Lynch Syndrome UK
Charity NUM￿ 1161840
Statement of Accounts
for the Year Ended 31 May 2025
Stables Thomp50n & Bri%oe

Lyneh Syndrome IIK
Contents Page
Stalem¢Dt of 8s%ts ond liab￿ltieS
Notes to the a¢¢ouJ

LyDeh Syndrome UK
Cbarlty Informallon
Charlty number 1161840
Tn￿tr¢s
J Martln
D Hollingworth
H Bales
H Bufton
M Cooper (resigned In July 2024)
T Smith
P Se¢rtt
RegIst￿ed office..
Linden House
9111 Main Sireet
Ingleton
Camforth
L8n¢ashire
LA6 3EB
Bankers:
BAr¢lays Bank
9 Hith8at¢
Kendal
Cumbria
LA9 4DF
Chartered Auountant
Sthbles Thompson & Bris¢o¢
Chartered Accountthts & SIAlutory Audllo
Lowther House
Lowther Str¢¢1
Kend81
Cumbria
LA9 4DX
Page I

Lyncb Syndrorne UK
Trusttts Report for the y￿r eDded 31 May 2025
Reference Ind thlministr¥tiNr infi¥tn*tiLM Set0￿ ￿ P28e I f(ffms of this reyL Th¢ fuwKiai 5th*ments eomply with
¢urrent statutory requirem¢ntsand the Sthtrment of Prxti¢e.A¢crymiingand Rryoning by Charitie& As a
erDa
The or8this8U(ffl is a charitsNe (ffganis￿ (CIO).F(KllMkni(ffl ReyAerpJ 26th May 2015. The thtritywas
e*ablithed wthrth¢ obied
l. To I￿￿01¢ and Fffotect theg£￿ h#lth ofpeqjk •AI the f￿111¢5 effettcd by Lymh S￿￿Me ftythe public ben¢fil
2. N(thine in this conAitytion shall authoTise an applic*tir￿ ofthe ofthe CIO ftrthe PurF￿￿ whieh are Mt chorithble
in accordance with Sedion 7 ofthe Chvitia andTntyw Ijwests￿i {ScO￿dI Seaion 2 of the awiti¢s A¢1
(Northem lffloTh1) 21K)8. 14Jblic benefit fixus ￿ ensyring our a¢tivitie5 a¢hieve ¢M chari18ble aim&
Publlc Be
The trustees that in planning Lynch SyndrThn¢ UK'S a￿1¥111¢& they have coA%idered how L>)Jch Syrtthome UK
has fulfilled its ch8Titsble obje¢tiv¢s The TnL#ees do Th)t identify w ly￿1)1¢ detriTrKni (Y hwm arising th¢ ¥tivilie5 of
the cherity.
The tnJy¢ees have Tefcrred to the Buidon¢e ¢LWmal￿ in the Commission'suu￿1 8uidance on public benefit
reviewing the ¢harity3 aim$ and objeaives and in planning irs fubjre In prticulor. the trw*es Consider how
a¢tiYiiies will wrtrlb￿e to the obieaives have been seL
L>Thth S￿d10m¢ UK direct beneficitries are atty pets￿ wlwj l• Lynch sYndru￿ aTrl their (￿1]IeS and friend&
t*ble 8cthltl¢s kn tht
members ore pwssionate aboutour L¥USC ￿ duca* aTKI ￿ peLyk livingwith this cottditl￿ and offering
support io IK*th themselves and their farnilies when they need it m(rt Lynch SytthrnE UK aims to ensure (or the
public L*rtefii peopl¢ and their famitie5 affected by Syndffw are provided with suppNt in the form of
Oyr vi5ioD is that all people *ffected by Lynch Synthtme in the UK have access w swthrdised scrtertittk thus enabling
prevettiion of the d¢v¢I0pn￿t of cancer and early d￿￿1$ a￿*11n8 Slnival. A ILM tht5 yearh¥s been aIn￿d at
makin8this vision ¢(me to th￿tIOn thrwgh WO￿ withNHS Eng18￿ Funkn is planKd with b)th NHS Wales and
Scodand
familie5. The charity ts dedhcated towtrds woteding farnilies and savin8liYes of those at hith lo a h¢r¢ditary
predisposilion to vsriow catkcer5 which oftetl strke at an early
If diagnosed early. we believe Lyilch SYndr￿e bave Fwitive r￿e5 which enhan￿ SLrviv&L th¢ long¢vity
and quality of life &8 well ￿the emrrtionaj wrllbeineof thr6e of us are affeaed by Lynch Syrthne.

LyDch Sy•droDK UK
Trnitees Report for the year ended 31 May 2025
The chwitys olm 15 to be the knding souKe of Infwn￿l{ffi f(r itslividuaL8athd f￿111¢$ ￿etted by Lynch
S)i)drom¢ in th¢ UL Cthtslderim& ttuSeLmMe￿ charity h&$ delivered the fdknvitsg &xivities w hehitst its dwitable
obje¢iives:
L￿ch Syndrome UK ¢wtinI￿d to work with the NHS NatELy￿ Syrthnc Oversight Gr￿p which was ¢(*hoMed
by North Thames South E8y Genomics. The w)wk with th Oversight youp has Cc￿]nUed thrw*i th¢ year and
purpose Is ￿ strumline NHS core in En8lwd Tracy Smith has t*¢n wYJrkin8 this FYOjCCt from its inception and
a￿ded a]1 meetiT¥ fxe ofthe ch8rityand w frrffl pUspx#1￿ W(rfk is still on8oÉn&
Bowel Cancer Screening Pm8raDLrne trainin8 cliniciaTr Patient tnd lived expuiaK
LS wtd Potyp05is re8itywthgwith GP'swhighiight •waruw and GP cding in wxllses w iderfify ptients.
Choic* P&ient fxingdecisi(ffj aides and
SPARC T¢sear￿ PPI as patient advout¢ WHI dwity rew¢s¢n¢￿1￿ fust meetingof th¢ researth and PPI te￿.
Lynch Narionai slee￿ Grw PPI w(¥k (ffi Niem fxing amles p￿1
MoMdance Can￿r Charity for wa￿ Presen1]￿ withNHS England and th¢N￿land Pr¢i¢¢ fw LS. Howwe ￿1 duplicate for
Welsh potients. P￿lent exFwiencu IK>W LS INA￿l*¢nI xreenin8 affects li
On8oing with th¢ Clinical tewn fLY LSN*$￿￿1 Proje4
LS AnnuDI N￿lOn￿ Conf¢Ten¢¢ in Covulty.
BSG CCALference• Presenling ￿ 5Fuknng wiem w￿l¢r￿¢S dwity*Yxkim BCSP aTh1N￿lOnal Project for LS.
Woth with Professor Neil Raianty highlightsk￿l cancers in Syndri¥n¢ ptienl&
8ndA
Ow Inforni￿1￿ service delivered thT* themtbsitr and s￿la1 mediaoffus frte • aTMI k¢y iDf(rfrnatit(L people
with Lynth Syndrnw and their familie& Medilxl professionals are also membry5 of ourgxia] media group&
Ourwebsite remains an ilDprrftaDt sw¢e of infrym￿lL￿ and tthli4 toeithtr self*rveir be Si￿pC*d
thir&party s¢rvices8nd %thite&

Lyn¢h Syndrome UK
Trustees Report for Ibe year ended 31 MAY 2025
Our hi8he* perforniin8 and most infiuentld Chonnel was the Fa¢eEK#* thich h)5 rea¢h¢d 8 membershlp or
over 3.5k people. This is a hi8h and siphlflcwtt fi8pJre ITh tern￿ orth¢ number of Indiv￿1$ thai hwe xcess to the
cont¢nL Nthnbers Contin￿ to increue at o st* r4* ￿r.
P￿nership al￿ collaiwltion is key ￿ Lynth SyrAtrryn¢ UK iYin8•ble w deliv¢r its•im* We 54mply ¢ould not wovlde
the ran8e and level of sypport Witho￿ ￿1P ofw 8rtywin8 nwnb¢r of porw Organi￿1(￿$ that K wtyk wlt]L
The trus*es m¢d thrte times Iyear and dl meetings have been ￿lIne with full artendance. With 4 &nall N8aniution and
youp ofinutees. Lyneh Syndrthne UK dou nrt thrwlh f(ffmai ITrAe￿ Ns*es me¢t
peritidlcally ￿ prOgr¢ssiJw￿l￿I motters weF*re f(ff ftythcom1￿ Me￿in
When A Irus¢¢e position becomes Avo]￿bI¢ u Tn¥￿1 fiTAly ¥pwt*h peiyk have an inierest or have
8iven their lim¢ to h¢lp Jnd wJpM LSUL W¢ then di5cuJs and nc4ninate who ￿ co￿Lder ￿ be beneficial kn the
htr5ty and offer the position.
A¢ thSJ momeni 411 trpJ*¢es 8iv¢ theIr￿ffl¢ voluntary It (ffl¢¢ 81(￿. il will bKom¢ T*¢¢SS
to look Iljrther afield (LY pecole withc¢Min skill
Thelr CLMllribuuons hJv¢ been iti¥*lu￿je
The eknrity had a defi¢it of £5250 thls >ror.
Th¢ totsl expendittwe wos £20.054 whi¢h inchvjed £15.179 forthe cimf¢r¢ne¢ thisy*.
Th¢ ¢hgrity had fimds in the bank ￿ the yearend or£￿Th.
The chority aim5 to hav¢ •wu8h fvNl3 in the iwjk to pur5u¢ the (&jects ofthe ¢h&rity, s￿h ¥ rn1>]￿ aww¢nesJ thrw8h
confer¢nc¢s lit¢rJtur¢. Given the l¥t Mi ye4r% th tr￿tff5 do feel th&t the Alm￿1 of r￿rVeY h¢id is ¢xwsiv¢.
Tr rinanclal stAitments were aprmrd and issue by BoHrd on. ... . . . .... .. ....
sI￿d on E¢h￿fOfthe iwd of tru*e¢5
Tsmlth
Trnstee
Page 4

Chartered Accountants, Report
to the Trustees of Lynch Syndrome UK
In accordwv wÉth the eLygem¢ni letter doted 2 February 2018. w¢ have wepared for your appml the firtaneiel
inforn)ation of Lyneh Syndrome UK for the year ended 3111 May 2025 which comprises The Receipts and Pa>Th¢nts
AccounL S¢8iemeni of Ass¢ts and Liabilities and ￿￿CIated notes from the entiWs a￿oUntIng records and from inforn)alion
aTKI explanttiit)ns you have 8iv¢n
As 8 practisin8 member of the Insiitute of Chartered A￿o￿l￿ttts in England and Wales (ICAEW). we are subject ￿ Its
¢thiul and other professiona] r¢quiremenL8 which are detsiled Mthin th¢ ICAEW5 r¢wJla¢ions and guidance
h¢w.'IAvww.icaew.comlenlmembershiplregUlation&slandard>an&guid8￿¢.
You have approved the fit)Qnci￿ information for the year and hav¢ acknowledged your responslbility for IL for the
appropriat¢ness ofthe firtartcio] reporting framework adopted and for providiD8 all inforniation and ¢xplarwtions nec¢55ary
for Its compilation.
We h￿¢ noi verified the aKurw or completeness of the accountinE records or infmtion and ttiplan&tSons yw have given
to us wnd w¢ do rt therefore. expre55 any opinion on financial infornation.
U$¢ of Our Report
This report is mude solely to you. In aC￿lanC¢ with ihe twms of ow engagement lettsr dated 2 February 2018. Our work has
been und￿taken 501¢ly to pr¢psre foryour approval the financial Snformation of Ly￿h Syndrome UK and sthte those marteys
we have to sta* io you in this repon in ￿than¢¢ with ICAEW T¢ChnIc￿ Rele&%e 07116AAF. To th¢ fulle51 ¢xtenl
pemiitted by law. we do not a￿ept or responsibilhty to Bnyone otherthan the tnwees for ourwork or for this reporL
St8bks Thompson & Brtst•e
Lowther House
Kendal
Cvmbrfa
LA9 4DX
DAte:
MArL 201ts
rnv#l of
Inform#tloo
In a¢¢ordance with the engagement letter dated 2 Februory 2018, we approve the fIn￿¢]£[ Infomi￿10ft whleh comprises The
R¢¢¢ipts P￿ynCnts Ac¢ount. ￿alement of Ass¢ts ond Liabilities artd associated not¢5. We ￿knoW]edge our responsibility
for the financial Inforni￿lon, in¢ludin8the 8ppropriaieness of the applicable finan¢ia] reporting frwnework as se¢ out in note
l. and for providingthe accountants with all infmation and ¢Xplan￿I(￿S nec¢w for its compiiatiort.
Signed on behB]f of the F*)ard of trustees
Tsmith
TNs¢¢¢
P4e5

Lynch Syndrome UK
Reeeipts and Payments Aecount for the Year Ended 31 May 2025
2025
2024
Unrutrl¢ted
funds
R¢strlcted
Reedpts
DeslgDated
funds
TO￿ Fund5
Tothl
Voluntary Income..
GTants donations
14,798
14.798
15.519
Activiti￿ for g¢n¢rnting fund
Totsl Receipts
14.798
14,798
15.519
P4yments
Adverti5in& website Ind PPS
Conference Co$ts
Stock Purchases and posthge
P&yPal ftts
Computercosrs (incl Zoom)
Donations
SportsmediaAgency mernbernhip
Accoun¢artcy
1.677
15,179
91
1,677
15.179
91
1.801
7,895
2.588
1,922
21
1.164
1.922
21
To¢al Payments
20.054
20.054
12.284
Net of paymentslreceipts
(5.256)
(5256)
3.235
Transfers be¢w¢¢n fvnds
C•sh ￿ndS last year end
98.034
98.034
94.799
Cash fijnds thi5 year end
92.778
92.778
98.034
Th& note$ on page 8 lorm p8rt of thosè ftnancMI stalem9nt$.
Pa8e 6

Lyneh Syndrome UK
Statement of Assets and Liabilltles ss at 31 MAY 2025
Notes
2025
2024
C8sh Fundy
B8relays- Current A¢¢oun¢
PayP81 Account
88.495
4283
94.680
3J54
91T18
98.034
Debtor
92.778
98.034
C*sh funds arespllt as follows:
R￿trIcted funds
De51gnat¢d fu]Mis
UDrestri¢tsd funds
92,778
98.034
Y2.778
98.034
The financial st#tements were approved and 4uthoris¢d for issue by the Board on ....... ........ ................
Si￿ed on behalf of the boord of trnstees
T Smith
Th15tee
Thg notes on page 8 fomi part of th889 finanrAal ￿tatsM￿¢
PAge 7

Lynch Syndrome UK
Notes to the A¢¢ounts for the Year Ended 31 May 2025
Note I
A¢¢•untlAg poll¢ks
BAJIS of pr¢pai#tloo
The ryjancl￿ stDtemeTrts have been p￿tred in a¢¢oth¢¢with th¢ Sth¢¢meni of Re¢omm¢nd¢d
Practice- AccrKmting and Reportin8 by Chwiti¢& As a Sm￿1 chRrity the trusw have prepared the
a¢¢ounts OTh a Receipts and PaynenL8 ba51& The f￿￿￿181 ￿0￿Ments we pwd in S￿lIn& which is
the fimc¢io￿I curr¢n¢y of the ¢hATity. and r(xJnded to the ncaTe5t£.
The $i￿lf1¢￿ttl￿cOUN￿ttg￿1¢1es ￿pIled in th¢ prepu4tion of thes¢ r￿￿¢]015taternents are set out
Eelow. These wlicles hAve beett ethulstently applied to Jll years pr¢sent¢d wile5S Otherwise ststed.
bl
Golng Concern
The trnstees eonsider that there are no m&terial wic¢rtainii¢s about th¢ chariiys ability to conlinue •5
A gokng eon¢em.
Note 2
GrAots and Domatloni
2025
2024
Unregtrkt*d:
Misc. donatioThs
Conf¢rence
Gold¢n Giving
Bar¢l8yJ donations
Choriu¢sTTh
9,510
1,030
4,258
8.255
932
5.395
550
387
14,798
15,519
Nrte3
Attlwltlu for f¥nds
2025
2024
Online shop income
Note 4
Trustets r*munerAtion
No trus￿$re¢¢1Vcd remunerttion OT expenses in theyear.
Nofe 5
Related Party Tr￿191¢11￿￿s
Thue were no rdaied paty tr•tL*tions in the ￿.