Charity number: 1164158 The Arthrogryposis Group (TAG) Trustees report for the financial year ending 31[st] May 2025
Trustees report for the financial year ending 31[st] May 2025 for The Arthrogryposis Group
The trustees of the charitable incorporated organisation (CIO) present their report with the financial statements of the charitable incorporated
Registered charity address: The Arthrogryposis Group, 1 Magor Hill Cottages, Magor Hill, Magor Downs, Tehidy, Cornwall TR14 0JF
Charity number: 1164158 The Arthrogryposis Group (TAG) Trustees report for the financial year ending 31[st] May 2025
organisation for the year ended 31[st] May 2025. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 10th September 2024).
Objectives and activities
Under the terms of the current constitution, the stated objectives of the CIO, The Arthrogryposis Group (TAG) are:
To support people with Arthrogryposis Multiplex Congenita (herein referred to as Arthrogryposis or AMC), and to advance the education of the public, in particular their relatives by the provision of information, advice, and assistance concerning the condition and the furtherance of research into the disseminating of information relating to Arthrogryposis.
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Provide contact, support and information to children, young people and adult residents within the United Kingdom who have Arthrogryposis, and to their families, friends, and caregivers.
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To create a positive network of individuals, families, and professionals to share ideas and experiences.
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To recognise the needs of persons who have Arthrogryposis and encourage the recognition of the depth of feelings experienced by their families and provide support.
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To increase the understanding of the relationship between the physical effects of Arthrogryposis and learning development and assist in the development of beneficial therapies and learning programmes.
Achievement and performance
Our annual Family Weekend was held between Friday 11[th] and Sunday 13[th] October 2024 at The Village Hotel, Nottingham. It was a big year for TAG as we celebrated our 40[th] birthday. The family weekend 2024 was a weekend of
Registered charity address: The Arthrogryposis Group, 1 Magor Hill Cottages, Magor Hill, Magor Downs, Tehidy, Cornwall TR14 0JF
Charity number: 1164158 The Arthrogryposis Group (TAG) Trustees report for the financial year ending 31[st] May 2025
celebration with 29 families booked on, totalling 68 attendees, the largest gathering since the COVID-19 pandemic. It was great see a wide range of members who joined TAG at various stages over the last 4 decades.
In response to historical difficulties reaching a quorum to hold the charity’s AGM the trustees decided to trying holding it on the Saturday afternoon. This was very successful and was well received by members. Members had the opportunity to attend wither in person or via online video link. This is a format the trustees will look to repeat in the future.
Financial Review
It is the policy of the trustees to hold sufficient reserves to enable the CIO to meet it’s expenses and liabilities. No project is commenced unless there is secure funding in place.
The trustees recognise there has been a decline in the number of fundraising events organised by members and in the number of donations. The trustees continue to keep expenses costs to a minimum as all trustees meetings (apart from the one held at the annual family weekend) are held online.
Structure, Governance and Management
Our aim as per our governing document is to help people who have AMC. We do this by offering guidance and general information on the condition as well as organising gatherings for those with AMC and their families to meet. Trustees are elected from those who have full membership of the CIO. They serve a three-year term on a rotational basis and are voted on to the board by members at the annual general meeting, which is held each autumn. At the end of two consecutive terms (six years) trustees are required to stand down for at least one year before they are eligible to stand again for election.
In October 2024 Sandra O’Donovan stepped down from the board of trustees, we thank her for all she has done for TAG during her time on the board and wish her well in the future. We were lucky to welcome Vicki Adey, a very experienced member of TAG, to the board in October to make up our current board of 7 board members as of 31[st] May 2024
Reference and Administrative Details Registered charity number: 1164158
Registered Address:
Registered charity address: The Arthrogryposis Group, 1 Magor Hill Cottages, Magor Hill, Magor Downs, Tehidy, Cornwall TR14 0JF
Charity number: 1164158 The Arthrogryposis Group (TAG) Trustees report for the financial year ending 31[st] May 2025
The Arthrogryposis Group, 1 Magor Hill Cottages, Magor Hill, Magor Downs, Tehidy, Cornwall TR14 0JF
Trustees – for financial 1[st] June 2024 to 31[st] May 2025
Mrs Sarah Rayment (chairperson from October 2023, joined the board October 2022) Mr Matthew Edwards – (Deputy chair, joined the board May 2021) Miss Chloe Ballantine (treasurer from October 2023, joined the board October 2021) Miss Sandra O’Donovan (stepped down October 2024) Mrs Rebecca Shearer (secretary from October 2023, joined the board October 2022) Mr William Shearer (joined the board October 2022) Mr Andrew Merewether-Helps (joined November 2023) Mrs Vicki Adey (joined the board October 2024)
Signed Mrs Sarah Rayment (chairperson), on behalf of the trustees.
Registered charity address: The Arthrogryposis Group, 1 Magor Hill Cottages, Magor Hill, Magor Downs, Tehidy, Cornwall TR14 0JF
Statement of Financial Activities
| Statement of Financial Activities | |
|---|---|
| Unrestricted funds Restricted funds Total Funds 2024-25 2024-25 2024-25 Notes £ £ £ Income and endowments from: Donations and legacies 4 6,819 - 6,819 Charitable activities 5 - - - Total 6,819 - 6,819 Expenditure on: Raising funds 6 246 - 246 Charity activities 7 11,504 - 11,504 Other 8 409 - 409 Total 12,158 - 12,158 Net gains on investments - - - Net Income 9 (5,339) - (5,339) Transfer between funds - - - Net income before other gains / (losses) (5,339) - (5,339) Other gains and losses - - - Net movement in funds (5,339) - (5,339) Reconciliation of funds: Total funds brought forward 33,535 - 33,535 Total funds carried forward 28,196 - 28,196 |
Unrestricted funds Restricted funds Total Funds 2023-24 2023-24 2023-24 £ £ £ 12,575 - 12,575 - - - |
| 12,575 - 12,575 216 - 216 10,866 - 10,866 658 - 658 |
|
| 11,740 - 11,740 - - - |
|
| 835 - 835 - - - |
|
| 835 - 835 - - - |
|
| 835 - 835 32,700 - 32,700 |
|
| 33,535 - 33,535 |
Balance Sheet
as at 31 May
Company No. CE005508
| Company No. CE005508 | 2024-25 | 2023-24 | |
| Current assets | |||
| Debtors | 12 | - | - |
| Cash at bank and in hand | 27,796 | 23,619 | |
| Prepayments and Accrued Income | 400 | 9,916 | |
| Total current assets | 28,196 | 33,535 | |
| Creditors: Amounts falling due within one year | 13 | - | - |
| Net current assets | 28,196 | 33,535 | |
| Total assets less current liabilities | 28,196 | 33,535 | |
| Net assets excluding pension asset or liability | 28,196 | 33,535 | |
| Total net assets | 28,196 | 33,535 | |
| The funds of the charity | |||
| Restricted funds | 14 | ||
| Unrestricted Funds | |||
| - General funds | 14 | 28,196 | 33,535 |
| Total funds | 28,196 | 33,535 |
| 3 Income from donations and legacies Donations TAG Conference contributions Total 4 Income from charitable activities Grants TAG Conference donations Total 5 Expenditure on raising funds Cost of generating voluntary income Donations Total 6 Expenditure on charitable activities Grants TAG Family Weekend 2024 TAG Family Weekend 2025 Total |
Unrestricted funds Restricted Total Funds 2024-25 2024-25 2024-25 £ £ £ 6,819 - 6,819 - - - |
|---|---|
| 6,819 - 6,819 |
|
| Unrestricted funds Restricted Total Funds 2024-25 2024-25 2024-25 £ £ £ - - - - - - |
|
| - - - |
|
| Unrestricted funds Restricted Total Funds 2024-25 2024-25 2024-25 £ £ £ 246 - 246 |
|
| 246 - 246 |
|
| Unrestricted funds Restricted Total Funds 2024-25 2024-25 2024-25 £ £ £ - - - 11,504 - 11,504 - - - |
|
| 11,504 - 11,504 |
Note: TAG Family Weekend 2024 expenditure relates to change in venue and supplier and so payment is under difference payment terms, and was paid 31st May 2024 for day delegate fees and holding fee for the venue
| 7 Other expenditure Premises costs General administrative costs Bank Charges General insurances Stationary and printing Telephone, fax and broadband Legal and professional costs Total |
Unrestricted funds Restricted Total Funds 2024-25 2024-25 2024-25 £ £ £ - - - 40 - 40 61 - 61 289 - 289 - - - 19 - 19 - - - |
|---|---|
| 409 - 409 |
8 Net income before transfers
2024-25 £ -
This is stated after charging: Independent Examiners Fee
9 Directors remuneragion
Directors received total remuneration package of £0 (22/23 £0) Number of directors accruing pension benefits NIL (22/23 NIL)
10 Staff costs
2024-25
Average headcount
| verage eacoun There are no employees incurring saff costs 11 Debtors Prepayments and accrued income Total 12 Creditors Amounts falling within 1 year Accruals Total 13 Movement in funds Restricted funds: Restricted income funds: Lottery Total Unrestricted funds: General funds Total funds 14 Analysis of net assets between funds Net current Assets Total 15 Reconciliation of net debt Cash and cash equivalents Net Debt |
At June 2023 Incoming resources (including other gains / losses) £ £ - - |
At June 2023 Incoming resources (including other gains / losses) £ £ - - |
- 2024-25 £ 400 400 2024-25 £ - - Resources expanded At 31 May 2025 £ £ - - |
|---|---|---|---|
| - - |
- - |
||
| 33,535 6,819 (12,158) 28,196 |
|||
| 33,535 6,819 (12,158) 28,196 |
|||
| Unrestricted funds Restricted Total Funds 2024-25 2024-25 2024-25 £ £ £ 28,196 - 28,196 28,196 - 28,196 At June 2024 Cash flows At 31 May 2025 £ £ £ 23,619 4,177 27,796 23,619 4,177 27,796 |
|||
| 23,619 4,177 27,796 |
16 Related party disclosure
Controlling party
The company is limited by guarantee and has no share capital; thus no single party controls the company.