# WOLFRAM SYNDROME UK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1152445
- **Other names:** WSUK
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** June 17, 2013
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1152445


## Contact

- **Address:** 9 Church Way, Worthing
- **Postcode:** BN13 1HD
- **Phone:** 01903 211358
- **Email:** admin@wolframsyndrome.co.uk
- **Website:** www.wolframsyndrome.co.uk



## Activities

**Objects:** 1)TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF WOLFRAM SYNDROME AND RELATED SYNDROMES AND THEIR FAMILIES THROUGH THE PROVISION OF SUPPORT,EDUCATION, FINANCIAL ASSISTANCE WHERE POSSIBLE AND PRACTICAL ADVICE.(2)TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AS WELL AS THE MEDICAL PROFESSION IN ALL AREAS RELATING TO WOLFRAM SYNDROME AND RELATED SYNDROMES

**Activities:** WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN&#x27;S HOSPITAL &amp; SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability, Other Charitable Purposes
- **Who:** Children/young People, People With Disabilities



## Geography

- Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **John Isherwood** | Chair | Feb. 22, 2019 |
| ALAN NYE |  | April 2, 2013 |
| Abby Gardner |  | April 19, 2020 |
| PAUL LYNCH |  | April 2, 2013 |
| PROF TIM BARRETT |  | April 2, 2013 |




