity raffles. We also seek granls from various Irusls 2nd fDund8ltons that support health and wellbeing initialivos. Donations are 8 cru¢io1 source ol fundlng lor Bu(ning Niohls CRPS SupporL We depend on the generosity ol Individuals and business&s who are p38sior¢ale about i)ur eause to help us conliiiue our mis810n. Fundralsliig and donatlons Wilhoul the support ol generous donors and fundraise¥4 we would bè uttsble to provlde essenllal services to Ihose In need. We are 81w8ys open about how we raise our funds and are ¢OEnmitled lo tralning our stall Io Klenlily and protect individtjals in vulnerable cir¢vmsl8nces, In line with our Safeguarding and Fundraislng Policigs. We also make il easy lor supporters lo opl-oul ol receivii)g further communications from us. We receiva donaiions Ihrovgh v8rious channels, including regyl3r appeals and g1115 left in Wills. Our community 8lsts hosts lundraisefs lor us, such as runnlng, cycling, ai)d walking events like The Thr8è Pèaks Challenge. the Great Norlh Run and the Great Manehesler Run. We are grateful for all the supporl we re¢8ivè, Int￿dIng donaiions from FerRbook and Inslagr&m fundralsers sel up for birthdays, annIVersar￿$, and holidays in 8UPPOrt of our cause. Every contribution, big or srnall, h81ps us Gonlinue our mission ol supporting those affEGled by GRPS and Imp¢ovino car6 for 211. Thank you lor your ongoing support. Pagg 17

Bvinin s CRPS Su ort ol Ihe Trustees lor the Year Ended 31 March ACHIEVEMENTS AND PERFORMANCE Trusts and foundatlons We extend our heartfe11 gratitude to the l&lowing Tiusts and Foundations.. EC Giaham (Cumbrial NationW￿e Colloague Grant Their unw8veriiig support during challenging limes has enabled us lo conllnue our Services and fulfil our comniilrnenls lo our community, Organ18atloiial health During 202&2024. we experienced a reduction in donations due lo the aftermath ol the pandemic and Ihe high Cost ol Living crisis, plu5 a 5ionific8nl ri86 in our oulgoings due lo the rising c0810l resources and seNices in 8ddilion lo the unprecedented increase in demand lor support from Ihe charily which has placed a significani slr£in on the existiny oll&ring. We have also seen hlgh oulgoings lor IT and Digital Support includlng SEO, This has transEaled lo wnproved online rankii)gs and impression8 rneahlng moig visitors ¢0 the website, helping to raise awarene83 of CRPS. Despite Ihis, we have aclively pursued grants from trusts 8nd loundatioiis and slrenglheiied our relalionshlps wilh corporate firm8. A5 we move fo￿ard, we are coinmitied lo further divoisifylng our funding sources in Ihe upconling financial year. We romaln sleadlasl in our mission lo help our Community and look lopNard lo the opportunities and challenges ahead, Corporate Donors OUT chaiily has bebn lortunale to receive conllnuous supw)rt frorm Companies Ihrough their qenerous donations. From DTe85 Down Days lo compzny walking days. Christmas quizzes, and being selected as thè Charlty ol the Y881, wè arè amazèd by Ihe ongoing finanolal Contribut￿lls. Many ol our corporate donatirns come from our CRPS Legal Panel, All our specialisl16gal firms make an 8nnu81 donallon to loin and be on the Panel. Additionally. we received an annual donatlon from a law firm fr￿￿ nclaimed ch'ent compensation. We had the privllege ol attendin9 several ￿rpOrate donor me8tlngs, whlGh were highly producllve and su¢¢es$lul, se¢uring funding and grants lor various projects and the charily i16ell. As Ihe financial year came to a close. we began discussions with other ¢ompanie&, gxplorlng polentlal partnerships and collaborations. We are ex¢iled about the possibilllies th8s8 talks may bring and look forward to continued gTowlh alld support for our charity in the lulure. Page 18

Burnin hts CRPS Su ort Re lor ort ol Ihe Trustees he Year Ended 31 March 2024 ACHIEVEMENTS AND PERFORMANCE Thè ¢horlÉy's ptlnclpal sources of funds Burning Nigh18 CRPS Support ralies on multiplè inetsme sources to fund its serVI￿S and proj8ds, including lurtdraising events, grants IrDm Ifiisls and fcAindalions, and generous dortatiorts from Indivlduals and corporate partners. The charity also gener8le8 revenue Ihrough the sale ol branded merchandise via lis online shop. However, the ongoing cost ol living crisis, h8ve neg8liv&ly imp8¢led donations and fundraising ellorts. In response, Burning Nights CRPS Support has been explorlng addilional i4)come streams, such a8 8pplylng lo more IfU5ts and loundAlions and womoting legacy giving and payroll giviw. One ol the ehaiill5 initiatives we began last year was fhe Inlroduction ol a Merrbership Scheme, allowtng supporters to become paid members. In return, members receive exclusive benefils, such as access lo Ihe charity's magazlne. 'The Warrbrs Llfellne,, and other perks. Il's ImpoTlanl lo note that paid membèrs do not h8V6 voling righis. Despile thes8 fin3ncial ch8llenge5, Bvrnlng Nights CRPS Support conlinves lo receive corporate donation5, particulady from law firms that partiC4pale in Iheir small legal panel, Tho chailty also securès general Corporate donalions and grdiils, induding support from tM8dlcal d8VIC8 companies. Overall, Buining Nights CRPS Supwrt remalns commltled to its mission ol assisting those alfected by Complex Regional Pain Syndrome snd Is deeply grateful lor the ongoing suptx>rl il receives Irom ils diversè Sncome streams. STRUCTURE, GOVERNANCE AND MANAGEMENT Governlng document The charlty is controlled by its Conslilulion adopted 201h Oclobei. 2015, and conslilijles a Charitable Incorporated Organisalion. Recrultment and appolntinent of new tru8190$ The process for appolnllnu trustees Is clearly deflned In r)ur constit1￿tiOn lo ensure iransp8reney and accounlablllty. Tmslees are selected according lo Ihese guidelin8S and musl ielire or be re-appointed every three years al the Annual General Meeting IAGM). For any new Iruslee appointment. approval from al least lh￿ttl3) currenttruslees is required. Each newlruslee is chosen with great care and considei81ion to ensure they align with the charily's mission gnd vglu95. EX￿pt lor the founding Iiuslees, 811 Iiuslee8 servè a Ihree-ye2r term. This approach promotes continuity and s12bility wilhSn boÈrd whlle also allowing lor fresh perspectives and new voices. The appD5ntn)ent ol truste8s Is 8 vltal part ol the oharl(y's govemanoe. By adhering lo the Conslltutlon arsd maintaining a Ihoughlful selection process, the board enÈur8$ il ec¥hprises indivlduals who are dedicaled to the charily's goals and bring diverse expèrtences 8nd backgrounds lo the table. A5 01 March 2024. 60¢X ol Ihe (ruslees had chronic pabn andlor a dlsabilily. Page19

Burnin his CRPS Su for the Year Ended 31 Mai¢h 2024 STRUCTURE, GOVERNANCE AND MANAGEMENT Organlsatlonal structure Burnlng Nlghts CRPS Support is a national charily operating across the UK. 11 is overseen by a Board of Trustees, thich includes a Ch8ir who leads the Board, a Treasurer, and other dedicated truslees. The ¢harily omploya one palé staff Member, the Cl)arily Adminislralor, and relies on 8 learn of volunteers. The day-lo-dgy operalions are managed by the vohjnteer teBrn, the staff ￿rnber, the Chaii. and 8n additional Trustee. Although the other Iruslees do not hokl specific lilles, they work Ilielessly to ensure Ihe charity runs smouthly and elfeclively, and Ih8ir cantrlbulions ai8 inv8lu8blÉ. Buining Ntghls CRPS Supporl fecognises the importance of collabor8Uon In achievino its goals. To this end, the charity fost£rs stiong working relationships wlh other charilies and umbrella organlsalions Ihal shale its 15slon. These relatlonshlps, while egsenlial, are not dassifi8d as rèlaled parllos under Ihe Stal&nient of Recommended Practic& ISORPI. By partnering ￿th Ihese organisalions, Burning Nights CRPS Support is ab10 to èXPBnd Its reach and proV￿e supwrt to more I￿lIVIdUalS acTOSS thè UK affeeled by Complex REgional Pain Syndrome ICRPSI, Inductlon and tralnlng of #ew tru3t89¥ To ensure that all Iiustees are fully txepared 10 carry oul Ihélr r6swnsibililies, we provide a comprehensb induction into th8 chaiily. This is a vital slep to ensure they understand Ihe charily's values. mission, and obje¢lives. The Inducllon also includes briefings on the core respon&bililies of the Iruslees and the Board, as well as an overview cjf CRPS and the Specif￿ needs ol the CRPS commLsnfty that we serve. In addition, w& offer annual training sessions covering key arg85 such as safeguarding wlnerable adults and children, conlidenlialily, and GOPR compliance-eiltieal aspects of our work. Trustees are also provided wilh acc&ss lo thè Charity Commission's resources on trustee rights and responsibilitles. We hgve robust policies end pra￿dureS in place to guide our Iruslees in their dulio5, Indudlng Ihose relaled lo financlal management, conlidonlislity, GDPR, soclal medla, saleguardlng, and conlllcls of inlerest. The Board ol Trustees regulaily rèvi&ws these policl&s to ensure they remain cuirenl and in line with Ihe latest legal and regulalory slandards. We are proud lo have a team ol dedicated Iiustees who volunteer thei( lime lo support our mlsslon. None ol oui tru5tee5 receive remuner3(ion 01 benefkts, apail from expenses, wl)ieh ar& reimbursed according lo our expenses policy, Th15 cornmilmenl helps maintain th6 Integrity ol our charity, ensuring that all resources ar di16Cted lovrard5 beneliling Ihe people we servé. By prowding our trustees with the necessary policies, training. and ongcing support, WÈ ènsure they are well- equlpped to perfornl Iheir roles elleclivèly and r¢spon$lbly. Pagè 20

8urhin SCRPSS ort ol Ihe Trustees lor the Year Ended 31 March 2024 REFERENCE AND ADMINISTRATIVE DETAILS Reglslered Chaylty number 1166522 Registèrod offlc8 1 Alder Brook Chinlèy High Peak Oerbyshir8 SK23 8DN Tru8tees Mrs V Abbott~ Flemiiig MBE Mr R A Ingham Miss L Davls Mr A Palel Mr T Cra19 Lowe Tre8suror Independent Examiner Evelyn Partners ILeedsl Limited Accounlanis 3rd Fk)or 56 Welllngton Slfeel Leeds Wesl Yorkshlre LS12EE Approved by ordèr of the board of Iruslees ¢Jn the 231d ol OctobgT 2024 and Signed on tt5 behalf by.. Truslee Page 21

Burnin hts CRPS Su ort Slate Trust8es' Res 24 The Iru51eas are responsible lor preparing the R8POrt of the Trustees and the 11o8nclal slslemenls in accordance wilh applicable law and Uriled Kingdom Acc(yJnting Standards (United Kingdom Generally Accepted Ac¢ounling Praclicel. Charlly law requires the trustees to prepare flnancial slalernenls lor each financlal year which give a true and lair vi8w of the 8191& Df allaiis of the ch81ily and ol Ihe incoming re8ource5 and applicaliDn of resources. Includlng Ihe Income and expeThJllure, ol the charity for thal perlod. In preparlng those fin8ncial stalements, the truslges 8ro required lo.. Selecl suitable accounting policies and then apply them conslslently., Observe the methods and prlnciples In the Charlty SORP., Make judgements 8fid estimates Ih8t are reasonable gnd prwlen Piepare thè Ilnancial statements on the going concern basls unless It is Inappropriate lo p￿SUrne that the chaiily wll ¢onlinu9 in busingss. The trustees are responsible for keeping proper accounlino records Vwhich di8c1080 With ieasonable accuiacy at any time the linaneial position ol the eharity and enable them to ensure that the Ilnanclal slaten)ents coinply th the Charilies Act 2011, Ihe applicable Charities (Accounls and Reporlsl Regulalions, and the provi8ion$ ol the ¢onslilulion. They ale also responsible foi safeguarding the assets of the charity Ènd hence for taking réasonable sleps for Ihe preventKin and dèt8ct1￿ ol fraud and olhor irregul8riiies. Page 22

Irsde endent Examinevs Re urnln ort lo the Trustee8 of Independent examlnei's rèpoit to tha truste68 ol Burnlng Nluhls CRPS I'thg Ch4TIty'I I report to Ihe charlty trustees on my examinalion of th8 accounts of Ihe Charity for the year ended 31 Mwch 2024. Responslbllllles and basls ol report A5 the ch8riiYs trvst?es you are ¥espongbl8 for tha prep8ralon of Ihe accounts In accordance wilh lh8 requSrements ol the Charitles Ael 2011. Havlng satisfied mysell that the 8ceounts of the Charity are not required lo be audited under Sectlon 14412} ol tho Charities Act 2011 and are eligible for ind8P8ndent ex8mination, I report in respect of my examination ol yeur chgriws accounls as c#rrled out under Section 145 01 the Charities Act 2011 I'lhe 2D11 ACYI. In Carrylng oul my examination I havo followed Ihe DIr￿tiOnS glven by the Charity Commisslon under Section 145151 Ibl of the 2011 Act. Independent examlner's statemènt I have Compleled my examination. I c￿[Ir￿N that no matters have come lo my attenbon In connecuon wjth the examlnation giving me cause to believe.. accounting records were not kept In respect of the Charity as required by Secti¢Jn 130 of Ihe 2011 Act or the ￿Gounts do not arKord with those records,, or the accounts do not comply with the accounllnu requlrgments ol the 2011 Act other than any requiremertt that Ihg a¢¢ounts giv8 a true and falr vlew whlch Is not a matter considerod a8 part ol an indop8ndent 8xamin8tion', or Ihe 9ccounts have nDt been prepared in accord8ric8 with the methods and principles of the Slalement of Re¢ommend8d Pr8ctic8 for aceounlng and reportino by charities (applicable to charSles preparing their 8CCOUTTrts in accordance wlth the Financial RapO￿Thg Standard appllcable in the UK and Ropublic of Ireland IFRS 10211. I have nc Concerns and hav8 com8 across no other matters In conneclioTr wllh the examination to whlch attenlon should be drawn in this report In ord?r to en8blg a propBr Underst￿dIng ol th8 accounts to be reached. Matlhew Barton BA (Honsl FCA CTA Evelyn Parthers (Leeds) ￿MIle{l A¢¢ountants 3rd Floor 56 Wellington SlrBpt Leeds West YDrkshire LS12EE 6 November 2024 Page 23

s CRPS Su ort statement ol Flnanclal A¢l' Incoi oialin an Income and Ex endIlu￿ A¢¢ounl for the Yea ed 31 March 2024 2024 Tolal funds 2023 Tol81 funds as reslaled UnreStr￿ted rund Reslrlcled funds Notes INCOME AND ENDOWMENTS FROM Dtsnat￿nS and legacies 44.847 11,894 56.741 59,090 Other trading 8cliviti9s Other income 5,174 758 5,174 758 3,753 Total 62,673 64.838 EXPENDITURE ON Raislng funds 16,36fj 16.366 9,g03 Cliarltaljle acllvltles Charilable aclivities 73,900 1,267 75.187 Tot41 90,268 91,533 NET INCOMEIIEXPENDITUREI 139,4871 10,627 128,8601 11 S,2151 RECONCILIATION OF FUNDS Total funds brought forw8rd 89,983 89,983 105,198 TOTAL FUNDS CARRIED FORWARD SO,496 10,627 61.123 89,983 CO￿lNUING OPERATIONS All income and 8xpendilure has 8risen from continuing aclivilies. Thg notes form parl of these Ilnanclal slalements Page 24

min Ml hts CRPS Su Balancé Shéet 31 March 2024 2024 Total funds 2023 Total funds as ré8tat8d Unr8slricled fund R8slrlcted funds Noles FIXED ASSETS Inlangible assets Tangiblè 8ssèIs 8,022 8,022 12,829 176 14 8,022 8,022 13.005 CURRENT ASSETS Stocks Dèbtors Cash at bank 15 16 2,411 2,411 3,529 3.208 43,813 54 440 46.224 10,627 56,851 79,767 CREDITORS Amounts lallino due wllhin one year 13.7501 13,7501 12,7891 NET CURRENT ASSETS 42,474 TOTAL ASSETS LESS CURRENT LIABILITIES 50,496 10,627 61,123 89,983 NET ASSETS 10,627 61,123 FUNDS Unréstri¢led funds ReslriclÈd fuhds 18 50,496 89,983 TOTAL FUNDS 61.123 89,983 The Charily is enlilled to exemption from audit undor Se¢lion 144121 of th8 Charlli&s Act 2011 for lh8 year ended 31 March 2024. The trustees aCkt￿wIedge their responsibilities for ensuring that the Charity keeps 3ccounling records that CCTrmply Ihe Charities Act 2011. Ibl preparlng financ.lal statements which give a Ifue and lair view of the Slatè of affairs ol the Charity as at the end ol each financial year and of its surplus ￿ deli¢il lor ea¢h linon¢ial year In accordance with the iequlrements of the cha￿tY Acl 2011. The notes form parl ol these linanclal 8t8temenl8 P8ge 25

8urnin hls CRPS Su Balance Sheel- continued 1 Mar¢h 2024 Th8 financial stAl8menls were approved by the Board of Trustees and aulhorisecs lor issue on the 23td ol October 2024 and were signed on ils behalf by.. Trustee Tlw nol63 form parl ol Ihese flnanclal statements Page 26

Burnin hls CRPS oles to t c al Sl81é enig for the Ye8c Ended 31 March 2024 ACCOUNTING POLICIES Ba818 of preparlng the flnanclal statemonts The Ilnancial statements ol the Charity, which is a public ben811l enlity undor FRS 102, have been prepared in accordance wlh the Charities SORP IFRS 1021 'Aecounling and Reporling by Charities.. stalèfflenl of Recommended Practice applicable lo charllies preparing Iheii accounts in accordanee with Ihe Financial Reportin9 Standard 8ppIic8blè in the UK and Republlc ol Ireland IFRS 1021 lelfeclwe l January 20191,, Financl81 Reporting Standard 102 'The Finan￿81 Reportinq Standard applicable In Ilie UK and Republ1¢ ol Iretand, and the Charilies A¢1 2011. The fiEian¢ial stslements heve been prepared under the historical cost convention. The Charily has taken advantage of the following di3clo$ure axemplion In preparlng these fiiianctal 81atements, a8 permitted by FRS 102 'The Financial Reporting Slandar¢J applicable in the UK and Republic of Irelaiid,: the rèquirements of Seclion 7 Statement ol Cash Flows. Income Atl Income is reeognisèd in th8 Slatemènl ol Financial Activities once the charily ha5 enlillemenl lo the funds, il is probable that the income will be received and th8 8mount c8n m8asured reliably. Expendlture Liabilities are recognised 38 expenditur8 as goon as there is a legal or conslruclive obligalion committing the eh8rity to that &xpendilure. il is probable Ihal a Iiansler ol economic benefits wll be reqUI￿d in setllemenl and Ihe amount ol the obligation can be measured reliably. Expenditure is accounlod for on an aceruals basis and has been classified under headings that aggregate all cost ielaled lo the category. Where costs cannot be dire¢iiy allributed lo parlieular headings they have bee allocaled lo activities on a basis consislenl with the u$& ol resources. IntangSble flxed assets Amortisglton is chgrged at the lollowlng annual rates in order lo wrilg off each 8ssèI over lis estimgled Websile_ 254k Strsighl line Tanglble flxed a38918 Depreciation is provided at the following aftnual rates in order lo write off each asset over Its estiinated Furnilure and Èquipment- 250A Straight Ilne Stock8 Stocks arè valued at the lower of cost and nel realisable value, aller m8king due 8lk)wance for tsbsolete and slow moving ilems. Taxatlon The tharily is exempl from corporation tax on ils chAritable aGlivilie6. Penslon cosls and othÈr post-ret5rerneiit bertèflt$ The Ch8rity operates a defined contribullon pensioi) scheme. Conliibulions payab￿ to thè Charity's penslon schema are tharged lo the Slalement ol Fln8ncial Aclivitles In the pericd lo which Ihey relate. Page 27

Bumln hls GRPS Su ort Noles lo lor he Year Ende emenls- continued 31 March 2024 DONATIONS AND LEGACIES 2024 2023 85 resl¥led Donallons Grfla GrBnts Income Irom memb8r$hlp 42,417 993 11,894 57,673 662 755 59,0 Grants re￿ived. Included In the above, are as follows.. 2024 2023 as restated Other grants OTHER TRADING ACTIVITIES 2024 2023 RS restated Sates ol ooods and services 3.753 OTHER INCOME 2024 2023 as r6Staled Other income 758 RAISING FUNDS Other Iradlng actlvltles 2024 2023 8$ restated Pvrch8ses Mèrketing and publicity Events 1,419 13.957 990 5,707 4,196 Page 28

Burnin CRPS Su Notes Io ihe Financial Stalèm6nls- conllnued lor he Yea¥ Ended 31 March 2024 EXPENDifuRE ON CHARITABLE ACTIVITIES Direct Costs Isea nole 71 Support costs Totals Charilable actiiqties 75,167 DIRECT COSTS OF CHARITABLE ACTIVITIES 2024 2023 as restaled Trustees, expenses Travèl èXknse$ Conference expenses Stall Ifaining 4,024 835 &714 3,386 2,640 15,014 17,854 NET INCOMEIIEXPENDITUREI Net in￿me1<eXpeNdIlUTeI is Slated alter ch8igingll¢r8dilingi', 2024 2023 as restated Deprecialion- owned assels Web5ile amLlisatitsn 176 4,807 3,386 TRUSTEES. REMUNERATION AND BENEFITS Therè warè no IruslèÈ$' remunÈralion or other benÈlils for Ihe year ended 31 March 2024 nor lor the year ended 31 March 2022. Tru$to&s' èxpèn$¢¥ 2024 2023 as ￿stated Trustees, èxpenses 3,386 The trustee expenses were pald lo 3 Iruslees lor training and travel costs duriiio the year. Pag6 29

Burni hts CRPS Su ort Notes tts the Financial S ale ts- continue 24 10. STAFF COSTS 2024 2023 as reslaled Wages 8nd sÈlÈiies Olher pension costs 26,625 580 23.553 518 24,071 The aver8ge monlhly number of èmployees durii)g th6 year was as follows.. 2024 2023 as resialed Staff No employees recelved emolumefils in ex¢es$ of £60,000. 11. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES Unreslrlcted lund as restated INCOME AND ENDOWMENTS FROM Donations and legacies 59.090 Olh8r tradin9 aclivities Other Income 3,753 Total EXPENDITURE ON Raislng funds 9,903 Charitable actlvltles Charitable aclivilies 70,148 Total NET INCOMEIIEXPENDITURE 115,2151 RECONCIUATION OF FUNDS Total fund5 brought lorward 10E,198 TOTAL FUNDS CARRIED FORWARD 89.983 Pgge 30

Burnin Nl hts CRPS Su Notes lo the Financial Slalements- continued I r the Year En 1 M r¢h 2024 12. PRIOR YEAR ADJUSTMENT Websile costs were incorreclty classified as tangible fixed assets rather than Iiilangi1I8 fixeil assets In the accounts lor year ending 31 March 2022. A Prlor Year Adjuslment h8s béan mad6 to am6nd this, 13. INTANGIBLE FIXED ASSETS Websile COST Al l April 2023 and 31 March 2024 AMORTISATION Al 1 April 2023 Charge lor year 6,400 Al 31 March 2024 NET BOOKVALUE At 31 March 2024 At 31 March 2023 12.829 14. TANGIBLE FIXED ASSETS Furniturè and aquipmenl COST Al 1 April 2023 and 31 March 2024 744 DEPRECIATION Al 1 Apiil 2023 Charge lor year 568 178 Al 31 March 2024 744 NET BOOK VALUE Al 31 March 2024 At 31 March 2023 176 18. STOCKS 2024 2022 as reslaled Stooks 3,529 Page 31

Burnin hls CRPS Su tsrt oles to the Financial Statemen s-co lor ihe Year Ended 31 March 2024 linue 16. DEBTORS.. AMOUNTS FALLING DUE WITHIN ONE YEAR 2024 2023 as fèslated Prepayments and a¢crued income 17. CREDITORS,. AMOUNTS FALLING DUE WITHIN ONE YEAR 2024 2023 as reslaled Trade Creditors Socbal Sec￿ntY and other lax88 Other creditors Accruals and deferred Income 336 704 114 57 291 101 2,340 3.750 18. MOVEMENTIN FUNDS Net movement In funds At 3113124 Al 114123 UnroStri¢t8d fuhdts General fund 89,983 139,4871 SO,496 Restrlcl¢d funds Nallonwlde colleagues E C Giaham'8 Charitable Selllomenl 9,894 733 9,894 733 10,627 10,627 TOTAL FUNDS 89 983 28.860} 81.123 Nel mtrvemenl In funds, induosed In th# abovo ar6 as follows.. Incoming resourc8s Resources expanded Movement In funds Vnyaslricted lunda General fund 50,779 190.2661 139,4871 R$strletgd funds Natiomvide Colleagues E C Graham's Charitable Selllemenl 9,894 9.894 733 11,894 1,267 10,627 TOTAL FUNDS 62.673 91.5331 28,86DI Page 32

Burnln RP Notes to the Flnancial S 81 lor the Ye3r Ended 31 March 2024 18. MOVEMENT IN FUNDS- corjtlnued Comparatlves for movoment In fund8 Nél movement in funds At 3113123 Al 114122 Unresliicted fuiids Gen8ral fund 105,198 115,2151 89,983 TOTAL FUNDS 105,198 15.2151 Comparative net movement in lunds, included in the above are 8s follows.. Incoming resources Resources expend8d Movement itt funds Unrestrlcted funds Génoral futMI 64.836 180,0511 115,2151 TOTAL FUNDS 64,836 80,0511 152151 A CUTrenl year 12 months and prior year 12 months combinEd po5111on is 85 lolbws.. Net movement in funds At 3113124 Al 114122 Unrestrietad funds Gener81 fund 105.198 {54,7021 50,496 Restrlcted funds Nation￿ry￿e colleagues E C Graham's Ch8rllabl8 S81llemenl 9,894 733 9,894 733 70,627 TOTAL FUNDS 44 0751 Page 33

8urnln CRPS Su ort Notes to Ihé Finane. Statements- continued for he Year Ended 31 Uareh 2024 18. MOVEMENT IN FUNDS- contlnued A current year 12 monlhs and prior year 12 months wrnbin8d nel movemenl in funds, included in lh6 above are as lollow8', Incoming resources Resources expended Movement in funds Unrestricted fund¥ General fund 115,615 1170,3171 (54.7021 Restrlcted funds Nalionwide colleagues E C Graham's ClTrarllable Selllgmenl 9,894 2,000 g,894 733 1,267 10.827 TOTAL FUNDS 127 509 1171,5841 44 0751 19. RELATED PARTY DISCLOSURES Thorè were no related parly transactions for thè year ended 31 March 2024. Page 34

Burnin CRPS Su ort Detailèd Slaté lof lor he Year Ended 31 Mgreh 2024 2024 2023 as restated INCOME AND ENDOWMENTS Donations and lègacies Donations Gift aid Granls Income from memb8rship 42,417 993 11,894 57,673 662 755 56,741 59,090 Othey tradlmg actlvltles Sales ol goods and services 5,174 3,763 Other Income Olhei income 758 Total Incomlng resources 62,673 64,836 EXPENDITURE Other tiadlng a¢tTvltles Costs of good sokl Markèting and publicity Events 1,419 13,957 ggo 5.707 4,196 16,36S 9,903 CharStable activltle8 Trustees, eX￿nSeS Travel expenses Coi)lerènce expenses Slaff training 4,024 83$ 8,714 4,081 3,386 2,640 15,014 17,654 22,811 Support cos18 Maiiagèmènt Insurance Telephone Postage and stationery SubS¢￿p110nS 04 490 2,192 517 2,091 3,247 8,938 6,288 Flnancè 88nk tharges 316 8S2 InfoTIMatlon teclinology IT sofLware and con8ufflables 13,768 7,876 Thls page does not foim part of the statutory linanc(al statements Page 35

Burnin hls CRPS S etailed Stale enl ol Fina lor he Year Ended 31 March 2024 2024 2023 as reslaled Informatlon technology Huinam resources Wages Pensions Supervision 28.e25 580 fj.113 23,553 518 1,982 28,318 28.053 Other General expenses Enlertainm8nl- 100Yo business Amollisallc￿ ol intangible fixed assels Deprecialion of tangible Ilxed assets 427 352 4.807 176 653 5.762 4,039 Governanee Costs Accountancy and legal leès 2,420 Total resources expèrtd6d 80.051 Not èxpèndlture 28.8601 152151 Thls pagè d068 not form part ol the stat￿tOry flnano181 statements Page 26