{"country": "England & Wales", "charity_number": "1148034", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1148034", "name": "CILIOPATHY ALLIANCE", "known_as": null, "other_names": [], "status": "Registered", "date_registered": "2012-07-10", "date_removed": null, "legal_form": "Charitable company", "area_of_benefit": null, "address": "INSTITUTE OF CHILD HEALTH, 30 GUILDFORD STREET, LONDON", "postcode": "WC1N 1EH", "phone": "07836686322", "email": "fiona.copeland@stonac.co.uk", "website": "www.ciliopathyalliance.org", "lat": 51.523366, "lng": -0.120462, "activities": "Organising & participating in conferences, seminars, workshops etc for health professionals & researchers; organising conferences for ciliopathy support groups; publishing information & educational materials; promoting nationally & internationally the interests of people with ciliopathies; encouraging integrated health & social care; promoting patient involvement in research/clinical management.", "purposes": null, "what_charity_does": null, "charitable_objects": "TO RELIEVE SICKNESS AND PROMOTE AND PROTECT GOOD HEALTH OF CHILDREN AND ADULTS LIVING WITH CILIOPATHIES, WITH A VIEW TO IMPROVING THEIR CONDITIONS OF LIFE.", "classifications": [{"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "How", "code": 309, "description": "Acts As An Umbrella Or Resource Body"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 202, "description": "Elderly/old People"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}, {"type": "Who", "code": 205, "description": "Other Charities Or Voluntary Bodies"}], "areas_of_operation": [{"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 1689, "latest_expenditure": 10352, "fin_period_start": "2024-04-01", "fin_period_end": "2025-03-31", "financial_years": [{"start": "2024-04-01", "end": "2025-03-31", "income": 1689, "expenditure": 10352, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2023-04-01", "end": "2024-03-31", "income": 1201, "expenditure": 2147, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2022-04-01", "end": "2023-03-31", "income": 398, "expenditure": 1950, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2021-04-01", "end": "2022-03-31", "income": 6134, "expenditure": 401, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2020-04-01", "end": "2021-03-31", "income": 24148, "expenditure": 357, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}], "documents": [], "trustees": [{"name": "Audrey Hughes", "chair": false, "appointment": "2025-10-21"}, {"name": "Dr Elizabeth Forsythe", "chair": false, "appointment": "2017-02-28"}, {"name": "Dr Hannah Margaret Mitchison", "chair": false, "appointment": "2018-10-09"}, {"name": "Dr Rhoda Akilapa", "chair": false, "appointment": "2025-10-21"}, {"name": "Dr Roly David Megaw", "chair": false, "appointment": "2022-05-31"}, {"name": "Fiona Jayne Copeland", "chair": false, "appointment": "2022-02-23"}, {"name": "Kerry Leeson-Beevers", "chair": false, "appointment": "2023-06-21"}, {"name": "Tonia Louise Hymers", "chair": false, "appointment": "2022-03-03"}]}