REGlSTEREDCHARy NUMBER.. 1148156 Report oftheTrusteesand Fknancial stalenrIts fortht Ye*r Ended 30WI 2023 JOINING JACK MRB 1st FloorWater5ide House Waterside DrNe Wigan Lancashire WN3 5AZ
JOININGJACK C{ents olthe Anandal Ststements FOR THE YEAR ENDED 30APRIL 2023 Page Reference and AdmlDlstra¢fve Deta Report ol theTrustees Report ol the IndependentAuitors 10 to 11 Statemen¢ of FinancialA(¢bvibes 12 alanc¢ She•t 13 sh FlowStal•rn•nt 14 Not¢5 tothe C41h Flow St4trrnent 15 Notes tgthe FInalI1 Statements 16 ¢0 21 Dttlled SttÈrnÈnt ol FSrbncl*l Acthf 22
JOIM114G JACK Referente and AdMIntrie DetaS1s FOR THE YEAR ENDEO 30 APRIL 2023 Trustees rj Whitwonh Pls A Kefit Mr K Radlinski Principal addr c/0 ADM Lei5urewear Lld Unit I Appleton Street Wigan Lancashire WN3 4BZ Reltertd thrhy numbtr 1148156 Audltors NRB 1st FloDr Waterside Houst WatersHle Orive Wi8an iancashire WN3 5AZ Page I
JOININGJACK Rekw)rt of the Tree$ FORIHE YEAR ENOED 30APRIL 1023 The trustees present their report with the finantial statements of the charity lor the year ended 30 April 2023. The trustees have adopted the prov1510ns of AccounrinE and ReporrinE by Chariiies." sraremenr of Recornrnended Practice applicable to charities preparing their accounts in accordance wilh the Financial RepIng srandard applicable in the UK and Republic of Ireland IFRS 1021 leffectwe l January 20191. Objectives and artivitie5 Qbjectives and actwitiesfly the publi¢ benefft The principal objeitiveof the charity i5torelievethe need50f sufferersof fxjchenne MUUlar[stf0Ph¥ IDMDI, speed uptreatment5 for all children and adult5 living with DMD by funding research into rnethods of treatrnent and a cure of the condition. Objertives and actThbtie5 s18nifiTrt activities On 22 April 2016 Joinin8 Jaik joined force5 Wlth Duchenne another parent-led charity forrnerly called The Duchenne Chlldren's Trust, Set up by Emily and Nick Cr0551ey. Jolnln8 Jack remalns a separate th3rity amd ld$ and-3)ne fundraisin8 èvents now shares a research strategy, sclentfflt advSs0ry board and Director of Researth wth Duchennt UK. An end of year project report dated Oecember 2023. from Alessandra Gaeta. Dire£tor of Research for Duchennt UK & joining Jack, lJolnin8 Jack & DUK Research Portfolio End of Year reporr 2023 pa8es 7-81 provides an en&ol-year pro8ress update on all the projects funded by Joinin8 Jack In the Duchenne UK portfolio. Thls Is an overvlew of new fundln6 opportunStles Sn the pfjpellne. The report covers active prolects and projects that have completed In 2023. Historical projects which have c105ed in 2022 and before are noi IrKluded. For each funded project, a ststus, update on progress ènd update on funding Is included. Our research 5rrare has now e¥panded to include six key elements to it, all of which are integral to acceleratin8 and advancing research. Funding ihe research is the firsr crucial srep. BLrt on it5 own li isn'i enough. We need to look at the overall landscape of research and drua development. and our straie8y has been devebped ro refiert rhis. 11 Fund and ac¢•lgr•t• r•s•ar¢hfor ¢4rty s14i•cllnlultrfa15 OvrapproHch 15 Io¢y5ed on 4dvanc1n8re5earchand8erringtr¢ment5 Intoclinicandto patient5 asquickly35possible. Working alon85ide co-lounder of Duchenne UK Emily Crossley, our co-founder, Ajex Johnson. actively 5eek5 Oilt projeu5 and potential therapie5 which could benefit the curient 8eneratior• of paInts. We run an international 8ran¢ ¢all. We invest glob411y in b451 21 Facllltste and •¢ukrat¢ r¢s¢arch We are committed to a£celeratln8 the pace ol research, en5UriTh8 thai we remove wtential obstacles and roadblock5 that lie in the path of drug development. It 15 Vltal that the research we fund has the tential to translate into clinical tria15, and so we fund the doctor5, nur5e5 and phy510therapi5t5 nece55ary to conduct tria15 in the UK. We created and expanded the DMD Hub which has the ambitionthat everyihild born with Duchenne in the UK has the opportunityto take part in research. We also 5UPPDrt and encourage national and international collaboration to allow researcher5 and clinician5 to collaborate and pro¥re55 re5ear(h. We are proud to SUPPOrt the TrÈ2t-NMD nètwork and their ..annUal TACT mÈetin8S to reeW potèntial elinal trials for Ouchenne mus¢u12r dystrophy. 31 Implementstion of tht Standards ol Care1SaCI inthe UK The updated Soc WEre published in The Lancet of Neurology in 2018. They are aMtIOuS and Significant advance on the 2010 version. While thi5 15 welcomed by families and cliniiians, it pre5ent5 Ihallen8e5 at a national level where the health care 5yStems need to increase or chanÉe provision. and in many cases Increase resources In order to deliver the fully updated Soc. We have launihed a new project DMO Cafe UK totalkleth155UP. Thp project will en5ureeveryone in the UK livin8With Duihenne ha5 8iiess to the best care. 41 Work alongslde Industry We werk wirh industry. advising on clinical trial designs. We have athsed on the protocols of a number of different trials. We work with Projert Hercules and their indusrry parrners ro help Collett the data they need ro aid reimbursement decisions of drugs. 51 Conllnued engagement wlth regulat and polKymakers We are engaging ¥vith policy makers and regulatorson many issue5, from campaigningfor EartyActrssto MedicinestoengaEing with the Health Technology Appra1531 system. Page 2
61 CollaboreWith families and tharftiÈsElobally Wè work with farnilie5 to empower them to get the best attess to caTe and treatments for their thildren. We work wlth Duchenne UK to stage free Patient Information days across the UK, and in February. 2024 wt will stage our first International conference in London. Alex Johnson also sits on the t*)ard of the World Du¢henne Organization to ensure we collaborate with charities International. Our Scientific Advisory Board ISABI is a fundamental part of our wojed review process- and ensures our supporters, donations are being Invested In the right projects io advance rhe DMD field_ For several yws now, we have been proud ro work with rhefollowinE experrs." Drjohn Bourke. Newcastle University. UK Prof Annemieke Aartsm3-Rus. Leiden UnNersity Medical Centre. Netherlands Dr Eric Hoffman. ReveraGen Biopharma, Canada Prof Dame K3y D3vies, University of Oxford. UK Steve Winder, University of Sheffield. UK Dirk Fischer, University Children's H05Pital Basel. Swtierfand Df Dada plOnti, Stonybrook University, USA These are all researcher5 at the top of thwr flew and are generou5 erK)ugh to Share theirexpert15e and knowled8e. regardless of the huge dernand5 On their time. G5ven the expandin8 rem olour work and the varlety ol projttts which we support, we aTe deli8hted to 3nnounce that four new researchers will be joinin8 our SAB.. Frank Robertson, Whi21-Kidi, UK Dr Manuela Certl. University of Florida. USA Drvaleria Ricotti, DINAQOR, UK Drolivier DorchSes, UnlversSty of Gerfftia, Switzerland Voluntee The charlty has an Sncredlble ever-growng army of Volunteers who enable the stagln8 of the three maln fla8ship fundralslng multl- An existing database of more than 150 name5 alongside local running and cycliry clubs and Army Cadets, are called upon to help with pre-event prepararion Igoodie bae packing and racelride packs) and on the day to hand out medals, water, refreshments marshal roures and support runnerslriders at the start and fin15h. Our volunteer database conrinues to grow ro help us create and sia8e thefour mass participation event5. Achhv•m•nt and p•rforman¢• Fyrbdr•151ni artlvttl¢s nWI 2017 Saw us launch two new fla85hip fundraiyn8 events the first of which was the Run Wi8an Festiv31 in March featurin8 a Half Mèrathon, a Sk and Family Mile rvn. The event celebraied its thivd year in 2019 when a fourth di$tance wo5 introduced to the event in the shape of a 10 Miler. The race was a 5ell•ut. The 4th Run Wigan Festival in 2020, was cancelled with 55 than a week to go, due to COVID and eventually 5ta8ed virtualw and date w35 never officially Set for the 2021 event due to the on8oin8 restrictions and a third national Lockdown, meanin8 we were unable to 5ta8e the event fortwoyear5. The Run Wi8an Festival returned in 2022 and iniluded 329deferred entries from 2020, while all runner5 who had taken part in the Virtual Run Wi8an Festival of 2020 We offered a 25% di510unt for their 5UPPOrt throughout the on8Olll8 cancellatKns and to maintain en8agement with the charity'5 established event network. Thi5 did have an effect on fundrai5in8 and did mean that the event could have potentialty run at a Ios5 but the Trustees, akn8 with the 10-founder5, and Race DirEltor were in agreement that it Wa5 impurtant to 5ta8e the event and honour the deferrals and di510unt code5 to maintain the charity and the event'5 reputation. Thi5 would be the final event to be aflected finaniially a5 a knock effect of COVID and Leckdowns and turned around £IO,CW profrt. The Run Wlgan Festival moved to a new home in 2023 following in the footsteps of the WiÉan Iok and relocating to Mesnes Park. This invelvtd afew tweèks tothe routesanda bi88erse¢bon of thE fta8ship HM route takin8 8¢e alon8the Canal re4uirin8 Increased volunteer and sreward numbers. NUMBERS.. 708 Haw Marathon. 572 5k. 2941& 150orb dayl Family Mile TOTAL.. 1,724 Under the continued Title Sponsorship of HW Moon Toyota Wigan, the event raised £13,StX), B worthy total giveTTr previou5 ye3r5' efforts, an increase on the 2022 t(rtal. With number5 3ttendir¥ ma55 parhcipation event5 continuing on an upward trend duringtwo extremely drfficult years of event5 whpn marry Smaller event5 and buESSeS asSlated wTth them have fallen by the wayside, thi5 isencoura8in8. Page 3
The date for the 2024 Run Wigan Fe5tnial has bEen set faT Sunday, March 17. and y aTe delighied to repJrt that we have already surpassed our 2023 runner numbers weeks ahead of registration closing. an Blke Wde Afterthree Yea of taking part as a team in organised Bike Rides. the charKty made rhe decision ro srage itsfirst ever organised bike rldeonJuly 22nd 2017 under the fille Sponsorship of Develop UK3nd leaiureda 50 Mile main rideon open roads and a 5 Mlle famSlv ride on closed roads along ihe Wigan Iok route. The 4th Bike Ride in 2020 was cancelled dueto the ongoing pandemic and took platr as a virtual event with 278 riders participating with suppon from all over the norrh-westand UK and from acr05Sthe worW. The charity's first mass parbcipationfl385hipfvndraisin85incethe panderniceventwasthe 5th Bike Ridein 2021 at a change of venue due to availability and 51i8htly smaller nurnbers just before COVID 8uideline5 were fulty relaxed 50 Social distancing was maintaiTred outdoors. New H3rdcore and Highway routeswere introduced for the 50 mile ride. The 2022 Bike Ride returned to it5 0ri8inal home of Mesnes Park and the welcome return of the S Mile Farnily Ride- the first time this had been staged Since 2019 and in 2023, the 7th Wigan Bike Ride took in 50aring temperatures. NUMBERS.. 210 Main 85 Family TOTAL.. 295 Under the tontlnued Title Sponwship of Oeveklp UK. the 2023 tvent raised £18,51, nUmr$ lIhtlY down on the prevlous year but a small increase in fundralsln8. A total 01É168,LKKI raised from the 8ike Ride to date The date for the 2024 8th Wlgan &'ke RSdÈ has been set for Sunday. lune 23 when we are lookln8 to Introdute a 25 Mile route for Intermedlary riders. JJY3Peaks The JIY3Peaks took place In July when weteamed upwth two orhercharitvés. Gand and Lfftin8 Lou15, We had 68 walker5 in total Includln8 20 fer Joining Jack. The day ran smoothly (apart from the ty¢al 3 peaks unpredictable weather) and was a success with the vast rnajority of our walkers crossing the finish line. To8ethertearn JI ra15ed É65LX). We arecurrently leokin8 at date5 in Ma¥and July for ihe 2024 event and rKteniially teamln8 up wlth Gand Aid a8aln. The 10th Wlg3n Iok took place on Sunday, September 11. 2022. at a brand new Event HQ and a new StartlFin15h over at Mesnes Pèrk. Due 10 the on80ing works in the town cenrre, rhe decision was taker ¢0 relocate to the park and invited vendors io Pfovide food and drink options for runners. There was a150 a return to live entertainment followin8ihe race- the first time since COVID. First staged in 2013 asJolnin¥Jack'5 inaugural 1lag5hipfundrai5iTr8 evenL the 10th Wigan lo coincided with 10 year5 of joinin8 Jack. Fin31 number5 were d15appoiniing which we believe, haviTrg spoken io oui Event Partner$ and orher Race organisers, 15 an ongoing consequence of COVID, and the c05t ol Iwin8 crisi5. However. the new SrarVFini5h. along with lood ond drink vendor5 at Event HQ proved to be an overwhelrnin8 suc¢e5S. NUMBERS.. 1,900 Iok 2651& Isoon dayl Family Mile TOTAL.. 2.315 The event raised £37,(QO- a st8nificant irKreaseon the pa5ttwo year5whith is ntoura8in8for ourevent5 based fundraisin8 and we hope to continue that trend with further incTea5e5 in 2024. The date for the 2024 Wi8an IC* has been Set lor Sunday. September l. Given the promisin8 numbÈr5 that took part in 2023, wo have targeted 2,rtsJ- 2,5W runners taking us closerto Iotsls achieved before the pandemic. Emirates Dubai Stvens The 2020 Event wa5 cancelled due to the global pandemic. The charity did look to take part in the 2021 and paid an agreed 20% of the reE15trations fees but. wilh concerns er players being able ro rravel from other couniries. an enquiry was made into swiiching to the Over 45s category which could accommodate UK-based players who are more known to the Johnson famlly. However, thls proved impractical as the category already had the allotted numberof entrie5. With uncerrainty still surrounding player availability in 2022. Ihe charity had noi regisrered an interest and paid è deposir for the 2022 evenr. When a place became available quite close to the dare of the evenr raking place. the charity was unable to secure the sponsc>r5hip from Title Sponsors Emirates to cover the costs of the Team's flights. This would have meani a signific8nt increase in costs and a deficit in fundraising and the decision was made not to take the last minute place. Following a four-year absence the charity returned tothe competition with a host of Thewfacesfrom both codes of rugby repre5entingTe3m JJ. Page4
Alex worked tirelessNf to secure more than £1.{1x1 in sponsorship. We enjoyed some great toveraEe ahead of the tdp thaTh to local news and TV which increases the profile of the Du¢henne Community. Over in Oubai a successful Golf Day. Gents Brunth and auction. furrher media coverageand agreat run in the Compeiiiion sawihe ieam eventually loseouron the Plate Final but not before galninga host of new followers and supportersfortheyearahead. A fantasric £21X).LNJO was raised with incomestill Coming in from merchandise sa$ and player shirt aixrions. The charity's participarion inthe Emirates Dubai Sedens invofvesa brand new challenge and pressuresontheJ¢hnson family bui also provides a glob31 audience in the fight 3gainst Duchenne and increased revenue streams which will fund prornising projects in 2024. Alex and Andy. along with the Trustees are considering the parricipation in the 2024 event. £275,0(X) TOTAL FOR 2023 FLAGSHIP FUNORAIYNG EVEras Fundraisin 2023 Summa The charity relies heavilyon our own fla85hip event5 and supporter5tsking part in ma55 participation event5. Many if not 311 of these were cancelled in 2020 3nd in the first half of 2021 due to COVID-19 Coronaviru5. Thi5 had a significant effect on the charity's income both in 2020 and 2021 and has a150 affected overall fundrai5in8 incorne in 2022 with a iontinued knock-on effeit of deferra15 and discounted entrie5 in the Run Wi8an Festival 2022. our first event of the year. With the c05t of living cr1515 a150 having an effect on number5 takin8 Part, the overall fundraisingtotal lor 2022 wa5 aTound 25% of %¥hat thp charity ha5 previously raised. However, 2023 looks to be an indication of a signifitant turning point for events ar¥J fundraising The return to hlgher ThuMr$ taklng part and the record-breakin8 success ef the charity's return to the Dubai 7s has rtturned a healthy fundraisin8 total for 2023 whlch we hope wlll Continue In 2024. Other lundralsl Inhhtfves 2023 FUNDRMSING The loiningjack team have been promotingthe charKty'5flagshipe¥ent5 along wrh Individual supporter5 and team contribution5 and donatlons. We also premote our own merchandlse throu8h Ebay for Charity Shop which provides a steady wurce of Income. The chariiy ha5 also had continued supporr from sponsors, event partners and Supporters throu8houi the year Including two new A5so¢iate Sponsors for the wnning and third sponsors on board for the Wigan Iok in 2024. which Is Posltive support going forward, The 5ucce55 of the Dubai 75 trip and media co¥era8e alon8 Wlth awareness and engagement on our social media channels, we are confident rhat the fi8ht to end OucheTrThe 15 Continui ro gamer support and 8row siroryer connettbns wlth the Team JJ brand alon8side our charirable objective. CAMPAIGNS, COMMUNITYWORK & RECOGNITION At the start of 2023, Jack and his farnity were invited by Wigan Council to attend the unveiling of Star In the Wi8an Walk of Fame to mark a decade of ihe charity creatin8 awareness for Ouchenne and brin8in8 the town together to 8et fit. Alex, Jack's mum, and one of the charity s co-founders, h4$ alw been re¢o8nised for her work in the Duchenne Cpmmunity with an 08É which She recewed ot Windsor Castle inJ3nuary. IMPACT REPORT Our battle a8ainst Duchenne muscular dystrophy is nDW 12 years old. We have included an update on how the work of Joining lack alongside our partners Duchenne UK, is makin¥ 5i8nificant progress in many different aTea5. Thi5 includes.. The approval ofVamoroloTre bythe FDA and EMA. Thisfj5the first (tru&forall peoplewith DMD. whlch Duchenne UK played a key rele In developln8. While our Project HERCVLESi5 helping support the health technology a$5e55rnenl ol Vamorolone, which is currently being appraised by NICE. We launched a new project to drive bettercare for nutrition and weight management in DMO. The third version of our SMART Suit prototype ha5 bEen developed and 15 bEin8 tested. Our psychosocial programmehas developeda referral pathwtyforthildren with OMDaDd patients are now belns referred our DMD Care UK programme pub115hed a new bone health guide for people with DMD and their families. Our DMDhome digital plattorm ha5 entered the validation phase. DMDhGme use5video capture and computer vi5i0n Page 5
analysis to measure limb fundion in DMD. The study wll aim io validate this new approach for use ID clinical trials and potentially in the approval of new mediiines for OMD. Our Central Recruitment Database has moved on fromthe pilotyage. Everycommerrial DMD trial opened in the UK since its establishment has recruited patients using ir. Weare undertaking extensiveTe5earchwith Yo8 peoplewth DMDtoci¥mpletely rethink howwheel£hairscan helpthem Thefull Itnpact Rewrt 2023 is attathed- Ducherbne UK Impact Report 2023. Funding and researth dechitins We have Ilsted In ihe table on PèEes 7and 8, a listof the grants we have awarded to date. We have colour-coded the grants to show how we are supportingthe whole theTapeutic development pipeline. Joining laik is iommitted to ensuring that as rnuih ès p0551ble of our funds goes to developing research into a treatmentor a CU for Duchenne Muscular trOphy. We are partIcular focused on transitional research. research that takes potential therapeutics out of Laboratorles and inte cllnlcal trlals. Working closely with our partner tharity Duchenthe UK. our trusted team of scientrfic advisors, patient adwsory board and trustees, we have made major detisions on how to spend the funds raised. The grants that we have been awarded have led to breakthrouÉhs that are changiw the iheiapeutic landscape for ihe Ljchenne community. sic Rtsearcn= Yellow nical Trial Support 4 &ue Page 6
Projecr Name Projecr Stat Total Grant Award IxA(oJ LlO.C $0 IiY.9J&g9 Page 7
Projert Name Researchlln5tiru LV Company Project Status Total Grant Award Fln8ntlal re¥lew Flnantlal posrtlot) Results far the year are shown In the Statement ol Flnanclal Artfvilieson pa8e 12. Investment pollcy and obletllves The chariry's Investmenr policy is ro retain allavailablefundson deposfjttO8Ne sufficlet)r liquidity to meet on8oin8 day-ttrday needs. Flnonclal r¢¥lew Reserves pollcy The Trustees have determlned th a minimum uTrre5tricted reserve of approximately ÉIO,OLKJ 15 required to ensure the on80ing operation5 of the charity. The charity does not require a 8nifiiant restricted reserve because it does not currently have fflalerial fixpd costs. The charily reco8ni5e5 It rnay beappropriateto albwthe re5eNe tofluctuat¢asa result of 5hort-terrn cash innow5and outflows and to ensure the fundin8 of projetts to whith it is ¢ontrattually Committed. Fre plans In the coming year We plan to.. Throu8h DMO Care UK contlnueto Implement the new Standards of Care and also lach a Transltlon 8rant call. Provide education to familie5 on research and care. Provide p5ycholo8ical support to families and patients Iwing with DutheNne throu8h the pathway we dèvelop. Contlnue to develop the (henne Hub. Create research opportunleS for Adultswrth Duchenne bvde4elon1 new outcome measure5. Work to overcorne the irnmunolo8ical i5sue5 preventin8 delivery olgene therapy. Advarice researth irito the methods of dElivery of 8ene theTapy lor Duchenne patients. Brln8 the Oream Chairto market. Develop new OLrtcome measures for cllnlcal irièls. Fund the next development phase of the SMARTSuit ami assist product. Strurture lovernance and mana8ment Constitution The charity is govemed by its Declarion of Trust dated 28 February 2012. as amended by Deed dated 16 July 201Z. Re¢rultmentat)d appolntment of newiNMees Thetrusteeswho havE served durin6 theyearare set ¢) on pa8e l. The trusteesare appointed by the committee. Organlsatlonal rUCture Thetrustees meeton a regularbasSsrodiscusstheworanddevelopmenioftheorganls•tion. TheS¢ientlcAv5SOry Board reviews applicarion5 for funding received from the pharmaceuiicals settor3 reports irs findings back to the Board of Trustees. Indurtlon and tralnlnB ol newtrystees New trustees are given guidance provided by the committee which covers such iterns as roles and responsibilities, legal obligations under charity law, organisational structure5 and decisn making pro¢e55es. business planning and understandinE financial information. The Induttion protess also invofves new trustees meeiing key employee5 and other trustees. Tru5tee5 are encouraeed ro attend appropriate traini events whith viill facilirare rheir understanding of their role and meet their individual training needs. ststementof trustee5' respoThsibli bties Thetrustees are reswnsiblefor preparing the Report of theTru5tees and the financial ststement5 in accordance with 3pplicable law and United Kingdom Accounting Standard5 (United Kingdom Generally Accepted Accounting Practice). Page 8
The law applicable to charities In England Wales, the Charities 2011, Charity (Accounts and Reportsl ReÉulatlons 2LK18 and the provisions of the trust deed requires the trustees to prepare financial stsiements for each financial year which Eive a true and fair view of ihe state of affairs of the Charity and of the inwminE resources and application of resour, including rhe income and expendlture, ef the tharfty forthat period. In pfeparinE I>$thOn¢181 statement¥ ihe trustee$3re requlred to selert suitable accounting policies and then applythem conystenily.. observe the methc>d5 and principles in the Charity SORP.- makeiJdgements and estimares thai are reès¢nable and pwdehr". st3te whether applicable accounting stan03rd5 have been followed, Subject to any material departures disclosed 3nd explained in the financial statements-. prepare the financial statements on thegoingconcerrb ba5 unle55 it is inappropriate to presume that the chartywill continue in business. The trustees are re5pon5ible for keeping properaccountin8 reciyrds whichdi5cIosewith reasonableaccurary at anytime the financial Position of the charity and to enable them to ensure that the financihl 5tatement5 comply with the Charities Act 2011, the Charity (Account5 and Reportsl Regulations 2008 and the ProviOn5 of the trust deed. They are also re5pon5ible for safeguarding the assets of the charity and hence fortaking reasonable step5 forthe prevention and detection of fraud and other irre8ularitie5. The law applicable to charitie5 sn England and Wale5 requires the trustees to prepare financial statement5 for each flnanilèl perlod whlch glve a true and fairvie¥v of the state of affaSrsof thecharityandthesurplusor deficitof the charityforthat pErfod. In preparing these statements, the trustees are re4uired to.. Select suitable accounting policies and apptythem con5i5tentty.. Makeiudgements and estimates thai are reasonable and prudent,. Follow applicawe accountin8 5tandord5. 5ubjert lo any rnalevial departure5 diK105ed and explalned in the financlal staternent5.' Prepare the finat)clal statements on an on8oin8 basis unless 6t fjs Inappropriate to assume that the charity will contlnue In business. The trustees are responsible for keepSng proper8ceountin8 records wh1chdfjscloseth feasth)ableaecuracy at any tlme the finaneia posiiion of the charity and ro enable them to ensure that the linancial sraiemenis comptywith the Charities Act 2011. They are a150 responsible for $8fe8uardin8the assetsof the charrtvand hencefortakingreasonablestepsforthe prevention and detection of fraud and other irre8ularities. 2710212024 Approved byorder ofthe board of trustees on...... . and swned on Its behalf bv.. Mr K Radllnski- Trustee Page9
Repm ofthe IndependentAuthtrKsiotheTruMees of Joln1nKjk Oplnlon We have audited the financial statements of Joining Jack (the 'ch3rity'l for the year en(led 30 April 2023 which comprise the sraremenr of Financial Activiiies. the Balance sheet. the Cash Flow 51aiemenr and notes io the financial statements. in¢lJdinE ? summary of significant accounting policie5.The financial reportirbgframeworkthat h35been applied intheirpreparation is applic3ble law and United Kingdom Accounting Standards lilnited Kingdom Gererally Accepted Atcounting Practice). In our opinion thefinancial statements.. give a true and fair view of the State of the charity's affair5 as at 30 April 2023 arwj of it5 iniornin8 resources and application of resources, forthe yearthen ended.. hawe been properly prepared in aicordance with United Kingdorn GeneraltyAc(epted Accountin8 Practice., and have been prepared in aC£Ordae with the fequirerrbentsof theCharitie5Act 2011. Ba$ls lor tylnion We conduited our audlt in atcordante with Inlernational Standards on Auditsn8 ILIKI I1$ IUKII and applicablè law. Our responsibllities under those standards are further destribed in the Auditors. respDnsibilities forthe audlt of the finaDilal statements settlon of our report. We are independent of thetharityin accordancewith the ethical requirements that are relevant to Ouf audit of the flnanclal statements in the UK. includin8 the FRC'S ElhKal Standard. and we have fulfilled our other ethical responslbllltles Sn accordance with these re4uirements. We believe that the audii ewdencewehave obuined is suffident and appropriate to provide a basis for our opln50n. Coneluslons rela tO8olhi eoneem In auditing the financial Statements. we have Conclded that the trustees. use of the 80in8 concern basls of accounting In the preparètlon of the fSnancial statements Is appropdare. Based on the work we have performed. we have not identilled an¥ material uncertaintles rdatin8 io events or condltlons that, Individually or collectively. may casi sianificani doubt on the charity's ability to continue as a 8oin8 concern for a period of at least twelve monrhs from when the financial statements are authorised for Issue. Our responsibilities and the re5ponslbllrtles ol the trustees respect to 8oln8 concern are described in the relevant Sections of this report. Oth•r Inforrnatlon The try5tee5 are responsible for the other inlormation. The other informo¢ior* comprises the information Included In the Annual Report, other th3n the financial 5r3temen153nd our Report of the Independent Auditors thereon. Our opinion on the financial statement5 does not cover the other information and. except to the extent otherwise explicltly stated In our report, we do not express any lorm of assurancecoTrclu5ion thereon. In ¢onnedion with our auditof the financial 5tatement% our responsibility 1$ lo read the other information Jnd, in doing 59, consider whether the other information 15 rnaterially inconsistent with the financial 5tatement5 or our krwledge obtained in the audit or otherwise appear5 to be Materially misstated. If we identify Such material inconsistencies or appareni material misstatement5, we are required to determine ¥vhether this 8ive5 rise to a rnaterial misstatement in the financial statements thern5elves. If, based on the work we have perforrned, we conclude that there 15 a material fflbsstatement ol thi5 Other information, we are required to report that fact. We have nothin¥ to report in thi5 re¥afd. Matters on whith we art reouirtdto ieport byexteption Wp have nothing tg repart in respectof thefollowin8 matters wherethe CharTties IAc¢ount$3nd Reports) Re8ulation$ 2rK18 requlres U5 to report to you if, in our okNnion'. the inf¢rmatlon glven in the Report of the TrustÈes is inconsistent in any material respettwith the financlal statements.. er Sufficient aiiountill8 record5 have not bEen kept,. or the financial statements are nor in agreement with the accounti records and retums,. or we have not received all the informati¢Jn and explanations werequirefor¢)uraudil. Responslbllltles of irusiees A5 explained morefully in the statement of Trustee5' Responsibilitie%thetrusree5arere5wnsiblelorthe preparation of thefinanci31 srèremenrs which give a rrue and fair View. and for such internal control as rhe trusrees detemiine is necessary ro enable the preparation of financial statements that are free from rnaierial misstatement. wherher due to fraud or error. In preparing the financiil statements. the trustees are responsible fof a$5essing the chèrity's ability to continue a5 a going concern. disclosing, 35 3pplicable. matters related togoing toncern and usingthe gtxneconcern bas15 of actounting nsS the trustees either intend to liquidate the charty or to cease operations. or have no realisiic ahnatiVe buttodo so. Page 10
Re ofthe IndependentAuthttystothÈTruÈeS of JoithingJadE Our responsibilities for the audit olthe fihantial atements We have been app¢inted as audiiors under Sertion 144 of the Charities Acr 2011 and reporr in accordantr with theArtand relevant regulations made or having elfed thereunder. Our objectives are to obtain reasonable assurance aF)ur whether the financial sraremenrs as a whole are free from matenal misstatement, whether due to fraud or error, and to 155ue a Report ol the Independent Auditor5 that includes our opinion. Reasonable assurance is a high level of assurance. but is not a guaraniee ihar an audii condurted in accordance wilh 15As IUKI will always detect a material rnisstatement when it exi5tk Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonabty be expected to influence the econornic dec15ions of users taken on the bas15 of these financial 5tatement5. Irre8ularitie5, including fraud, are instances of non-cornpliance with laws and re8ulation5. We design procedures in line with our re5pon5ibilities, outlined above, to detect material mi55tatement5 in re5pectof irregularities inrludin8fraud. The extent to which our procedures are capable of detecting irregularities, includingfraud. is detailed bek)w. We identified area5 of law5 and re8ulation5 that could reasonably be expp£ted to have a material effett on the financlal statements from our general comfflercial and 5eitor experience, through di5CUSSlOll Wlth the directors and other management la5 required bv audltln8 Standardsl, and ITOM inspedion of the chariws Tegulatory and legal iorre5pondente 3nd dixu$5ed with the directors and other management the polities and pr¢xedures regarding Compliance with laws and re8ulatlons. We communltated Identlfled laws and re8ulations throughout our team and remained alert to any indicatths of non-tompliante throughout the audit. The potential effect of these laws and reeulationson the financial statements varies£ot)slderai4v. Firstly, the charity IS subject to law5 and reÉulations rhat directly ae¢l ihe financial statements Includlng financlal reporting we a55e5sed the extent of compliance wth these laws and regulations as part of our procedure5 the related financial statement Items. OwSng to the inherent linTritatlons of an audlt. there Is a ris that we will not detect all irreiularltles. including those leadlng to i material mlsst3tement In the financial statements or non-compliènce wilh re8ulation. This risk Increases the more rhat compliance with a13w or regularion Is removed from the events andtransxrions reftected in the financial 5tarements, aswe wlll be le55 likely to become aware of instances of non-comSanCt. The nsk Is a150 grearer re8ardin8 irregularities occurrin8 due to fraud rather than error. a5fraud involves intentlonal con¢ealment. for8ery. collusion. omission or mi5repre5entstiOn. A further description of ovr responsibilities for rhe of rhe financial stslements is located on the Financlal Reporting Councll's web51ie at www.frc.v8.uklauditorsresponsibilitie5. Thi5 de%riplion form5partof our Report of the Independent Auditor5. Use of our report Thi5 reporr is made solely ro the charity's rrv5tees, as a bo(ty. in accordance with Part 4 of the Charitles IAccounts and Report51 Regulations 2fy)8. Our audii work has been undertaken 50tharwe mi8hl slate ¢othe charity's Iru5tees those matterswe are required to state to them in an auditors. report and for no other purwjse. To ihe hjllest eent permitted by law, we do not accept or a55ume re5pon5ibility to anyone other than th¢ rharity and the rharity'5 trustees as • body, for our audit work. for thi5 report, or for the opiriion5 we have lorrned. Cathprine Ro8er5 Bst FCA (Senior Ststutory Audftorl NRB 1st Fluor Watpr5ide House Waterside Drive Wlgan Lanca5hire WN3 5AZ 2710212024 Date-. Page 11
JOININGJACK Statemerf of Finantkl AtUvit(es FOR THE YEAR ENOED 30APRIL 2023 30.4.23 Unrestricted fund 30.4.22 Total funds Notes INCOME AND ENDOWMENTS FROM Don8tions and legacies 9Z,281 90,623 other tradin8 aaivities Inve5trnent income 81,375 227 83,175 15 Total 173.883 173.813 EXPENDITURE ON Raising funds 137.338 IZ4.781 Charitable artlvities Fundin8 research 486,124 112,688 Other 41.694 522,347 Total 665,156 759.816 MET INCQMEIIEXPENOITUREI 1491,2731 1586,fK131 RE¢ONCILIAmOFI OF FUNDS Toial funds broughi forward 2,369,131 2,Y55,134 TOTAL FUND5 CARRIEO FORWARD I,877,858 2.369.131 The note5form part ofthe5e financial statements Page 12
JOINIMG JACK 8alante Str*et 30 APRIL 2023 30.4.23 Unrestricted fund 30.4.22 Total funds Notes FIXEOA55Ers 13 14 163 42,205 204 74,737 Social investments 42.368 74.941 CURRENT A55ET5 Stock5 Debtors Cash at bank 15 16 322 322 IA44,688 2,297,808 1,845,495 2,298.615 CREDITORS Ameunrs falling due within one year 17 110.0051 14.4ZS1 MET CURRENT A$5ETS 1,835,490 2.294.190 TOTAL ASSET5 LESS CURREpif LIAeiuriES 1,877.858 2.369.131 mETET5 1,877.858 2.369.131 FUNDS Unre51ricted fund5 1.877,858 2,369,131 TOTAL FUNDS 1,877,858 2,369,131 2710W2024 The finarttial statements were approved by tho Ooard ol Tvustees ènd authorised lor issuè on............................................. and were Sl8ned on its behalf by.. Mr I Whitworth- Trustee The note5form part ofthe5e financial statements Page 13
JOININGJACK Cash Flowstatement FORIHE YEAR ENDED 30APRIL 2023 30.4.23 30.4.22 Notes Cash flowsfrom operatlng artlviiles Cash generated from operations 1453.3471 169,8381 Net cash used In operating actiwties 1453,347 169,8381 Cash flowsfrom In¥estlni adi¥6*$ 227 15 Net cash provided by investin8 actmties 227 15 Chan8e In tash and tash U1VIlnIs Irb thÈ reportln¥ period Cash and cash equ1vants1t thè bt8lnnln8 01 thè rtportln8 wvlod 1453.1201 169,8231 2.297.808 2,367,631 Cash and cash ¢qulv4knts•l the of t reportlnB perlod 1.844.688 2,297,808 The note5form part of these financial statements Page 14
JOININGJACK Notes tothe Cash Flow Statement FOR THE YEAR ENDED 30APRIL 2023 RECONCIIIATION OF NET EXPENDIWReTO NETCASH FLOW FROM OPERANG ACnVITie5 30.4.23 30.4.22 Net expendltureforihe perhjd las perthe smementof Flnantlal Adivitiesl Adjustments for: Depreciation charges Interest received Losses/lgain51 on investments Increase in debtor5 Increase/ldecreasel in creditors 1491,2731 1586,iX)31 41 12271 32,532 51 517,523 14(X)I 19941 5.S80 Net ¢ash used in operation5 1453,3471 169,8381 ANALYSIS OF CHANGES IN NET FUNDS At 1.5.22 Cash flo At 30.4.23 Net tash Cash at bank 2,297.808 1453,IZOI 1,844,688 2,297,808 1453,1201 1,844,688 Totsi 2,297,808 1453,120 1,844,688 The note5form part of these financial statements Page IS
JOIIIING JACK Note5to the Finanual Statemer FOR THE YEAR ENDED 30APRIL 2023 STATUTORY114FORMATION Joining Jack 15 a Charitable company. limr(ed byguafantee and has no share capital and is reÉistered in England and Wales. Theiornpany's re¥i5tered numberand registered offiieaddre55 can be found in the Rewrt of the Trustees. The presentation CUrrer of thehnancial statements is Pound Stedin81É1. ACCOUNMNG POUCIES sls of preparlni the flnantlal $emethts The flnancial statements ol the charity. which Ss a publSc benefft entity under FRS 102, have been prepared Sn accordance with the Charlties SORP IFRS 1021'AccountinÉ and Reporting by Charrties." Statement Of Recommended Prartice applicable to charities preparin£ their accounts in accordance with the F)ancial Reporting siandard applicable in the UK and Republic ef Ireland IFRS 1021 leffettsve l January 20191., Finantial Reporting Standard 102 The Financlal Reportlng Standard appllcable Sn the UK and Republic ol Irdand. and thecharities Aci 2011. Thefinanclal statements have been prepared under the hlstorScal cost convention. Income All Income is reco8nlsed In the Statement ol Financial Activities once the£harfty has entltlement to the funds, It is probèble that the income will be receNed and the amount can be measured reliably. Expenthu Liabilities are recc8nised as expendStureas soon as there Is a le8al orconstructlve oL418atlon commlttSn8 the £harlty to that expenditure, It is probable that a transfer of economic benefits will be required in setrlement and the amounr of the ebll8aiion can be measured reliably. Expenditure is accounted foron an accnthls basis and hasbeen classified under headln85 that a68reÉate all cost related to the cate80ry. Where costs cant)ot be directl¥ attributed to partlcular headin8S they have been allocated to athvities on a basts cOSOI wih the use ol resources. Grants offered subject to condltions whlch have not met at the year end date are noted as a commitment but not accrued as expendlture. Tangle flxed as5 Depreciation is provided at thelollowiwannual raiesin order to wrrte off each a55etover It5 estimated useful Ilfe. 20%on reducSw balance 5oclal Investments 5oclal Investments comprSse pro8ramme related investments which are measured at cost less Impairment. Stocks Stoik5 are Valued at the lower of cost and net realisable value. after makin8 due albwance for obsolete and slow movln8 Items. Taxfjon The chadty Is exempt from tax on its chafftat4e attNities. Fund accountlng Unrestricted funds can be used In accordance with the charitae oble£tlves at the discretion of the irustees. Restricted funds can only t* used for particular rtstricted purposes within tht objtcts of the charity. Restrlctions arlse when specified by the donor orwhen funds are raised for particular resrrirted purposes. Pet10 ¢ostsat)d her 51-mOrement beTreffts The charity operares a defined contriburion pension scheme. Contributions payable to the charity's pension scheme are charged ro rhe sr3rement of Financial Aciivities in the period to which they relate. GolnE concern After re¥iewinE rhe company's forecast and projeuions. rhe trustees have a reasonable eKpecrarion that rhe charity has adequate resourcestocontinue inoperaiionalexistence fortheforeseeaNe furure.The charity rherefore conrinuesto adopt the going concem basis In preparingihe financial statement> Page 16 continued...
JOINING JACK Notes totheF1Clll Statements- continued FOR ThEYEAR ENLED 30APRIL 2021 DONATIONSAND LEGACIES 30.4.23 30.4.22 Donation5 92,281 90,623 OThER TRADING AVITIEs 30.4 23 30.4.22 Fundraising events Merchandise sale5 80.645 730 82.871 304 81,375 83,175 INVESTMÉNT INCOMe 30.4,23 30.4.Z2 Dep051t account interest 227 15 RAISING FUNDS A•lsln8 d¢ntSonsnd le8acl•s 30.4.23 30.4.22 Stoff c05tS Rent Fundraisln8 co#s Travel costs Postage, staOnery and suNdry Cornputer c05tS Depreciation Gevemment Grants 61.757 54,611 2,400 10.489 1,412 840 2,535 si 18,1691 2.516 2,164 1,838 3.460 41 74.176 64,169 Other tradln8actlvitles 30.4.23 30.4.22 Purcha5e5 Support cost5 63,162 6D,932 13201 63,162 60,612 Aggregate amounis 137.338 124,781 Page 17 continued...
JOINING JAC P*)tssttrthE Finartial StaternEnts. continued FOR THE YEAR ENDED 30 APRIL 2023 CHARITABLE ACTIVITIES COSTS Grant funding of (see note Fundirig research 486,124 GRAIITS PAYABLE 30.4.23 30.4.22 Funding research 486,124 112.688 The total grants paid to in5titutionsdvringtheyearwas as follow5.. 30.4,23 30.4.22 Duchenne UK Grant Call 486,124 112,688 5UPPORTC05TS Governance cost5 Other resources expended 7,946 io. AUOThORS' REMUNERATION 30.4,23 30.4.22 Fees payable to the charity's audStors for the audit of the charity's financlal statements 5,399 3.502 ii. TrUSTEES' REMUNEAATrON AND OENESITS There were no trustees, rernvneration or other beneh.ts for the year ended 30 April 2023 nor for the year ended 30April 2022. Trustees. expenses There were no rrustees. expenses paid for the year ended 30April 2023 nor for the year ended 30 Apri12022. Page 18 continued...
JOINING JACK Notes totheF1C1II Statements- continued FOR ThEYEAR ENDED 30APL 2021 12. STAFF COSTS 30.4.23 30.4.22 Wa¥e5 and 5alarie5 Other pension costs 61.757 1.216 54,611 I,(A)2 62,973 55,613 The averaÉe monthly number ol employees durin8 iheyear wasas fdlows.. 30.4.23 30.4.22 Cosrs of 8eneratin8 Voluntary income Research and tampai8nin8 No employees recefved emoluments in excessof £60.rxiJ. 13. TANGIBLE FIXED ASSErs and COST At l May 2022 and 30 Aprll 2023 1.461 DEPRECIATION At l May 2022 Char8e for year 1,257 41 At 30 April 2023 1,298 NET eooK VALUE At 30 April 2023 163 At 30 April 2022 204 14. SOCIAL INVESTMENT5 JoininÉ lack 15 a shareholder Sn thJchenne Resear£h ILIKI It)vestment Ltd IDRILI. a company incorporated in the UK as a compan¥ Ilmlted by shareson 9 December 2014. Alex johnson, one of the foundetsof Joinin8 Jack. isa dirertor of DRIL. The purpose of DRIL ls to Invest in SOLID Bitsscnces. SOLID Biostiences undertakes gene therapy-based regearch Into Duchenne Muscular Dystrophy and drug developmeni and treatments in connedion therewrfth. SOLID Biosciences Is listed On Nasdaq. In October 2022, SOLIO Bioscnces implemented a l-for-15 reverse split of its common stock, resultinE in the number of shares held by DRIL reducinE from 5ZO.477 to 34.698. At 30 April 2023. the share price of SOLID Biosciences had Increased due rothe l-for-15 reversesplrt of itscommon srock. Asa result. Ihe markervalueof the investment in DRIL asat rhe balance sheet date isshowsa revaluation of £32,53212022- £517,523) compared to the oriÉinal cost of £1,073,399. Page 19 continued...
JOINING JAC P*)tsstothE Fwbartial StaternEnts. continued FOR THE YEAR ENDED 30 APRIL 2023 15. STOCKS 30.4.23 30.4.22 Stocks 322 322 16. DEBTORS: AMOUNTS FALU14G DUE WITHIN ONE YEAR 30.4.23 30.4.22 Gift Aid debtor Prepayments 85 85 400 485 17. CREOITORS.. AMOUNTS FALLING OUE WITHIN ONE YEAR 30.4.23 30.4.22 Taxation and soclal securlty other credltors 113 9,892 1.270 3,155 10,005 4.425 18. MOVEMENT IN FLII4DS Net movement in funds At 30.4.23 At 1.5.22 Llthrestrkted General fund 2.369,131 1491.2731 1,877,858 TOTAL FUNDS 2,369.131 491,2731 1,877.858 Net movernent in funds, included in theabtsveare 8sfollows= Int¢min8 Resources expended Movement in funds Llnrestrkted funds General fund 173,883 1665.1561 1491,2731 TOTAL FUNDS 173,883 1665,1561 1491,2731 Page 20 continued...
JOINING JACK Notes totheF1Clll Statements- continued FOR ThEYEAR Et4LED 30APRIL 2021 18. MOVEMENT IN FUI4DS. ttsntinued Compar*i¥es for movemefit im luhds Net mavement in funds At 30.4.22 At 1.5.21 Llnrtstrkted lunds General fund 2.955,134 1586.OD31 2,369.131 TOTAL FLINDS 2,955.134 1586,OD31 2,369,131 Comparative net movement in lund5. included in theaboveare35 lollow5'. Incoming re50vrce5 Resource5 expended Movement in fund5 Unrestrkted fund5 General fund 173,813 1759,8161 1586.(K131 TOTAL FUNDS 173,813 759,8161 586.ClJ31 A current year 12 month5 prior year 12 rnorbths ¢ombined pOtIOn is #s follows.. Net movement in funds At 30.4.23 At 1.5.21 LInr¢¥trkt funds General fund 2.955,134 11.077,2761 1.877,858 TOTAL FUNDS 2.955.I34 11.077,2761 1,877.858 A currenr ye3r 12 month5 énd prior year 12 month5 combined net movement in funds, included in the above are as follow5.. Incoming re50urce5 Resources expended Movement in fund5 Llnre5tricted lunds General fund 347,696 11,424,972) 11,077,276) TOTAL FUNDS 347,696 11,424,972) 11.077,2761 Page 21 continued...
JOINING JAC P*)tsstothE Fwbartial StaternEnts. continued FOR THE YEAR ENDED 30 APRIL 2023 19. RELATED PARTY DISCLOSURES There were no related party transaction5 for Ihe yeaTended 30 April 2023. Page 22 continued...
JOININGJACK De1d Ststemertof Flnathdal Actl¥itles FORIHE YEAR ENDED )APL 2023 30.4.23 30.4.22 INCOME AND ENDOWMENTS Donadons and legacles Donations 92.281 90.623 other tradin8 artivitles Fundraising events Merchandise sales 80,645 730 82,871 304 81.375 83,175 Inve5tm•nt inwme Deposit account interest 227 15 Total IncomlTh8 resources 173.883 173,813 EXPENOITURE Ralslnz donat10 and le8a¢le5 Wages Rent Fundra15ing c05t5 Tr3vel costs Postage, Stationery and sundrv Cornputef costs Depreciation of fixtur¢5 and fittin85 fjgvernrnent Grant5 61,757 54,611 2,400 10,489 1,412 840 2,535 51 8,1691 2.516 2.164 1.838 3,460 41 74.176 64,169 Other tradln8 act1v$ C05t of evenrs 63.162 60,932 Ch4rftoble a(¢lvltl¢s 486.124 112,688 Other Pen510ll5 Impalrment losses for intan8ible fixed assets 1,216 32,532 1,002 517,523 33.748 518,525 SuppDrt costs Govemante costs Auditors. retnuneration Actountancy and le8al fees 5.399 2,547 3,502 7,946 3,502 Total resources expended 665.156 759,816 Net expenditure 1491,2731 1586,0031 Thi5 page doe5 riotform part of the statutoryfinancial statements Page 23