|||||||||
|---|---|---|---|---|---|---|---|
||**Trustees' Annual Report for the period**|||||||
|**From**|Period start date|||**To**|Period end date|||
||01|Sept|2020||31|Aug|2021|



Section A                        Reference and administration details 

**Charity name** Microtia UK 

**Other names charity is known by** 

**Registered charity number (if any)** 1158688 

**Charity's principal address** 

Microtia UK 20-22 Wenlock Road London United Kingdom **Postcode** N1 7GU 

**Names of the charity trustees who manage the charity** 

|1<br>2<br>3|**Trustee name**|**Office (if any)**|**Dates acted if not for**<br>**whole year**|**Name of person (or body)**<br>**entitled to appoint trustee (if**<br>**any)**|
|---|---|---|---|---|
||Elizabeth Compton-<br>Jones||||
||Hana Thalova<br>Salussolia||||
||Alison Daniels||||



**Names of the trustees for the charity, if any, (for example, any custodian trustees)** 

**Name Dates acted if not for whole year** 

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## **Names and addresses of advisers (Optional information)** 

|**Type of adviser**|**Name**<br>**Address**|**Name**<br>**Address**|
|---|---|---|
||Alex Seifalian<br>Markiewicz_Consultant_<br>Neil Bulstrode<br>Ken Stewart<br>Catriona Moffat<br>David McAlpine<br>Walid Sabbagh<br>Greg O'Toole<br>Sebastian Hendricks<br>Celia Flatley-Priddey|University College London,Gower St,<br>London WC1E 6BT<br>Chelsea and Westminster Hospital<br>Great Ormond Street Hospital,London<br>WC1N 3JH<br>Edinburgh Sick Children’s Hospital<br>Edinburgh Sick Children’s Hospital<br>University College London,Gower St,<br>London WC1E 6BT<br>Royal<br>Free<br>Hospital,<br>London<br>NW3 2QG<br>Royal<br>Free<br>Hospital,<br>London<br>NW3 2QG<br>Great Ormond Street Hospital,London<br>WC1N 3JH|
|_Professor of Nanotechnology and_|||
|_Regenerative Medicine_|||
|_Paediatrician_|||
|_Consultant Plastic Surgeon and Lead Clinician_|||
|_for the Department of Plastic Surgery_|||
|_Consultant Plastic Surgeon and Lead Clinician_|||
|_for Plastic Surgery (NHS Lothian)_|||
|_Chartered Clinical Psychologist (NHS Lothian)_|||
|_Professor of Auditory Neuroscience_|||
|_Consultant Plastic Surgeon_|||
|_Consultant Plastic and Reconstructive Surgeon_|||
|_(Royal Free Hospital)_|||
|_Consultant Audiovestibular Physician and_|||
|_Paediatrician (GOSH)_|||
|Adult with microtia|||
||||
||||
|**Name of chief executive or names of senior**<br>**staff members (Optional information)**|||
|Tina Rycroft<br>Non-executive director of fundraising and<br>communications at Microtia UK|||
||||



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## **Section B              Structure, governance and management** 

## **Description of the charity’s trusts** 

Type of governing document 

Trust Deed 

- (eg. trust deed, constitution) 

How the charity is constituted 

Trust 

- (eg. trust, association, company) 

Trustee selection methods 

- (eg. appointed by, elected by) 

## **Additional governance issues (Optional information)** 

You **may choose** to include additional information, where relevant, about: 

- policies and procedures adopted for the induction and training of trustees; 

- the charity’s organisational structure and any wider network with which the charity works; 

- relationship with any related parties; 

- trustees’ consideration of major risks and the system and procedures to manage them. 

As a small charity we have not felt it necessary to appoint any other trustees. This is something that we will consider in the future as the charity grows. 

We employ Tina 6 days per month to support with co-ordinating our fundraising events, to apply for grants, to manage our social media and other administrative tasks linked to the day-to-day running’s of the charity. She keeps a log of work completed and continues to develop her skills and network. 

We have 11 non-executive advisors that support us with keeping up to date in the various fields of microtia, including: hearing technology advancement, ear reconstruction methods, psychological perspectives and understanding visible difference. 

We have developed a relationship with several private hearing aid technology companies (Cochlear, Oticon, MED-EL and BHM-Tech) who have continued to sponsor some of our events and the printing of some resources. MED-EL are now our sponsor of our adult fundraising vests as well. We continue working alongside of them – advertising their latest technology and events with the wider community. The hearing aid companies also send us free merchandise from their companies which allowed us to post out hearing awareness information for free to families. Our main event was cancelled again in June 2021 due to the pandemic so the free information from the hearing aid companies enabled us to continue supporting families. 

We have developed good working relationships with other charities e.g. Auditory Verbal UK, Changing Faces, National Deaf Children’s Society, CLAPA, Face Equality National and BATOD and these have led to various continued collaborations. 

## **Section C                    Objectives and activities** 

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**Summary of the objects of the charity set out in its governing document** 

**Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)** 

To relieve the physical and psychological needs of those with microtia in the UK, in particular by helping them to make informed choices about their treatment options and by facilitating the dissemination of research results relating to the condition. **We received funding from The National Lottery and Community Grant.** We were awarded £9,678 in March 2021 which will be used to create a new booklet for those starting in education. This is an ongoing project which we aim to complete Spring 2022. The new resource will be a valuable additional. **We spent the remainder of the COVID-19 grant** on hand sanitiser, face Masks and 2 x ukulele sessions. The grant has been extremely helpful to ensure our charity members are taking extra precautions during the pandemic. **The creation of a new children’s book was completed.** Our new and exciting children’s book was published in 2021. It was made available on our charity website, Amazon, and Waterstones. **Large scale events held in London for children and adults with microtia were sadly cancelled again due to the pandemic.** We have begun discussions about holding our main event in London in June 2022. To replace the loss of the events, we upped our support online by engaging more with the community and checking in on them. In December 2020 we held an online Christmas party for the children and adults and we also held a charity raffle. Our support to families has been available throughout the pandemic and we continue to supply free PPE. We are also arranging a smaller event aimed at the teenagers and adults born with microtia to encourage them to engage with each other and the charity. **The Microtia UK website was updated and backed up** which provides free and up to date information for people with microtia. Sections include resources, frequently asked questions, inspirational life stories, information about fundraising events. **Free information leaflet distributed for new parents/carers.** It outlines what to expect when you have a baby with microtia and where to go for support. It is also downloadable from the website for free. **Charity awareness raising merchandise distributed** to raise awareness of the condition within the community and to raise funds for Microtia UK (including: Christmas cards, bracelets, trolley coins, bags). 

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**Toy elephant mascot distributed** to raise awareness of microtia and to promote positive self-image. Our new larger microtia elephant with hearing aids has been well received by our community. 

**Children’s books about Bone Anchored Hearing Aid Surgery and introducing microtia to young children** distributed to parents and medical professionals. Printing was funded by two private hearing aid technology companies. We are starting talks about tweaking one of the books and officially publishing it. To be continued in our next annual report. 

**We continued our relationships with audiology departments to inform them of our charity** and to encourage them to sign post patients to our charity and support group. We also sent out more copies of our New Parent Guide, BAHA book and Similarities and Differences book across clinics in England, Scotland and Ireland and this is something that we will continue doing. 

## **We have applied for the following grants:** 

- Applied to the Big Lottery Community for £9,678 to help us create a new school booklet aimed at those starting in education and what to do once you leave. We received this grant. 

- Applied for the Work for Good charity for a grant for the school booklet but we were unsuccessful with them. 

**Aftershokz have donated another bone conduction headset** for the 

community to trial. Members of the community can trial the headphones for a period of time and then be given a discount code if they wish to purchase some. 

## **Additional details of objectives and activities (Optional information)** 

You **may choose** to include further statements, where relevant, about: 

We have supplied collection pots, teddies, wrist bands, pens and pencils to help our community raise funds at their sponsored bike rides, bake sales, dress down days and more. We have had quite a few fundraisers pay for their own fundraising events and raise money for the charity with our support. We have supplied them with a free fundraising vest or t-shirt as well as giving them a winner’s medal and certificate. 

- policy on grantmaking; 

- policy programme related investment; 

- contribution made by volunteers. 

Volunteers have helped us to fundraise through a range of means, such as: sports events, merchandise, cake sales and jewellery sales. They have also helped us to gain one off donations from various sources. 

We have volunteers who have offered their services as and when needed and we hope to involve more volunteers during 2022. 

Volunteers have helped organise small mingles with the support from ourselves. 

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5 



Section D                      Achievements and performance 

|**Summary of the main**<br>**achievements of the charity during**<br>**the year**|**Continued support and growing as a charity**despite a worldwide pandemic.<br>We are proud to have supported so many families during the most isolating and<br>challenging times that many have faced. We hope that 2022 will see things<br>return to how they were pre-covid.<br>**New sponsorship from MED-EL and Cheezelo.**We are really grateful to find<br>new sponsors for our fundraising adult vests and children’s t-shirts. The<br>sponsorship enabled us to buy a new batch of sizes which we give for free to<br>any fundraiser/event.<br>**The new children’s book has been published and is currently available on the**<br>**charity website, Amazon and Waterstones.**<br>**Our website has been updated throughout the year and we continue to create**<br>**newsletters**to help share our news and latest information to more people. The<br>website includes upcoming fundraising events and to share community news.<br>Website is accessed regularly by medical professionals, new parents, and our<br>community members.<br>**Free information leaflet handed out for new parents/carers**which outilines<br>what to expect when you have a baby with microtia and where to go for<br>support. Medical professionals also share this leaflet with their patients. It is<br>downloadable from the website.<br>**We continue using all of our social media accounts**with a growing number of<br>followers. This includes the use of Instagram, YouTube, Twitter and Facebook.<br>**Awareness raised through a range of fundraising events.**Participants set up<br>fundraising pages which were shared on social media. We have started to see<br>an increase in fundraising events and those wanting to support our charity.<br>**Charity awareness raising merchandise distributed**to raise awareness of the<br>condition within the community and to raise funds for Microtia UK (including:<br>Christmas cards, bracelets, trolley coins, bags, toy elephants). We ordered more<br>medals. We have continued using our new machine to make our own charity<br>branded clothing throughout the year.<br>**Daily support and advice**for our members given through our online support<br>group,social media accounts and email. We have also introduced a mobile|
|---|---|



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Section D                      Achievements and performance 

number for people to call us on or send a WhatsApp message. 

Microtia UK have been involved with the following fundraising events in 20202021: 

- 1 place at The Queen Elizabeth Olympic Park – Total raised £180. After deductions - £132. 

- 31 places at the 5k Inflatable Run, held all over the UK – Total raised £4,707. After deductions - £3,870. 

- 5 places at the ASICS event – Total raised £619. After deductions - £379. 

We have had continuous support, and this has grown during 2021 as restrictions from COVID-19 were lifted. We received sponsorship from the hearing aid companies and we have had many people take on a range of challenges to raise funds for us, including The Duke of Edinburgh Award. We have also received large one-off donations from companies throughout the year. Amazon has donated on a regular basis from those who have picked us as their chosen charity and are shopping with them. We have also given a trophy to our top fundraiser of the year for 2020 as well as an additional trophy to a fundraiser who raised £6,862 by running 105 miles. We have more events booked in for 2021 – 2022, including skydives, The Royal Parks Half event and more. 

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Section E
Financial review
Reserves held in bank account as (ash.
Brief statement ofthe ¢harWs
policy on reserves
Details of any fund5 matertally In
deficlt
None
Furtherflnandal review d2tails (Optional inforniatlon)
You may thoosÈ to include
additional information. where
relevant about=
the charitys princryyal Sources
of fund5 (including any
fundraisingl..
how expenditure has
supported the key obfrertives of
the charity,.
investment policy and
objectives including any ethiral
investment policy adopted.
Section F
Other optional information
Section G
De¢laration
The trustees &ecl3re that they have appyoved the trustee5' report above.
S4%naturelsl
AAI namelsl
<L4 7-￿￿+t
Posltlon leg Se(xetary. Chalr. ettl
TAR
2tr2(k202T
TAR
2020-2021

CHARITY COMMISSION
FOR ENGLAND AND WALES
Receipts and payments accounts
CC16a
For the p•riod
frnm
To
31Ki8r2021
Section A Receipts and payments
Unrnstri¢tod
funds
R*stri¢t•d
fund•
Endowm•nt
fund•
Tot•1 lund•
Last year
A1 R•¢•i
i)on8tk)ns & Funw*n
Intom•
43,317
43,517
,381
107
Sub wt4i(Gn￿S inconx% for
ARJ
4J.324
A2 Asmt •nd InvMtm•nt •al••,
Sub tool
43,324
43.J24
SO.488
AJP
?1,115
21.115
Cost ot sw
Sub
.945
20,•4S
$7,813
A4 A•••t and Inv••tm•nt
pur¢ha•M. (••• t•bb•)
Sub fof•l
29.M5
A948
57,813
Net of rn¢•lptsifpaJin•nts)
AS Trnnsf•rs bèt%*en fund5
A6 Cash fund• last y￿r •nd
Cash fvnds this yv•r end
13
13,379
76,054
76.054
¥9.433
76,054
$8.7Qg
CC%X R1 ISSI
2WY2022

Section B Statement of assets and liabilities at the end of the period
Unrestrict¢¢l
funds
llèstricted
funds
Endowment
funds
n•ar•AI£
81 Cash fvnd¥
9.4J3
Total cash lunds
89,433
LInrostr￿t•d
fundg
R•strictgd
funds
to nearest£
Endowm•nt
funds
to neaTe5t£
C*tsils
B2 Other monetary assets
Futhj lo
Curr•rstv4lu•
O•tails
B3 In¥￿trnent a•vl•
Fund towhkh
CuTr•nt v•lu•
IDn•l
Detsils
Cu¥t It)piloMri
B4 A•••ts rotalned for th•
hanty'$ own u
Fund ltsw1￿1b
Amount du•
wh•n Ju4
Detai15
B6 Liabilitle•
SuTred by one or h¥0 fr￿￿e$ lin
beh&M ol all t￿l￿slÉ￿$
Signgture
Print Name
Date of
roval
Hana Salusso
23thQ022
CCLX R2 accounts ISSI
23m5r2oz2

CHARITY COMMISSION
FOR ENGLAND AND WALES
Independent examiner's
report on the accounts
Section A
Independent Examiner's Report
Report to the trusteesl
members of
4icooTIA
On accounts for the year
ended
Charity no
(rf any)
11St68g
3 1 Xo? I
Set out on pages
I report to the trustees on my examination of the accounts of the above
charity {Ihe Trusf) for the year ended 31 C4 ¥ 2¢LI.
Responsibilities and As the charity trustees of the Trust, you are resp￿sIble for the preparation
basis of report of the accounts in accordance wilh the requirements of Ihe Charities Act
2011 (Yhe Acr).
I report in respect of my examination of the Trust's accounts carried out
under section 145 of the 2011 Act and in carrying out my examination. I
have foltowed the applicable Directions given by the Charity Commission
under section 14515){b) of the Act.
I have completed my examination. I confim that no material matters have
come to my attention (other than that disclosed below "} in connection with
the examination which gives me cause to believe that in, any material
respecti
accounting records v4ere not kept in accordance with section 130 of
the Act or
the accounts do not accord with th8 accounting records
Independent
examinerfs ststement
I have no concems and have come across no other matters in Connection
with the examination to which attention should be drawn in order to enable a
proper understanding of the accounts to be reached.
P18ase delete the words in the brackets rf they (lo not apply.
Date:
Signed:
2510
Name:
Relevant professional
qualification(s) or body
(rf any):
Address:
AJELL HILL
stsJ1￿fS0LJ,
i J k¢0 PSW.4J
October 2018
IER

Section B
Disclosure
Only complete if the examiner needs to highlight matters of concem (see CC32,
Independent examination of charity accounts: directions and guidance for
examiners).
Give here brief details of
any items that the
examiner wishes to
disclose.
October 2018
IER