OpenCharities

Ring20 Research And Support UK CIO

Country
England & Wales
Charity number
1165651
Status
Registered
Reporting
Up to date Last filed Dec. 4, 2025. Filing history
Registered
Feb. 19, 2016
Legal form
CIO

Address

Address
Lytchett House
Unit 13 Freeland Park
Wareham Road
Poole
Dorset
BH16 6FA

Activities

We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.

Objects: “The Objects Of The CIO Are: The Preservation And Protection Of Health And The Relief Of Need In Particular By:a) Providing Advice, Support And Information To Ring Chromosome 20 Syndrome (R)20 Patients And Their Families;b) Providing Or Assisting In The Provision Of Information To The Public About The Condition (R)20;c) Supporting Medical Professionals In Their Understanding Of Ring Chromosome 20 Syndrome, (R)20 Its Diagnosis, Prognosis And Treatment;d) Supporting Research Into The Condition, (R)20, Its Causes And The Means To Improve The Outcomes For Those Suffering With The Condition And Promoting The Dissemination Of The Useful Results Of Such Research.

Classification

How
Provides Services, Provides Advocacy/advice/information
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities

Geography

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
March 31, 2025 Dec. 4, 2025On time £37,103 £35,758
March 31, 2024 Oct. 28, 2024On time £50,152 £23,341
March 31, 2023 Dec. 18, 2023On time £40,340 £45,324
March 31, 2022 Nov. 9, 2022On time £40,476 £32,453
March 31, 2021 Dec. 8, 2021On time £43,839 £12,779

Trustees

Name Appointed
Lydia Elena Hirst (Chair) Nov. 1, 2020
Dr Antonio Gil-Nagel April 17, 2024
Dr Sze-Man Clara Tang Nov. 24, 2024
Kim Parks Oct. 1, 2020
Tim Buckinx Nov. 27, 2022