| Trustees' Annual Report for the period | Trustees' Annual Report for the period | Trustees' Annual Report for the period | Trustees' Annual Report for the period | Trustees' Annual Report for the period | Trustees' Annual Report for the period | Trustees' Annual Report for the period | ||
|---|---|---|---|---|---|---|---|---|
| From | Period start date | To | Period end date | |||||
| 01 | Sept | 2024 | 31 | Aug | 2025 |
Section A Reference and administration details
Charity name Microtia UK
Other names charity is known by
Registered charity number (if any) 1158688
Charity's principal address Microtia UK 20-22 Wenlock Road London United Kingdom Postcode N1 7GU
Names of the charity trustees who manage the charity
| 1 2 3 4 |
Trustee name | Ofce (if any) | Dates acted if not for whole year |
Name of person (or body) enttled to appoint trustee (if any) |
|---|---|---|---|---|
| Elizabeth Compton- Jones |
||||
| Hana Thalova Salussolia |
||||
| Alison Daniels | ||||
| James Bailey |
Names of the trustees for the charity, if any, (for example, any custodian trustees)
Name Dates acted if not for whole year
TAR
1
2024-2025
Names and addresses of advisers (Optonal informaton)
| Type of adviser | Name | Address |
|---|---|---|
| Professor of Nanotechnology and Regenerative Medicine Paediatrician Consultant Plastic Surgeon and Lead Clinician for the Department of Plastic Surgery Consultant Plastic Surgeon and Lead Clinician for Plastic Surgery (NHS Lothian) Chartered Clinical Psychologist (NHS Lothian) Professor of Auditory Neuroscience Consultant Plastic Surgeon Consultant Plastic and Reconstructive Surgeon (Royal Free Hospital) Consultant Audiovestibular Physician and Paediatrician (GOSH) Adult with microta Adult with microta |
Alex Seifalian Markiewicz Consultant Neil Bulstrode Ken Stewart Catriona Mofat David McAlpine Walid Sabbagh Greg O'Toole Sebastan Hendricks Celia Flatley-Priddey Geof Eggleston |
University College London,Gower St, London WC1E 6BT Chelsea and Westminster Hospital Great Ormond Street Hospital,London WC1N 3JH Edinburgh Sick Children’s Hospital Edinburgh Sick Children’s Hospital University College London,Gower St, London WC1E 6BT Royal Free Hospital, London NW3 2QG Royal Free Hospital, London NW3 2QG Great Ormond Street Hospital,London WC1N 3JH |
| Name of chief executve or names of senior stafmembers (Optonal informaton) |
||
| Non-executve director of fundraising and communicatons |
Tina Rycrof | East Yorkshire |
TAR
2
2024-2025
Secton B Structure, governance and management
Descripton of the charity’s trusts
Type of governing document
Trust Deed
- (eg. trust deed, constitution)
How the charity is constituted
Trust
- (eg. trust, association, company)
Trustee selection methods
(eg. appointed by, elected by)
Additonal governance issues (Optonal informaton)
You may choose to include additional information, where relevant, about:
-
policies and procedures adopted for the induction and training of trustees;
-
the charity’s organisational structure and any wider network with which the charity works;
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relationship with any related parties;
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trustees’ consideration of major risks and the system and procedures to manage them.
We employ Tina for 8.5 days per month to support the coordination of our fundraising activities, submit grant applications, manage our social media channels and website, and carry out a range of administrative tasks essential to the day-to-day running of the charity.
She consistently seeks to enhance her knowledge and effectiveness in the role. This includes proactively identifying and enrolling in relevant free training opportunities, as well as developing her skills and expanding her professional network to further strengthen the charity’s impact and sustainability.
We have now appointed a new trustee to the board who has a lived experience of being born with microtia.
We have 11 non-executive advisors that support us with keeping up to date in the various fields of microtia, including: hearing technology advancement, ear reconstruction or prosthetic methods, psychological perspectives and understanding visible difference.
Our partnerships with leading hearing technology companies Cochlear, Oticon, and MED-EL have continued. They have once again supported our London event, as well as contributing to our charity website and the production of key printed resources. We maintain close collaboration with them by sharing updates on their latest technologies and events with our wider community, helping to keep families informed and connected. In addition, these companies generously provide free merchandise and informational leaflets, which enables us to distribute valuable resources to families at no cost, further extending our support.
We continue to maintain strong and positive working relationships with a range of partner organisations, including CSSEF, Auditory Verbal UK, Changing Faces, Goldenhar UK, National Deaf Children's Society, CLAPA, Face Equality International (which we proudly sponsor), and BATOD. These partnerships continue to create valuable opportunities for collaboration and shared impact.
Similarly, we work closely with Centre for Appearance Research and Aston University to support and contribute to ongoing research studies, further strengthening our role within the wider community and evidence base.
TAR
3
2024-2025
Secton C Objectves and actvites
| Summary of the objects of the charity set out in its governing document Summary of the main actvites undertaken for the public beneft in relaton to these objects (include within this secton the statutory declaraton that trustees have had regard to the guidance issued by the Charity Commission on public beneft) |
To relieve the physical and psychological needs of those with microta in the UK by helping them to make informed choices about their treatment optons and by facilitatng the disseminaton of research results relatng to the conditon. |
|---|---|
| Our London event took place in June 2025.We ofered actvites, workshops, food and a range of talks from medical professionals and those born with microta to talk about lived experiences for a small free. Free tckets were also available. The day was a success again, with hearing aid companies sponsoring the day as well. We held an aucton for a signed Chelsea footballto help raise money. We atended the Natonal Acoustc Devices Conferencein October 2024. The day was spent networking with other medical professionals and families. Organisaton of the West Midlands Safari Park event for September 2025 began. The plan is to have approx. 50 people atend the event. Tina atended the James Lind Alliance Childhood Deafness and Hearing Loss Priority Setng Workshop at Aston University.She has spent the day sharing her lived experiences and our charity members' experiences to help shape future research. Charity members were able to come together in Armagh, Northern Ireland in April 2025.The event was supported by Microta UK and the NDCS atended the day as well. Charity members requested local buildings to light up in orange in November 2024.A range of families volunteered their tme to ask local buildings to light up in orange for microta awareness day. The Microta UK website was contnuously updated,and we asked charity members for new images to add to the website. The website provides free and up to date informaton for people with microta. Sectons include about us, hearingaids,inspiratonal life stories,and informaton about fundraisingevents. |
TAR
2024-2025
4
Our Parents’ Guide was updated in 2025 and changed to a guide for all, not just new parents. Free informaton booklets distributed. This includes our Parents Guide and Reconstruction booklet, as well as our charity leaflets to help raise awareness and give support to families. We also provide a range of free resources from other places that will benefit our charity. Some of these are also downloadable from the website for free. Charity awareness raising merchandise distributed to raise awareness of the condition within the community and to raise funds for Microtia UK. The items also help to promote positive self-image (including car stickers, pin badges, books, teddies, clothing, Christmas cards, bracelets, trolley coins, bags). Virtual monthly meetngs with families and professionals contnued. Our monthly virtual meet continued, where families could come together to share stories, ask questions, get to know one another and speak with medical professionals. This has been a great success, and we will continue to do the virtual meets. Tina atended a Golderhar charity trip away to meet other families. The Goldenhar charity gave Tina the chance to speak with others and have a table at their event.
Additonal details of objectves and actvites (Optonal informaton)
You may choose to include further We have supplied information, collection boxes, and free merchandise to help statements, where relevant, about: our community raise funds and awareness at their sponsored events. We have had fundraisers pay for their own fundraising events and raise money for the policy on grant making; charity with our support. We have supplied charity members with a free policy programme related fundraising vest or t-shirt as well as giving them a winner’s medal and certificate. investment; We have volunteers who have offered their services and support to organise contribution made by volunteers. smaller mingles and raise positive awareness by offering to speak at events.
Section D Achievements and performance
TAR
2024-2025
5
Section D Achievements and performance
| Summary of the main achievements of the charity during the year |
Blue Sky CAD sponsored our charity again for 2025.The company director has microta himself and is keen to support our charity which we are very thankful for. This year, his sponsorship helped us to create new adult fundraising t-shirts, as well as buying more children t-shirts and adult running vests. We were able to obtain four charity places for the London Marathon 2026 and for three years afer that. Contnued support and growing as a charity.To help achieve this, we set up a TikTok account to share videos to raise more awareness on the popular social media channel. We also used Canva to create more engaging images for our social media pages. We contnue to grow and develop every year as a charity, supportng more families than ever before. We are keen to contnue reaching more people by raising more awareness about microta. Free informaton leafet handed out for new parents/carerswhich outlines what to expect when you have a baby with microta and where to go for support. Medical professionals also share this leafet with their patents. It is downloadable from the website. We contnue using all our social media accountswith a growing number of followers. This includes the use of Instagram, YouTube, Twiter and Facebook. We also set up a free 0300 charity phone number. We contnued our link with Run for Charity to help us fnd new fundraising events.Linking with them means we have less unflled places. Partcipants set up fundraising pages which were shared on social media. We fully support those who would like to fundraise or help raise awareness for our charity. We give out medals / trophies to thank our fundraisers. Daily support and advicefor our charity members. This is given through our online support group, social media accounts, email and telephone. We also have our monthly virtual meets which have been a great success. We have received sponsorship from hearing aid companies, alongside incredible support from individuals who have taken on a variety of challenges to raise funds for us. In additon, we have benefted from generous one-of donatons from companies throughout the year, as well as match-funding contributons. |
|
|---|---|---|
TAR
6
2024-2025
Section E Financial review Brlef statement ol the ¢harbis pollcy on resep Detalls of any funds materlally In deficlt Further financl?I revlew detalls Ioptlonal Informatlon) You maychoost to include additioftal inforrnat¢on. where relevant aboul: •Y. the charivs principal sources of funds lirbcludlnKany fundralsingl: how expenditufe has supported key objectNes of the charity.. invernent policy and objectNes includlfi8 any ethical investrnent policy adopted. section F Other oprionèl Information Section G Declaration ThetNMees dedire th•t thry h•ve •ppro¥ed tht trusteeg. rewt above. ned on behall ofthe thrWstrustees Sl8naturelsl Full namelsl pos10 leiSetretsry* Chalr, ettl TAR 2024-2025
Secton G Declaraton
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Full name(s) Date
Positon (eg Secretary, Chair, etc)
Secton G Declaraton
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Full name(s)
Positon (eg Secretary, Chair, etc)
Date
TAR
8
2024-2025
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Independent examiner's report on the accounts
Section A Independent Examiner’s Report
Report to the Charity Name MICROTIA UK trustees/ members of
31 August 2025 Charity 1158688 On accounts for the no (if year ended any) Set out on pages (remember to include the page numbers of additional sheets)
I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended 31/08/2025.
Responsibilities and As the charity trustees of the Trust, you are responsible for the basis of report preparation of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).
I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner's statement
I have completed my examination. I confirm that no material matters have come to my attention (other than that disclosed below *) in connection with the examination which gives me cause to believe that in, any material respect:
-
accounting records were not kept in accordance with section 130 of the Act or
-
the accounts do not accord with the accounting records
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached.
- Please delete the words in the brackets if they do not apply.
1
October 2018
IER
Signed: Ceredig Jones
Date: 29/06/2026
Name: CEREDIG JONES FCA
Relevant ICAEW professional qualification(s) or body (if any): Address: THE COOMBES, NELL HILL BISHOPSTONE, SWINDON SN6 8PW
Section B Disclosure
Only complete if the examiner needs to highlight matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).
2
October 2018
IER
Give here brief details of any items that the examiner wishes to disclose .
3
October 2018
IER