# RING20 RESEARCH AND SUPPORT UK CIO

## Details

- **Country:** England & Wales
- **Charity number:** 1165651
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Feb. 19, 2016
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1165651


## Contact

- **Address:** LYTCHETT HOUSE, UNIT 13 FREELAND PARK, WAREHAM ROAD, POOLE, DORSET
- **Postcode:** BH16 6FA
- **Phone:** +44 (0)7385 292797
- **Email:** ring20@ring20researchsupport.co.uk
- **Website:** http://www.ring20researchsupport.co.uk/



## Activities

**Objects:** “THE OBJECTS OF THE CIO ARE: THE PRESERVATION AND PROTECTION OF HEALTH AND THE RELIEF OF NEED IN PARTICULAR BY:A) PROVIDING ADVICE, SUPPORT AND INFORMATION TO RING CHROMOSOME 20 SYNDROME (R)20 PATIENTS AND THEIR FAMILIES;B) PROVIDING OR ASSISTING IN THE PROVISION OF INFORMATION TO THE PUBLIC ABOUT THE CONDITION (R)20;C) SUPPORTING MEDICAL PROFESSIONALS IN THEIR UNDERSTANDING OF RING CHROMOSOME 20 SYNDROME, (R)20 ITS DIAGNOSIS, PROGNOSIS AND TREATMENT;D) SUPPORTING RESEARCH INTO THE CONDITION, (R)20, ITS CAUSES AND THE MEANS TO IMPROVE THE OUTCOMES FOR THOSE SUFFERING WITH THE CONDITION AND PROMOTING THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH.

**Activities:** We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees | Accounts |
|---|---|---|---|---|---|
| March 31, 2025 | £37103 | £35758 |  -  |  -  | [PDF](/ew/1165651/files/2025-03-31-accounts.pdf) (698.2 KB) |
| March 31, 2024 | £50152 | £23341 |  -  |  -  | [PDF](/ew/1165651/files/2024-03-31-accounts.pdf) (978.1 KB) |
| March 31, 2023 | £40340 | £45324 |  -  |  -  | [PDF](/ew/1165651/files/2023-03-31-accounts.pdf) (2.8 MB) |
| March 31, 2022 | £40476 | £32453 |  -  |  -  | [PDF](/ew/1165651/files/2022-03-31-accounts.pdf) (695.7 KB) |
| March 31, 2021 | £43839 | £12779 |  -  |  -  | [PDF](/ew/1165651/files/2021-03-31-accounts.pdf) (2.1 MB) |




## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Lydia Elena Hirst** | Chair | Nov. 1, 2020 |
| Dale Ward |  | Dec. 3, 2021 |
| Dr Antonio Gil-Nagel |  | April 17, 2024 |
| Dr Sze-Man Clara Tang |  | Nov. 24, 2024 |
| Kim Parks |  | Oct. 1, 2020 |
| Tim Buckinx |  | Nov. 27, 2022 |