# PNH SUPPORT

## Details

- **Country:** England & Wales
- **Charity number:** 1161518
- **Other names:** PNH SUPPORT ENGLAND AND WALES
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** May 1, 2015
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1161518


## Contact

- **Address:** Blackwell House, Guildhall Yard, London
- **Postcode:** EC2V 5AE
- **Phone:** 07810352555
- **Email:** contact@pnhuk.org
- **Website:** www.pnhuk.org



## Activities

**Objects:** (1) TO PROMOTE, PROTECT AND PRESERVE THE PHYSICAL AND MENTAL HEALTH OF THOSE DIAGNOSED WITH PAROXYSMAL NOCTURNAL HAEMOGLOBINURIA ("PNH") WHO RESIDE IN ENGLAND, WALES AND NORTHERN IRELAND (EITHER PERMANENTLY OR TEMPORARILY) THROUGH THE PROVISION OF SUPPORT, EDUCATION, ADVOCACY AND PRACTICAL ADVICE; (2) TO ADVANCE THE EDUCATION OF PATIENTS WITH PNH IN ENGLAND, WALES AND NORTHERN IRELAND IN PARTICULAR BUT NOT EXCLUSIVELY BY THE PROVISION OF ADVICE AND A POINT OF CONTACT FOR NEWLY DIAGNOSED PNH PATIENTS IN ENGLAND, WALES AND NORTHERN IRELAND.

**Activities:** PNH Support provides support, information and (non medical) advice to the PNH community in England, Wales and Northern Ireland as well as advocating on their behalf.




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Other Defined Groups



## Areas of operation

- Northern Ireland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £16469 | £12495 | — | — |
| March 31, 2024 | £13090 | £1620 | — | — |
| March 31, 2023 | £11732 | £1446 | — | — |
| March 31, 2022 | £4642 | £1284 | — | — |
| March 31, 2021 | £3003 | £1016 | — | — |



## Trustees

- Alexandra Naylor — appointed Feb. 27, 2020
- Victoria Solovieva — appointed March 7, 2025
- Virginia Bertelli — appointed Nov. 5, 2024