REGIERED CHARITY NUMBER: 1160497 REPOR UNAUDITED FtNANCIAL STATEME BER2 FOR FIG E CHRIS BRAMHALL CHILDREN'S BRAIN EARCH C ARI Bcf Acc(Mffttartts IAd Beechley Min5kip Road Boroughbridge N(th Yorkshire YOSI 9HY
(IIARITY OMMIS510 Trustees, Annual Report for the period Period start date Period end date Ji 2023 From Section A Reference and administration details Charity name FIGHTING EPENDYMOMA: THE CHRIS BRAMHALL CHILDREN'S BRAIN TUMOUR RESEARCH CHARITY Other names charity is known by Registered charlty number (If any) 1160497 Charlty's prlnclpal address 50 CHATSWORTH PLACE HARROGATE NORTH YORKSHIRE Postcode HG1 SHR Names of the charity Irustees who manage the charity Dat•s act If not for wholè ear Tru8t•• nam• Office {If any) Narne of p•rson lor body) entitl•. toa oint trustee Ifan SARA WILSON RITA ELDER JEAN WILSON CHAIRMAN SECRETARY TREASURER JULIE PHELAN FUNDRAISER 10 12 13 14 15 16 17 18 19 20 Names of the trustees for the charlty, if any, (for example. any custodian trustees) Narne Dates acted if not for whole ear
Names and addresse5 of advisers (Optlonal Inforniatlon) of advlser Name Address ACCOUNTAKr CATHERINE STORK BEECHLEY, MINSKIP ROAD. BOROUGHBRIDGE,Y051 9HY BCT ACCOUNTAl4ifs LTD CHARrrY EXPERT ANDREW BUTLER OLD BAKEHOUSE, CORFE, TAUNTON,SOMERSET TA3 7AS BANKERS THE CO. OPERATIVE BANK P.O.BOX 250 . DELF HOUSE.SOIJTHWAY,SKELMERSDALE,WN8 6wr SOLICITORS The charlty engages the most appropriate solSdtors for the given clrojmstances and d08s not retaln a dedlcated practlce Nam• of chl•f oxacutlvo or names of 8enlor Staff mombarn {Optlonal Informatlon) Section B Structure, overnance and mana ement DorIPtIOn of th• charfty's trusts TRUST DEED Type of govemlng document How the charlty Is constituted THE CHARITY IS CONSTITUTED BY A CHARITABLE TRUST DEED DATED 17TH SEPTMBER 2013 Trustea 8electlon methods APPOINTED BY EXISTING TRUSTEES Addltlonal govornance18su•8 (Optlonal Informatlon) The charlty ha8 four Trustee8 who meet regularly (at18ast three limes 8 year In accordance vAth the crlterla Set out in The Trust Deed). At the meetlngs Trustees agree the broad strategy of the charlty Includlng rlsk management, fundraSslng. monltoring of grants and performance. The Trustees have recelved coples of Charfty Commlsslon New8-Issue 65 as Instructed All Trustees as of 8th January 2015 have slgned a Tnistee Declaratlon Fonn outlinlng Trustee ellglblllty. responslblllty and conflict of interest that the law r8qulres. The charlty Is stlll vAth the Ctroperatlve bank and updated thls Informatlon on The Charltles Commisslon webslte In accordanc8 wlth guldellnes. All Trustees give thelr tlme freely and no Trustee renumeratlon was pald In the year. The Trust888 have assessed the major rlsks to whlch the charlty Is exposed especlally In relatlon to the operations and flnances to the charlty and are satisfied that systems are In place to mltlgate any exposur8 to the major risks. You may choom to Indude addltlonaS Inforniatton, where relevant, about.. pollcles and procedure8 adopted for the Inductlon and tralning of truste8S; the ¢harlVs organlsatlon81 structure arKI any wider nelwork wlth whlch the charlty YrkS. • relationshlp th any related partles; trustees. conslderatlon of malor rlsks and the system and procedures to manage Section C Ob'ectives and activities
The otlects oftre charty are for benefrt to protect and promte the health of the wbfic in parblar by researth Into the nature .causes . diagnosÉs, preventi, treatht arKI cure of epXIrna. including the developm8nl of research into wactical appiicalions for the preventlon, treatment arml cw8 of ependynyTh arKI to provide inforynation arKI ralse Summary of tho objects of the Charlty set out In Its gov•rnlng docum•nt In relatk)n to th8 thjacllves ouljlned the Trustees have had due regard to commissicS publlc benefit gutdance en exercising any powern or duti8S to TAthi¢h the guldance then exwdslng any powers or duties to vthich the guklance Is relevant. In partlcular refwce to PB1 PB2 and P83 Guidan d0ments supplied by The Charities Commlssion. The objects of the charity ar8 to supp(xt research into the study and cure of ependym(Mna in chlldren and to rdise awareness of these matters. We ntinued throughout 2023 to fundraise for research, ralse awareness, wovwje Information and ralse public under8tandlng In keeplr¥J wlth our obJ8ctlv8s through publlcalh)ns, ebslte, 80cAal medla and charitabl8 acllvllkn and 8v8nts. Summary of th• maln actlvltlos undertaknn for th• publlc benofft In ralatlon to those objocts (Includ• wlthln thls sectlon tho statutory declaratlon that trusta68 hav• had regard to the guldanc• l•suod by the Charlty Comml88lon on publlc benofft) Addltlonal delalls of obJ•ctlvos and actlvltles (Opllonal Informatlon)
The charity has established ts grant maklng policy to athieve lis objectiV8s for the public benefft to improve the Ilves of children figming ependymoma and to seek a pemianent cure In the future. The charlty invites appltcatons for research grants from highly regarded experts and leaders in the field of paediatrlc ependymorna r8search. We liaise with the AMRC wlth a vwi to galnlng membershlp In Ihe near future. Applicants are required to fill out an extenslve fomi thal Includes provlso for feedback of results. These are In the forni of yearly reports. The Trustees revlew the grant appltcatlons yearty and the grant appllcatlon forrn p8rlodlcalFy. You may choose to Include further statements. where relevan( about: pollcy on grantmaklng; pollcy programme related Investrnent contrlbutlon made by volunteers. Sectioii D Achievements and performance
Section D Achievemeiits and performance Throughout 2023 we concentrated on building up funds as well as supporting researth. In January we donated a further £34.000 to support a Research Assistant under lead chlldren's ependnOrna expert Professor Grundy. who will Ip the Ependymoma Multidisciplinary Advisory Group by collecting data with a view to setting up a vital Clinical Trial for relapsed ependymoma in children. We expect further updates throughout 2024 on thls. We continued to raise funds by holding a successful Charity Rodd Metal event which raised £1700 Our fantsstic supporters ar(yJnd the county took part in events induding a London to Brfghton Blke Rlde, Charlty Penalty Shoot out . Wellrun 10k Marathon as well as a mutl actlvlty challenges and made very generous donalions via our donating pathway8. We recelved a generous grant of £5.500 from The Shears Foundatlon and continue to app to Foundations as and when applicable. We raised awareness by publishing our annual EPENDYHUB magazine which we distribute worfdwide in accordance with GDPR guidelines. We Were Imilted to place our Fighting Ependymoma Christrnas Tree of Inspiration at st Peterfs Church, Harrogate whlch featured over120 names of chlldren wort(hvldè affected by ependymoma whlch Is a popular event for raising awareness. The charity have been invited into the College of Benefactors at Nottingham Universty in recognition of our supporters outstanding contributlon to research. The One Lottery continues to help give a sustainable income and we continue to promote this via leaflet distribution and social media. We continue to wn ourjustgiving platfomi. We operate a text glvlng seDAc8 vla DONR. We hav8 a social medla presen(x across facebook and twitter with over 6000 followers. We have a website kindly gffted by Mr t)ortan Robinson whith is being updated. The charity is a member of The British Neuro onOgY Sodety and Es acknowledged by18TA on their website. We have iolned the Fundralslng Regulalor and strengtsned our complalnts procedure. We have updated our Safeguarding policy and established a Diversty policy all subject to review. The Trustees are satisfied wtlh the PTogress of the charity and are Indebted to all our supporters and donor5 who work tirelessly to improve outcomes for children fighting ependymoma. Summary of tha maln achlevements of the charlty durlng the year
Section E Financial review THE CHARITYS cURRETr POLICY ON RESERVES IS TO ENSURE THAT IT HAS SUFFICIENT FUNDS TO CONTINUE TO OPERATE AS PRUDENTLY AS POSSIBLE IN ORDER TO CONTINUE TO FUND RESEARCH INTO PAEDIATRIC EPENDYMOMA. Brfef statement of the charlty's poll¢y on reserwos Detalls of any funds matsrfally In doflclt Further financial revlew detalls (Optlonal Inforniatlon) THE CHARIWS PRINCIPAL SOURCE OF FUNDRAISING IS FROM PUBLIC DONATIONS. WE ALSO APPLY TO RELEVANT TRUSTS AND FOUNDATIONS WHERE APPLICABLE. WE HAVE SUPPORTED THE KEY OWECTIVES OF THE CHARITY BY ColNUING TO FUNDRAISE FOR AND RAISE AWARENESS OF PAEDIATRIC EPENDYMQMA. WE HAVE INVESTED IN MARKETING TO HELP RAISE AWARENESS AS WELL AS VITAL RUNNING COSTS NEEDED TO SUSTAIN THE CHARITf. WE MAKE GRANTS TO RECOGNISED INSTITUTIONS FOR RESEARCH INTO CHILDHOOD EPENDYMOMA IN UNE WITH OUR OBJECTIVES You may choose to Indude addiknonal infomation, wher8 relevant abouL" the charlty's prfnclpal sources of funds (Includlng any fundralslng); how expendlture has supported the key objectives of the charty, investment pollcy and objectives including any ethical investment policy adopted. Section F Other optional information Section G Declaration The trustees doclara Ihat they have approved the trustees. rgport above. Slgned on behalf of the charws trustees Signature($) Full name(s) Posftlon (eg Secretary, Chalr, SARA WILSON CHAIRMAN 8th JANUARY 2023
DEPENDENT EXA IGHTING EP NDY HE HRIS BRAMHAL RE EARCH CHARI RT TEES OF Independent exAMlner's report ¢0 the trllstees of FIGHTING EPENDYMOMA The Chris Br*mh411 Chlldren's Braln Tumour R£5earch Ch4rlty I report to the charity trU¢¢S on my examination of ihe a¢¢oun15 of ih¢ FIGHTING EPENDYMOMA The Chris Bramhall Children's Brnin Tumour Research Charity (the TTr1) for the year ended 314 December 2023. Responsibilities #nd basts of report As the charity trustees of the Trust you are responsible for the preparation of the accoun15 in accordance with th¢ requirements of th¢ Chofi¢i¢$ A¢¢ 2011 ('th¢ Act,). I repirt in respect of my examination of the Th1,9 aOunts ¢8rri¢d ou¢ under s¢ction 145 of the Act and in ¢arrying out my ¢x4mination I have follow¢d all applicable Directions given by the Charity Cornmission ¥nd¢r section 145(5Xb) of the Ac¢. Independent examiner's stotement I have compleied my examinotion. I confirn1 that no material malters have come to my attention in conneciiort with the examination giviftg me cause io believe that in any material respecl: aOUntIng records were not kept in respect of the Trust 45 r¢quired by section 130 of th¢ Act. or the accounts do not accord with those record5. or the accounis do noi comply with the applicable requiremenis concerning the forni and conlent of accovnts set out in th¢ Charilies (A¢¢ounts and Reports) Regulaiion$ 2008 other than any requirement thai the a¢¢ouni$ 8iv¢ a true and fair view which is not a matter con5idereil as part of an independent examination. I confirni that there are no other maners io which your attention should be drnwn to enable a proper understanding of the a¢¢ounts to be reached. CLStork Catherine L Stork. ACA. cfA Bcf Accouniaots Lid B¢¢ohl¢y Min5kip Road Boroughbridge North Yorkshire Y0519HY 61212024 Date: ............................................. Pa8e 5
HTING EPENDY THE CHRIS BRAMHA HILDRENE B RESEARCH CHARI STAT for the Year E L ACTI 31.12.23 Unrestricted fund 31.12.22 Total funds Notes INCOME AND ENDOWMENTS FROM t)onalions a]kl le8aCiCS 29.415 29,982 Total 29.415 29,982 EXPENDITURE ON Raising fijnds Charitabk activities Grani 2.298 4.387 35.075 6.131 Other 45 45 Total 37,418 10.563 NET INCOMEI(EXPENDITURE) (s,3) 19,419 RECONCILIATION OF FUNDS Total fvnds brou8bt forward 30,930 TOTAL FUNDS CARRIED FORWARD 22.927 30.930 CONTINUING OPERATIONS All incorne and expenditure has arisen from ¢ontinuing activilies. The no¢es fom part of these financial ststements Page 6
31.1223 31.1222 fijndg Coth * bATrk 23897 31.yjl CREDITORS f•llin8 due Tthln OM) (570) ($71) Nrr CURRENT A&SETS 21927 30,930 T(YfAL ASSETS LKSS CURRENT LIABILrriFs 21927 M930 NET ASS&T8 22.f27 30.930 VUNDS 22.Y27 3l930 TOTAL VUNDS 22,f27 30,930 w•rn on Its lthlfty. Mlo S Wliion-Thoty¢
IGHTIN HE HILDREN. IN ACCOUNTINC POLICIES Basls of pryrlng the fwp¢l•l s¢ttmethts Th¢ finan¢io1 $1oi¢ments of the charity. which is o bIle InefIt eniity under FRS 102, have been prepared in accordance with the Chorities SORP (FRS 102) 'Acwuntin8 and RryIng by Charities.. Siaiement of Recommended Prnctice applicable io ¢hari¢ies preparing their accounts in accordanc¢ wi¢h the Financial Reporting Sthndard applicable in the UK ond Republic of Ir¢lond (FRS 102) (effective l January 2015),, Finon¢i41 Rew)rfin8 Sthndard 102 Tr Financial Reportin8 Standard applicable in ihe UK ond Republic of Ireland, and the Charities A¢1 2011. Tr financial swements hawe been prepared under the historical cost ¢onv¢ntion, Intome All income is rtto8nised in the stateme of Financial Activili¢s once the Charity hus entitlement to the funds. il is probable ihai ihe income will be receitrtd and the amount can be measured reliably. Exp¢ndlture LiAbilili¢s are re¢ognis¢d as expendiwre as soon as there 1$ a legal or ¢OnStru¢¢ive obligation Commiiiin the charity to ihat expenditure. it is probable that a transfer of economic benefits will be required in settlemenl and the amouni of ¢h¢ oblig81ion ¢an Ix rne•suffd 11$b]Y. Expendilur¢ is a¢¢oun¢¢d for on an clUa1$ ba$1$ and has been Classified under h¢adings iht a8grewe all ¢0 r¢l•i¢d io the raiegory. Where ¢osts ¢annoi be directly attributed to particular headings hve been Alkled to 1vitieS on a basis consistent wilh the use of resources. GrL4 offered subje¢t io ¢ondiiion$ 7hi¢h hAve been mei at the ye end thte are noted as a commitment but I1 a¢¢rued as expenditure. Taxatlo The charity is exwnpt from thx on its thwithble a¢iiviiies. Fund aeeollntlng Unrestrtcted funds can be used in acCdnCe with the ¢hwithble objectives ai the diKretiort of ihe trustees. Resiricied funds can only be used for PArticulor restricted purpw$ wilhin the objects of the Charity. Re$triclions arise when specified by ihe donor or when funds rnid for Wli¢ular rericted purwjxs. Funher explanation of the nuTe and purFxJse ofeath fund Is inclth in the ne$ to the financial atements. RAISING FUNDS Ralslng doThilloM •nd ky¢l Jl.12.23 31.12.22 Insurance MaTkeiin8 mawial Sup&Kl Costs 2.430 1.806 1,306 2.298 4.387
TIN EPENDYMOM THE CHRIS BRAMH EARCH CHARI EN. TE TATEMENIS- TRUSTELS, REMUNERATION AND BENEFITS There were no trus¢ees' remuneration or other t¢nefJts for the y¢ar ended 31st December 2023 nor for the y¢or ended 3 1st t)ecembu 2022. Trusttts, e5peihxs There were no trwtees, expenses paid for the year ended 31A December 2023 nLY for the year ended 3 1st [k¢emr 2022. COMPARATIVFS FOR THE STATEMENT OF FINANCIAL A1vITIEs Vnrestricied fund INCOME AND ENDOWMEKfs FROM Donaiions and legocies 29,982 Total 29.982 EXPENDITURE ON Raising fund$ Ch•rll•bl¢ •¢¢lvl¢les Grant 4.387 6.131 Other 45 Tot•1 10,563 NET INCOMEI{EXPENDITURE) 19.419 RECONCILIATION OF FUJYDS Tot1 brou8hi fornrd TOTAL FUNDS CARRIED FORWARD 30.930 CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR 31.12.23 31.12.22 Other creditors 570 571
EPENDYMOMA HE CHRIS BRAMHALL CHI H CHAIUTY NANCIAL STATEMENTS- MOVEMENT IN FUNDS Nrf movement in funds At 1.1.23 At31.12.23 Unrestrieled fuJbd$ General fimd 30.930 (8.003) 22.927 TOTAL FUNDS 30.930 (8,IJ03) 22.927 Nei moyemeni in nds. included in the above are as follows- Incoming resour$ Resources Movement in exp¢nded fiJnd8 Unrestricted funds General fund 29,415 (37.418) (8.003) TOTAL FUNDS 29.415 (37,418) (8,003) Comparatives for mov¢m¢nt in funds Net movement in funds At 1.1.22 At31.12.22 Unre5tri¢ted Funds General fund 19.419 30,930 TOTAL FUNDS 19,419 30,930 Compardtive net movemeni in fund& included in the above are as follows: Incoming resources Resources Mov¢ment i expended funds Unrestrieted funds General fund 29,982 (10.563) 19A19 TOTAL FUNDS 29.982 (10.563) 19,419 RELATED PARTY DISCLOSURES There were no related party transactions for the year ended 3 1st December 2023. Page 10
FIGHTI G EPEND THE CHRIS B TUMOUR RESEARCH BRAI TEMENT OF FINANCIAL 31.1213 31.12.22 INCOME AND ENDOWMEIYTS Donatio0$ *nd Iwtles Donations Grant received 23.915 5.500 29.982 29.415 29.982 Totsl iDeomlrtg resources 29,415 29.982 EXPENDITURE Raising do4¢105 aDd leEKi Insurance Marketing material 151 2,430 2,581 Charitsble 8¢tivities Grants ¢0 iTLStilutions 34.0 5,000 Other 45 45 Support eosts in4th¢¢ Bank and gift aid charges Governantt costs P05tag¢ and Stationery Accountsncy and legal fees 709 771 1.590 576 582 1.672 2.166 Totsl Tesour¢e5 ¢spend¢d 37.418 10.563 Net (ejpettditsttylneome (8.LX13) 19,419 Pa8ell