2022-12-31-accounts

REGISTERED CHARITY NUMBER: 1160497

REPORT OF THE TRUSTEES AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31ST DECEMBER 2022 FOR

FIGHTING EPENDYMOMA THE CHRIS BRAMHALL CHILDREN'S BRAIN TUMOUR RESEARCH CHARITY

BCT Accountants Ltd Beechley Minskip Road Boroughbridge North Yorkshire YO51 9HY

(HARllY MMISSION Trustees. Annual Report for the period Period start date Period end date 2022 2022 From Section A Reference and administration details Charity name FIGHTING EPENDYMOMA.. THE CHRIS BRAMHALL CHILDREN'S BRAIN TUMOUR RESEARCH CHARITY Other names charity is known by Registered charity number (if any} 1160497 Charity's principal address 50 CHATSWORTH PLACE HARROGATE NORTH YORKSHIRE Postcode HG1 SHR Name5 of the charity trustees who manage the charity Dates acted rf not for whole èar TNstee name Office lif any) Name of person lor body) entitlo oint trusta• ifan SARA WILSON RITA ELDER JEAN WILSON CHAIRMAN SECRETARY TREASURER JULIE PHELAN FUNDRAISER 10 12 13 14 15 16 17 18 19 20 Names of the trustees for the charity, if any, (for example, any custodian trustees) Name Dates acted if not for whole ear

Names and addresses of adviseT5 (Optional information} e of adviseT Name Address CATHERINE STORK BEECHLEY, MINSKIP ROAD. BOROUGHBRIDGE.Y051 9HY ACCOUNTANT BCT ACCOUNTANTS LTD CHARITY EXPERT ANDREW BUTLER OLD BAKEHOUSE, CORFE, TAUNTON,SOMERSET TA3 7AS BANKERS THE CO- OPERATIVE BANK P.O.BOX 250 , DELF HOUSE,SOUTHWAY.SKELMERSDALE.WN8 6WT SOLICITORS The charity engages the most appropriate solicitors for the given circumstances and does not relain a dedicated praclice Name of chief executive or names of senior stsff members (Optional information) Section B Structure, overnance and mana ement Description of the charity's trusts TRUST DEED Type of governing document How the charity is constituted THE CHARITY IS CONSTITUTED BY A CHARITABLE TRUST DEED TH DATED 17 SEPTMBER 2013 Trustee selection methods APPOINTED BY EXISTING TRUSTEES Additional governance issues {Optional information) The charity has four Trustees who meet regularly {at least three times a year in accordance with the criteria set out in The Trust Deed). At the meetings Trustees agree the broad strategy of the charity including risk management, fundraising, monitoring of grants and perforTnance. The Trustees have received copies of Charity Commission News -Issue 65 as instructed All Trustees as of 8th January 2015 have signed a Trustee Declaration Form outlining Trustee eligibility, responsibility and conflict of inlerest that the law requires. The charity is still with the Co-operative bank and updated this infornation on The Charities Commission website in accordance with guidelines. All Trustees give their tirne freely and no Trustee renumeration was paid in the year. The Trustees have assessed the major risks to which the charity is exposed especially in relation to the operations and finances lo the charity and are satisfied thal systems are in place lo mitigale any exposure lo the major risks. You may ch005e to include additional information, where relevant, about: policies and procedures adopted for the induction and training of trustees., the charity's organisational structure and any wider network with which the charity works; relationship with any related parties., trustees. consideration of major risks and the system and procedures to manage them. Section C Ob"ectives and activities

The objects of the charity are for the benefft to protect and promote the health of the public in particular by research into the natur8 ,causes , dlagnosls, prevention. treatrnent and cure of ependymoma. including the development of research into practical applications for the prevention. treatment and Cure of ependymoma and to provide infonnatlon and rabe public understanding of such matters. Summary of the objocts of the charity set out In Its govornlng document In relatlon to the objectives outllned the Trustees have had due regard to the Commissions public benefit guidance when exercising any powers or duties to which the guidance when exercising any powers or dutl8S to whlch the gUIdan￿ is relevant. In partlcular reference to PB1 PB2 and PB3 Guidanc8 documents supplled by The Charities Commission. The objects of the dwrlty are to support research Into the study and cure of ependymoma In chlldren and to raise awareness of these matters. We contlnued throughout 2022 to fvndraise for research, ralse awareness, provlde Inforniatkyi and ralsé publlc undèrstandlng In keeplng wlth our objectives through publlcatlons, webslte, soclal medla and charitable activi￿eS and events. Summary of the maln actlvltles undèrtakgn for the publlc benofft In relatlon to th080 objects (Include wtthln th18 8OCtlon tho Statutory do¢laratlon that trustee8 havo had rngard to tha guldanco 18suad by the Charlty Commlsslon on publlc b•nefft) Addltlonal detalls of obj9￿1V•S and actlvltlos (Optlonal Infomiatlon)

The ch￿lty has established its grant making FKJliry to achieve its objectives for the public benefft to improve th8 lives of children fightlng ependYM￿ and to seek a pennanent ￿re in the future. The charlty invites applications for research grdnts from highly regarded experts and leaders in the fiekl of paediatric epentyThoma research. We liaise with the AMRC with a view to gaining membership in the near future. Applicants are required to fill out an extensive fo￿￿ that includes proviso for feedback of resuli& These are in the form of yearly reports. Thè Trustees revthy the grant app￿tiOnS yearty and the grant applicatton forni per￿1￿lly. You may choose to indude further statements. where r818vant, about: policy on granbmaklng; pollcy programm8 related investrnent. contrlbution made by voluntews. Section D Achievements and performance

Section D Achievenients and perforniance Throughout 2022 we concentraled on building up funds as well as supporting research. In January Y￿ donat8d a furth8r £5,000 to support a Research Asslstant under lead children's ependymoma expert Professor Grundy. who will help the Ependymoma Multidisciplinary Advisory Group by collectlng data with a vlew to setting up a vital Clinlcal Trlal for relapsed ependymoma in chlldren. We contlnued to raise funds by holdirvJ a successful Charfty Rockl Metal event vthich raised £1500. Our fantastic supporters around the country took part in events including a Boxing Day Dlp and Dress Down Days as V￿11 as a muti activity challenge and made very generous donations via our donatlng pathways. We received a gènerous grant of £5,000 from The Liz and Tery Bramall Foundation and continue to appty to Foundatlons as and when appllcable. We ralsed awareness by publlshlng our annual EPENDYHUB magazine which we dlstrlbute In accordanc8 wlth GDPR guldelines. We dkl our Fighting Ependymoma Chrlstmas Tree of Inspiration at St Peterfs Church, Ha￿gate whlch featured over 80 names of children worldwide affected by ependymoma which 18 a popu18r 8vent for ralslng awaren8SS. We Jolned the One Lottery whlch helps to glv8 a sustalnable Income and conUnu8 to promote thls vla leatlet dlstribution and social media. We have partner8d wlth Skyllne for The Brlghton 2 London Charfty Blke Rkle next year vlth a team of 10+ . W8 contlnue to run our lustglvlng platfomi but the vlrglnmoneyglvlng platfonn Is no longer runnlng. We operate a text gfvlng servlce vta DONR. W8 hav8 a Boclal medla presence acro88 facebook and Iwltt8r wlth over 6000 followers. We have a v￿bSIte klndly glfted by Mr Dorlan Roblnson whlch Is belng updated. The charfty Is a member of The BrStl8h Neuro oncology So¢lety and Is acknowledged by18TA on thelr webslte. We have lolned the Fundraislng Regulator and strengthened our complaints procedure. We have updated our Safeguardlng pollcy and 88tsbllshed a Dlverslty pollcy all subject to r8vlew. Th8 Trustees are satlsfled wlth the progr8ss of th8 charlty and are Indebted to all our supporters and donors vtho VKJrk t5relessly to improv8 outcomes for chlldren fightlng ependymorna. Summary of the main a¢hlevements of tho charlty durlng the year

Section E Financial review THE CHARITY'S CURRENT POLICY ON RESERVES IS TO ENSURE THAT IT HAS SUFFICIENT FUNDS TO CONTINUE TO OPERATE AS PRUDENTLY AS POSSIBLE IN ORDER TO CONTINUE TO FUND RESEARCH INTO PAEDIATRIC EPENDYMOMA. Brief statement of the Charity's policy on reserves Details of any funds materially in deficit Further financial review details (Optional information) THE CHARITY'S PRINCIPAL SOURCE OF FUNDRAISING IS FROM PUBLIC DONATIONS. WE ALSO APPLY TO RELEVANT TRUSTS AND FOUNDATIONS WHERE APPLICABLE. WE HAVE SUPPORTED THE KEY OBJECTIVES OF THE CHARITY BY CONTINUING TO FUNDRAISE FOR AND FiAISE AWARENESS OF PAEDIATRIC EPENDYMOMA. WE HAVE INVESTED IN MARKETING TO HELP RAISE AWARENESS AS WELL AS VITAL RUNNING COSTS NEEDED TO SUSTAIN THE CHARITY. WE MAKE GRANTS TO RECOGNISED INSTITUTIONS FOR RESEARCH INTO CHILDHOOD EPENDYMOMA IN LINE WITH OUR OBJECTIVES You may choose lo include additional information, where relevant about.. the charity s principal sources of funds (including any fundraisingl.. how expenditure has supported the key objectives of the charity; investment policy and objectives including any ethical investment policy adopted. Section F Other optional information Section G Declaration The trustees declare that they have approved the Irustees, report above. Signed on behalf of the charily's trustees Slgnature(s} Full name(s) Position (eg Secretary. Chair. elc) SARA WILSON CHAIRMAN Date 18th JANUARY 2023

FIG EPENDYM MA THE CHRIS BRAMHALL CHILDREN R RESEARCH CHARITY IVITIES 31.12.22 Unrestricted fund 31.12.21 TIAal funds N￿¢S INCOME AND ENtM)WMENTS FROM Donations and legacies 29.982 21281 TotAI 29.982 22,281 EXPENDITURE ON Raising funds Charitmble #eiiviti Gt￿t 4J87 2.117 6.131 43.867 Other 45 70 Total 10,563 46.054 NET INCOMFJ(EXPENDITURE) 19.419 (23.773) RECO]YCILIATION OF FUNDS Total funds brougbt forwrd 35284 TOTAL FUNDS CARRIED FORWARD 30.930 CONTINUING OPERATIONS All in¢ome and expenditswe has arisen frorn continuingactivities. The notes forni part ofthese financial atements Page 6

ILDREN'S B 31.1122 31.1221 CURRKNT ASS 31.JQl 11081 CREDITORS Amounts fallkn8¢kn wknln on¢ y¢ (571) ($70) Nrr CURRErfr A&8ETS 30.930 T¢yfAL A&8US LESSCURRENT UABILrii 30.930 NET ASSETS 30.930 ' PUP4 30.930 TOTAL FUNDS 30.930 h•lf by.

FIGHTING THE CHRIS BIiAMHALL CHILD R RESEARCH CHARITY NOTES TO THE FINANCI EMEN th Year Ended 3 ISE December 2tr22 ACCOUNTING POLICIES Bsls of preparing the fiDneil st•i¢w¢nts The fina￿la] slatements of ihe charity. which is a public t￿efit entity under FRS 102. have been prepared in accordance wilh lhe Charities SORP (FRS 102) 'Accouniing and Rewning by Charities: Stsi¢meni of Recommended Practice applicable to ¢hari¢ies prep9ring iheir accounts in accordance with the Financial ReE￿ing Stsrtdard applicabk in the UK and Republic of Ireland (FRS 102) (effective l January 2015)., Financial Reporting Standard 102 Tr Financial Rewrting Standard applicable in the UK and Republi¢ of Ireland and the Charitie5 Act 2011. Tr rinaneial ￿atements have been prepared under the historical cost Ivention. Income All in¢ome i8 re¢ognis¢d in th¢ Ststemet)i of Financial AciiviLies once the ctjariry has eniitlement io the it is probable that the incorne will be r¢¢¢ived and th¢ amouE)¢ can be measured reliably. Expenditure Liabilities are recognised as ex￿￿1(vre as S(￿ as there is a legal or constructive obligdtion committing the ¢harity io that expenditure. il is probabl¢ that a transfer of economic 1￿Merits will be required in settlement ond the amount of the obligation can be measured reliably. Expenditure is accounted for on an a(cn￿lS basis and has been ¢I￿lfied under headings thai aggregate all COM Tetated to the category. Where costs cannoi be directly attributed to POrti¢ulgr h¢adirtgs h8¥e been all￿ted ¢0 ￿1vIll¢S on a basis consisrent with the us¢ of Grdnts offered subject to conditions which have not been met at the year end date are ￿ted as a commiimeni but noi accrued os expenditu￿. Taxatlo The ¢harity is exempi from tax on its ¢haritablc a¢iiviti¢& Fund aetounting Unresrricted funds Can b¢ used in accordw with the charithble obj¢aiv¢s at th¢ dimiiiy) of the ¢nste¢s. Restricied funds ean onty be uswj for particulor r¢5tri¢ted purpos¢s withirA the objects of the charity. Restrictions aTiS¢ when specified by the th>nor or when fimds are raised for particular restricted purposes. Further explanation of the nawre and puryjose of each fvnd is included in the nos to the financial sta￿￿ents. RAISING FUNDS Raising donations and iegaeles 31.1222 31.1221 Insurdnce Markeiing ma*rial Supwt Costs ?.430 1,806 .233 733 4.387 2,117 Page 8

FIGH ENDYMOMA THE CHRIS BRAMHALL CHILD TUMOUR RESEARCH CHARITY Is TRUSTEES, REMUNERATION AND BENEFITS There were no trusteeg, remuneraiion or other benefits for the year et)ded 3 Deeember 2022 nor for the year ended 3 Isi December 2021. Tr￿$¢¢¢$, expenses There were no truste¢s' ¢xp¢n$¢s paid for the y¢ar ¢nd¢d 3 1st De¢ember 2022 nor for ihe yeor ended 315t December 2021. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES Unrestricted fund INCOME AND ENDOWMENTS FROM Donations 8nd legacie5 22,281 Tot&1 22.281 EXPENDITURE ON Raising funds Ch8rltgble gctlvltles Grant 2.117 43.867 Other 70 Total 46.054 NET INCOMEI(EXPENDITURE) {23.773) RECONCILIATION OF FUNDS Total funds brought fonv8rd 35,284 TOTAL FUNDS CARRIED FORWARD CREDITORS: AMOUNTS FALLIJYC DUE WITHIN ONE YEAR 31.12.22 31.12.21 Other creditors 571 370 Pa8c 9

GHTIN EPENDYMO THE CHRIS BRAMHALLC TUMOUR RESEARCH CHA E FINANCI TEMEN r 2022 MOVEMENT IN FUNDS N¢1 movement in fund$ At 1.1.22 At31.12.22 Unrestrkted tsnds General fund 19,419 30,930 TOTAL FUNDS 19,419 30,930 Net movernent in funds. included in the above are os follows: Incoming re50urceg Resour¢e$ Movement in expended funds Ufjrejtrltted fund$ G¢n¢ral fund 29.982 {10.563) 19,419 TOTAL FUNDS 29.982 (10.563) 19,419 Comp8rntlvei for mov¢m¢n¢ Nei movement in funds At I,1,21 At31.12.21 Unrejtrlcted Fundj Genernl fund 35.284 (23.773) TOTAL FUNDS 35.284 (23,773) Comparative n¢t rnov¢ment in funds, in¢lud¢d in ihe above are as follows: I￿ornIng resources Resources Movemeni I expended funds UThrutrl¢¢ed fvnds General fvnd 22281 (46,054) 123,773) TOTAL FUNDS 22,281 (46.054) (23,773) RELATED PARTY DISCLOSURES There were no related party transactions for the year ended 3 1st December 2022. Page 10

FIGHTING EP DYMOMA ED TA EMENT NAN 31.12.22 31.12.21 INCOME AND ENDOWMENTS Don4tloBs and lega¢ Donations 29,982 22,281 Total lueomlng resour¢es 29.982 22281 EXPENDITURE IslTrg doTrtlons •Trd le8acles Insurance Marketin8 material 2.430 1233 2.581 1.384 Charlt4bl¢ ¢¢lvltles Grnnts io instilulion$ 5.000 43297 Other Licences and fees 45 70 Support costs Fln•n¢¢ Bank and gift aid char8es Govern4n¢e c￿1% Posra8¢ and $ro1ion¢ry Accountanry and legal fees 771 406 1,590 576 327 570 2.166 897 Total mourees expended 10.563 46.054 Incomel(expendlture) 19,419 (23.773> This page does not fonn part of the slatutory financial statements Pagell

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF FIGHTING EPENDYMOMA THE CHRIS BRAMHALL CHILDREN'S BRAIN TUMOUR RESEARCH CHARITY

Independent examiner's report to the trustees of FIGHTING EPENDYMOMA The Chris Bramhall Children's Brain Tumour Research Charity

I report to the charity trustees on my examination of the accounts of the FIGHTING EPENDYMOMA The Chris Bramhall Children's Brain Tumour Research Charity (the Trust) for the year ended 31st December 2022.

Responsibilities and basis of report

As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').

I report in respect of my examination of the Trust's accounts carried out under section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent examiner's statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

1. accounting records were not kept in respect of the Trust as required by section 130 of the Act; or

2. the accounts do not accord with those records; or

3. the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.

I confirm that there are no other matters to which your attention should be drawn to enable a proper understanding of the accounts to be reached.

Catherine L Stork, ACA, CTA BCT Accountants Ltd Beechley Minskip Road Boroughbridge North Yorkshire YO51 9HY

Date: ............................................. C L Stork