PMSF UK AGM MINUTES
& ANNUAL REPORT
Meeting held on Sun 15[th] Nov 2020, 10:00am via Zoom
1
AGM Agenda and Minutes
| # | Agenda Item | Summary outcomes |
|---|---|---|
| 1 | Welcome / Introductions | • Attendees were – Penny Bradley (T) (Chair), Alison Turner (T), Giles Bradley (T), Lynda White (T), Natalie James (T), Sarah Bickerstaffe, Victoria Feddersen, Kat Pond, Sylvia Millership • 5 trustees, shown as (T) above, in attendance |
| 2 | Regional Membership Status | • Now 281 region 6 members in UK/Ireland (as of Fri 13/11) (was 244 at last AGM in Nov 2019) |
| 3.1 | List of achievements in 2020 | • See page 3: Achievements per Annual Report reviewed – to be circulated to the PMSF UK community. Examples of appreciation from families receiving awards included on pages 4-5. |
| 3.2 | Plans for 2020-2021 | • See page 3: Plans confirmed per Annual Report |
| 4 | Review and approval of accounts | • See pages 6-8: Accounts agreed for external independent opinion and subsequent submission to the Charity Commission |
| 5 | Presented for agreement: • Confirmation of Charity Objectives • Confirmation of trustees • Review of Charity Policies |
• New 3-year term as Trustees confirmed for Alison Turner and Giles Bradley. • Confirmation that limit to permitted number of Trustee terms to be removed. • No other changes to objectives or policies |
| 6 | Any other business | • Participation by 139 UK runners in Run Like a Hero event in October 2020 • UK/I Family Day to be planned for 2022. Will review pandemic situation and continued rotation to avoid taking place in the same year as the Global Conference • Regional Family Days to be held in 2021 if circumstances allow • PMSF UK to complete registration with Virtual Runner (per Kat Pond nomination) • Reminder via FB and email to UK/I families to use Amazon Smile and Easyfundraising to raise funds for PMSF UK • Follow-up with Kyle’s Angels to take place separately • Next UK/I Regional Rep meeting to be held via Zoom |
2
Agenda Item 3: Key achievements for 2019-2020 and plans for 2021
Annual Report to Charity Commission – Section D
Section D
Achievements and In our 6[th] full year as a charity , we passed a milestone of over £0.25m in donations since we started. Performance – to 30-SepOur community has grown to 281 people with PMS now (was just over 100 when we began in 2014). 2020 Highlights for this financial year include:
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Record levels of financial Awards to UK/I families – over £31,000 in the year to 30-Sept 2020
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This includes prioritizing financial support for people with PMS during the Covid-19 pandemic through two sets of ‘Covid-19 awards’ in April and July 2020 where we awarded in total approx. £12,000 through 120 awards
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Continued to make our regular awards at the end of September 2019, January 2020 and May 2020.
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No regional gatherings , due to the pandemic – so will plan to support meet-ups next year / as soon as circumstances allow
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Despite the pandemic’s impact, our financial donations were higher than any of the previous 3 years. Total donations were just under £41,000 , incl. a £5,000 grant from Genetic Disorders UK to help fund our 2019 UK/I Family Day.
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Raised funds and awareness again in 2019-2020 through the sale of Seasonal Cards .
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Provided donations of £2,000 to PMSF and to PMSF Research (co-ordinated by the Global Foundation)
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Continued to maintain the PMSF UK website as a key source of information for families and supporters.
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Continued social media presence through Facebook (448 page likes / followers)
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Continued to support UK-based EU AIMS research initiative
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Plans for 2020-2021 • At year-end, we have a healthy cash balance – so that our awards programme can continue in 2021
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We will resume family days (likely regional in 2021, if circumstances permit) and will plan for a next UK-wide meet-up now 2022.
3
Agenda Item 3: Feedback from families on PMSF UK Awards ~~si ts~~
----- Start of picture text -----
Oh wow!
Thank you so
much. We’re
over the
moon!
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4
Agenda Item 3: Feedback from families on PMSF UK Covid Awards
Lovely surprise
5
Agenda Item 4: Financial Highlights for 2020
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Fundraising / donations have actually been higher this year, despite Covid-19, than the previous 3 years
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Out-goings have focused on maximising awards to families
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We will plan to hold a full UK/I Family Day in 2022 to remain in alternate years with the Global Conference
6
Agenda Item 4: Financial Results Detail
Annual Report to Charity Commission – Section E
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Donations at a 4 year high – mainly on a direct basis or via JustGiving (see separate analysis of donations)
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Awards to families, incl. Covid-19 awards, the highest we have ever made
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Merchandise costs and sales, and expenses, reduced to reflect PL merchandise ordered directly by UK supporters rather than consolidated
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Healthy cash balance at end of Sep 2020 (in readiness to support latest round of Awards)
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We are run on a voluntary basis and have no committed out-goings (no taxes, investments, property costs or employees), so able to keep running during the pandemic
| This Year (2020) 1-Oct-19 to 30-Sep-20 |
2019 1-Oct-18 to 30-Sep-19 |
|
|---|---|---|
| Cash | ||
| Openingcash balance | £22,126.53 | £40,545.30 |
| Closingcash balance[bank & PayPal] | £27,459.32 | £22,126.53 |
| Receipts | £41,137.72 | £33,356.44 |
| Donations | £40,745.85 | £26,875.21 |
| Restrictedfunds(1) | ||
| Direct(2) | £17,191.03 | £8,798.43 |
| JustGiving | £19,044.72 | £12,747.17 |
| VirginGiving | £440.90 | £3,347.43 |
| £3,701.23 | £1,251.19 | |
| Amazon | £214.65 | £33.65 |
| PayPal | £62.49 | £502.91 |
| Benevity | £125.00 | |
| EasyFundraising | £90.83 | £69.43 |
| Sales of merchandise(3) | £391.87 | £6,481.23 |
| Sales of merchandise(Bank credits) | £0.00 | £5,400.50 |
| Sales of merchandise(PayPal) | £391.87 | £1,080.73 |
| Payments | -£35,804.93 | -£51,775.21 |
| Awards to PMSF families | -£31,282.89 | -£28,249.77 |
| Awards Programme(excl. Travel) | -£31,282.89 | -£26,199.78 |
| Travel awards | -£2,049.99 | |
| Research Awards(to US Foundation) | -£1,250.00 | -£2,000.00 |
| Donation to PMSF(US Foundation) | -£800.41 | -£1,000.00 |
| Website costs | ||
| Event costs(incl. FamilyDays) | -£9,009.31 | |
| Purchase of CharityEvent Places | -£700.00 | -£956.00 |
| Purchase of merchandise | -£306.00 | -£6,211.76 |
| Purchase ofprinted leaflets | -£1,178.00 | |
| Postal expenses | -£200.00 | -£626.46 |
| JustGiving& Virgin costs | -£244.80 | -£532.80 |
| Other expenses(4) | -£1,020.83 | -£2,011.11 |
7
Agenda Item 4: 2020 Donations Summary
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Total donations of £40,745.85 – from the following sources:
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£19,044.72 raised via JustGiving
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£17,191.03 raised from direct donations
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£4,510.10 via other platforms (Virgin, Facebook, Amazon, PayPal, Easyfundraising)
We appreciate every donation to PMSF UK. - Thank you to all of our supporters
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We would like to recognise a number of significant fundraising achievements and donations from 2019-2020 (up to 30-Sept-2020).
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We hope that many of our community can be inspired to continue this great work in 2021!
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✓ Genetic Disorders UK Grant (towards UK/I 2019 Family Day)
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✓ Jack Windross, Harry’s Heroes and Cohort 16 for the Mad March Mare
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✓ Stuart and Helen Leighton
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✓ James Picker’s Way of the Roses Charity Cycle
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✓ Kirstie Griffiths Charity Ball & Barclays Bank Matched Funding
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✓ Annoushka Lingham’s Marathon for Frankie
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✓ Sonia Carballo and Mike Healey Vitality Big Half
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✓ Giles and Penny Bradley Royal Parks Half 2019
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✓ Yasmin Bennison’s August month of 5kms
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✓ Kaitlyn Atherton’s haircut
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✓ Emma and Charlotte Lacey’s 100km challenge
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✓ Georgie Child’s birthday fundraiser
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|Phelan McDermid Syndrome UK|1157423|
|Receipts and payments accounts|
|For the period|01-Oct-19|30-Sep-20|
|To|
|from|
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CC16a
Section A Receipts and payments
Unrestricted Restricted Endowment Total funds Last year funds funds funds to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts Donations 40,746 - - 40,746 26,875 Merchandise Sales 392 - - 392 6,481 - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - ~~Sub total (Gross income for~~ AR) [ 41,138 ] - - 41,138 33,356 A2 Asset and investment sales, (see table). ~~a=~~ - ~~===e~~ - Sub total - - Total receipts 41,138 - - 41,138 33,356 ~~——————~~ A3 Payments Awards to Families 31,283 - - 31,283 28,250 Research Awards 1,250 - - 1,250 2,000 US Donation 800 - - 800 1,000 Website costs - Events 9,009 Charity Event Places Purchase 700 - - 700 956 Merchandise Purchase 306 - - 306 6,212 Other 1,466 - - 1,466 4,348 - - - - - Sub total [ 35,805 ] - - 35,805 51,775 ~~—s=s—=~~ A4 Asset and investment purchases, (see table) - - - - - - - - Sub total [ - ] - - -[ - ] Total payments 35,805 - - 35,805 51,775 Net of receipts/(payments) 5,333 - - 5,333 - 18,419 A5 Transfers between funds - - - - - A6 Cash funds last year end 22,127 - 22,127 40,545 ~~=~~ Cash funds this year end 27,459 - - 27,459 22,127 CCXX R1 accounts (SS) 1 18/06/2021
| Section B Statement of assets and liabilities at the end of the period | Section B Statement of assets and liabilities at the end of the period | Section B Statement of assets and liabilities at the end of the period | |
|---|---|---|---|
| Categories Signed by one or two trustees on behalf of all the trustees B1 Cash funds B2 Other monetary assets B4 Assets retained for the charity’s own use B5 Liabilities B3 Investment assets |
Signature Details Details PMSF merchandise stock value, all items Cash in bank / PayPal Details Details Total cash funds (agree balances with receipts and payments account(s)) Details |
Unrestricted funds Restricted funds to nearest £ to nearest £ 27,459 - - - - - 27,459 - OK OK Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) Unrestricted - - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name Giles Bradley |
Endowment funds to nearest £ |
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| Giles Bradley | |||
CCXX R2 accounts (SS)
18/06/2021
2
Independent examiner’s report to the trustees of PMSF UK
I report to the trustees on my examination of the accounts of PMSF UK for the year ended 30 September 2020.
Responsibilities and basis of the report
As the charity trustees you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’).
I report in respect of my examination of PMSF UK’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner’s statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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accounting records were not kept in respect of PMSF UK as required by section 130 of the Act; or
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the accounts do not accord with those records.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Signed:
Name: Elizabeth Cain
Relevant professional qualification or membership of professional bodies: ACA qualification from the ICAEW Address: 7 Broadfields Avenue, London, N21 1AB
Date: 27 May 2021