## Charity number: 1164158 **The Arthrogryposis Group (TAG) Trustees report for the financial year ending 31[st] May 2025**
# **Trustees report for the financial year ending 31[st] May 2025 for The Arthrogryposis Group**
The trustees of the charitable incorporated organisation (CIO) present their report with the financial statements of the charitable incorporated
Registered charity address: The Arthrogryposis Group, 1 Magor Hill Cottages, Magor Hill, Magor Downs, Tehidy, Cornwall TR14 0JF
## Charity number: 1164158 **The Arthrogryposis Group (TAG) Trustees report for the financial year ending 31[st] May 2025**
organisation for the year ended 31[st] May 2025. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 10th September 2024).
## **Objectives and activities**
Under the terms of the current constitution, the stated objectives of the CIO, The Arthrogryposis Group (TAG) are:
_To support people with Arthrogryposis Multiplex Congenita (herein referred to as Arthrogryposis or AMC), and to advance the education of the public, in particular their relatives by the provision of information, advice, and assistance concerning the condition and the furtherance of research into the disseminating of information relating to Arthrogryposis._
1. Provide contact, support and information to children, young people and adult residents within the United Kingdom who have Arthrogryposis, and to their families, friends, and caregivers.
2. To create a positive network of individuals, families, and professionals to share ideas and experiences.
3. To recognise the needs of persons who have Arthrogryposis and encourage the recognition of the depth of feelings experienced by their families and provide support.
4. To increase the understanding of the relationship between the physical effects of Arthrogryposis and learning development and assist in the development of beneficial therapies and learning programmes.
## **Achievement and performance**
Our annual Family Weekend was held between Friday 11[th] and Sunday 13[th] October 2024 at The Village Hotel, Nottingham. It was a big year for TAG as we celebrated our 40[th] birthday. The family weekend 2024 was a weekend of
Registered charity address: The Arthrogryposis Group, 1 Magor Hill Cottages, Magor Hill, Magor Downs, Tehidy, Cornwall TR14 0JF
## Charity number: 1164158 **The Arthrogryposis Group (TAG) Trustees report for the financial year ending 31[st] May 2025**
celebration with 29 families booked on, totalling 68 attendees, the largest gathering since the COVID-19 pandemic. It was great see a wide range of members who joined TAG at various stages over the last 4 decades.
In response to historical difficulties reaching a quorum to hold the charity’s AGM the trustees decided to trying holding it on the Saturday afternoon. This was very successful and was well received by members. Members had the opportunity to attend wither in person or via online video link. This is a format the trustees will look to repeat in the future.
## **Financial Review**
It is the policy of the trustees to hold sufficient reserves to enable the CIO to meet it’s expenses and liabilities. No project is commenced unless there is secure funding in place.
The trustees recognise there has been a decline in the number of fundraising events organised by members and in the number of donations. The trustees continue to keep expenses costs to a minimum as all trustees meetings (apart from the one held at the annual family weekend) are held online.
## **Structure, Governance and Management**
Our aim as per our governing document is to help people who have AMC. We do this by offering guidance and general information on the condition as well as organising gatherings for those with AMC and their families to meet. Trustees are elected from those who have full membership of the CIO. They serve a three-year term on a rotational basis and are voted on to the board by members at the annual general meeting, which is held each autumn. At the end of two consecutive terms (six years) trustees are required to stand down for at least one year before they are eligible to stand again for election.
In October 2024 Sandra O’Donovan stepped down from the board of trustees, we thank her for all she has done for TAG during her time on the board and wish her well in the future. We were lucky to welcome Vicki Adey, a very experienced member of TAG, to the board in October to make up our current board of 7 board members as of 31[st] May 2024
## **Reference and Administrative Details Registered charity number:** 1164158
## **Registered Address:**
Registered charity address: The Arthrogryposis Group, 1 Magor Hill Cottages, Magor Hill, Magor Downs, Tehidy, Cornwall TR14 0JF
## Charity number: 1164158 **The Arthrogryposis Group (TAG) Trustees report for the financial year ending 31[st] May 2025**
The Arthrogryposis Group, 1 Magor Hill Cottages, Magor Hill, Magor Downs, Tehidy, Cornwall TR14 0JF
## **Trustees – for financial 1[st] June 2024 to 31[st] May 2025**
Mrs Sarah Rayment (chairperson from October 2023, joined the board October 2022) Mr Matthew Edwards – (Deputy chair, joined the board May 2021) Miss Chloe Ballantine (treasurer from October 2023, joined the board October 2021) Miss Sandra O’Donovan (stepped down October 2024) Mrs Rebecca Shearer (secretary from October 2023, joined the board October 2022) Mr William Shearer (joined the board October 2022) Mr Andrew Merewether-Helps (joined November 2023) Mrs Vicki Adey (joined the board October 2024)
Signed Mrs Sarah Rayment (chairperson), on behalf of the trustees.
Registered charity address: The Arthrogryposis Group, 1 Magor Hill Cottages, Magor Hill, Magor Downs, Tehidy, Cornwall TR14 0JF
## **Statement of Financial Activities**
|**Statement of Financial Activities**||
|---|---|
|**Unrestricted**
**funds**
**Restricted**
**funds**
**Total Funds**
**2024-25**
**2024-25**
**2024-25**
**Notes**
**£**
**£**
**£**
**Income and endowments from:**
Donations and legacies
4
6,819
-
6,819
Charitable activities
5
-
-
-
**Total**
6,819
-
6,819
**Expenditure on:**
Raising funds
6
246
-
246
Charity activities
7
11,504
-
11,504
Other
8
409
-
409
**Total**
12,158
-
12,158
Net gains on investments
-
-
-
**Net Income**
9
**(5,339)**
**-**
**(5,339)**
Transfer between funds
-
-
-
**Net income before other gains / (losses)**
**(5,339)**
**-**
**(5,339)**
Other gains and losses
-
-
-
**Net movement in funds**
**(5,339)**
**-**
**(5,339)**
**Reconciliation of funds:**
Total funds brought forward
33,535
-
33,535
**Total funds carried forward**
**28,196**
**-**
**28,196**|**Unrestricted**
**funds**
**Restricted**
**funds**
**Total Funds**
**2023-24**
**2023-24**
**2023-24**
**£**
**£**
**£**
12,575
-
12,575
-
-
-|
||12,575
-
12,575
216
-
216
10,866
-
10,866
658
-
658|
||11,740
-
11,740
-
-
-|
||**835**
**-**
**835**
-
-
-|
||**835**
**-**
**835**
-
-
-|
||**835**
**-**
**835**
32,700
-
32,700|
||**33,535**
**-**
**33,535**|
## **Balance Sheet**
as at 31 May
## Company No. CE005508
|||||
|---|---|---|---|
|Company No. CE005508||**2024-25**|**2023-24**|
|**Current assets**||||
|Debtors|12|-|-|
|Cash at bank and in hand||27,796|23,619|
|Prepayments and Accrued Income||400|9,916|
|**Total current assets**||**28,196**|**33,535**|
|Creditors: Amounts falling due within one year|13|-|-|
|**Net current assets**||**28,196**|**33,535**|
|Total assets less current liabilities||28,196|33,535|
|Net assets excluding pension asset or liability||28,196|33,535|
|**Total net assets**||**28,196**|**33,535**|
|The funds of the charity||||
|Restricted funds|14|||
|Unrestricted Funds||||
|- General funds|14|28,196|33,535|
|Total funds||**28,196**|**33,535**|
|**3 Income from donations and legacies**
Donations
TAG Conference contributions
**Total**
**4 Income from charitable activities**
Grants
TAG Conference donations
**Total**
**5 Expenditure on raising funds**
_Cost of generating voluntary income_
Donations
**Total**
**6 Expenditure on charitable activities**
Grants
TAG Family Weekend 2024
TAG Family Weekend 2025
**Total**|**Unrestricted funds**
**Restricted**
**Total Funds**
**2024-25**
**2024-25**
**2024-25**
**£**
**£**
**£**
6,819
-
6,819
-
-
-|
|---|---|
||**6,819**
**-**
**6,819**|
||**Unrestricted funds**
**Restricted**
**Total Funds**
**2024-25**
**2024-25**
**2024-25**
**£**
**£**
**£**
-
-
-
-
-
-|
||**-**
**-**
**-**|
||**Unrestricted funds**
**Restricted**
**Total Funds**
**2024-25**
**2024-25**
**2024-25**
**£**
**£**
**£**
246
-
246|
||**246**
**-**
**246**|
||**Unrestricted funds**
**Restricted**
**Total Funds**
**2024-25**
**2024-25**
**2024-25**
**£**
**£**
**£**
-
-
-
11,504
-
11,504
-
-
-|
||**11,504**
**-**
**11,504**|
Note: TAG Family Weekend 2024 expenditure relates to change in venue and supplier and so payment is under difference payment terms, and was paid 31st May 2024 for day delegate fees and holding fee for the venue
|**7 Other expenditure**
Premises costs
General administrative costs
Bank Charges
General insurances
Stationary and printing
Telephone, fax and broadband
Legal and professional costs
**Total**|**Unrestricted funds**
**Restricted**
**Total Funds**
**2024-25**
**2024-25**
**2024-25**
**£**
**£**
**£**
-
-
-
40
-
40
61
-
61
289
-
289
-
-
-
19
-
19
-
-
-|
|---|---|
||**409**
**-**
**409**|
**8 Net income before transfers**
**2024-25 £** -
This is stated after charging: Independent Examiners Fee
## **9 Directors remuneragion**
Directors received total remuneration package of £0 (22/23 £0) Number of directors accruing pension benefits NIL (22/23 NIL)
## **10 Staff costs**
## **2024-25**
Average headcount
|verage eacoun
There are no employees incurring saff costs
**11 Debtors**
Prepayments and accrued income
**Total**
**12 Creditors**
Amounts falling within 1 year
Accruals
**Total**
**13 Movement in funds**
**Restricted funds:**
Restricted income funds:
Lottery
**Total**
**Unrestricted funds:**
General funds
**Total funds**
**14 Analysis of net assets between funds**
Net current Assets
**Total**
**15 Reconciliation of net debt**
Cash and cash equivalents
**Net Debt**|**At June 2023**
**Incoming resources**
**(including other**
**gains / losses)**
**£**
**£**
-
-|**At June 2023**
**Incoming resources**
**(including other**
**gains / losses)**
**£**
**£**
-
-|-
**2024-25**
**£**
400
**400**
**2024-25**
**£**
-
**-**
**Resources**
**expanded**
**At 31 May**
**2025**
**£**
**£**
-
-|
|---|---|---|---|
||**-**
**-**||
**-**
**-**|
||33,535
6,819
(12,158)
28,196|||
||**33,535**
**6,819**
**(12,158)**
**28,196**|||
||**Unrestricted funds**
**Restricted**
**Total Funds**
**2024-25**
**2024-25**
**2024-25**
**£**
**£**
**£**
28,196
-
28,196
**28,196**
**-**
**28,196**
**At June 2024**
**Cash flows**
**At 31 May**
**2025**
**£**
**£**
**£**
23,619
4,177
27,796
**23,619**
**4,177**
**27,796**|||
|||||
|||**23,619**
**4,177**
**27,796**||
## **16 Related party disclosure**
Controlling party
The company is limited by guarantee and has no share capital; thus no single party controls the company.