REPORT OF THE TRUSTEES AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 28 FEBRUARY 202 HE CHILDREN'S HYPERINSULINISM CHARITY
THE CHILDREN'S HYPERINSULINISM CHARITY General infonnation Report of the Trustees 2toS Independent Examiners Report Statement of Finan(aal AdtvAies Balance Sheet Notes lo the Financaal SL*ements 9t012 Detaled Statement of FinarKaal Actsvit 13
Py1 THE CHILDREN'S HYPERINSULINISM CHARITY GENERAL INFORMATION Sarah D••nTr (Chairand Tntsteel isty Payne Clara Grace PRcIPAL ADDRESS Clifton Pid(up Str••t A¢uingt REGISTERED CHARITY NUM8ER 118s582 31 Lake fMIv• Weldon Northants NN17 3FE BANKERS Ba&Y8 Bar PIC LE87 288 ACCOUNTANTS Knpt Acuwthncy S•r¥fic•s LIftt•d 31 Lak• Drr Weldon NN17 3FE
Pago 2 THE CHILDREN'S HYPERINSULINISM CHARrrY REPORT OF THE TRUSTEES The trustees present their report vAth the flnanclal ststements of the charity for the year ended 28 February 2025. The trustees have adopted the provisions of the Accountin8 and Reporting for Charities: Ststement of Recomrnended Practice applicable to charities preparing their accounts In a¢¢ordance with the Financial Reporting Stsndard applicable In the UK and Republic of Ireland IFRS 1021 (effective l January 20151. OBJEcfivESAND AcnvmES Oblectlves and actmtles This charity will support families who have ¢hildren TAfjth CHI by arranging conferences for the families to meet others and learn more about CHI through presentstions from medkal professlon•ls, expert In the condition. We will make donatlons to research projects that Meet our patlent-led research crlterla. S*nfflcant actl¥ltt The Children's Hyperlnsulinism Charlty launched in February 2016, kkkstsrted with a Crowdfundln8 Campaiin partnered by Findacure. The aims of the charlty are very much family focused as Ilvinq wlth Congenital merIn$u11nISrn Is very Isolating. We want to bring famllles together, wlth chlldren at the very forefront of our mlsslon, to ensure they meet other familles, chlldfen and slbllws lfvln8 wlth the condition, so they feel less alone and can forni frlendshlps. Publk ben•fft The trustees declare that thry have complied with their duty to have due regard to the guldance on publlc benefft publlshed by the cornmlsslon In exwclsln8 their powers or dutles. ACHIEVEMENT AND PERFORMANCE The Children's Hyperinsulinism Charity supports famllles of chlldren viith Hypewlnsulinism. We also rnlse awareness of Hyperinsulinism and campaign for greater public awareness of the signs and syrnptoms of Hypoglycaemla. In addition, we hold family fvn days, conlerence5, teacher training days and support research. The Children's Hyperinsulinism Charity supports families across the UK and Ireland. The Charity is run by w)lunteers who are all families of children with Hyperinsulini5m.
Pago 3 THE CHILDREN'S HYPERINSULINISM CHARITY REPORT OF ThE TRUSTEES Charltable actlvllles contlnued FamltyFun Day/Flrst Awareness Day= We wefe delighted to Ing 42 families togetherfor a wonderful stsy at Legoland. makinq it even more special by hosting (wr first ever Hyperlnsullnism Awareness Day. This event allowed families to actlvely participate in ralsing awareness and sharlng their key prioritie5. Their valuable feedback directly shaped our charity's strategy, ensuring that our future proiects truly refiect the needs and aspirations of the families we supporL Networklng: In 2024 we strengthened our partnerships and forged new connections In¢ludlng wlth Merlin's Magic Wand, who generousfy provlded free tickets to Chesslngton and Thorpe Park- giving families much needed opportunities to en quality time together. We continued working alongside fantastic charfties and organlsatlons, enabllng us to tske part in advocary campal8Tr5. represent the patient volce In research, and provide famllles wlth resources and exdu51ve experlences. Advocacy and Resurth: In 2024 we made a commitment to pursue patient led research. Taklng an Importsnt step forward with Cambridge Rare Disease Network bv submlttlng our first research proposal, shaped entirely by famify feedback. We also continued to raise awareness of Hyperlnsullnlsm at a partiamentsry level. In June, we submltted our famllles 'a$ks' to NHSE. •dting forgreater undtr5tsndlng of nturolo8i¢al consequences. lrnproved support for young adults, and deeper explOratn Into potentlal dental, vl$lon and hearlng concerns linked to Hyperlnsullnism. Supportlni F•mllles •nd Ralsln8 Awareness . We l•unced our new look webslte, packed wlth new resour$ and Informatlon tailored to families, ¢hlldren •nd young adults. We ¥dded new video content to our YouTube channel and kept famllles Inforrned through our blogs and newsletters. We contlnued to dlstrlbute our popular xhool packs to educational settings. We vArmly welcomed new families into our support network and malntsined our commltment to providing newly diagnosed packs to Hyperinsulinism SpecialistTearns acr055 the UK and Ireland. Additlonally, we embarked on a 12 month collaboratkon wlth Costello Medical to create tail¢xed resources for ch¢ldren and young adults- a prolect set to condude In Sprln8 2025. Fundralsers: A speclal mentlon to Logan's Golf Day and HI Superhero Amelia vtho made and sold some beautlful jewellery. We also Wish to acknowledge the support and kindness of fundralsers. famllies. SUPPOrters and the sponsors of our conference. FutUT• Plans . In 2025 we wlll remèln cornmitted to supporting familles, developing impactful projects, and advancing our patient led intiatives. We are delighted to welcome new volunteer5 vtho will play a crucial role in gathering family feedback and helping US develop even more ways to support the Hyperlnsullnism community.
Paga 4 THE CHILDREN'S HYPERINSULINISM CHARITY REPORT OF THE TRUSTEES FINANCIAL REVIEW The trustees have rgviewed the finan¢ial position and aount8 and ar8 satisfied that the rrent level of reserves is SLrfficienl to m881 the running costs of the cherity. The balan¢a on the general fund was £30,280 at tha end of the financial year. The tharity worked to keep expansa8 lo a minimum. Tho principal funding sources looking ahead to the ngxl finaThial year are exp8Ctad to b8 from., Individual donatlons Events income Companie8 donations STRUCTURE, ¢30VERNANCE AND MANAGEMENT Govemlng document Th8 charity has been 88lup as a charitable incorporated org8ni8alion (CIO) and is govemad by its con8ulalion dated 12 February 2016. R8¢rultm•nt and appolntm•nl of now tru8tfro• We ask peoplg what skills they can bring to the charity i.e. any experienrA with Data Protection, finances, fundraising or oroanisational Skills. The r#Jrrent Iruslees thon discu85 the applications and mako a decision. D•cl•lon maklng Any decision may bo laken either 8t a meeting of the charlly trustees,. or by resolution in writing or eleclronic fom agrèed by all of the charity trustees, which may comprise either a slngle document or several documents containing the text of the r0801ution in like form lo each ol tho whith ono or mor8 Charity Iruslees has signified their agr8em&nl. Indu¢tlon and tralnlng of trustee• Now Iruslees become part of a group whera wo communicate 8ornelim88 daily in running tho charity. They will b8 offered to altend any Iruslee training day8 that may be h8ld near to them. We hold a mooting fac& lo faea once pèr yèar but hold biwmonlhly me8ling8 via video Ilnk.
Page 5 THE CHILDREN'S HYPERINSULINISM CHARITY REPORT OF THE TRUSTEES Rlsk management The trustees have a duty to idontfy and the risks to which tho charity is oxposad and lo ensure appropriate controls are in place to provid8 reasonable assurance against fraud and error. REFERENCE AND ADMINISTRATIVE DETAILS The charitys prin¢ipal address 1$ Oswaldtsvistle Mills Business & Conference Centra, Clifton Mill, Pickup Stree( Accinglon, BB5 OEY The trusle8s who served all throughout the year were.. Sarah Deam)an (Chair & Truslee) AJnanda Orr Steff Bradley lfjrsty Payn& Clara Grace STATEMENT OF TRUSTEES RESPONSBILITIES The trustees are responsible for preparing RePt of the Trustees and tho financial slatem&nts in acLord8nce with applicable law and United Kingdom Accounting Standards including Financial Reporting Standard 102'The Financial R8POrting SlaTrJard applicable in the UK and Republi¢ of Ireland" The law 8ppIic8ble to charities in England and Wales, the Charities Act 2011, Charity (Awounts and Reports) Regulations 2008 and the provisions of the trust deed rewires the trustees lo prepare financial slatemtnts for •ath financial y9ar which give a true and fair view of the state of affair8 of th8 charity and of the incoming resources and 8ppIic8tion resources, including the incomo arKI expendllure of thé charity for that pwiod. In preparing those finala1 stalomgnls, the trustees are rewired to., $8lect suitable accounting policies and then apply them consistently observe the methods and principals in the Charty SORP make judgements and estimates that 8re r88sonable and prudent prepare the financial alemenl$ on the going ¢oncem basis unless rt is inappropriate to pr8sum that the tharity will Contin in business The trustees are responsible for keeping proper accounting records which disclose wlth reagonable accuracy at any time the financial position of tha charity and to enable them to ensure that th? financial statements comply with the Charities Act 2011, the Charity (Accounts and Reports) Regulations 2C#)8 and the provisions of the trust deed. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the preventlon and detection of fraLKI arKI other irregularalies. Th8 trusteés are also rosponsible for the maintenance and int8grity of th8 charity 8nd financial information included on the charills website. Legislati in the United Kingdom goveming the preparation and dissemination of the financi81 statements may differ from legislation in other juri$di¢tlons. Appyoved by order of th8 board of Iruslees on 27 March 2025 and signed on its behalf ty. MS S Deannan- Chair
P•Jo 6 THE CHILDREN'S HYPERINSUUNISM CHARrrY INDEPENDENT EXAMINEifs REpoKf TO THE TRUSTEES Hyperinsulinism Chwity Its Trust) tho y•w •rthd 28 2025. As the Charity trustees d the Tntsl you we re$Fible fty the &Lwr)ts in dar ilh the requiremwts of the Charitigs 2011 rthe AL). I rewl in re5pa of my ex4n8t1on of the Tru8V$ ac£ounts carried OLrt section 145 of th8 in carryiw ijji rny examinatK I havo folltyd all SFWicabb Diredions given by tr Charity CoThISsiC urthr SO(c 145151(b) of A I have co1•t•d my examination. I confimi that Th) materlal matters c(Th to my atta)tion 1. a&xuntir4J recorrls V•we not kept in respect Ll Ihg Tnjst as rwwired Ly se(Xirm 130 I the * (Y 2. th8 acwunts do not acwrd reoNds: or 3. the wntS do not comply with appli¢&Ye rwUirrtS (y)rxnirKJ ts fcm ar#J c£xrtw of accounts set OLrt in the Chantw (Accwts aTrJ Repts1 Reg 2C(18 ottr than requirement that th8 acccAJnts give a tru? fair Vi84V thich is Mt a matter as wt of an independent 8xaninatio derslandir•3 of the ¢Xmts to be ro•**J. Jtyty Colbert FMAAT AATQB 31 Ld(e Drtrve Wdd N¢Xlh•ts. NN17 3FE 27th Mwch 2025
Pag• 7 THE CHILDREN'S HYPERINSULINISM CHARITY STATEMENT OF FINANCIAL ACTMnES FOR THE YEPII ENDED 28 FEBRUARY 2026 2025 2024 INCOME APXI EKIOWMENTS FROM 14.684 14,684 expENDITURE ON R#i'ng dontioni l•g•cl•s 19.019 2.322 19.019 Ch•rt•bl• •ctl¥lll Ch#ritabl• activlll•• 70 347 1100 Support CStA Total 39.ee8 44,171 NET MOVEMENT IN FUNDS .24,984 12295 TOTAL FUNDS 8ROUOHT FORWARD 42.989 TOTAL FUNDS CARRIED FORWARD CONTINUING OPERATIONS All Incom• and gxpthditurn trom xtkdll•#
Page 8 THE CHILDREN'S HYPERINSULINISM CHARITY BALANCE SHEET FOR THE YEAR ENDED 28 FEBRUARY 2025 2025 2024 CURRENT ASSETS Stock8 Debtors Cash at Bank 4.499 26.481 51.776 31. CREDITORS Amounts fallirKJ yo -1.100 NET CURRENT ASSET8 55.284 TOTAL ASSEfs LESS CURRENT LIABILMES NET ASSETS 55.284 FUNDS Urff05trthd funds 30.280 30.280 The flnandal 8tstements ere approved by the ewd of Trusl808 ijn 27 Marth 2025 and were 8lgned on Its behaw ty. Ms S Deamian £halr
Page 9 THE CHILDREN'S HYPERINSULINISM CHARITY NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 28 FEBRUARY 2023 1. ACCOUNTING POLICIES Accountlng ConventSon The finanaal statements of tha charity. which is a public entity under FRS102, have bggn prepared in accordanc8 with th8 Charities SORP IFRS 1021'Accounting and Reporting by Charities: Stal8m8nt of R8comm8nd8d praCce applicabl8 to ¢hariti8s préparing thr accounts in accor<lance wth the Finanal Rgporting Standarrj applicable in the UK and Republic ol lrf$land {FRS 102) leffedive 1 January 201S)' Financial Reporting Standar<l 102 The Finan081 Rapofbng Standard applicable in tho UK and Republic ol Ireland. and the Charities Act 2011. The financi81 statements have b88n pr8pargd undgr the historical cost convention. The accounts have bfj departed from the Chaiities {Accounls and Repts) Rogulakns 2008 Mly to tho extent required to provide a true and fair view. This departure has involved followng the Statement 01 Reojmmended Practice for Charibes apptying FRS 102 rather than th8 verslon of the Ststement of Recommended Practice whith is referred to in tho Regulalons but vthlch has since been wthdrawn. Th8 a¢Unts aro preparod In stgrfing, whi¢h is the functional ¢uffency of the charity. Monatary amounts In th9s9 finan¢6al statements are rounded to the nearest £. Flnan¢Eal Reportlng standard 102- r¢du¢ed diKlosure exemptions Tho chadty has takon advantsge of the followng disclosure exemption in preparing these finanryal statements, as pemitted by FRS 102'The Finanual Reporting Standard applicable in the UK and Rgpuiblic of Ireland, Golng Concwn At time of approving th8 accounts, the trustaas havo a rg8sonafAo expectalion that the charity has adequat• resourcs to continue in op8rational gxi$lencg for the foro59gable fuiure. Thus Ihe tw8tee$ adopt th• g¢)ing con¢em bo$1$ of accounting in proparing the accounts. Inoomo All income is rocognised in the Ststement of Financial Activitles onc6 tho charfty has entluemenl to the funds. il is prob8ble that the income will be received and thg amount bo measured rellably. Donations are reojgnised in the year in whlth the Chority 1$ ontlllad lo and certain of receipt and the amount can be measured with reasonable cErtainty. Inme 1$ only d8fgrrsd when the charity has to fulfill conditions belore becoming entiued to it orwhere the donar has specified that the income is to be experKled in thg fulure year. Donated services or facilities ar8 recognlsgd as Income vthen the charity has control over the item, any conditions a$soryatgd vllh the donated item have been met. the reeeipt of economic nefft from the use by Ihe thanty of the item is probable an¢J that ecommic benefit can be measured reliabty. On receipt, donated seNices afe recognised in the basis of value of the gift to the Charity which is the amount the tharity would have been wlling to pay lo obtain service5 of equivalenl economic benefft on the open market.. coffesponding 8mount il the recognised in expendilure in thg pgriod of receipt. Expenditurn Liaiblities are recognised as gxpgnditure as soon as there is a legal or eLJnstNctive obligation ¢ommllting the tharity to that expendiiure, it is probable Ih8t a transfer of economic ben8fit wll be requirèd in sèttlement and the amount of tho obligation can be measured reliably. Expenditure is accounted for on an ae4xual lS and hos beon dalfied under hea(Jings that aggregate all C£st related to thg category. Where costs cannot be direGtly attribulgd lo particular headinos they have been aljothd lo activffjes on a basis with the use of fesourcgs. Taxallon The Charity 18 exempt from tax on its thariablg activlttes. Fund a¢¢ountlng Unresiriet8d funds b8 usgd In accordanco wth tho tharit8ble obiaclivos at tho th8cretion of the twst8as.
Page 10 THE CHILDREN'S HYPERINSULINISM CHARITY NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 28 FEBRUARY 2026 1. ACCOUNTING POLICIES- contlnu•d Finartcial in8trum8nts Tha tharity ha$ gle¢t6d to apply th& provision8 of Section 11 'Ba$i¢ Financial Instruments, and Section 12 '0ther Financial In$trum&nl$' of FRS 102 to all of rts finanGial instrum8nls. Financial instruments are recognised in the charilvs balanc8 sheet vthen the tharity b8com&s party to th& ¢onlra¢tual provlsions of th8 instrument. Financial assets and liabilities offset. with the nel amounts pres8nl8d in the financial slat8ments, when Ih8r8 is a legally enforceable right to set off the recognised amount8 8fKt there 18 an intention lo settle on a not basis or to r8alisé the assot and Ilablllty simultaneously. Ba8lc flnanclal a8Mt• Basic fin8nci81 assel8, which includa dablors and e4sh and bank balances, are initially measured al transa¢¢lon price Indudlng transaction fAists and are subsequently carried at amoritised cost using th& 6ffectNe inlorest method unless the arrang8ment constitue8 a financing transo10n, where the transaction 18 m8asur8d at thé pr888nt valu& if the future recolpts dlscounled al market rate of inlerejt. Ba8lc Ilnanclal Ilabllltlos Ba$1¢ financial li8bilitlo9, including Creditors and bank loans. are intially re¢ogni$ed al transaction ic8 unless the arrangement constitutes a financing transaction, where the debt in8lrument is m888ur8d al the present v8lug of the future payments discounted at a maTket rale of intere81. Fin8n¢ial Ilablllli09 ¢las$sfied as payable within on? year are not 8mortised. Financial liabilities are derecogni8ed when the chariW8 wtractual obligallon8 expire or arn discharged or cancelled. 2.DONATION8 AND LEGACIES 2025 2024 Oonation8 Just Giving donallon8 Trlps 7,091 2,718 4,875 48,216 8,250 3. CHARITABLE ACTIVITIES COSTS 2025 Direct cost8 (see note 4> 2024 Direct costs (8ee not8 4) Charitable actlvitios Govemance costs Support C08ts 70 347 1100 23.705
Pago11 THE CHILDREN'S HYPERINSULINISM CHARITY NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 28 FEBRUARY 2025 DIRECT COSTS OF CHARITABLE ACTIVITIES 2025 2024 Trustees, expans88 Virtual office rant Legoland Drayton Manor subscriptionS0ara Website costs Accountancy fee8 70 537 18,754 12,565 1,700 1,251 347 531 16705 1661 825 1100 36,077 O. TRUSTEES. REMUNERATION AND BENEFITS There were no trustees. renumerallon or other benefits for the perlod endod 28 Fobruary 2025. TrustO08' exp?n8•8 Belwaen them the trust rfjceivod reimbur80d gxpen898 tolalllng £70 for travel expen888 and subsistence. 6. STOCKS 2025 2024 Fini8h8d goods 500 500 7. DEBTORS: AMOUNT8 FALUNG DUE WITHIN ONE YEAR 2025 2024 Prepaymonts 4,499 4,088 Included in prepayments are the payments to tha events which took placa after the gnd of tho financlal year. 8. CREDITORS . AMOUNTS FALLING DUE WITHIN ONE YEAR 2025 2024 Acc¥uals Dofwred incCe 121)0 1100 Includ&1 In deferred Income are the receipts to the events which look place after the end oflhe financial year.
Pag8 12 THE CHILDREN'S HYPERINSULINISM CHARITY NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 28 FEBRUARY 202S 9. MOVEMENT IN FUNDS At 01.03.2024 in funds At 28.LY2.2025 Unrnstri¢ted fvnd8 Geral fund -24,984 30,2 .24.984 30,280 Net mov0nt in ILnds, SrwJed in the above are as folltyhs: Ino%nThJ Resources Movement resources expended in funds Unrestrlcted funds General fund 14.684 -39.e68 -24,984 14.684 -39.668 -24.984 10. RELATED PARTY DISLCOSURES
Page 13 ThE CHILDREN'S HYPERINSULINISM CHARITY DETAIILED STATEMENT OF FINANCIAL ACTMTIES FCNR THE YEAR ENDED 28 FEBRLIARY 2026 2025 2024 INCOME AND ENDOWMENTS Donations and legacies CnationS Just Glvkno donallon8 Trips 7,091 2.718 4.875 48.216 8.250 Total Incoffllng reUrc•S 14,664 EXPENDITURE R&l8lng donatlom and l•ga¢l•• Advertisino and marketing Online fvndraising lees MertharMli$&Gifts ¢os 1411 218 695 13.723 2,736 19,019 Charlt*bl• xtl¥ltl•• Tfustees expenges Ramingts Land Wamer 8m$ st11 Legoland Dfayton Manor Marath8n Subscdptlons Telephon• ststion•ry •nd postag• Prinlino Webslle Costs Soar• subs(xIptkS orNc• rnnt Repairs Insurance Trnlnlng Confere8 and v•r#Jo costs A¢¢ountanw 109 347 16.754 12.585 210 18705 1792 270 372 158 478 1,251 825 1.e61 531 537 1,250 11(Xl 37,346 25.152 Total r••ourn8 expend•d 39,e68 44,171 NET INCOMEI(LOSSI