Cambridge Rare Disease Network

Country

England & Wales

Charity number

1166365

Status

Registered

Registered

April 5, 2016

Legal form

CIO

Address

Contact

Activities

CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.

Objects: 1) The Relief Of Sickness Of Persons With Rare Diseases, In Particular But Not Exclusively By The Provision Of Support, Advice And Information For Such Persons Their Families, Carers And Those Working With Affected Individuals.2)to Advance The Education Of The Public In General On The Subject Of Rare Diseases And Related Syndromes And To Promote Research For The Public Benefit In All Aspects Of That Subject And To Publish The Useful Results.

Classification

How

Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body

What

Education/training, The Advancement Of Health Or Saving Of Lives, Disability

Who

Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind

Geography

Region

Throughout England And Wales

Finances

Trustees

Nearby

• The Dumas Egerton Trust 0.2 mi
• The Shelford Feast 0.2 mi
• Friends Of Mengo Hospital 0.3 mi
• The Mountain Trust 0.2 mi
• The Marlburian Club Charitable Fund 0.2 mi

Data

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• PDF ~3 MB
• CSV
• ZIP ~2 MB