OpenCharities

Cambridge Rare Disease Network

Crdn, CamRARE

Country
England & Wales
Charity number
1166365
Status
Registered
Reporting
Up to date Last filed Aug. 13, 2026. Filing history
Registered
April 5, 2016
Legal form
CIO

Address

Address
B C S
5 Station Court
Station Road
Great Shelford
Cambridge
CB22 5NE

Activities

CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.

Objects: 1) The Relief Of Sickness Of Persons With Rare Diseases, In Particular But Not Exclusively By The Provision Of Support, Advice And Information For Such Persons Their Families, Carers And Those Working With Affected Individuals.2)to Advance The Education Of The Public In General On The Subject Of Rare Diseases And Related Syndromes And To Promote Research For The Public Benefit In All Aspects Of That Subject And To Publish The Useful Results.

Classification

How
Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
What
Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind

Geography

Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
Dec. 31, 2025 Aug. 13, 2026On time £142,781 £192,585
Dec. 31, 2024 Oct. 31, 2025On time £181,873 £231,715
Dec. 31, 2023 Sept. 18, 2024On time £223,867 £191,845
Dec. 31, 2022 Oct. 29, 2023On time £141,001 £123,309
Dec. 31, 2021 July 26, 2022On time £163,501 £103,210
Dec. 31, 2020 Sept. 10, 2021 £163,000 £164,000

Trustees

Name Appointed
Emma Green (Chair) Oct. 3, 2022
Billy Michael Lucas May 13, 2025
Dr Catherine O'Sullivan March 8, 2025
Loretta MacInnes Oct. 3, 2022
Ruth Diazaraque March 8, 2025
Susan Berry July 29, 2019
William Henry Waddington Eldridge Dec. 9, 2025