Charity number.. 1165217 ACTION CEREBRAL PALSY FIP4ANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2025 Philip Deane Accountancy Ltd Units l & 2 Field View Baynards Green 8Ke5ter OX27 75G
Actlvn Cerebral Polsy Contents Page Charity Infom)aUon Accountsnt's Report BalarKe Sheet Income and Expenditure Account Trustees Report 5-17
Actlon Cerebral Palsy Charlty Informatlon For The Y•ar Ended 31 December 2025 Truste Ms Katherine Gollop Dr Helen Hunt Mr Philip Le Mr Paul Maynard Mr Anthony McGarel-Groves Professor Neena Modi Mr Duncan Walsh 1165217 Ch•rlty Number R•glst•r•d Offlce Units l & 2 Field View Baynards Green 8ice5tÈr OX27 7SG Accountants Phlllp Deane Accountancy Ltd Unlts l & 2 Field Viewrf Baynards Green Bice5ter OX27 7SG
Artlon C¢rebral Palsy Independent Examlnatlon For The Year Ended 31 December 2025 I report on the flnontial statements of Acth?n Cerebrnl Palsy CIO for the year ended 31 Dember 2025, whlch are Set out on page5 4and5. R•sp•ctlv• r••poft•lbllltl•s of tru¥t•ex and MIn•T The charlty's trustee5 are responslble for the preparation of the accounts. The chaty'S trustees conslder that an audit Is not required for tfvs year under secbon 144 of the Charitles Art 2011 {'the Charit Attl and that an Indepe1ent examlnaOon Is needed. Hoving satisfled myself that the chadty Is not subleLt to auélt under company law and Is eligible for Independent examlnatlon, It Is rny responslblllty to.. examine tht accounts under section 145 of the Chant5 Act, to follow the pracedure5 lald down in the general Dlrectlons 9i¥en by the Charity CornrnL55ion (under sethon 14515llb) Df the Charltles Act), ond to State whether p)rticular matters hove eome to my attenon. •1• of lnd¢nd•nt •x•mlnerf* •tst•ment My examlnatlon wa5 Carried out In accordan with general Dlrettions given by tbe Charity Comm15sion. An examlnatk)n Includes review of the accountSn9 record5 kept by the chaty aTrJ a etsmparfson of the accounts presented wlth those records. It a150 Includes consldet7tlon of any unu$ual Iterns or disclosure5 In the accounts, ond 5eeklrs eXPlanaDnS from the trustees concErnln9 any such matters. The protrdures undertaken do not provide all the evidence that would be required in an aud1¢ and cOruentlY no oplnlon 15 given os to whether the occounts present a'true and faSr view, and the report Is Ilrnlted to those matters set out In the ststement below. Indy¢ndent •x•mIneI •tatoment In connectlon wlth my examination, no rnoterial matt¢rs have come to my attention whith gives me couse to belleve that in, any materi)I re5ped the accLiuntlng records ThJt kept •¢cordance w6th sectlon 130 of the ChaThbes Act,. or the accounts dltl not accord wf(h the èctountlng records,. or the accounts dld not cornply wY(h the appllcable Ulments concemlng the form and content of a¢¢ounts $et out In the Charltles {Accounts and Reports) Regulatlons 2008 other than any requirement that the accounts glve a.true ant1 falrf vlew which is not a matter consldered as part of an int1ependent examlnation. I have come across no other matters In connection wTth the examination to which attenOn should be drawn In thls report in order to enable a proper understanding of the accounts to be reached. IILY Date Philip Deane Accountsncy Ltd Units l & 2 Field View Baynards Green Bicester OX27 7SG
Artk4n eerebral Pal•v 8alartce Sheet Al At 31 D•rnb•r 2025 2025 2024 CURReKr ASSETS Debtors Cash at bank and In hand 7,719 36,616 42,678 44,335 42.671 Cr•dltor•: AmoMDt• F•lllng Due Wlthln Qn¢ Y••r {763) (550) NEf CURREprr Assffs (UABILrriES) 43,572 42,128 TOTAL AsseTS LISS CURReNT UAJIUS 43.SY2 42,128 NEf ASSM 43.572 42,128 In¢om• Ind Exp¢ndlture Ac¢ouni 43,572 42,128 CAPITAL AND ReseRvEs 2,95S 40,617 8,275 34,108 Unfestrlcted 43.572 42.128 Gener•1 Xnformatlon ActSon C•r•br•l Palsy is a Chatabl• Incorporated Oryanlsatlon {CIO) and Is reglstered wlth the Charfty Commlssloner5 under reg15tration number 1165217. The CIO was reg15tered v41th th• Ch•rfty Commis ort 19 January 2016 (standard reglstration) and converted to a CIO on 7 May 2024. 14Mmb¢r of Tru•t• Numb•r of Trustees dun9 tho year wa5: 7 {2024= 7) Mr. nthOnY Mcfjarel-Gro¥e¥ Trust•# •nd Treasurer Data 4(&
Artlon Cerebral Palsy Income & ExpendSture Account For The Year Ended 31 December 2025 2025 2024 Donations 48,997 5,000 59.870 10.000 750 Donatlons-Restrlcted Training Income Totsi income 53.997 70,620 Expendlture Restrlrt•d Constsltancy 5,320 1,725 Unrestrlcted prfnng and other costs Accountancy fee5 Consultancy fee5 Public Affairs Sundry expenses Travel 255 436 567 563 51,337 1381 653 46,222 277 152,6421 154.6761 1.355 15,944 OPERATING SVRPLUS other Interest recelv4ble and slmllar Intome Bank Inte$t 89 SURPLUS / (DEFICIT) 1,444 15,944
ACTION | IDENTIFY INTERVENE CEREBRAL PALSY IMPACT Registered Charity no.. 1165217 Trustees, Annual Report for the Financial Period ending 31.12.2025 Charlty Name: Action Cerebral Palsy Re8lstered charity number: 1165217 Website: www.actloncp.org Principal Address: Units l and 2 Field View, Baynards Green, Bicester, Oxon, OX27 75G The Trustees have pleasure in presenting their annual report and financial statements for the year ended 31st December 2025. Structure and Governance In 2024, Action Cerebral Palsy I"Action CP") converted to a charitable incorporated organisatlon I"ClO°I registered with the Charity Commission for England and Wales (registered charity number 1165217). The Trustees who Served during the period were.. Miss Katharine Gollop KC Dr Helen Hunt Mr Philip Lea Mr Anthony McGarel-Groves ITreasurer and Secretary) Paul Maynard Profe550r Neena Modi Mr Duncan Walsh The members of the CIO are the Charity Trustees who form the Board and who are responsible for managing the affairs of Action CP. Action CP must have at least three charity trustees- apart from the first charity trustees named in our Constitution, every trustee is appointed for a term of three years. One of the Trustees serves voluntarily a5 Treasurer and Company Secretary. There are four full meeting5 of charity trustees held each year. One Trustee is appointed as Chairperson for each meeting. When new trustees are appointed, they are introduced to the Board and briefed on all aspects of the CharitWs objectives and policies and Charity Commission requirements. Trustees are encouraged to seek training a5 appropriate, and to obseNe and follow the requirements and guidelines set down by the Charity Commission. Attlon Cerebral Palsls trustees have diverse professional backgrounds and have direct professional or lived experience supporting children with cerebral palsy and their families.
In 2025, Action CP was honoured to welcome Lord McFall of Al¢luith as a Patron for our Charity. Lord McFall's deep understanding of policy-making, developed through his extensive career as Lord Speaker, a Member of Parliament, and a Minister, combined with his background as a teacher and deputy headteacher, makes him an exceptional advocate for our cause. His unique perspective on both governance and education will be invaluable as we strive to improve support and understanding for the 30,000 children and young people living with cerebral palsy. The Executive The CharitV5 day-to-day operations are managed by the Chief Executive and additional project work by the Policy Lead. Both posts are part-time. Our Charitable Oblertlves: To engage with policy makers in order to promote the creation of a national CP strategy and care pathway5 for intervention and provision for children with cerebral palsies To be a source of informed advice on cerebral palsy for policy makers and the public To represent the best interests of the cerebral palsy community To facilitate the development of best practice for intervention, care, education and support for children and young people with cerebral palsies acr055 the United Kingdom To facilitate and disseminate research on cerebral palsy and therapeutic and educational intervention Public 8enefit In establishing annual objectives and overseeing the ChariV5 activities, the trustee5 have regard to the principles of public benefit at all times. The core purpose of Action Cerebral Palsy is to work towards better public and professional awareness and understanding of cerebral palsy and an improved quality of life for all children in the United Kingdom with the condition. Action Cerebral Palsy needs to raise funds to support the cost of working towards these outcomes.
About Cerebral Palsy Cerebral Palsy (CPI, Cerebral Palsy (CPI is a lifelong and f luctuating neurological condltion which is the most common cause of physical disability in childhood. The condition affects movement. balance, co- ordination and posture and is caused by abnormal development or damage to the parts of the brain before, during or soon after birth. In addition to motor learning and mobility, the condition has a wider impact on normal chlldhood development and can affect sensory processing, communication, cognition, health and self-care all of which may have a severe impact on the individual's f uture opportunities and quality of life. There are approxlmately 30,000 chlldren and 130,000 adult5 wlth CP In Ihe UK, similarto the numbers who have multiple sclerosis and Parkinson's disease- both of which are typically later-onset conditions. 1 in 3 is unable to walk. l in 10 has a severe vision impairment. 1 in 4 is unabletotalk. 1 in 2 has an intellectual impairment. About Artion Cerebral Palsy As the only national charity solely focused on advocating for children and young people with cerebral palsy, Action Cerebral Palsy is committed to addressing the systemic challenges they face. We have sought to establish the facts about the level of provision of care through reports, surveys and consultation with our community and to communicate the findings and recommendations for change through Government consultations and engagement. We are extremely proud to have initiated and been the lead sponsor of the All Party Group on Cerebral Palsy whose recommendations have directly contributed to key initiatives Such as the NHS England Commlsslonlng Framework for Children and Young People with Cerebral Palsy published in May 2025. Until the campaigning initiatives of Action Cerebral Palsy, there had been no unified voice or platform for cerebral palsy clinical and educational professionals and the parents of children with cerebral palsy to draw together a coherent case for policy makers for improved provisions and reform to improve early identification, intervention, education and pathways of care for children and young people with cerebral pa15Y. Action CP began in 2013 as a national consortium of specialist charitie5 working with children with cerebral palsy and their families and became a registered charity in 2016. We are a Small but aspirational charity which is committed to improve the daily lives and life chance5 of all children with CP throughout the UK so that they can have the best POS5ible start to life and ongoing help and support. Summary of Charitable Activities and Achievements during 2025 Policy Engagement to Improve Political Awareness of Cerebral Palsy and the issues facing chlldren and young people wlth the condition and thelr familles Action CP has continued to champion the needs of children and young people with cerebral palsy and their families throughout the year with Parliamentarians and policy makers. Our policy work is informed
by the recommendations of the All-Party Parliamentary Group on Cerebral Palsy and through our direct engagement with parents, young people and those professionals doing their very best to support these families. Although cerebral palsy is the leading cause of childhood physical disability, the existing legislative framework is fragmented and does not account for CP as a condition in its own right. By engaging directly and responding to public consultations, we have worked to amplify the voices of these families to address at policy level the many challenges they face, to ensure that children and young people with CP receive high-quality healthcare and special educational needs and disability ISENDI provision from experienced. specialist professionals to mitigate the impact of their disability can be mitigated from the earliest opportunity and their full potential maximised throughout their developing years. Action CP works acr055 all political parties and within all devolved regions of the UK to improve the awareness and understanding of CP at local and national levels to facilitate the development of models of best practice. A Source of Informed Advice Oll Cerebral Palsy for Poliey Makers Action CP has been 8 consistent voice in Parliament this year, engaging cross-party representatives through direct meetings and expert policy brief ings. We have provided briefings and correspondence with the Secretaries of State for Education. Health and Soci81 Care and Work and Pensions, key ministers for Schools, Early Years and SEND. and Disability, as well as the Shadow Ministers and Spokespeople and keyselectcommittees and metwith civilservants inthe Departmentstor Education and Health andsocial Care. Highlights include-. In April, Action CP wrote to every MP to highlight the need for holistic care provisions forchildren and young people with CP and highlighting the anticipated NHS England Framework for the Commissioning of Services for Children with Cerebral Palsy. In October, Action CP was asked by the Government's Strategic Advisor on SEND to provide the Department for Education with information about the complexity of needs and potential educational pathways of children and young people with cerebral palsy to help inform the Department's work on the upcoming Schools land SENDI White Paper. io
In November and specifically to help inform the debate on this Schools White Paper, Actlon CP wrote to every MP with our response to the Education Select Committee'5 Solving tho SEND Crisls report which welcomed the Committee's clear assessment of the current system and its strong recommendations for reform. Action CP believes that if the Government gets the model right for children with cerebral palsy {whose needs often span movement, communication. learning, equipment and health), itwill strengthen the entire SEND system. Our key asks include: A clear national definition of inclusive education across the full Continuum of provision Statutory st8ndards for 'ordinarily available" SEND support, with routine access to specialist and multidisciplinary expenise Improved workforce training on low-incidencelhigh-r)eeds conditions A national Education. Health and Care Plan template and timeline. with existing legal rights retained Strengthened joint accountability across education, health and care A realistic and sustainable funding model that reflects the true cost of provision Over the course of the year, Actlon CP has submitted evidence for the following consultations: Education Select Committee review into solving the SEND crisis: • Health and So¢lal Care Select Committee on First 1000 Day$-A Renewed Focus.. and Of sted Con$ult8tion (both as Action CP and also contributed to the Special Education Consortium responsel Curriculum and Assessment Review Through our membership of the Special Education Consortium of the Council for Disabled Children, Action CP has provided evidence for submissions to the following additional consultations: DfE's Schools Accountability Reform Consultation: Use of reasonable force and other restrictive inteNentions in schools; Local government outcomes framework; and Children's Wellbeing and Schools Bill amendments Representing the Best Interests of the Cerebral Palsy Community We have participated in meetin8S Wlth other charities focused on disability, healthcare, specialist and mainstream education professionals and engaged through direct dialogue and online stjrveys with our community of parents, carers and young people to gather evidence of the issues facing the CP community in their ability to access appropriate care, resources, services, support and education and to ensure that these views are represented in all of our policy engagement. Over this past year, Action Cerebral Palsy worked in collaboration with a number of organisations, including.. CandDLE CP Alliance (Australia) CP Scotland CP Sport CP Teens
Council for Disabled Children El Smart Institute of Health Visiting Northern Ireland Cerebral Palsy Register PD Net Pro Bono Economics Royal College of Speech and Language Therapists and SEND in the Specialist5 Scope Special Education Consortium Up Movement and the Up Adult Working Party Whizzybugs Researchers and academic institutions who are conducting research related to neurological conditions such a5 cerebral palsy Facilitsting the Development of Best Practice In Healthcare- Early Identification, Intervention and Pathways of Care Action CP'S work in this area was focused on promotingthe NHS England Commissioning Framework for Chlldran and Young People with Cerebral Palsy which was published in May 2025. This framework aims to standardise clinical provision and ensure equitable. timely access to assessm8nt and inteNention across all regions. Having sewed on the NHS England CYP Transformation ProgrammeTask Force that developed this Framework, we are now actively contributing to the NHS Implementation Group to understand the existing level of setvice need and provision in order to turn these standards into reality for families across the country. We continue to campaign to raise awareness of the early warning signs of CP and what to do if a parent has concerns about their child's motor development. Our If In Doubt, Check It Out posters and parent information leaflets have been included the new Institute of Health Visiting Early Motor Development Toolkit which provides a repository of resources for Health Visitors and that was launched over the summer of 2025. In Educatlon- Workforce Skills and Understsndin8 A significant lack of understanding regarding cerebral palsy often prevents these exceptional children from receiving the learning support that they need to thrive in education. Action CP'S work in this area has focused on.. Influencing Policy: Ensuring effective pathways and supporting complex needs are at the heart of SEND reform discussions. Empowering the Workforce.. Supporting non-specialist educators who often work in isolation without 8 clear understanding of CP. Action CP is also producing new support materials to empower the wider education workforce. From our engagement with expert clinicians, specialist teachers, and-most importantly-parents and young people, we are Iranslating these insights into practical support rnalerials designed specifically for non-specialist educators. Our uomin8 resources will provide schools and local authorities with= Clear Insights: Deepening the underslanding of how CP impacts learning and development. 12
Actionable Strategies: Practical ways to support children in mainsiream environments. Direct Guidance: Helping local auihorities meet their obligations under any new SEND legislation. Facilitatin8 and Sharing Research This year, Action CP has been asked to 5UPPOrt grant applications and to help facilitate parent engagement for number of research project5. In addition, Action CP is pleased to have been selected by Pro Bono Economic5 for a research project. Following a report PBE published into the Dyslexia Pay Gap - PBE | The dyslexia pay gap in the UK | PBE and the All-party Parliamentary Group on Cerebral Palsy report into the transition for young people with CP into adulthood, adult services and employment, PBE 15 now looking to looking to the quantify the potential loss lin income, pension. and tax) for young people with cerebral palsy who are not able to access work. 13
Summary We are immensely proud of the impact that the charity has had in 2025. We championed the needs of the CP community within national SEND reform and the pilot work of the new NHS England Commissioning Framework provided the bridge between families and the NHS England. Our expanding coalition of parents and young people, 3, sector organisation5, professional governing bodies, specialist educators and leading clinicians have helped us provide more nuanced contributions to national policy discussions. We are grateful to the policy makers who have also embraced this collaborative spirit, demonstrating a sincere commitment to improving the lives of children with complex needs. Our determination to improve the understanding of cerebral palsy with those who are tasked with allocating funding for, making decisions about or providing services and 5UPPOrt to children and young people with erebral palsy is paramount to improving the pathways of care available to these children. Children and their parents need to be at the heart of the provision and not made to feel that they have to fight to get the right care, support or educational provision for their child. In 2026, we will continue to work on our own and with others in the following are35: SEND Policy Reform and practlce change at national and local government level working with all parties to highlight the challenges and opportunities to improve the SeiCe5 available to children and young people with cerebral palsy Supportlng the rollout of the NPIS England Framework for the Commissioning of Services for Children and Young People with Cerebral Palsy. • Workforce Skills improvement, practlcal information and awareness ralslng about cerebral palsy Evidence provided at the APPG on CP and our own research identified that there is a lack of knowledge of cerebral palsy and its impact on the individual and their family amongst non-specialist professionals whose job often involves supporting families with children or young people with CP. These practitioners may work in community health or education settings, local authorities or disability advisory services, or in special or mainstream schools. Action Cerebral Palsy is now developing high quality support materials in conjuncrion with other healthcare, education and therapeutic professionals that will be accessible via our website. Parent Support to provide families with much needed practical information about cerebral palsy and where they can turn to for help, care, support and the opportunities available for their child Financials Action Cerebral Palsy is indebted to the many individuals, families, companies and funding organisations which have donated to the Charity or chosen to fundraise for us during thi5 Past year. We are pleased to have received the support of new and known Trusts and Foundations this past year including the Barbara Ward Children's Foundation, the David 8arnett Charitable Trust and the TK Maxx Foundation a5 well as individuals who walked, swam, sky-dived, baked, cycled and undertook other challenges to raise funds for Action CP. We are grateful for the much-valued support from our significant individual donors and corporate fundraisers, including Peel Hunt. The trustees have a continued focus on strengthening the Charitls financial sustainability as well as looking at secure ways of 8rowin8 the Charity's cash reserves. The Charity makes all possible efficiencies to keep c05t5 to a minimum and spending continue5 to be tightly controlled. The Charity has also benefited from generous pro bono administrative support. The Charity does not employ paid staff but instead use5 specialist consultancy and volunteer services to support it5 operations. As a result, the Charity retains sufficient leve15 of cash reserves. 14
The tables below identify the Charity's income by type and expenditure by area of activity. While the Charity's CEO is largely focused on advocacy, awareness raising and education and fundraising, she is also involved in the Charitls policy work. Similarly. the Director of Policy is involved in advocacy, awarene55 raising and fundraising. The Charity was awarded a restricted grant at the end 2024 that was fully spent by the end of 2025. For 2025, the ChariV5 income and expenditure wa5 as follows: Income 2025 2024 9,415 20,593 5,0(K) 43 2,406 24 750 22,389 10,000 70,620 Individual Giving Community Corporate Events Legacy/ln Memorium Regular Giving Training Trusts INon-Restrictedl Trusts IRestrictedl 11,264 4,815 500 11,893 24 20,500 5,000 53,997 Total Income 2025 Income ByType 90/ IndidUal Gfving 21Wll Comrnunity 38% 10/0 141 •Corporats 22% Legacylln M8moriurn ReguLarGiving 15
Expenditure Campaigning Advocacy Awareness Raising & Education Fundraising Administration Total Expenditure 2025 £34,713 £2,976 £7,486 £4,867 £2,541 £52,582 2024 £36,457 £3,600 £6,300 £5,934 £2,385 £54,676 2025 Expenditure by Type 5Wo Campaigning Advocacy 14 6% 166% •Awarene5s Raising& Education Fundraising Administration 16
Reserves Poll¢y The Charity has developed a Reserves Policy to protect its operations by creating financial support against an unpredietable fundraising environment and to make sufficient provision for future cash flow requirements and eapital procurement. The policy a150 provides the framework for future strategic planning and decision-making. The Reserves Policy is based upon an annual risk assessment of the internal and external operation environment, as well as having due regard to the nature of the activities undertaken by the Charity towards its charitable aim5. To ensure there is appropriate financial security, the Trustees will accumulate minimum reserves to meet immediate outstanding liabilities at any one point. The Trustees have resolved, in view of the size and operational requirements of the charity, that the minimum level of reserves should be three months of budgeted expenditure. The Trustees review this Reserves Poli¢y on an annual basis. Goin8 Concern Further to independent consultation, the Trustees have a reasonable expectation that the Charity has adequate resources to continue in operational existence for the foreseeable future. For this reason, they continue to adopt the going concern basis in preparing the financial statements. Fin4nci41 Strategy Action Cerebral Palsy is ambitious in its mission and is highly conscious of its current status as being the only existing UK charity campaigning solely on behalf of children with cerebral palsy and their familie5. We recognise that in the current economic climate we must continue to focus on organic growth that leverage5 exi5tirbg resources and relationships to ensure that we build from a position of financial stability while continuing to fund our key charitable activities. The Charlty continues to move forward with its furbdrai5ing strategy which seeks to develop new opportunities and potential income generation across a range of fundraising activities, delivered services and project5 which link us with individuals, other charities, corporates, trusts and foundations so that we can continue to expand our capabilities to campaign, educate and advocate on behalf of our community of 30,000 children and young people with cerebral pa15y in the UK. 17