Ciliopathy Alliance
- Country
- England & Wales
- Charity number
- 1148034
- Status
- Registered
- Registered
- July 10, 2012
- Legal form
- Charitable company
Address
- Address
- INSTITUTE OF CHILD HEALTH
30 GUILDFORD STREET
LONDON
WC1N 1EH
Contact
- Phone
- 07836686322
- [email protected]
- Website
ciliopathyalliance.org
Activities
Organising & participating in conferences, seminars, workshops etc for health professionals & researchers; organising conferences for ciliopathy support groups; publishing information & educational materials; promoting nationally & internationally the interests of people with ciliopathies; encouraging integrated health & social care; promoting patient involvement in research/clinical management.
Objects: To Relieve Sickness And Promote And Protect Good Health Of Children And Adults Living With Ciliopathies, With A View To Improving Their Conditions Of Life.
Classification
- How
- Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- What
- The Advancement Of Health Or Saving Of Lives
- Who
- Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies
Areas of operation
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| March 31, 2025 | £1,689 | £10,352 |
| March 31, 2024 | £1,201 | £2,147 |
| March 31, 2023 | £398 | £1,950 |
| March 31, 2022 | £6,134 | £401 |
| March 31, 2021 | £24,148 | £357 |
Trustees
| Name | Appointed |
|---|---|
| Audrey Hughes | Oct. 21, 2025 |
| Dr Elizabeth Forsythe | Feb. 28, 2017 |
| Dr Hannah Margaret Mitchison | Oct. 9, 2018 |
| Dr Rhoda Akilapa | Oct. 21, 2025 |
| Dr Roly David Megaw | May 31, 2022 |
| Fiona Jayne Copeland | Feb. 23, 2022 |
| Kerry Leeson-Beevers | June 21, 2023 |
| Tonia Louise Hymers | March 3, 2022 |