Charity number.. 1165217
ACTION CEREBRAL PALSY
FIP4ANCIAL STATEMENTS
FOR THE YEAR ENDED 31 DECEMBER 2025
Philip Deane Accountancy Ltd
Units l & 2 Field View
Baynards Green
8Ke5ter
OX27 75G

Actlvn Cerebral Polsy
Contents
Page
Charity Infom)aUon
Accountsnt's Report
BalarKe Sheet
Income and Expenditure Account
Trustees Report
5-17

Actlon Cerebral Palsy
Charlty Informatlon
For The Y•ar Ended 31 December 2025
Truste
Ms Katherine Gollop
Dr Helen Hunt
Mr Philip Le
Mr Paul Maynard
Mr Anthony McGarel-Groves
Professor Neena Modi
Mr Duncan Walsh
1165217
Ch•rlty Number
R•glst•r•d Offlce
Units l & 2 Field View
Baynards Green
8ice5tÈr
OX27 7SG
Accountants
Phlllp Deane Accountancy Ltd
Unlts l & 2 Field Viewrf
Baynards Green
Bice5ter
OX27 7SG

Artlon C¢rebral Palsy
Independent Examlnatlon
For The Year Ended 31 December 2025
I report on the flnontial statements of Acth?n Cerebrnl Palsy CIO for the year ended 31 De￿mber 2025, whlch are Set out on page5
4and5.
R•sp•ctlv• r••poft•lbllltl•s of tru¥t•ex and ￿MIn•T
The charlty's trustee5 are responslble for the preparation of the accounts. The cha￿ty'S trustees conslder that an audit Is not
required for tfvs year under secbon 144 of the Charitles Art 2011 {'the Charit￿ Attl and that an Indepe1￿ent examlnaOon Is
needed. Hoving satisfled myself that the chadty Is not subleLt to auélt under company law and Is eligible for Independent
examlnatlon, It Is rny responslblllty to.. examine tht accounts under section 145 of the Chant￿5 Act, to follow the pracedure5 lald
down in the general Dlrectlons 9i¥en by the Charity CornrnL55ion (under sethon 14515llb) Df the Charltles Act), ond to State whether
p)rticular matters hove eome to my atten￿on.
•1• of lnd¢￿nd•nt •x•mlnerf* •tst•ment
My examlnatlon wa5 Carried out In accordan￿ with general Dlrettions given by tbe Charity Comm15sion. An examlnatk)n Includes
review of the accountSn9 record5 kept by the cha￿ty aTrJ a etsmparfson of the accounts presented wlth those records. It a150 Includes
consldet7tlon of any unu$ual Iterns or disclosure5 In the accounts, ond 5eeklrs eXPlana￿DnS from the trustees concErnln9 any such
matters. The protrdures undertaken do not provide all the evidence that would be required in an aud1¢ and cOr￿uentlY no oplnlon
15 given os to whether the occounts present a'true and faSr view, and the report Is Ilrnlted to those matters set out In the ststement
below.
Indy¢ndent •x•mIne￿I •tatoment
In connectlon wlth my examination, no rnoterial matt¢rs have come to my attention whith gives me couse to belleve that in, any
materi)I re5ped
the accLiuntlng records ThJt kept •¢cordance w6th sectlon 130 of the ChaThbes Act,. or
the accounts dltl not accord wf(h the èctountlng records,. or
the accounts dld not cornply wY(h the appllcable ￿Ul￿ments concemlng the form and content of a¢¢ounts $et out In the
Charltles {Accounts and Reports) Regulatlons 2008 other than any requirement that the accounts glve a.true ant1 falrf vlew
which is not a matter consldered as part of an int1ependent examlnation.
I have come across no other matters In connection wTth the examination to which atten￿On should be drawn In thls report in order to
enable a proper understanding of the accounts to be reached.
IILY
Date
Philip Deane Accountsncy Ltd
Units l & 2 Field View
Baynards Green
Bicester
OX27 7SG

Artk4n eerebral Pal•v
8alartce Sheet
Al At 31 D￿•rnb•r 2025
2025
2024
CURReKr ASSETS
Debtors
Cash at bank and In hand
7,719
36,616
42,678
44,335
42.671
Cr•dltor•: AmoMDt• F•lllng Due Wlthln Qn¢
Y••r
{763)
(550)
NEf CURREprr Assffs (UABILrriES)
43,572
42,128
TOTAL AsseTS LISS CURReNT UAJIU￿￿S
43.SY2
42,128
NEf ASSM
43.572
42,128
In¢om• Ind Exp¢ndlture Ac¢ouni
43,572
42,128
CAPITAL AND ReseRvEs
2,95S
40,617
8,275
34,108
Unfestrlcted
43.572
42.128
Gener•1 Xnformatlon
ActSon C•r•br•l Palsy is a Cha￿tabl• Incorporated Oryanlsatlon {CIO) and Is reglstered wlth the Charfty Commlssloner5 under
reg15tration number 1165217.
The CIO was reg15tered v41th th• Ch•rfty Commis￿￿￿ ort 19 January 2016 (standard reglstration) and converted to a CIO on 7 May
2024.
14Mmb¢r of Tru•t•
Numb•r of Trustees du￿n9 tho year wa5: 7 {2024= 7)
Mr. ￿nthOnY Mcfjarel-Gro¥e¥
Trust•# •nd Treasurer
Data
4(&

Artlon Cerebral Palsy
Income & ExpendSture Account
For The Year Ended 31 December 2025
2025
2024
Donations
48,997
5,000
59.870
10.000
750
Donatlons-Restrlcted
Training Income
Totsi income
53.997
70,620
Expendlture
Restrlrt•d
Constsltancy
5,320
1,725
Unrestrlcted
prfn￿ng and other costs
Accountancy fee5
Consultancy fee5 Public Affairs
Sundry expenses
Travel
255
436
567
563
51,337
1381
653
46,222
277
152,6421
154.6761
1.355
15,944
OPERATING SVRPLUS
other Interest recelv4ble and slmllar Intome
Bank Inte￿$t
89
SURPLUS / (DEFICIT)
1,444
15,944

ACTION |
IDENTIFY
INTERVENE
CEREBRAL PALSY
IMPACT
Registered Charity no.. 1165217
Trustees, Annual Report for the Financial Period ending 31.12.2025
Charlty Name:
Action Cerebral Palsy
Re8lstered charity number: 1165217
Website:
www.actloncp.org
Principal Address:
Units l and 2 Field View, Baynards Green, Bicester, Oxon,
OX27 75G
The Trustees have pleasure in presenting their annual report and financial statements for the year ended 31st
December 2025.
Structure and Governance
In 2024, Action Cerebral Palsy I"Action CP") converted to a charitable incorporated organisatlon I"ClO°I
registered with the Charity Commission for England and Wales (registered charity number 1165217).
The Trustees who Served during the period were..
Miss Katharine Gollop KC
Dr Helen Hunt
Mr Philip Lea
Mr Anthony McGarel-Groves ITreasurer and Secretary)
Paul Maynard
Profe550r Neena Modi
Mr Duncan Walsh
The members of the CIO are the Charity Trustees who form the Board and who are responsible for managing
the affairs of Action CP. Action CP must have at least three charity trustees- apart from the first charity trustees
named in our Constitution, every trustee is appointed for a term of three years. One of the Trustees serves
voluntarily a5 Treasurer and Company Secretary. There are four full meeting5 of charity trustees held each
year. One Trustee is appointed as Chairperson for each meeting. When new trustees are appointed, they are
introduced to the Board and briefed on all aspects of the CharitWs objectives and policies and Charity
Commission requirements. Trustees are encouraged to seek training a5 appropriate, and to obseNe and follow
the requirements and guidelines set down by the Charity Commission. Attlon Cerebral Palsls trustees have
diverse professional backgrounds and have direct professional or lived experience supporting children with
cerebral palsy and their families.

In 2025, Action CP was honoured to welcome Lord McFall of Al¢luith as a Patron for our Charity. Lord
McFall's deep understanding of policy-making, developed through his extensive career as Lord Speaker, a
Member of Parliament, and a Minister, combined with his background as a teacher and deputy headteacher,
makes him an exceptional advocate for our cause. His unique perspective on both governance and education
will be invaluable as we strive to improve support and understanding for the 30,000 children and young
people living with cerebral palsy.
The Executive
The CharitV5 day-to-day operations are managed by the Chief Executive and additional project work by the
Policy Lead. Both posts are part-time.
Our Charitable Oblertlves:
To engage with policy makers in order to promote the creation of a national CP strategy and care
pathway5 for intervention and provision for children with cerebral palsies
To be a source of informed advice on cerebral palsy for policy makers and the public
To represent the best interests of the cerebral palsy community
To facilitate the development of best practice for intervention, care, education and support for children
and young people with cerebral palsies acr055 the United Kingdom
To facilitate and disseminate research on cerebral palsy and therapeutic and educational intervention
Public 8enefit
In establishing annual objectives and overseeing the ChariV5 activities, the trustee5 have regard to the
principles of public benefit at all times. The core purpose of Action Cerebral Palsy is to work towards better
public and professional awareness and understanding of cerebral palsy and an improved quality of life for all
children in the United Kingdom with the condition. Action Cerebral Palsy needs to raise funds to support the
cost of working towards these outcomes.

About Cerebral Palsy
Cerebral Palsy (CPI, Cerebral Palsy (CPI is a lifelong and f luctuating neurological condltion which is the
most common cause of physical disability in childhood. The condition affects movement. balance, co-
ordination and posture and is caused by abnormal development or damage to the parts of the brain
before, during or soon after birth. In addition to motor learning and mobility, the condition has a wider
impact on normal chlldhood development and can affect sensory processing, communication, cognition,
health and self-care all of which may have a severe impact on the individual's f uture opportunities and
quality of life.
There are approxlmately 30,000 chlldren and 130,000 adult5 wlth CP In Ihe UK, similarto the numbers
who have multiple sclerosis and Parkinson's disease- both of which are typically later-onset conditions.
1 in 3 is unable to walk.
l in 10 has a severe vision impairment.
1 in 4 is unabletotalk.
1 in 2 has an intellectual impairment.
About Artion Cerebral Palsy
As the only national charity solely focused on advocating for children and young people with cerebral
palsy, Action Cerebral Palsy is committed to addressing the systemic challenges they face. We have sought to
establish the facts about the level of provision of care through reports, surveys and consultation with our
community and to communicate the findings and recommendations for change through Government
consultations and engagement. We are extremely proud to have initiated and been the lead sponsor of the All
Party Group on Cerebral Palsy whose recommendations have directly contributed to key initiatives Such as
the NHS England Commlsslonlng Framework for Children and Young People with Cerebral Palsy published in
May 2025.
Until the campaigning initiatives of Action Cerebral Palsy, there had been no unified voice or platform for
cerebral palsy clinical and educational professionals and the parents of children with cerebral palsy to draw
together a coherent case for policy makers for improved provisions and reform to improve early identification,
intervention, education and pathways of care for children and young people with cerebral pa15Y.
Action CP began in 2013 as a national consortium of specialist charitie5 working with children with cerebral
palsy and their families and became a registered charity in 2016. We are a Small but aspirational charity which
is committed to improve the daily lives and life chance5 of all children with CP throughout the UK so that they
can have the best POS5ible start to life and ongoing help and support.
Summary of Charitable Activities and Achievements during 2025
Policy Engagement to Improve Political Awareness of Cerebral Palsy and the issues facing chlldren and young
people wlth the condition and thelr familles
Action CP has continued to champion the needs of children and young people with cerebral palsy and
their families throughout the year with Parliamentarians and policy makers. Our policy work is informed

by the recommendations of the All-Party Parliamentary Group on Cerebral Palsy and through our direct
engagement with parents, young people and those professionals doing their very best to support these
families.
Although cerebral palsy is the leading cause of childhood physical disability, the existing legislative
framework is fragmented and does not account for CP as a condition in its own right. By engaging directly
and responding to public consultations, we have worked to amplify the voices of these families to address
at policy level the many challenges they face, to ensure that children and young people with CP receive
high-quality healthcare and special educational needs and disability ISENDI provision from experienced.
specialist professionals to mitigate the impact of their disability can be mitigated from the earliest
opportunity and their full potential maximised throughout their developing years.
Action CP works acr055 all political parties and within all devolved regions of the UK to improve the awareness
and understanding of CP at local and national levels to facilitate the development of models of best practice.
A Source of Informed Advice Oll Cerebral Palsy for Poliey Makers
Action CP has been 8 consistent voice in Parliament this year, engaging cross-party representatives
through direct meetings and expert policy brief ings. We have provided briefings and correspondence with
the Secretaries of State for Education. Health and Soci81 Care and Work and Pensions, key ministers for
Schools, Early Years and SEND. and Disability, as well as the Shadow Ministers and Spokespeople and
keyselectcommittees and metwith civilservants inthe Departmentstor Education and Health andsocial
Care.
Highlights include-.
In April, Action CP wrote to every MP to highlight the need for holistic care provisions forchildren and young
people with CP and highlighting the anticipated NHS England Framework for the Commissioning of
Services for Children with Cerebral Palsy.
In October, Action CP was asked by the Government's Strategic Advisor on SEND to provide the
Department for Education with information about the complexity of needs and potential educational
pathways of children and young people with cerebral palsy to help inform the Department's work on the
upcoming Schools land SENDI White Paper.
io

In November and specifically to help inform the debate on this Schools White Paper, Actlon CP wrote to
every MP with our response to the Education Select Committee'5 Solving tho SEND Crisls report which
welcomed the Committee's clear assessment of the current system and its strong recommendations for
reform. Action CP believes that if the Government gets the model right for children with cerebral palsy
{whose needs often span movement, communication. learning, equipment and health), itwill strengthen
the entire SEND system. Our key asks include:
A clear national definition of inclusive education across the full Continuum of provision
Statutory st8ndards for 'ordinarily available" SEND support, with routine access to specialist and
multidisciplinary expenise
Improved workforce training on low-incidencelhigh-r)eeds conditions
A national Education. Health and Care Plan template and timeline. with existing legal rights
retained
Strengthened joint accountability across education, health and care
A realistic and sustainable funding model that reflects the true cost of provision
Over the course of the year, Actlon CP has submitted evidence for the following consultations:
Education Select Committee review into solving the SEND crisis:
• Health and So¢lal Care Select Committee on First 1000 Day$-A Renewed Focus.. and
Of sted Con$ult8tion (both as Action CP and also contributed to the Special Education
Consortium responsel
Curriculum and Assessment Review
Through our membership of the Special Education Consortium of the Council for Disabled Children, Action CP
has provided evidence for submissions to the following additional consultations:
DfE's Schools Accountability Reform Consultation:
Use of reasonable force and other restrictive inteNentions in schools;
Local government outcomes framework; and
Children's Wellbeing and Schools Bill amendments
Representing the Best Interests of the Cerebral Palsy Community
We have participated in meetin8S Wlth other charities focused on disability, healthcare, specialist and
mainstream education professionals and engaged through direct dialogue and online stjrveys with our
community of parents, carers and young people to gather evidence of the issues facing the CP community in
their ability to access appropriate care, resources, services, support and education and to ensure that these
views are represented in all of our policy engagement.
Over this past year, Action Cerebral Palsy worked in collaboration with a number of organisations, including..
CandDLE
CP Alliance (Australia)
CP Scotland
CP Sport
CP Teens

Council for Disabled Children
El Smart
Institute of Health Visiting
Northern Ireland Cerebral Palsy Register
PD Net
Pro Bono Economics
Royal College of Speech and Language Therapists and SEND in the Specialist5
Scope
Special Education Consortium
Up Movement and the Up Adult Working Party
Whizzybugs
Researchers and academic institutions who are conducting research related to neurological conditions
such a5 cerebral palsy
Facilitsting the Development of Best Practice
In Healthcare- Early Identification, Intervention and Pathways of Care
Action CP'S work in this area was focused on promotingthe NHS England Commissioning Framework
for Chlldran and Young People with Cerebral Palsy which was published in May 2025. This framework
aims to standardise clinical provision and ensure equitable. timely access to assessm8nt and
inteNention across all regions. Having sewed on the NHS England CYP Transformation ProgrammeTask
Force that developed this Framework, we are now actively contributing to the NHS Implementation
Group to understand the existing level of setvice need and provision in order to turn these standards into
reality for families across the country.
We continue to campaign to raise awareness of the early warning signs of CP and what to do if a parent has
concerns about their child's motor development. Our If In Doubt, Check It Out posters and parent
information leaflets have been included the new Institute of Health Visiting Early Motor Development Toolkit
which provides a repository of resources for Health Visitors and that was launched over the summer of 2025.
In Educatlon- Workforce Skills and Understsndin8
A significant lack of understanding regarding cerebral palsy often prevents these exceptional children
from receiving the learning support that they need to thrive in education. Action CP'S work in this area
has focused on..
Influencing Policy: Ensuring effective pathways and supporting complex needs are at the heart
of SEND reform discussions.
Empowering the Workforce.. Supporting non-specialist educators who often work in isolation
without 8 clear understanding of CP.
Action CP is also producing new support materials to empower the wider education workforce. From our
engagement with expert clinicians, specialist teachers, and-most importantly-parents and young people, we
are Iranslating these insights into practical support rnalerials designed specifically for non-specialist
educators. Our u￿omin8 resources will provide schools and local authorities with=
Clear Insights: Deepening the underslanding of how CP impacts learning and development.
12

Actionable Strategies: Practical ways to support children in mainsiream environments.
Direct Guidance: Helping local auihorities meet their obligations under any new SEND legislation.
Facilitatin8 and Sharing Research
This year, Action CP has been asked to 5UPPOrt grant applications and to help facilitate parent engagement for
number of research project5. In addition, Action CP is pleased to have been selected by Pro Bono Economic5
for a research project. Following a report PBE published into the Dyslexia Pay Gap - PBE | The dyslexia pay gap
in the UK | PBE and the All-party Parliamentary Group on Cerebral Palsy report into the transition for young
people with CP into adulthood, adult services and employment, PBE 15 now looking to looking to the quantify
the potential loss lin income, pension. and tax) for young people with cerebral palsy who are not able to access
work.
13

Summary
We are immensely proud of the impact that the charity has had in 2025. We championed the needs of the CP
community within national SEND reform and the pilot work of the new NHS England Commissioning Framework
provided the bridge between families and the NHS England. Our expanding coalition of parents and young
people, 3, sector organisation5, professional governing bodies, specialist educators and leading clinicians have
helped us provide more nuanced contributions to national policy discussions. We are grateful to the policy
makers who have also embraced this collaborative spirit, demonstrating a sincere commitment to improving
the lives of children with complex needs.
Our determination to improve the understanding of cerebral palsy with those who are tasked with allocating
funding for, making decisions about or providing services and 5UPPOrt to children and young people with
erebral palsy is paramount to improving the pathways of care available to these children. Children and their
parents need to be at the heart of the provision and not made to feel that they have to fight to get the right
care, support or educational provision for their child.
In 2026, we will continue to work on our own and with others in the following are35:
SEND Policy Reform and practlce change at national and local government level working with all parties
to highlight the challenges and opportunities to improve the Se￿iCe5 available to children and young
people with cerebral palsy
Supportlng the rollout of the NPIS England Framework for the Commissioning of Services for Children
and Young People with Cerebral Palsy.
• Workforce Skills improvement, practlcal information and awareness ralslng about cerebral palsy
Evidence provided at the APPG on CP and our own research identified that there is a lack of knowledge
of cerebral palsy and its impact on the individual and their family amongst non-specialist professionals
whose job often involves supporting families with children or young people with CP. These practitioners
may work in community health or education settings, local authorities or disability advisory services, or
in special or mainstream schools. Action Cerebral Palsy is now developing high quality support materials
in conjuncrion with other healthcare, education and therapeutic professionals that will be accessible via
our website.
Parent Support to provide families with much needed practical information about cerebral palsy and
where they can turn to for help, care, support and the opportunities available for their child
Financials
Action Cerebral Palsy is indebted to the many individuals, families, companies and funding organisations which
have donated to the Charity or chosen to fundraise for us during thi5 Past year. We are pleased to have received
the support of new and known Trusts and Foundations this past year including the Barbara Ward Children's
Foundation, the David 8arnett Charitable Trust and the TK Maxx Foundation a5 well as individuals who walked,
swam, sky-dived, baked, cycled and undertook other challenges to raise funds for Action CP. We are grateful
for the much-valued support from our significant individual donors and corporate fundraisers, including Peel
Hunt.
The trustees have a continued focus on strengthening the Charitls financial sustainability as well as looking at
secure ways of 8rowin8 the Charity's cash reserves. The Charity makes all possible efficiencies to keep c05t5 to
a minimum and spending continue5 to be tightly controlled. The Charity has also benefited from generous pro
bono administrative support. The Charity does not employ paid staff but instead use5 specialist consultancy and
volunteer services to support it5 operations. As a result, the Charity retains sufficient leve15 of cash reserves.
14

The tables below identify the Charity's income by type and expenditure by area of activity. While the Charity's
CEO is largely focused on advocacy, awareness raising and education and fundraising, she is also involved in the
Charitls policy work. Similarly. the Director of Policy is involved in advocacy, awarene55 raising and fundraising.
The Charity was awarded a restricted grant at the end 2024 that was fully spent by the end of 2025.
For 2025, the ChariV5 income and expenditure wa5 as follows:
Income
2025
2024
9,415
20,593
5,0(K)
43
2,406
24
750
22,389
10,000
70,620
Individual Giving
Community
Corporate
Events
Legacy/ln Memorium
Regular Giving
Training
Trusts INon-Restrictedl
Trusts IRestrictedl
11,264
4,815
500
11,893
24
20,500
5,000
53,997
Total Income
2025 Income ByType
90/
Indi￿dUal Gfving
21Wll
Comrnunity
38%
10/0 141
•Corporats
22%
Legacylln M8moriurn
ReguLarGiving
15

Expenditure
Campaigning
Advocacy
Awareness Raising & Education
Fundraising
Administration
Total Expenditure
2025
£34,713
£2,976
£7,486
£4,867
£2,541
£52,582
2024
£36,457
£3,600
£6,300
£5,934
£2,385
£54,676
2025 Expenditure by Type
5Wo
Campaigning
Advocacy
14
6%
166%
•Awarene5s Raising&
Education
Fundraising
Administration
16

Reserves Poll¢y
The Charity has developed a Reserves Policy to protect its operations by creating financial support against an
unpredietable fundraising environment and to make sufficient provision for future cash flow requirements and
eapital procurement. The policy a150 provides the framework for future strategic planning and decision-making.
The Reserves Policy is based upon an annual risk assessment of the internal and external operation environment,
as well as having due regard to the nature of the activities undertaken by the Charity towards its charitable aim5.
To ensure there is appropriate financial security, the Trustees will accumulate minimum reserves to meet
immediate outstanding liabilities at any one point. The Trustees have resolved, in view of the size and operational
requirements of the charity, that the minimum level of reserves should be three months of budgeted
expenditure. The Trustees review this Reserves Poli¢y on an annual basis.
Goin8 Concern
Further to independent consultation, the Trustees have a reasonable expectation that the Charity has adequate
resources to continue in operational existence for the foreseeable future. For this reason, they continue to
adopt the going concern basis in preparing the financial statements.
Fin4nci41 Strategy
Action Cerebral Palsy is ambitious in its mission and is highly conscious of its current status as being the only
existing UK charity campaigning solely on behalf of children with cerebral palsy and their familie5. We recognise
that in the current economic climate we must continue to focus on organic growth that leverage5 exi5tirbg
resources and relationships to ensure that we build from a position of financial stability while continuing to fund
our key charitable activities. The Charlty continues to move forward with its furbdrai5ing strategy which seeks to
develop new opportunities and potential income generation across a range of fundraising activities, delivered
services and project5 which link us with individuals, other charities, corporates, trusts and foundations so that
we can continue to expand our capabilities to campaign, educate and advocate on behalf of our community of
30,000 children and young people with cerebral pa15y in the UK.
17