## **PMSF UK AGM MINUTES** ## **& ANNUAL REPORT** Meeting held on Sun 15[th] Nov 2020, 10:00am via Zoom **1** ## AGM Agenda and Minutes |**#**|**Agenda Item**|**Summary outcomes**| |---|---|---| |1|Welcome / Introductions|•
Attendees were – Penny Bradley (T) (Chair), Alison Turner (T), Giles Bradley (T), Lynda White
(T), Natalie James (T), Sarah Bickerstaffe, Victoria Feddersen, Kat Pond, Sylvia Millership
•
5 trustees, shown as (T) above, in attendance| |2|Regional Membership Status|•
Now 281 region 6 members in UK/Ireland (as of Fri 13/11) (was 244 at last AGM in Nov 2019)| |3.1|List of achievements in 2020|•
See page 3: Achievements per Annual Report reviewed – to be circulated to the PMSF UK
community. Examples of appreciation from families receiving awards included on pages 4-5.| |3.2|Plans for 2020-2021|•
See page 3: Plans confirmed per Annual Report| |4|Review and approval of accounts|•
See pages 6-8: Accounts agreed for external independent opinion and subsequent submission
to the Charity Commission| |5|Presented for agreement:
•
Confirmation of Charity Objectives
•
Confirmation of trustees
•
Review of Charity Policies|•
New 3-year term as Trustees confirmed for Alison Turner and Giles Bradley.
•
Confirmation that limit to permitted number of Trustee terms to be removed.
•
No other changes to objectives or policies| |6|Any other business|•
Participation by 139 UK runners in Run Like a Hero event in October 2020
•
UK/I Family Day to be planned for 2022. Will review pandemic situation and continued rotation
to avoid taking place in the same year as the Global Conference
•
Regional Family Days to be held in 2021 if circumstances allow
•
PMSF UK to complete registration with Virtual Runner (per Kat Pond nomination)
•
Reminder via FB and email to UK/I families to use Amazon Smile and Easyfundraising to raise
funds for PMSF UK
•
Follow-up with Kyle’s Angels to take place separately
•
Next UK/I Regional Rep meeting to be held via Zoom| **2** ## **Agenda Item 3: Key achievements for 2019-2020 and plans for 2021** Annual Report to Charity Commission – Section D ## **Section D** Achievements and In our **6[th] full year as a charity** , we passed a milestone of over £0.25m in donations since we started. Performance – to 30-SepOur community has grown to **281 people with PMS** now (was just over 100 when we began in 2014). 2020 Highlights for this financial year include: - Record levels of **financial Awards to UK/I families – over £31,000** in the year to 30-Sept 2020 - This includes prioritizing financial support for people with PMS during the Covid-19 pandemic through two sets of **‘Covid-19 awards’** in April and July 2020 where we awarded in total **approx. £12,000** through 120 awards - Continued to make our regular awards at the end of September 2019, January 2020 and May 2020. - **No regional gatherings** , due to the pandemic – so will plan to support meet-ups next year / as soon as circumstances allow - Despite the pandemic’s impact, our **financial donations** were higher than any of the previous 3 years. Total donations were **just under £41,000** , incl. a £5,000 grant from Genetic Disorders UK to help fund our 2019 UK/I Family Day. - Raised funds and awareness again in 2019-2020 through the **sale of Seasonal Cards** . - Provided **donations of £2,000 to PMSF and to PMSF Research** (co-ordinated by the Global Foundation) - Continued to maintain the **PMSF UK website** as a key source of information for families and supporters. - Continued social media presence through **Facebook** (448 page likes / followers) - Continued to support UK-based EU AIMS research initiative - Plans for 2020-2021 • At year-end, we have a healthy cash balance – so that our **awards programme** can continue in 2021 - We will resume **family days** (likely regional in 2021, if circumstances permit) and will plan for a next UK-wide meet-up now 2022. **3** ## **Agenda Item 3: Feedback from families on PMSF UK Awards** ~~si ts~~ **----- Start of picture text -----**
Oh wow!
Thank you so
much. We’re
over the
moon!
**----- End of picture text -----**
**4** ## **Agenda Item 3: Feedback from families on PMSF UK Covid Awards** Lovely surprise **5** ## **Agenda Item 4: Financial Highlights for 2020** - **Fundraising / donations have actually been higher this year, despite Covid-19, than the previous 3 years** - **Out-goings have focused on maximising awards to families** - **We will plan to hold a full UK/I Family Day in 2022 to remain in alternate years with the Global Conference** **6** ## **Agenda Item 4: Financial Results Detail** ## Annual Report to Charity Commission – Section E - **Donations at a 4 year high – mainly on a direct basis or via JustGiving (see separate analysis of donations)** - **Awards to families, incl. Covid-19 awards, the highest we have ever made** - **Merchandise costs and sales, and expenses, reduced to reflect PL merchandise ordered directly by UK supporters rather than consolidated** - **Healthy cash balance at end of Sep 2020 (in readiness to support latest round of Awards)** - **We are run on a voluntary basis and have no committed out-goings (no taxes, investments, property costs or employees), so able to keep running during the pandemic** ||**This Year (2020)**
**1-Oct-19 to 30-Sep-20**|**2019**
**1-Oct-18 to 30-Sep-19**| |---|---|---| |||| |**Cash**||| |Openingcash balance|**£22,126.53**|**£40,545.30**| |Closingcash balance[bank & PayPal]|**£27,459.32**|**£22,126.53**| |||| |**Receipts**|**£41,137.72**|**£33,356.44**| |Donations|£40,745.85|£26,875.21| |_Restrictedfunds(1)_||| |_Direct(2)_|£17,191.03|£8,798.43| |_JustGiving_|£19,044.72|£12,747.17| |_VirginGiving_|£440.90|£3,347.43| |_FaceBook_|£3,701.23|£1,251.19| |_Amazon_|£214.65|£33.65| |_PayPal_|£62.49|£502.91| |_Benevity_||£125.00| |_EasyFundraising_|£90.83|£69.43| |Sales of merchandise(3)|£391.87|£6,481.23| |_Sales of merchandise(Bank credits)_|£0.00|£5,400.50| |_Sales of merchandise(PayPal)_|£391.87|£1,080.73| |||| |**Payments**|**-£35,804.93**|**-£51,775.21**| |Awards to PMSF families|-£31,282.89|-£28,249.77| |_Awards Programme(excl. Travel)_|-£31,282.89|-£26,199.78| |_Travel awards_||-£2,049.99| |Research Awards(to US Foundation)|-£1,250.00|-£2,000.00| |Donation to PMSF(US Foundation)|-£800.41|-£1,000.00| |Website costs||| |Event costs(incl. FamilyDays)||-£9,009.31| |Purchase of CharityEvent Places|-£700.00|-£956.00| |Purchase of merchandise|-£306.00|-£6,211.76| |Purchase ofprinted leaflets||-£1,178.00| |Postal expenses|-£200.00|-£626.46| |JustGiving& Virgin costs|-£244.80|-£532.80| |Other expenses(4)|-£1,020.83|-£2,011.11| **7** ## **Agenda Item 4: 2020 Donations Summary** - Total donations of £40,745.85 – from the following sources: - £19,044.72 raised via JustGiving - £17,191.03 raised from direct donations - £4,510.10 via other platforms (Virgin, Facebook, Amazon, PayPal, Easyfundraising) - ## **We appreciate every donation to PMSF UK. - Thank you to all of our supporters** - We would like to recognise a number of significant fundraising achievements and donations from 2019-2020 (up to 30-Sept-2020). - We hope that many of our community can be inspired to continue this great work in 2021! - ✓ Genetic Disorders UK Grant (towards UK/I 2019 Family Day) - ✓ Jack Windross, Harry’s Heroes and Cohort 16 for the Mad March Mare - ✓ Stuart and Helen Leighton - ✓ James Picker’s Way of the Roses Charity Cycle - ✓ Kirstie Griffiths Charity Ball & Barclays Bank Matched Funding - ✓ Annoushka Lingham’s Marathon for Frankie - ✓ Sonia Carballo and Mike Healey Vitality Big Half - ✓ Giles and Penny Bradley Royal Parks Half 2019 - ✓ Yasmin Bennison’s August month of 5kms - ✓ Kaitlyn Atherton’s haircut - ✓ Emma and Charlotte Lacey’s 100km challenge - ✓ Georgie Child’s birthday fundraiser **8** **----- Start of picture text -----**
|||| |---|---|---| |Phelan McDermid Syndrome UK|1157423| |Receipts and payments accounts| |For the period|01-Oct-19|30-Sep-20| |To| |from| **----- End of picture text -----**
**CC16a** ## **Section A Receipts and payments** **Unrestricted Restricted Endowment Total funds Last year funds funds funds to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts** Donations **40,746 - - 40,746 26,875** Merchandise Sales **392 - - 392 6,481 - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -** ~~_**Sub total** (Gross income for_~~ _AR)_ **[ 41,138 ] - - 41,138 33,356 A2 Asset and investment sales, (see table).** ~~a=~~ **-** ~~===e~~ **-** _**Sub total**_ **- -** _**Total receipts**_ **41,138 - - 41,138 33,356** ~~——————~~ **A3 Payments** Awards to Families **31,283 - - 31,283 28,250** Research Awards **1,250 - - 1,250 2,000** US Donation **800 - - 800 1,000** Website costs **-** Events **9,009** Charity Event Places Purchase **700 - - 700 956** Merchandise Purchase **306 - - 306 6,212** Other **1,466 - - 1,466 4,348 - - - - -** _**Sub total**_ **[ 35,805 ] - - 35,805 51,775** ~~—s=s—=~~ **A4 Asset and investment purchases, (see table) - - - - - - - -** _**Sub total**_ **[ - ] - - -[ - ]** _**Total payments**_ **35,805 - - 35,805 51,775** _**Net of receipts/(payments)**_ **5,333 - - 5,333 - 18,419 A5 Transfers between funds - - - - - A6 Cash funds last year end 22,127 - 22,127 40,545** ~~=~~ _**Cash funds this year end**_ **27,459 - - 27,459 22,127** CCXX R1 accounts (SS) 1 18/06/2021 |**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**|| |---|---|---|---| |**Categories**
Signed by one or two trustees on
behalf of all the trustees
**B1 Cash funds**
**B2 Other monetary assets**
**B4 Assets retained for the**
**charity’s own use**
**B5 Liabilities**
**B3 Investment assets**|Signature
**Details**
**Details**
PMSF merchandise stock value, all items
Cash in bank / PayPal
**Details**
**Details**
**_Total cash funds_**
(agree balances with receipts and payments
account(s))
**Details**|**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**27,459**
**-**
**-**
**-**
**-**
**-**
**27,459**
**-**
OK
OK
**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost (optional)**
Unrestricted
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**liability relates**
**Amount due**
**(optional)**
**-**
**-**
**-**
**-**
**-**
Print Name
Giles Bradley|**Endowment**
**funds**
**to nearest £**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||OK| ||||**Endowment**
**funds**
**to nearest £**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Current value**
**(optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Current value**
**(optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**When due**
**(optional)**| ||||| ||||| ||||| ||||| ||||| ||||| ||||Date of
approval| |||Giles Bradley|| ||||| CCXX R2 accounts (SS) 18/06/2021 2 ## **Independent examiner’s report to the trustees of PMSF UK** I report to the trustees on my examination of the accounts of PMSF UK for the year ended 30 September 2020. ## **Responsibilities and basis of the report** As the charity trustees you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’). I report in respect of my examination of PMSF UK’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act. ## **Independent examiner’s statement** I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect: 1. accounting records were not kept in respect of PMSF UK as required by section 130 of the Act; or 2. the accounts do not accord with those records. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. Signed: Name: Elizabeth Cain Relevant professional qualification or membership of professional bodies: ACA qualification from the ICAEW Address: 7 Broadfields Avenue, London, N21 1AB Date: 27 May 2021