REPORT OF THE TRUSTEES AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 28 FEBRUARY 202 HE CHILDREN'S HYPERINSULINISM CHARITY THE CHILDREN'S HYPERINSULINISM CHARITY General infonnation Report of the Trustees 2toS Independent Examiners Report Statement of Finan(aal AdtvAies Balance Sheet Notes lo the Financaal SL*ements 9t012 Detaled Statement of FinarKaal Actsvit 13 Py1 THE CHILDREN'S HYPERINSULINISM CHARITY GENERAL INFORMATION Sarah D••nTr￿ (Chairand Tntsteel isty Payne Clara Grace PR￿cIPAL ADDRESS Clifton Pid(up Str••t A¢uingt REGISTERED CHARITY NUM8ER 118s582 31 Lake fMIv• Weldon Northants NN17 3FE BANKERS Ba￿&Y8 Bar￿ PIC LE87 288 ACCOUNTANTS K￿npt￿ Acuwthncy S•r¥fic•s LIft￿t•d 31 Lak• Drr Weldon NN17 3FE Pago 2 THE CHILDREN'S HYPERINSULINISM CHARrrY REPORT OF THE TRUSTEES The trustees present their report vAth the flnanclal ststements of the charity for the year ended 28 February 2025. The trustees have adopted the provisions of the Accountin8 and Reporting for Charities: Ststement of Recomrnended Practice applicable to charities preparing their accounts In a¢¢ordance with the Financial Reporting Stsndard applicable In the UK and Republic of Ireland IFRS 1021 (effective l January 20151. OBJEcfivESAND AcnvmES Oblectlves and actmtles This charity will support families who have ¢hildren TAfjth CHI by arranging conferences for the families to meet others and learn more about CHI through presentstions from medkal professlon•ls, expert In the condition. We will make donatlons to research projects that Meet our patlent-led research crlterla. S*nfflcant actl¥ltt The Children's Hyperlnsulinism Charlty launched in February 2016, kkkstsrted with a Crowdfundln8 Campaiin partnered by Findacure. The aims of the charlty are very much family focused as Ilvinq wlth Congenital ￿merIn$u11nISrn Is very Isolating. We want to bring famllles together, wlth chlldren at the very forefront of our mlsslon, to ensure they meet other familles, chlldfen and slbllws lfvln8 wlth the condition, so they feel less alone and can forni frlendshlps. Publk ben•fft The trustees declare that thry have complied with their duty to have due regard to the guldance on publlc benefft publlshed by the cornmlsslon In exwclsln8 their powers or dutles. ACHIEVEMENT AND PERFORMANCE The Children's Hyperinsulinism Charity supports famllles of chlldren viith Hypewlnsulinism. We also rnlse awareness of Hyperinsulinism and campaign for greater public awareness of the signs and syrnptoms of Hypoglycaemla. In addition, we hold family fvn days, conlerence5, teacher training days and support research. The Children's Hyperinsulinism Charity supports families across the UK and Ireland. The Charity is run by w)lunteers who are all families of children with Hyperinsulini5m. Pago 3 THE CHILDREN'S HYPERINSULINISM CHARITY REPORT OF ThE TRUSTEES Charltable actlvllles contlnued FamltyFun Day/Flrst Awareness Day= We wefe delighted to ￿Ing 42 families togetherfor a wonderful stsy at Legoland. makinq it even more special by hosting (wr first ever Hyperlnsullnism Awareness Day. This event allowed families to actlvely participate in ralsing awareness and sharlng their key prioritie5. Their valuable feedback directly shaped our charity's strategy, ensuring that our future proiects truly refiect the needs and aspirations of the families we supporL Networklng: In 2024 we strengthened our partnerships and forged new connections In¢ludlng wlth Merlin's Magic Wand, who generousfy provlded free tickets to Chesslngton and Thorpe Park- giving families much needed opportunities to en quality time together. We continued working alongside fantastic charfties and organlsatlons, enabllng us to tske part in advocary campal8Tr5. represent the patient volce In research, and provide famllles wlth resources and exdu51ve experlences. Advocacy and Resurth: In 2024 we made a commitment to pursue patient led research. Taklng an Importsnt step forward with Cambridge Rare Disease Network bv submlttlng our first research proposal, shaped entirely by famify feedback. We also continued to raise awareness of Hyperlnsullnlsm at a partiamentsry level. In June, we submltted our famllles 'a$ks' to NHSE. •d￿ting forgreater undtr5tsndlng of nturolo8i¢al consequences. lrnproved support for young adults, and deeper explOrat￿n Into potentlal dental, vl$lon and hearlng concerns linked to Hyperlnsullnism. Supportlni F•mllles •nd Ralsln8 Awareness . We l•unced our new look webslte, packed wlth new resour￿$ and Informatlon tailored to families, ¢hlldren •nd young adults. We ¥dded new video content to our YouTube channel and kept famllles Inforrned through our blogs and newsletters. We contlnued to dlstrlbute our popular xhool packs to educational settings. We vArmly welcomed new families into our support network and malntsined our commltment to providing newly diagnosed packs to Hyperinsulinism SpecialistTearns acr055 the UK and Ireland. Additlonally, we embarked on a 12 month collaboratkon wlth Costello Medical to create tail¢xed resources for ch¢ldren and young adults- a prolect set to condude In Sprln8 2025. Fundralsers: A speclal mentlon to Logan's Golf Day and HI Superhero Amelia vtho made and sold some beautlful jewellery. We also Wish to acknowledge the support and kindness of fundralsers. famllies. SUPPOrters and the sponsors of our conference. FutUT• Plans . In 2025 we wlll remèln cornmitted to supporting familles, developing impactful projects, and advancing our patient led intiatives. We are delighted to welcome new volunteer5 vtho will play a crucial role in gathering family feedback and helping US develop even more ways to support the Hyperlnsullnism community. Paga 4 THE CHILDREN'S HYPERINSULINISM CHARITY REPORT OF THE TRUSTEES FINANCIAL REVIEW The trustees have rgviewed the finan¢ial position and a￿ount8 and ar8 satisfied that the ￿rrent level of reserves is SLrfficienl to m881 the running costs of the cherity. The balan¢a on the general fund was £30,280 at tha end of the financial year. The tharity worked to keep expansa8 lo a minimum. Tho principal funding sources looking ahead to the ngxl finaThial year are exp8Ctad to b8 from., Individual donatlons Events income Companie8 donations STRUCTURE, ¢30VERNANCE AND MANAGEMENT Govemlng document Th8 charity has been 88lup as a charitable incorporated org8ni8alion (CIO) and is govemad by its con8ulalion dated 12 February 2016. R8¢rultm•nt and appolntm•nl of now tru8tfro• We ask peoplg what skills they can bring to the charity i.e. any experienrA with Data Protection, finances, fundraising or oroanisational Skills. The r#Jrrent Iruslees thon discu85 the applications and mako a decision. D•cl•lon maklng Any decision may bo laken either 8t a meeting of the charlly trustees,. or by resolution in writing or eleclronic fom agrèed by all of the charity trustees, which may comprise either a slngle document or several documents containing the text of the r0801ution in like form lo each ol tho whith ono or mor8 Charity Iruslees has signified their agr8em&nl. Indu¢tlon and tralnlng of trustee• Now Iruslees become part of a group whera wo communicate 8ornelim88 daily in running tho charity. They will b8 offered to altend any Iruslee training day8 that may be h8ld near to them. We hold a mooting fac& lo faea once pèr yèar but hold biwmonlhly me8ling8 via video Ilnk. Page 5 THE CHILDREN'S HYPERINSULINISM CHARITY REPORT OF THE TRUSTEES Rlsk management The trustees have a duty to idontfy and the risks to which tho charity is oxposad and lo ensure appropriate controls are in place to provid8 reasonable assurance against fraud and error. REFERENCE AND ADMINISTRATIVE DETAILS The charitys prin¢ipal address 1$ Oswaldtsvistle Mills Business & Conference Centra, Clifton Mill, Pickup Stree( Acc*inglon, BB5 OEY The trusle8s who served all throughout the year were.. Sarah Deam)an (Chair & Truslee) AJnanda Orr Steff Bradley lfjrsty Payn& Clara Grace STATEMENT OF TRUSTEES RESPONSBILITIES The trustees are responsible for preparing ReP￿t of the Trustees and tho financial slatem&nts in acLord8nce with applicable law and United Kingdom Accounting Standards including Financial Reporting Standard 102'The Financial R8POrting SlaTrJard applicable in the UK and Republi¢ of Ireland" The law 8ppIic8ble to charities in England and Wales, the Charities Act 2011, Charity (Awounts and Reports) Regulations 2008 and the provisions of the trust deed rewires the trustees lo prepare financial slatemtnts for •ath financial y9ar which give a true and fair view of the state of affair8 of th8 charity and of the incoming resources and 8ppIic8tion resources, including the incomo arKI expendllure of thé charity for that pwiod. In preparing those fina￿la1 stalomgnls, the trustees are rewired to., $8lect suitable accounting policies and then apply them consistently observe the methods and principals in the Charty SORP make judgements and estimates that 8re r88sonable and prudent prepare the financial *alemenl$ on the going ¢oncem basis unless rt is inappropriate to pr8sum that the tharity will Contin￿ in business The trustees are responsible for keeping proper accounting records which disclose wlth reagonable accuracy at any time the financial position of tha charity and to enable them to ensure that th? financial statements comply with the Charities Act 2011, the Charity (Accounts and Reports) Regulations 2C#)8 and the provisions of the trust deed. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the preventlon and detection of fraLKI arKI other irregularalies. Th8 trusteés are also rosponsible for the maintenance and int8grity of th8 charity 8nd financial information included on the charills website. Legislati￿ in the United Kingdom goveming the preparation and dissemination of the financi81 statements may differ from legislation in other juri$di¢tlons. Appyoved by order of th8 board of Iruslees on 27 March 2025 and signed on its behalf ty. MS S Deannan- Chair P•Jo 6 THE CHILDREN'S HYPERINSUUNISM CHARrrY INDEPENDENT EXAMINEifs REpoKf TO THE TRUSTEES Hyperinsulinism Chwity Its Trust) ￿ tho y•w •rthd 28 2025. As the Charity trustees d the Tntsl you we re$F￿￿ible fty the &Lwr)ts in dar￿ *ilh the requiremwts of the Charitigs 2011 rthe AL*). I rewl in re5p*a of my ex￿4n8t1on of the Tru8V$ ac£ounts carried OLrt section 145 of th8 in carryiw ijji rny examinatK￿ I havo follty**d all SFWicabb Diredions given by tr Charity Co￿ThISsiC￿ urthr SO(*c￿ 145151(b) of A I have co￿1•t•d my examination. I confimi that Th) materlal matters c(Th to my atta)tion 1. a&xuntir4J recorrls V•we not kept in respect Ll Ihg Tnjst as rwwired Ly se(Xirm 130 I￿ the * (Y 2. th8 acwunts do not acwrd reoNds: or 3. the w￿ntS do not comply with appli¢&Ye rwUir￿￿rtS (y)r*xnirKJ ts fcm ar#J c£xrtw of accounts set OLrt in the Chantw (Accwts aTrJ Rep￿ts1 Reg￿ 2C(18 ottr￿ than requirement that th8 acccAJnts give a tru? fair Vi84V *thich is Mt a matter as wt of an independent 8xaninatio derslandir•3 of the ￿¢Xmts to be ro•**J. Jtyty Colbert FMAAT AATQB 31 Ld(e Drtrve Wdd N¢Xlh•ts. NN17 3FE 27th Mwch 2025 Pag• 7 THE CHILDREN'S HYPERINSULINISM CHARITY STATEMENT OF FINANCIAL ACTMnES FOR THE YEPII ENDED 28 FEBRUARY 2026 2025 2024 INCOME APXI EKIOWMENTS FROM 14.684 14,684 expENDITURE ON R#i*'ng don*tioni l•g•cl•s 19.019 2.322 19.019 Ch•rt•bl• •ctl¥lll Ch#ritabl• activlll•• 70 347 1100 Support C￿StA Total 39.ee8 44,171 NET MOVEMENT IN FUNDS .24,984 12295 TOTAL FUNDS 8ROUOHT FORWARD 42.989 TOTAL FUNDS CARRIED FORWARD CONTINUING OPERATIONS All Incom• and gxpthditurn trom xtkdll•# Page 8 THE CHILDREN'S HYPERINSULINISM CHARITY BALANCE SHEET FOR THE YEAR ENDED 28 FEBRUARY 2025 2025 2024 CURRENT ASSETS Stock8 Debtors Cash at Bank 4.499 26.481 51.776 31. CREDITORS Amounts fallirKJ yo -1.100 NET CURRENT ASSET8 55.284 TOTAL ASSEfs LESS CURRENT LIABILMES NET ASSETS 55.284 FUNDS Urff05trthd funds 30.280 30.280 The flnandal 8tstements ￿ere approved by the ewd of Trusl808 ijn 27 Marth 2025 and were 8lgned on Its behaw ty. Ms S Deamian £halr Page 9 THE CHILDREN'S HYPERINSULINISM CHARITY NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 28 FEBRUARY 2023 1. ACCOUNTING POLICIES Accountlng ConventSon The finanaal statements of tha charity. which is a public entity under FRS102, have bggn prepared in accordanc8 with th8 Charities SORP IFRS 1021'Accounting and Reporting by Charities: Stal8m8nt of R8comm8nd8d praC￿ce applicabl8 to ¢hariti8s préparing th￿r accounts in accor 2024 Direct costs (8ee not8 4) Charitable actlvitios Govemance costs Support C08ts 70 347 1100 23.705 Pago11 THE CHILDREN'S HYPERINSULINISM CHARITY NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 28 FEBRUARY 2025 DIRECT COSTS OF CHARITABLE ACTIVITIES 2025 2024 Trustees, expans88 Virtual office rant Legoland Drayton Manor subscription￿S0￿ara Website costs Accountancy fee8 70 537 18,754 12,565 1,700 1,251 347 531 16705 1661 825 1100 36,077 O. TRUSTEES. REMUNERATION AND BENEFITS There were no trustees. renumerallon or other benefits for the perlod endod 28 Fobruary 2025. TrustO08' exp?n8•8 Belwaen them the trust￿ rfjceivod reimbur80d gxpen898 tolalllng £70 for travel expen888 and subsistence. 6. STOCKS 2025 2024 Fini8h8d goods 500 500 7. DEBTORS: AMOUNT8 FALUNG DUE WITHIN ONE YEAR 2025 2024 Prepaymonts 4,499 4,088 Included in prepayments are the payments to tha events which took placa after the gnd of tho financlal year. 8. CREDITORS . AMOUNTS FALLING DUE WITHIN ONE YEAR 2025 2024 Acc¥uals Dofwred incC￿e 121)0 1100 Includ&1 In deferred Income are the receipts to the events which look place after the end oflhe financial year. Pag8 12 THE CHILDREN'S HYPERINSULINISM CHARITY NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 28 FEBRUARY 202S 9. MOVEMENT IN FUNDS At 01.03.2024 in funds At 28.LY2.2025 Unrnstri¢ted fvnd8 G￿eral fund -24,984 30,2 .24.984 30,280 Net mov￿0nt in ILnds, SrwJed in the above are as folltyhs: Ino%nThJ Resources Movement resources expended in funds Unrestrlcted funds General fund 14.684 -39.e68 -24,984 14.684 -39.668 -24.984 10. RELATED PARTY DISLCOSURES Page 13 ThE CHILDREN'S HYPERINSULINISM CHARITY DETAIILED STATEMENT OF FINANCIAL ACTMTIES FCNR THE YEAR ENDED 28 FEBRLIARY 2026 2025 2024 INCOME AND ENDOWMENTS Donations and legacies C￿nationS Just Glvkno donallon8 Trips 7,091 2.718 4.875 48.216 8.250 Total Incoffllng re￿Urc•S 14,664 EXPENDITURE R&l8lng donatlom and l•ga¢l•• Advertisino and marketing Online fvndraising lees MertharMli$&Gifts ¢os 1411 218 695 13.723 2,736 19,019 Charlt*bl• xtl¥ltl•• Tfustees expenges Ramingts Land Wamer 8m$ st￿11 Legoland Dfayton Manor Marath8n Subscdptlons Telephon• ststion•ry •nd postag• Prinlino Webslle Costs So￿ar• subs(xIptk￿S orNc• rnnt Repairs Insurance Trnlnlng Confere￿8 and v•r#Jo costs A¢¢ountanw 109 347 16.754 12.585 210 18705 1792 270 372 158 478 1,251 825 1.e61 531 537 1,250 11(Xl 37,346 25.152 Total r••ourn8 expend•d 39,e68 44,171 NET INCOMEI(LOSSI