| Trustees' Annual Report for the period | |||||||
| From | Period start date | To | Period end date | ||||
| 01 | Sept | 2020 | 31 | Aug | 2021 |
Section A Reference and administration details
Charity name Microtia UK
Other names charity is known by
Registered charity number (if any) 1158688
Charity's principal address
Microtia UK 20-22 Wenlock Road London United Kingdom Postcode N1 7GU
Names of the charity trustees who manage the charity
| 1 2 3 |
Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee (if any) |
|---|---|---|---|---|
| Elizabeth Compton- Jones |
||||
| Hana Thalova Salussolia |
||||
| Alison Daniels |
Names of the trustees for the charity, if any, (for example, any custodian trustees)
Name Dates acted if not for whole year
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Names and addresses of advisers (Optional information)
| Type of adviser | Name Address |
Name Address |
|---|---|---|
| Alex Seifalian Markiewicz_Consultant_ Neil Bulstrode Ken Stewart Catriona Moffat David McAlpine Walid Sabbagh Greg O'Toole Sebastian Hendricks Celia Flatley-Priddey |
University College London,Gower St, London WC1E 6BT Chelsea and Westminster Hospital Great Ormond Street Hospital,London WC1N 3JH Edinburgh Sick Children’s Hospital Edinburgh Sick Children’s Hospital University College London,Gower St, London WC1E 6BT Royal Free Hospital, London NW3 2QG Royal Free Hospital, London NW3 2QG Great Ormond Street Hospital,London WC1N 3JH |
|
| Professor of Nanotechnology and | ||
| Regenerative Medicine | ||
| Paediatrician | ||
| Consultant Plastic Surgeon and Lead Clinician | ||
| for the Department of Plastic Surgery | ||
| Consultant Plastic Surgeon and Lead Clinician | ||
| for Plastic Surgery (NHS Lothian) | ||
| Chartered Clinical Psychologist (NHS Lothian) | ||
| Professor of Auditory Neuroscience | ||
| Consultant Plastic Surgeon | ||
| Consultant Plastic and Reconstructive Surgeon | ||
| (Royal Free Hospital) | ||
| Consultant Audiovestibular Physician and | ||
| Paediatrician (GOSH) | ||
| Adult with microtia | ||
| Name of chief executive or names of senior staff members (Optional information) |
||
| Tina Rycroft Non-executive director of fundraising and communications at Microtia UK |
||
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Section B Structure, governance and management
Description of the charity’s trusts
Type of governing document
Trust Deed
- (eg. trust deed, constitution)
How the charity is constituted
Trust
- (eg. trust, association, company)
Trustee selection methods
- (eg. appointed by, elected by)
Additional governance issues (Optional information)
You may choose to include additional information, where relevant, about:
-
policies and procedures adopted for the induction and training of trustees;
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the charity’s organisational structure and any wider network with which the charity works;
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relationship with any related parties;
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trustees’ consideration of major risks and the system and procedures to manage them.
As a small charity we have not felt it necessary to appoint any other trustees. This is something that we will consider in the future as the charity grows.
We employ Tina 6 days per month to support with co-ordinating our fundraising events, to apply for grants, to manage our social media and other administrative tasks linked to the day-to-day running’s of the charity. She keeps a log of work completed and continues to develop her skills and network.
We have 11 non-executive advisors that support us with keeping up to date in the various fields of microtia, including: hearing technology advancement, ear reconstruction methods, psychological perspectives and understanding visible difference.
We have developed a relationship with several private hearing aid technology companies (Cochlear, Oticon, MED-EL and BHM-Tech) who have continued to sponsor some of our events and the printing of some resources. MED-EL are now our sponsor of our adult fundraising vests as well. We continue working alongside of them – advertising their latest technology and events with the wider community. The hearing aid companies also send us free merchandise from their companies which allowed us to post out hearing awareness information for free to families. Our main event was cancelled again in June 2021 due to the pandemic so the free information from the hearing aid companies enabled us to continue supporting families.
We have developed good working relationships with other charities e.g. Auditory Verbal UK, Changing Faces, National Deaf Children’s Society, CLAPA, Face Equality National and BATOD and these have led to various continued collaborations.
Section C Objectives and activities
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Summary of the objects of the charity set out in its governing document
Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)
To relieve the physical and psychological needs of those with microtia in the UK, in particular by helping them to make informed choices about their treatment options and by facilitating the dissemination of research results relating to the condition. We received funding from The National Lottery and Community Grant. We were awarded £9,678 in March 2021 which will be used to create a new booklet for those starting in education. This is an ongoing project which we aim to complete Spring 2022. The new resource will be a valuable additional. We spent the remainder of the COVID-19 grant on hand sanitiser, face Masks and 2 x ukulele sessions. The grant has been extremely helpful to ensure our charity members are taking extra precautions during the pandemic. The creation of a new children’s book was completed. Our new and exciting children’s book was published in 2021. It was made available on our charity website, Amazon, and Waterstones. Large scale events held in London for children and adults with microtia were sadly cancelled again due to the pandemic. We have begun discussions about holding our main event in London in June 2022. To replace the loss of the events, we upped our support online by engaging more with the community and checking in on them. In December 2020 we held an online Christmas party for the children and adults and we also held a charity raffle. Our support to families has been available throughout the pandemic and we continue to supply free PPE. We are also arranging a smaller event aimed at the teenagers and adults born with microtia to encourage them to engage with each other and the charity. The Microtia UK website was updated and backed up which provides free and up to date information for people with microtia. Sections include resources, frequently asked questions, inspirational life stories, information about fundraising events. Free information leaflet distributed for new parents/carers. It outlines what to expect when you have a baby with microtia and where to go for support. It is also downloadable from the website for free. Charity awareness raising merchandise distributed to raise awareness of the condition within the community and to raise funds for Microtia UK (including: Christmas cards, bracelets, trolley coins, bags).
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Toy elephant mascot distributed to raise awareness of microtia and to promote positive self-image. Our new larger microtia elephant with hearing aids has been well received by our community.
Children’s books about Bone Anchored Hearing Aid Surgery and introducing microtia to young children distributed to parents and medical professionals. Printing was funded by two private hearing aid technology companies. We are starting talks about tweaking one of the books and officially publishing it. To be continued in our next annual report.
We continued our relationships with audiology departments to inform them of our charity and to encourage them to sign post patients to our charity and support group. We also sent out more copies of our New Parent Guide, BAHA book and Similarities and Differences book across clinics in England, Scotland and Ireland and this is something that we will continue doing.
We have applied for the following grants:
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Applied to the Big Lottery Community for £9,678 to help us create a new school booklet aimed at those starting in education and what to do once you leave. We received this grant.
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Applied for the Work for Good charity for a grant for the school booklet but we were unsuccessful with them.
Aftershokz have donated another bone conduction headset for the
community to trial. Members of the community can trial the headphones for a period of time and then be given a discount code if they wish to purchase some.
Additional details of objectives and activities (Optional information)
You may choose to include further statements, where relevant, about:
We have supplied collection pots, teddies, wrist bands, pens and pencils to help our community raise funds at their sponsored bike rides, bake sales, dress down days and more. We have had quite a few fundraisers pay for their own fundraising events and raise money for the charity with our support. We have supplied them with a free fundraising vest or t-shirt as well as giving them a winner’s medal and certificate.
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policy on grantmaking;
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policy programme related investment;
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contribution made by volunteers.
Volunteers have helped us to fundraise through a range of means, such as: sports events, merchandise, cake sales and jewellery sales. They have also helped us to gain one off donations from various sources.
We have volunteers who have offered their services as and when needed and we hope to involve more volunteers during 2022.
Volunteers have helped organise small mingles with the support from ourselves.
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Section D Achievements and performance
| Summary of the main achievements of the charity during the year |
Continued support and growing as a charitydespite a worldwide pandemic. We are proud to have supported so many families during the most isolating and challenging times that many have faced. We hope that 2022 will see things return to how they were pre-covid. New sponsorship from MED-EL and Cheezelo.We are really grateful to find new sponsors for our fundraising adult vests and children’s t-shirts. The sponsorship enabled us to buy a new batch of sizes which we give for free to any fundraiser/event. The new children’s book has been published and is currently available on the charity website, Amazon and Waterstones. Our website has been updated throughout the year and we continue to create newslettersto help share our news and latest information to more people. The website includes upcoming fundraising events and to share community news. Website is accessed regularly by medical professionals, new parents, and our community members. Free information leaflet handed out for new parents/carerswhich outilines what to expect when you have a baby with microtia and where to go for support. Medical professionals also share this leaflet with their patients. It is downloadable from the website. We continue using all of our social media accountswith a growing number of followers. This includes the use of Instagram, YouTube, Twitter and Facebook. Awareness raised through a range of fundraising events.Participants set up fundraising pages which were shared on social media. We have started to see an increase in fundraising events and those wanting to support our charity. Charity awareness raising merchandise distributedto raise awareness of the condition within the community and to raise funds for Microtia UK (including: Christmas cards, bracelets, trolley coins, bags, toy elephants). We ordered more medals. We have continued using our new machine to make our own charity branded clothing throughout the year. Daily support and advicefor our members given through our online support group,social media accounts and email. We have also introduced a mobile |
|---|---|
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Section D Achievements and performance
number for people to call us on or send a WhatsApp message.
Microtia UK have been involved with the following fundraising events in 20202021:
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1 place at The Queen Elizabeth Olympic Park – Total raised £180. After deductions - £132.
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31 places at the 5k Inflatable Run, held all over the UK – Total raised £4,707. After deductions - £3,870.
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5 places at the ASICS event – Total raised £619. After deductions - £379.
We have had continuous support, and this has grown during 2021 as restrictions from COVID-19 were lifted. We received sponsorship from the hearing aid companies and we have had many people take on a range of challenges to raise funds for us, including The Duke of Edinburgh Award. We have also received large one-off donations from companies throughout the year. Amazon has donated on a regular basis from those who have picked us as their chosen charity and are shopping with them. We have also given a trophy to our top fundraiser of the year for 2020 as well as an additional trophy to a fundraiser who raised £6,862 by running 105 miles. We have more events booked in for 2021 – 2022, including skydives, The Royal Parks Half event and more.
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Section E Financial review Reserves held in bank account as (ash. Brief statement ofthe ¢harWs policy on reserves Details of any fund5 matertally In deficlt None Furtherflnandal review d2tails (Optional inforniatlon) You may thoosÈ to include additional information. where relevant about= the charitys princryyal Sources of fund5 (including any fundraisingl.. how expenditure has supported the key obfrertives of the charity,. investment policy and objectives including any ethiral investment policy adopted. Section F Other optional information Section G De¢laration The trustees &ecl3re that they have appyoved the trustee5' report above. S4%naturelsl AAI namelsl <L4 7-+t Posltlon leg Se(xetary. Chalr. ettl TAR 2tr2(k202T TAR 2020-2021
CHARITY COMMISSION FOR ENGLAND AND WALES Receipts and payments accounts CC16a For the p•riod frnm To 31Ki8r2021 Section A Receipts and payments Unrnstri¢tod funds Rstri¢t•d fund• Endowm•nt fund• Tot•1 lund• Last year A1 R•¢•i i)on8tk)ns & Funwn Intom• 43,317 43,517 ,381 107 Sub wt4i(GnS inconx% for ARJ 4J.324 A2 Asmt •nd InvMtm•nt •al••, Sub tool 43,324 43.J24 SO.488 AJP ?1,115 21.115 Cost ot sw Sub .945 20,•4S $7,813 A4 A•••t and Inv••tm•nt pur¢ha•M. (••• t•bb•) Sub fof•l 29.M5 A948 57,813 Net of rn¢•lptsifpaJin•nts) AS Trnnsf•rs bèt%*en fund5 A6 Cash fund• last yr •nd Cash fvnds this yv•r end 13 13,379 76,054 76.054 ¥9.433 76,054 $8.7Qg CC%X R1 ISSI 2WY2022
Section B Statement of assets and liabilities at the end of the period Unrestrict¢¢l funds llèstricted funds Endowment funds n•ar•AI£ 81 Cash fvnd¥ 9.4J3 Total cash lunds 89,433 LInrostrt•d fundg R•strictgd funds to nearest£ Endowm•nt funds to neaTe5t£ C*tsils B2 Other monetary assets Futhj lo Curr•rstv4lu• O•tails B3 In¥trnent a•vl• Fund towhkh CuTr•nt v•lu• IDn•l Detsils Cu¥t It)piloMri B4 A•••ts rotalned for th• hanty'$ own u Fund ltsw11b Amount du• wh•n Ju4 Detai15 B6 Liabilitle• SuTred by one or h¥0 fre$ lin beh&M ol all tlslÉ$ Signgture Print Name Date of roval Hana Salusso 23thQ022 CCLX R2 accounts ISSI 23m5r2oz2
CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on the accounts Section A Independent Examiner's Report Report to the trusteesl members of 4icooTIA On accounts for the year ended Charity no (rf any) 11St68g 3 1 Xo? I Set out on pages I report to the trustees on my examination of the accounts of the above charity {Ihe Trusf) for the year ended 31 C4 ¥ 2¢LI. Responsibilities and As the charity trustees of the Trust, you are respsIble for the preparation basis of report of the accounts in accordance wilh the requirements of Ihe Charities Act 2011 (Yhe Acr). I report in respect of my examination of the Trust's accounts carried out under section 145 of the 2011 Act and in carrying out my examination. I have foltowed the applicable Directions given by the Charity Commission under section 14515){b) of the Act. I have completed my examination. I confim that no material matters have come to my attention (other than that disclosed below "} in connection with the examination which gives me cause to believe that in, any material respecti accounting records v4ere not kept in accordance with section 130 of the Act or the accounts do not accord with th8 accounting records Independent examinerfs ststement I have no concems and have come across no other matters in Connection with the examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached. P18ase delete the words in the brackets rf they (lo not apply. Date: Signed: 2510 Name: Relevant professional qualification(s) or body (rf any): Address: AJELL HILL stsJ1fS0LJ, i J k¢0 PSW.4J October 2018 IER
Section B Disclosure Only complete if the examiner needs to highlight matters of concem (see CC32, Independent examination of charity accounts: directions and guidance for examiners). Give here brief details of any items that the examiner wishes to disclose. October 2018 IER