OpenCharities

Wolfram Syndrome UK

Wsuk

Country
England & Wales
Charity number
1152445
Status
Registered
Registered
June 17, 2013
Legal form
CIO

Address

Address
9 Church Way
Worthing
BN13 1HD

Activities

WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.

Objects: 1)To Promote And Protect The Physical And Mental Health Of Sufferers Of Wolfram Syndrome And Related Syndromes And Their Families Through The Provision Of Support,education, Financial Assistance Where Possible And Practical Advice.(2)to Advance The Education Of The General Public As Well As The Medical Profession In All Areas Relating To Wolfram Syndrome And Related Syndromes

Classification

How
Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
What
General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability, Other Charitable Purposes
Who
Children/young People, People With Disabilities

Areas of operation

Country
Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
Feb. 28, 2025 £121,228 £139,723
Feb. 29, 2024 £136,399 £113,865
Feb. 28, 2023 £108,116 £64,911
Feb. 28, 2022 £43,157 £48,197
Feb. 28, 2021 £38,254 £46,082

Trustees

Name Appointed
John Isherwood (Chair) Feb. 22, 2019
Alan Nye April 2, 2013
Abby Gardner April 19, 2020
Paul Lynch April 2, 2013
Prof Tim Barrett April 2, 2013