OpenCharities

Pnh Support

Pnh Support England And Wales

Country
England & Wales
Charity number
1161518
Status
Registered
Reporting
Up to date Last filed Nov. 12, 2025. Filing history
Registered
May 1, 2015
Legal form
CIO

Address

Address
Blackwell House
Guildhall Yard
London
EC2V 5AE

Contact

Phone
07810 352555
Email
contact@pnhuk.org
Website
pnhuk.org
Screenshot of the Pnh Support website

Activities

PNH Support provides support, information and (non medical) advice to the PNH community in England, Wales and Northern Ireland as well as advocating on their behalf.

Objects: (1) To Promote, Protect And Preserve The Physical And Mental Health Of Those Diagnosed With Paroxysmal Nocturnal Haemoglobinuria ("Pnh") Who Reside In England, Wales And Northern Ireland (Either Permanently Or Temporarily) Through The Provision Of Support, Education, Advocacy And Practical Advice; (2) To Advance The Education Of Patients With Pnh In England, Wales And Northern Ireland In Particular But Not Exclusively By The Provision Of Advice And A Point Of Contact For Newly Diagnosed Pnh Patients In England, Wales And Northern Ireland.

Classification

How
Provides Advocacy/advice/information
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
Other Defined Groups

Geography

Country
Northern Ireland
Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
March 31, 2025 Nov. 12, 2025On time £16,469 £12,495
March 31, 2024 Dec. 20, 2024On time £13,090 £1,620
March 31, 2023 Jan. 20, 2024On time £11,732 £1,446
March 31, 2022 Dec. 10, 2022On time £4,642 £1,284
March 31, 2021 Dec. 14, 2021On time £3,003 £1,016

Trustees

Name Appointed
Alexandra Naylor Feb. 27, 2020
Victoria Solovieva March 7, 2025
Virginia Bertelli Nov. 5, 2024