OpenCharities

Cure Eb (formerly Known As Sohana Research Fund)

Sohana Research Fund, Srf

Country
England & Wales
Charity number
1158672
Status
Registered
Registered
Sept. 25, 2014
Legal form
CIO

Address

Address
10 HUNTINGDON STREET
LONDON
N1 1BU

Contact

Activities

SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.

Objects: For The Public Benefit, (a) The Advancement Of Health And (b) The Relief And Assistance Of People In Need Who Are Suffering From Epidermolysis Bullosa, In Particular But Not Exclusively By Making Grants: (1) To Fund Medical Research And/or Clinical Trials Anywhere In The World For The Purpose Of Discovering, Developing And Delivering Treatments For Epidermolysis Bullosa; And (2) To Fund The Treatment Of Patients Who Are Suffering From Epidermolysis Bullosa. Nothing In This Constitution Shall Authorise An Application Of The Property Of The CIO For The Purposes Which Are Not Charitable In Accordance With Section 7 Of The Charities And Trustee Investment (scotland) Act 2005 Or Section 2 Of The Charities Act (northern Ireland) 2008.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
People With Disabilities, Other Defined Groups

Areas of operation

Country
France, Spain, United States
Region
Throughout England And Wales

Finances

Period end Income Expenditure Assets Employees
Dec. 31, 2024 £4,850,763 £1,410,954 £5,125,552
Dec. 31, 2023 £730,918 £1,552,666 £1,685,743
Dec. 31, 2022 £1,000,863 £1,122,145 £2,507,444 1
Dec. 31, 2021 £1,565,380 £858,839 £2,628,726
Dec. 31, 2020 £796,938 £759,771 £1,922,185

Trustees

Name Appointed
Duncan Wales June 26, 2017
James Douglas Collins Sept. 25, 2014
Michael Georges De Lathauwer Sept. 25, 2014
Professor David Kelsell Sept. 25, 2014
Rachel Lesiter Oct. 17, 2022
Sharmila Vijayanthi Nikapota Sept. 25, 2014
Tazim Hall Sept. 25, 2014