# Pathfinders Neuromuscular Alliance

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1155884
- **Other names:** DMD PATHFINDERS
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Feb. 21, 2014
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1155884


## Contact

- **Address:** 103 London Road, HAILSHAM, East Sussex
- **Postcode:** BN27 3AH
- **Phone:** 07856 207351
- **Email:** info@pathfindersalliance.org.uk
- **Website:** https://www.pathfindersalliance.org.uk



## Activities

**Objects:** 1.The promotion of social inclusion of people with neuromuscular conditions who are socially excluded from society, or parts of society as a result of having Muscular Dystrophy and related neuromuscular conditions by 1.    Providing a network of groups that encourage and enables them to participate more effectively with the wider community,2.    Increasing or co-ordinating opportunities for them to engage with organisations and service providers to enable those providers to adapt services to better meet their needs,3.    Raising public awareness of the issues affecting them in all areas relating to having a neuromuscular condition,4.    Providing support to those between the age of 18 and 30 who are socially excluded to establish and grow a business or enterprise to relieve their needs and assist them to integrate into society. 2. To promote and protect the physical and mental health of people with Muscular Dystrophy and related neuromuscular conditions in the United Kingdom as the trustees shall determine.

**Activities:** Our main activity is to provide advice and information to adults living with Muscular Dystrophy and related neuromuscular conditions via information events, guides and resources, and peer support activity.  We also raise awareness of issues facing adults with neuromuscular conditions and provide advice on health research committees and steering groups




## Classification

- **How:** Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information
- **What:** General Charitable Purposes, Education/training, Disability
- **Who:** Children/young People, People With Disabilities



## Geography

- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Sarah Rose** | Chair | Nov. 21, 2020 |
| Andrew Tunks |  | Oct. 2, 2024 |
| DANIEL BAKER |  | Nov. 8, 2024 |
| Dr Kirsty Liddiard |  | Nov. 20, 2025 |
| Joey Nathan Levene |  | Oct. 6, 2025 |
| Vicky Mozley |  | May 16, 2021 |




