# CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND)

## Details

- **Country:** England & Wales
- **Charity number:** 1158672
- **Other names:** SOHANA RESEARCH FUND, SRF
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Sept. 25, 2014
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1158672


## Contact

- **Address:** 10 HUNTINGDON STREET, LONDON
- **Postcode:** N1 1BU
- **Phone:** 02034058433
- **Email:** contact@cure-eb.org
- **Website:** www.cure-eb.org



## Activities

**Objects:** FOR THE PUBLIC BENEFIT, (A) THE ADVANCEMENT OF HEALTH AND (B) THE RELIEF AND ASSISTANCE OF PEOPLE IN NEED WHO ARE SUFFERING FROM EPIDERMOLYSIS BULLOSA, IN PARTICULAR BUT NOT EXCLUSIVELY BY MAKING GRANTS: (1) TO FUND MEDICAL RESEARCH AND/OR CLINICAL TRIALS ANYWHERE IN THE WORLD FOR THE PURPOSE OF DISCOVERING, DEVELOPING AND DELIVERING TREATMENTS FOR EPIDERMOLYSIS BULLOSA; AND (2) TO FUND THE TREATMENT OF PATIENTS WHO ARE SUFFERING FROM EPIDERMOLYSIS BULLOSA. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 OR SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008.

**Activities:** SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities, Other Defined Groups



## Areas of operation

- France
- Spain
- United States
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £4850763 | £1410954 | £5125552 | 0 |
| Dec. 31, 2023 | £730918 | £1552666 | £1685743 | 0 |
| Dec. 31, 2022 | £1000863 | £1122145 | £2507444 | 1 |
| Dec. 31, 2021 | £1565380 | £858839 | £2628726 | 0 |
| Dec. 31, 2020 | £796938 | £759771 | £1922185 | 0 |



## Trustees

- Duncan Wales — appointed June 26, 2017
- JAMES DOUGLAS COLLINS — appointed Sept. 25, 2014
- MICHAEL GEORGES DE LATHAUWER — appointed Sept. 25, 2014
- PROFESSOR DAVID KELSELL — appointed Sept. 25, 2014
- Rachel Lesiter — appointed Oct. 17, 2022
- SHARMILA VIJAYANTHI NIKAPOTA — appointed Sept. 25, 2014
- TAZIM HALL — appointed Sept. 25, 2014