Lynch Syndrome UK Charity NUM 1161840 Statement of Accounts for the Year Ended 31 May 2025 Stables Thomp50n & Bri%oe
Lyneh Syndrome IIK Contents Page Stalem¢Dt of 8s%ts ond liabltieS Notes to the a¢¢ouJ
LyDeh Syndrome UK Cbarlty Informallon Charlty number 1161840 Tntr¢s J Martln D Hollingworth H Bales H Bufton M Cooper (resigned In July 2024) T Smith P Se¢rtt RegIsted office.. Linden House 9111 Main Sireet Ingleton Camforth L8n¢ashire LA6 3EB Bankers: BAr¢lays Bank 9 Hith8at¢ Kendal Cumbria LA9 4DF Chartered Auountant Sthbles Thompson & Bris¢o¢ Chartered Accountthts & SIAlutory Audllo Lowther House Lowther Str¢¢1 Kend81 Cumbria LA9 4DX Page I
Lyncb Syndrorne UK Trusttts Report for the yr eDded 31 May 2025 Reference Ind thlministr¥tiNr infi¥tntiLM Set0 P28e I f(ffms of this reyL Th¢ fuwKiai 5thments eomply with ¢urrent statutory requirem¢ntsand the Sthtrment of Prxti¢e.A¢crymiingand Rryoning by Charitie& As a erDa The or8this8U(ffl is a charitsNe (ffganis (CIO).F(KllMkni(ffl ReyAerpJ 26th May 2015. The thtritywas eablithed wthrth¢ obied l. To I01¢ and Fffotect theg£ h#lth ofpeqjk •AI the f111¢5 effettcd by Lymh SMe ftythe public ben¢fil 2. N(thine in this conAitytion shall authoTise an applictir ofthe ofthe CIO ftrthe PurF whieh are Mt chorithble in accordance with Sedion 7 ofthe Chvitia andTntyw Ijwestsi {ScOdI Seaion 2 of the awiti¢s A¢1 (Northem lffloTh1) 21K)8. 14Jblic benefit fixus ensyring our a¢tivitie5 a¢hieve ¢M chari18ble aim& Publlc Be The trustees that in planning Lynch SyndrThn¢ UK'S a1¥111¢& they have coA%idered how L>)Jch Syrtthome UK has fulfilled its ch8Titsble obje¢tiv¢s The TnL#ees do Th)t identify w ly1)1¢ detriTrKni (Y hwm arising th¢ ¥tivilie5 of the cherity. The tnJy¢ees have Tefcrred to the Buidon¢e ¢LWmal in the Commission'suu1 8uidance on public benefit reviewing the ¢harity3 aim$ and objeaives and in planning irs fubjre In prticulor. the trwes Consider how a¢tiYiiies will wrtrlbe to the obieaives have been seL L>Thth Sd10m¢ UK direct beneficitries are atty pets wlwj l• Lynch sYndru aTrl their (1]IeS and friend& tble 8cthltl¢s kn tht members ore pwssionate aboutour L¥USC duca aTKI peLyk livingwith this cottditl and offering support io IKth themselves and their farnilies when they need it m(rt Lynch SytthrnE UK aims to ensure (or the public Lrtefii peopl¢ and their famitie5 affected by Syndffw are provided with suppNt in the form of Oyr vi5ioD is that all people ffected by Lynch Synthtme in the UK have access w swthrdised scrtertittk thus enabling prevettiion of the d¢v¢I0pnt of cancer and early d1$ a*11n8 Slnival. A ILM tht5 yearh¥s been aInd at makin8this vision ¢(me to thtIOn thrwgh WO withNHS Eng18 Funkn is planKd with b)th NHS Wales and Scodand familie5. The charity ts dedhcated towtrds woteding farnilies and savin8liYes of those at hith lo a h¢r¢ditary predisposilion to vsriow catkcer5 which oftetl strke at an early If diagnosed early. we believe Lyilch SYndre bave Fwitive re5 which enhan SLrviv&L th¢ long¢vity and quality of life &8 well the emrrtionaj wrllbeineof thr6e of us are affeaed by Lynch Syrthne.
LyDch Sy•droDK UK Trnitees Report for the year ended 31 May 2025 The chwitys olm 15 to be the knding souKe of Infwnl{ffi f(r itslividuaL8athd f111¢$ etted by Lynch S)i)drom¢ in th¢ UL Cthtslderim& ttuSeLmMe charity h&$ delivered the fdknvitsg &xivities w hehitst its dwitable obje¢iives: Lch Syndrome UK ¢wtinId to work with the NHS NatELy Syrthnc Oversight Grp which was ¢(hoMed by North Thames South E8y Genomics. The w)wk with th Oversight youp has Cc]nUed thrwi th¢ year and purpose Is strumline NHS core in En8lwd Tracy Smith has t¢n wYJrkin8 this FYOjCCt from its inception and aded a]1 meetiT¥ fxe ofthe ch8rityand w frrffl pUspx#1 W(rfk is still on8oÉn& Bowel Cancer Screening Pm8raDLrne trainin8 cliniciaTr Patient tnd lived expuiaK LS wtd Potyp05is re8itywthgwith GP'swhighiight •waruw and GP cding in wxllses w iderfify ptients. Choic P&ient fxingdecisi(ffj aides and SPARC T¢sear PPI as patient advout¢ WHI dwity rew¢s¢n¢1 fust meetingof th¢ researth and PPI te. Lynch Narionai slee Grw PPI w(¥k (ffi Niem fxing amles p1 MoMdance Canr Charity for wa Presen1] withNHS England and th¢Nland Pr¢i¢¢ fw LS. Howwe 1 duplicate for Welsh potients. Plent exFwiencu IK>W LS INAl¢nI xreenin8 affects li On8oing with th¢ Clinical tewn fLY LSN$1 Proje4 LS AnnuDI NlOn Conf¢Ten¢¢ in Covulty. BSG CCALference• Presenling 5Fuknng wiem wl¢r¢S dwityYxkim BCSP aTh1NlOnal Project for LS. Woth with Professor Neil Raianty highlightskl cancers in Syndri¥n¢ ptienl& 8ndA Ow Inforni1 service delivered thT themtbsitr and sla1 mediaoffus frte • aTMI k¢y iDf(rfrnatit(L people with Lynth Syndrnw and their familie& Medilxl professionals are also membry5 of ourgxia] media group& Ourwebsite remains an ilDprrftaDt sw¢e of infrymlL and tthli4 toeithtr selfrveir be SipCd thir&party s¢rvices8nd %thite&
Lyn¢h Syndrome UK Trustees Report for Ibe year ended 31 MAY 2025 Our hi8he perforniin8 and most infiuentld Chonnel was the Fa¢eEK# thich h)5 rea¢h¢d 8 membershlp or over 3.5k people. This is a hi8h and siphlflcwtt fi8pJre ITh tern orth¢ number of Indiv1$ thai hwe xcess to the cont¢nL Nthnbers Contin to increue at o st r4 r. Pnership al collaiwltion is key Lynth SyrAtrryn¢ UK iYin8•ble w deliv¢r its•im We 54mply ¢ould not wovlde the ran8e and level of sypport Witho 1P ofw 8rtywin8 nwnb¢r of porw Organi1($ that K wtyk wlt]L The truses m¢d thrte times Iyear and dl meetings have been lIne with full artendance. With 4 &nall N8aniution and youp ofinutees. Lyneh Syndrthne UK dou nrt thrwlh f(ffmai ITrAe Nses me¢t peritidlcally prOgr¢ssiJwlI motters weFre f(ff ftythcom1 Mein When A Irus¢¢e position becomes Avo]bI¢ u Tn¥1 fiTAly ¥pwth peiyk have an inierest or have 8iven their lim¢ to h¢lp Jnd wJpM LSUL W¢ then di5cuJs and nc4ninate who coLder be beneficial kn the htr5ty and offer the position. A¢ thSJ momeni 411 trpJ¢es 8iv¢ theIrffl¢ voluntary It (ffl¢¢ 81(. il will bKom¢ T¢¢SS to look Iljrther afield (LY pecole withc¢Min skill Thelr CLMllribuuons hJv¢ been iti¥luje The eknrity had a defi¢it of £5250 thls >ror. Th¢ totsl expendittwe wos £20.054 whi¢h inchvjed £15.179 forthe cimf¢r¢ne¢ thisy. Th¢ ¢hgrity had fimds in the bank the yearend or£Th. The chority aim5 to hav¢ •wu8h fvNl3 in the iwjk to pur5u¢ the (&jects ofthe ¢h&rity, sh ¥ rn1>] aww¢nesJ thrw8h confer¢nc¢s lit¢rJtur¢. Given the l¥t Mi ye4r% th trtff5 do feel th&t the Alm1 of rrVeY h¢id is ¢xwsiv¢. Tr rinanclal stAitments were aprmrd and issue by BoHrd on. ... . . . .... .. .... sId on E¢hfOfthe iwd of true¢5 Tsmlth Trnstee Page 4
Chartered Accountants, Report to the Trustees of Lynch Syndrome UK In accordwv wÉth the eLygem¢ni letter doted 2 February 2018. w¢ have wepared for your appml the firtaneiel inforn)ation of Lyneh Syndrome UK for the year ended 3111 May 2025 which comprises The Receipts and Pa>Th¢nts AccounL S¢8iemeni of Ass¢ts and Liabilities and CIated notes from the entiWs aoUntIng records and from inforn)alion aTKI explanttiit)ns you have 8iv¢n As 8 practisin8 member of the Insiitute of Chartered Aolttts in England and Wales (ICAEW). we are subject Its ¢thiul and other professiona] r¢quiremenL8 which are detsiled Mthin th¢ ICAEW5 r¢wJla¢ions and guidance h¢w.'IAvww.icaew.comlenlmembershiplregUlation&slandard>an&guid8¢. You have approved the fit)Qnci information for the year and hav¢ acknowledged your responslbility for IL for the appropriat¢ness ofthe firtartcio] reporting framework adopted and for providiD8 all inforniation and ¢xplarwtions nec¢55ary for Its compilation. We h¢ noi verified the aKurw or completeness of the accountinE records or infmtion and ttiplan&tSons yw have given to us wnd w¢ do rt therefore. expre55 any opinion on financial infornation. U$¢ of Our Report This report is mude solely to you. In aClanC¢ with ihe twms of ow engagement lettsr dated 2 February 2018. Our work has been undtaken 501¢ly to pr¢psre foryour approval the financial Snformation of Lyh Syndrome UK and sthte those marteys we have to sta io you in this repon in than¢¢ with ICAEW T¢ChnIc Rele&%e 07116AAF. To th¢ fulle51 ¢xtenl pemiitted by law. we do not aept or responsibilhty to Bnyone otherthan the tnwees for ourwork or for this reporL St8bks Thompson & Brtst•e Lowther House Kendal Cvmbrfa LA9 4DX DAte: MArL 201ts rnv#l of Inform#tloo In a¢¢ordance with the engagement letter dated 2 Februory 2018, we approve the fIn¢]£[ Infomi10ft whleh comprises The R¢¢¢ipts PynCnts Ac¢ount. alement of Ass¢ts ond Liabilities artd associated not¢5. We knoW]edge our responsibility for the financial Infornilon, in¢ludin8the 8ppropriaieness of the applicable finan¢ia] reporting frwnework as se¢ out in note l. and for providingthe accountants with all infmation and ¢XplanI(S nec¢w for its compiiatiort. Signed on behB]f of the F)ard of trustees Tsmith TNs¢¢¢ P4e5
Lynch Syndrome UK Reeeipts and Payments Aecount for the Year Ended 31 May 2025 2025 2024 Unrutrl¢ted funds R¢strlcted Reedpts DeslgDated funds TO Fund5 Tothl Voluntary Income.. GTants donations 14,798 14.798 15.519 Activiti for g¢n¢rnting fund Totsl Receipts 14.798 14,798 15.519 P4yments Adverti5in& website Ind PPS Conference Co$ts Stock Purchases and posthge P&yPal ftts Computercosrs (incl Zoom) Donations SportsmediaAgency mernbernhip Accoun¢artcy 1.677 15,179 91 1,677 15.179 91 1.801 7,895 2.588 1,922 21 1.164 1.922 21 To¢al Payments 20.054 20.054 12.284 Net of paymentslreceipts (5.256) (5256) 3.235 Transfers be¢w¢¢n fvnds C•sh ndS last year end 98.034 98.034 94.799 Cash fijnds thi5 year end 92.778 92.778 98.034 Th& note$ on page 8 lorm p8rt of thosè ftnancMI stalem9nt$. Pa8e 6
Lyneh Syndrome UK Statement of Assets and Liabilltles ss at 31 MAY 2025 Notes 2025 2024 C8sh Fundy B8relays- Current A¢¢oun¢ PayP81 Account 88.495 4283 94.680 3J54 91T18 98.034 Debtor 92.778 98.034 C*sh funds arespllt as follows: RtrIcted funds De51gnat¢d fu]Mis UDrestri¢tsd funds 92,778 98.034 Y2.778 98.034 The financial st#tements were approved and 4uthoris¢d for issue by the Board on ....... ........ ................ Sied on behalf of the boord of trnstees T Smith Th15tee Thg notes on page 8 fomi part of th889 finanrAal tatsM¢ PAge 7
Lynch Syndrome UK Notes to the A¢¢ounts for the Year Ended 31 May 2025 Note I A¢¢•untlAg poll¢ks BAJIS of pr¢pai#tloo The ryjancl stDtemeTrts have been ptred in a¢¢oth¢¢with th¢ Sth¢¢meni of Re¢omm¢nd¢d Practice- AccrKmting and Reportin8 by Chwiti¢& As a Sm1 chRrity the trusw have prepared the a¢¢ounts OTh a Receipts and PaynenL8 ba51& The f181 0Ments we pwd in SlIn& which is the fimc¢ioI curr¢n¢y of the ¢hATity. and r(xJnded to the ncaTe5t£. The $ilf1¢ttlcOUNttg1¢1es pIled in th¢ prepu4tion of thes¢ r¢]015taternents are set out Eelow. These wlicles hAve beett ethulstently applied to Jll years pr¢sent¢d wile5S Otherwise ststed. bl Golng Concern The trnstees eonsider that there are no m&terial wic¢rtainii¢s about th¢ chariiys ability to conlinue •5 A gokng eon¢em. Note 2 GrAots and Domatloni 2025 2024 Unregtrktd: Misc. donatioThs Conf¢rence Gold¢n Giving Bar¢l8yJ donations Choriu¢sTTh 9,510 1,030 4,258 8.255 932 5.395 550 387 14,798 15,519 Nrte3 Attlwltlu for f¥nds 2025 2024 Online shop income Note 4 Trustets rmunerAtion No trus$re¢¢1Vcd remunerttion OT expenses in theyear. Nofe 5 Related Party Tr191¢11s Thue were no rdaied paty tr•tL*tions in the .