OpenCharities

Pathfinders Neuromuscular Alliance

Dmd Pathfinders

Country
England & Wales
Charity number
1155884
Status
Registered
Registered
Feb. 21, 2014
Legal form
CIO

Address

Address
103 London Road
HAILSHAM
East Sussex
BN27 3AH

Activities

Our main activity is to provide advice and information to adults living with Muscular Dystrophy and related neuromuscular conditions via information events, guides and resources, and peer support activity. We also raise awareness of issues facing adults with neuromuscular conditions and provide advice on health research committees and steering groups

Objects: 1.The promotion of social inclusion of people with neuromuscular conditions who are socially excluded from society, or parts of society as a result of having Muscular Dystrophy and related neuromuscular conditions by 1. Providing a network of groups that encourage and enables them to participate more effectively with the wider community,2. Increasing or co-ordinating opportunities for them to engage with organisations and service providers to enable those providers to adapt services to better meet their needs,3. Raising public awareness of the issues affecting them in all areas relating to having a neuromuscular condition,4. Providing support to those between the age of 18 and 30 who are socially excluded to establish and grow a business or enterprise to relieve their needs and assist them to integrate into society. 2. To promote and protect the physical and mental health of people with Muscular Dystrophy and related neuromuscular conditions in the United Kingdom as the trustees shall determine.

Classification

How
Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information
What
General Charitable Purposes, Education/training, Disability
Who
Children/young People, People With Disabilities

Areas of operation

Country
Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
April 5, 2025 £271,413 £218,208
April 5, 2024 £232,201 £180,255
April 5, 2023 £180,097 £171,817
April 5, 2022 £244,062 £135,374
April 5, 2021 £86,589 £57,232

Trustees

Name Appointed
Sarah Rose (Chair) Nov. 21, 2020
Andrew Tunks Oct. 2, 2024
Daniel Baker Nov. 8, 2024
Vicky Mozley May 16, 2021