OpenCharities

Cambridge Rare Disease Network

Crdn, CamRARE

Country
England & Wales
Charity number
1166365
Status
Registered
Registered
April 5, 2016
Legal form
CIO

Address

Address
B C S
5 Station Court
Station Road
Great Shelford
CAMBRIDGE
CB22 5NE

Activities

CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.

Objects: 1) The Relief Of Sickness Of Persons With Rare Diseases, In Particular But Not Exclusively By The Provision Of Support, Advice And Information For Such Persons Their Families, Carers And Those Working With Affected Individuals.2)to Advance The Education Of The Public In General On The Subject Of Rare Diseases And Related Syndromes And To Promote Research For The Public Benefit In All Aspects Of That Subject And To Publish The Useful Results.

Classification

How
Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
What
Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
Dec. 31, 2024 £181,873 £231,715
Dec. 31, 2023 £223,867 £191,845
Dec. 31, 2022 £141,001 £123,309
Dec. 31, 2021 £163,501 £103,210
Dec. 31, 2020 £163,000 £164,000

Trustees

Name Appointed
Emma Green (Chair) Oct. 3, 2022
Billy Michael Lucas May 13, 2025
Dr Catherine O'Sullivan March 8, 2025
Loretta MacInnes Oct. 3, 2022
Ruth Diazaraque March 8, 2025
Susan Berry July 29, 2019
William Henry Waddington Eldridge Dec. 9, 2025